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PROMOTING TRANSPARENCY IN SOCIAL SCIENCE RESEARCH SESSION: OPEN DATA AND PROTECTION OF RESEARCH SUBJECTS DECEMBER 1213, 2013, UC BERKELEY Mercè Crosas, Ph.D. Twi3er: @mercecrosas Ins9tute for Quan9ta9ve Social Science Harvard University

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Page 1: PROMOTING)TRANSPARENCY)IN) SOCIAL)SCIENCE)RESEARCH) · 1.)an)integrated)publishing) workflow)foropen) data)) 2.)datatags:)sharing)even) sensitive)datawith)confidence)

PROMOTING  TRANSPARENCY  IN  SOCIAL  SCIENCE  RESEARCH  SESSION:  OPEN  DATA  AND  PROTECTION  OF  RESEARCH  SUBJECTS      DECEMBER  12-­‐13,  2013,  UC  BERKELEY  

Mercè  Crosas,  Ph.D.  Twi3er:  @mercecrosas  Ins9tute  for  Quan9ta9ve  Social  Science  Harvard  University    

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1.  AN  INTEGRATED  PUBLISHING  WORKFLOW  FOR  OPEN  DATA    2.  DATATAGS:  SHARING  EVEN  SENSITIVE  DATA  WITH  CONFIDENCE  

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AN  INTEGRATED  PUBLISHING  WORKFLOW  FOR  OPEN  DATA  

Enabling  data  deposit  to  a  public  repository  as  part  of  ar9cle’s  submission  to  a  journal  

3  h3p://projects.iq.harvard.edu/ojs-­‐dvn    

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4  

Journal’s  Publishing  System    ArQcle  Submission  Workflow  

Open  Data  Repository    Data  Sharing  Workflow  

Plugin  for  Data  Deposit    1)  Enter  cita9on  

metadata      2)  Select  data  Files  

Dataset  (metadata  +  data)  in  review,  not  released  

Deposit  metadata  +  data  files  

Insert  Data  Cita9on  to  References  sec9on  

Get  data  cita9on  

Dataset  (metadata  +  data)  released  

Release  data  when  ar9cle  is  published  

Page 5: PROMOTING)TRANSPARENCY)IN) SOCIAL)SCIENCE)RESEARCH) · 1.)an)integrated)publishing) workflow)foropen) data)) 2.)datatags:)sharing)even) sensitive)datawith)confidence)

Pilot  Project:  Integrate  PKP’s  Open  Journal  System  (OJS)  with  Dataverse    

OJS  plugin  for:    Data  +  metadata  +  suppor9ng  files,    sent  via  SWORD  API  to  the  Dataverse  

Harvard  Dataverse  Network  OJS  Journal  

Page 6: PROMOTING)TRANSPARENCY)IN) SOCIAL)SCIENCE)RESEARCH) · 1.)an)integrated)publishing) workflow)foropen) data)) 2.)datatags:)sharing)even) sensitive)datawith)confidence)

Published  ArQcle  +  Link  to  Data  

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Data  in  the  Dataverse  +  Link  to  ArQcle  

Page 8: PROMOTING)TRANSPARENCY)IN) SOCIAL)SCIENCE)RESEARCH) · 1.)an)integrated)publishing) workflow)foropen) data)) 2.)datatags:)sharing)even) sensitive)datawith)confidence)

Progress  to-­‐date  

Phase  I:  Completed  tes9ng  with  50+  journals  from  6  Publishers.  Phase  II:  Extend  tes9ng  to  >100  journals  (2014)  

Page 9: PROMOTING)TRANSPARENCY)IN) SOCIAL)SCIENCE)RESEARCH) · 1.)an)integrated)publishing) workflow)foropen) data)) 2.)datatags:)sharing)even) sensitive)datawith)confidence)

DATATAGS:  SHARING  EVEN  SENSITIVE  DATA  WITH  CONFIDENCE      A  standardized  framework  for  sharing  data  when  data  cannot  be  100%  open  

Mercè  Crosas,  Latanya  Sweeney,  Michael  Bar-­‐Sinai    

h3p://privacytools.seas.harvard.edu/  

Page 10: PROMOTING)TRANSPARENCY)IN) SOCIAL)SCIENCE)RESEARCH) · 1.)an)integrated)publishing) workflow)foropen) data)) 2.)datatags:)sharing)even) sensitive)datawith)confidence)

Tag  Type   DescripQon   Storage  &  Transit  

Access  

 Blue  

Non-­‐confidenQal  informa9on,  stored  and  shared  freely.    

 Clear  

 Open  

 Green  

Not  harmful  personal  informa9on,  shared  with  some  access  control.  

 Clear  

Email,  OAuth  verified  registra9on  

 Yellow  

PotenQally  harmful  personal  informa9on,  shared  with  loosely  verified  and/or  approved  recipients.  

