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Proudly Brought to you by Reach Outt at Engage@Central For The Amanda Young Foundation Amanda Young Awareness Day

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Amanda Young Awareness Day. Proudly Brought to you by Reach O utt at Engage@Central For The Amanda Young Foundation. Amanda Louise Young 6 th of September 1979 - 12 th of October 1997. Some people enter our lives and stay a while Others come, we blink and are gone - PowerPoint PPT Presentation

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Page 1: Proudly Brought to you by Reach  O utt  at  Engage@Central For  The Amanda Young Foundation

Proudly Brought to you by

Reach Outt at Engage@CentralFor

The Amanda Young Foundation

Amanda Young

Awareness Day

Page 2: Proudly Brought to you by Reach  O utt  at  Engage@Central For  The Amanda Young Foundation

Amanda Louise Young

6th of September 1979 - 12th of October 1997

Some people enter our lives and stay a whileOthers come, we blink

and are goneBut they leave their

signatures on our heartsAnd we are never the

same again.Courtesy Adrian Monger

Page 3: Proudly Brought to you by Reach  O utt  at  Engage@Central For  The Amanda Young Foundation

• The Foundation was formed by Amanda’s parents Barry and Lorraine Young in 1998 following her tragic death from meningococcal septicaemia at the tender age of 18 years.

• The Amanda Young Foundation is a non-profit community organisation dedicated to reducing deaths in WA from meningococcal disease, and supporting survivors of the disease.

• The Foundation is also committed to supporting the development of young people into WA’s future leaders

Support, awareness and reducing deaths in WA from meningococcal disease.

Barry and Lorraine Young, founders of The Amanda Young Foundation. Photograph taken in ‘Amanda’s Memorial Garden’

Page 4: Proudly Brought to you by Reach  O utt  at  Engage@Central For  The Amanda Young Foundation

Meningococcal Awareness and

Education Increasing awareness and

educating the community and medical profession regarding

meningococcal disease;

Funding Research Providing funding for

relevant medical research and encouraging

increased research into meningococcal disease;

Young Leaders Summit

Organising an annual camp for year 11 school students

across the state to support and

encourage the development of leadership skills

Fundraising EventsMain annual events include the Amanda Young Foundation

Charity Ball held in May each year, the Open

Garden at Romancing the Stone garden in

Maida Vale, and Amanda’s Garden

Fete, a weekend event in October each year.

Helping Our Community

Page 5: Proudly Brought to you by Reach  O utt  at  Engage@Central For  The Amanda Young Foundation

MENINGOCOCCAL DISEASE

Page 6: Proudly Brought to you by Reach  O utt  at  Engage@Central For  The Amanda Young Foundation

Meningococcal disease is a severe bacterial infection of the bloodstream or meninges (a thin lining covering the brain and spinal cord) caused by the meningococcus germ that can cause death within hours if not recognised or treated in time.

Meningococcal disease is caused by bacteria (germs) called meningococci, also known as Neisseria meningitidis.

This disease is caused by a bacteria, NOT by a virus.

These bacteria are divided into 13 ‘serogroups’.

In Australia, serogroup B is the cause of most meningococcal disease (Better Health Channel, 2011)

What is MENINGOCOCAL DISEASE?

Page 7: Proudly Brought to you by Reach  O utt  at  Engage@Central For  The Amanda Young Foundation

Meningitis (bacterial form) Septicemia (blood poisoning) or as a combination of both.

10% of those infected will DIE.

20% will have permanent DISABILITIES.

What is MENINGOCOCAL DISEASE?

This disease can appear in several different forms

Page 8: Proudly Brought to you by Reach  O utt  at  Engage@Central For  The Amanda Young Foundation

WHO’S @ RISK?

Page 9: Proudly Brought to you by Reach  O utt  at  Engage@Central For  The Amanda Young Foundation

• Babies and

children up to the age of 5 years –

this group accounts for two thirds of cases (due to their less

mature immune

system and tendency to put things in their mouth and share food, drink and toys).

• Teenagers and young adults from

15 to 25 years – primarily

because of the socially

interactive lifestyle they lead, which is more likely to

involve intimate

activities such as kissing and sharing drinks.

• Smoking and passive smoking – increase the

risk of infection.

• Winter and early spring –

the many viruses around can weaken the body’s natural

immune system. There's also the risk of

catching a virus first,

followed a few days later by a meningococcal

infection, making the illness much

harder to identify.

WHO’S @ RISK?Meningococcal disease can strike both children and adults anywhere, at any time. But those most at risk are:

Page 10: Proudly Brought to you by Reach  O utt  at  Engage@Central For  The Amanda Young Foundation

SIGNS & SYMPTOMS

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1. Fever2. Refusing to take feeds3. Irritability, fretfulness4. Grunting or moaning5. Extreme tiredness or

floppiness6. Dislike of being

handled7. Nausea and/or vomiting

8. Diarrhoea9. Turning away from light

(photophobia)10.Drowsiness11.Convulsions or

twitching12.Rash of red–purple

pinprick spots or larger bruises.

Symptoms in infants and young children

Page 12: Proudly Brought to you by Reach  O utt  at  Engage@Central For  The Amanda Young Foundation

1. Fever2. Headache3. Loss of appetite4. Neck stiffness5. Discomfort when looking at

bright lights (photophobia)6. Nausea and/or vomiting7. Diarrhoea8. Aching or sore muscles9. Painful or swollen joints

10. Difficulty walking11. General malaise12. Moaning, unintelligible

speech13. Drowsiness14. Confusion15. Collapse16. Rash of red–purple pinprick

spots or larger bruises.

Symptoms in older children and adults

Page 13: Proudly Brought to you by Reach  O utt  at  Engage@Central For  The Amanda Young Foundation

CATCHING THE DISEASE

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Meningococcal disease is caused by bacteria, NOT by a virus.