 Clear  &  Encrypted  

Password,  Registered,  Approval,  click-­‐through  DUA  

 Orange  

SensiQve  personal  informa9on,  shared  with  verified  and/or  approved  recipients  under  agreement.  

 Encrypted  

Password,  Registered,  Approval,  signed  DUA  

 Red  

Very  sensiQve  personal  informa9on,  shared  with  strong  verifica9on  of  approved  recipients  under  signed  agreement.  

 Encrypted  

Two-­‐factor  Auth,  Registered,  Approval,  signed  DUA  

 Crimson  

Maximum  sensiQve,  explicit  permission  for  each  transac9on,  strong  verifica9on  of  approved  recipients  under  signed  agreement.  

 Double  Encrypted  

Two-­‐factor  Auth,  Registered,  Approval,  signed  DUA  

Extension  of  and  compliant  with  Harvard  Security  Levels:  h3p://security.harvard.edu/research-­‐data-­‐security-­‐policy    

Page 11: PROMOTING)TRANSPARENCY)IN) SOCIAL)SCIENCE)RESEARCH) · 1.)an)integrated)publishing) workflow)foropen) data)) 2.)datatags:)sharing)even) sensitive)datawith)confidence)

Dataset  

Interview  

Handling-­‐Access  Control  

DUAs,  Legal  Policies  

Data  Tags  

Dataset  

Shame  

Civil  Penal9es  

Criminal  Penal9es  

Max  Control  

No  Risk  

Minimal  

Dataset  

Minimal  

Differen9al  Privacy  Custom  

Agreement  

Dataset  Direct    Access  

Criminal  Penal9es  

Dataset  

Privacy  Preserving  Access  

Minimal  

SDC  Methods  

Synthe9c  Data  

Safe  Harbor  

Page 12: PROMOTING)TRANSPARENCY)IN) SOCIAL)SCIENCE)RESEARCH) · 1.)an)integrated)publishing) workflow)foropen) data)) 2.)datatags:)sharing)even) sensitive)datawith)confidence)
Page 13: PROMOTING)TRANSPARENCY)IN) SOCIAL)SCIENCE)RESEARCH) · 1.)an)integrated)publishing) workflow)foropen) data)) 2.)datatags:)sharing)even) sensitive)datawith)confidence)

Two  Factor  

Page 14: PROMOTING)TRANSPARENCY)IN) SOCIAL)SCIENCE)RESEARCH) · 1.)an)integrated)publishing) workflow)foropen) data)) 2.)datatags:)sharing)even) sensitive)datawith)confidence)

Privacy  Laws  

•  2187  privacy  related  laws  exist  in  the  United  States,  which  can  be  grouped  in  ~  30  types:      Explicit  consent,  medicals  records,  student  records,  arrest  and  convic9on  records,  bank  and  financial  records,  cable  television,  computer  crime,  credit  repor9ng,  criminal  jus9ce,  electronic  surveillance,  employment  records,  government  informa9on  on  individuals,  iden9ty  then,  insurance  records  (including  use  of  Gene9c  informa9on),  library  records,  mailing  lists,  special  medical  records  (including  HIV  tes9ng),  non-­‐electronic  surveillance,  polygraphing  in  employment,  privacy  statutes/state  cons9tu9ons,  privileged  communica9ons,  social  security  numbers,  tax  records,  telephone  services,  tes9ng  in  employment,  tracking  technologies,  voter  records.  

 

Acknowledgement:  Robert  Smith,  Latanya  Sweeney  

Page 15: PROMOTING)TRANSPARENCY)IN) SOCIAL)SCIENCE)RESEARCH) · 1.)an)integrated)publishing) workflow)foropen) data)) 2.)datatags:)sharing)even) sensitive)datawith)confidence)

Phase  I  Implementa9on,  Educa9on  and  Outreach  

 •  DataTags.org  web  applica9on,  ini9ally  suppor9ng  HIPAA  regula9ons:  

–  Explicit  Consent  –  Medical  Records  

•  Integrate  with  Secure  Dataverse  •  Alpha,  Beta  tes9ng  with  hundreds  of  Social  Scien9sts  

•  YouTube  videos  on  how  to  use  it    On  a  parallel  track:  •  HIPAA  cer9fica9on  •  Pilot  at  Harvard  Medical  School  and  School  of  Public  Health  

Page 16: PROMOTING)TRANSPARENCY)IN) SOCIAL)SCIENCE)RESEARCH) · 1.)an)integrated)publishing) workflow)foropen) data)) 2.)datatags:)sharing)even) sensitive)datawith)confidence)

DATA  TAGS  DEMO    h3p://datatags.org  Mercè  Crosas,  Latanya  Sweeney,  Michael  Bar-­‐Sinai      


SHARING SENSITIVE DATA WITH CONFIDENCE: THE DATATAGS SYSTEM · SHARING SENSITIVE DATA WITH CONFIDENCE: THE DATATAGS SYSTEM ... , Bar-Sinai M. Sharing Sensitive Data with Confidence:

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