It is transmitted via saliva

Meningococcal bacteria can live harmlessly in our throat and nose

Around 20% percent of people will be carrying these bacteria at any one time without ever becoming ill.

In fact, all of us will carry them at some stage in our lives

Page 15: Proudly Brought to you by Reach  O utt  at  Engage@Central For  The Amanda Young Foundation

High risk environments:

Day care Nightclubs School camps Parties Etc

• Spreading of bacteria by:

Sneezing Intimate kissing Coughing Sharing food or

drinks

Page 16: Proudly Brought to you by Reach  O utt  at  Engage@Central For  The Amanda Young Foundation

THE DEADLY RASHA distinctive appearance of a rash is often the FINAL DEADLIEST symptoms of septicaema.

Page 17: Proudly Brought to you by Reach  O utt  at  Engage@Central For  The Amanda Young Foundation

The bacteria leak poisons which damage the walls of the blood vessels, so the blood leaks into the skin – causing the rash.

It can start off either as a pink rash, or as tiny red or purple blood spots, like pinpricks, anywhere on the body – which rapidly spread into purple blotches or bruises.

The victim can literally bleed to death if not treated in time.

What causes the rash?

Page 18: Proudly Brought to you by Reach  O utt  at  Engage@Central For  The Amanda Young Foundation

Image 1:The rash has many stages and forms

Image 2:The bacteria leak poisons which damage the walls of the blood vessels, so the blood leaks into the skin – causing the rash.

Image 3:It may start off anywhere on the body – as a faint pink rash, a red spot or blister, or as tiny red or purple pinpricks.

Page 19: Proudly Brought to you by Reach  O utt  at  Engage@Central For  The Amanda Young Foundation

The ‘Glass Test’ Some doctors and Foundations refer to

the ‘drinking glass’ or ‘pressure' test.

Pressing a clear tumbler firmly against the rash, to see if it fades under pressure (like a harmless rash does), or stays red, indicating a septicemic rash.

The concern with this test is that it is NOT 100% reliable, especially in the early stages, and can give you a false sense of security.

You need to keep testing at regular intervals.

However if a rash appears, along with other symptoms, it's wise not to wait around trying to diagnose it yourself, but go straight to a doctor or hospital.

Image 4: The glass test

Page 20: Proudly Brought to you by Reach  O utt  at  Engage@Central For  The Amanda Young Foundation

THE LONG-TERM EFFECTS

Page 21: Proudly Brought to you by Reach  O utt  at  Engage@Central For  The Amanda Young Foundation

headaches tiredness memory loss concentration problems disruptive behaviour mood swings sight problems deafness learning difficulties

epilepsy chronic fatigue

syndrome liver or kidney failure paralysis skin scarring due to

skin grafts amputated limbs,

fingers or toes

While the majority of sufferers will make a full recovery from meningococcal disease, around 5 percent will die and another 20 percent will suffer long-term consequences, such as:

Page 22: Proudly Brought to you by Reach  O utt  at  Engage@Central For  The Amanda Young Foundation

ACTIONS & PREVENTIONS

Page 23: Proudly Brought to you by Reach  O utt  at  Engage@Central For  The Amanda Young Foundation

Be AWARE of the symptoms Be ALERT to recognise the signs Be ASSERTIVE in seeking urgent medical

treatment MONITOR the patient closely Treat the rash as EMERGENCY

Taking actions

Page 24: Proudly Brought to you by Reach  O utt  at  Engage@Central For  The Amanda Young Foundation

Don’t share:  Food, dips, ice-creams Drinks, bottles, straws Lipstick or lip gloss Toothbrushes Cigarettes Mouth guards Musical instruments 

with mouth pieces

Also:  Don't suck the end of a 

shared pen or pencil Don't suck baby's dummy 

before putting it in baby's mouth

watch out for toddlers sucking and sharing toys

Don't use anyone else's lip gloss or lipstick

Preventions

Page 25: Proudly Brought to you by Reach  O utt  at  Engage@Central For  The Amanda Young Foundation

The predominant strains of meningococcal bacteria differ from country to country, and even from region to region. Although there are NO vaccines available for all strains of the disease, there is a vaccine for C-strain. Having this vaccine means you will at least be PARTIALLY protected against meningococcal disease.

Travel vaccineThere is a travel vaccine which gives SHORT TERM protection against some of the strains more common in other countries. Check with your doctor.

WarningRemember, while vaccination will give you long term protection against the deadly C-strain, it WILL NOT protect you from catching another strain with the same symptoms, which can also cause death. So it's still important to be vigilant, and to take other precautions.

Vaccination

Page 26: Proudly Brought to you by Reach  O utt  at  Engage@Central For  The Amanda Young Foundation

Data taken from The Meningococcal site, http://www.meningococcalaustralia.org.au/the_disease.html

Page 27: Proudly Brought to you by Reach  O utt  at  Engage@Central For  The Amanda Young Foundation

The Better Health Channel, Meningococcal Disease, Retrieved: 15 November 2011, from http://www.health.ny.gov/diseases/communicable/meningococcal/fact_sheet.htm

The Meningacoccal Education, Retrived: 15 November 2011 from http://www.meningococcal.org/the_disease.html

Department of Health New York, Meningococcal Disease, July 2011, Retrieved: 15 November 2011 from http://www.betterhealth.vic.gov.au/bhcv2/bhcarticles.nsf/pages/Meningococcal_disease

The Meningacoccal, Australia be aware, Retrieved from: 15 November 2011 from http://www.meningococcalaustralia.org.au/the_disease.html

Meningococcal Australia Inc., 2003, Retrieved from: 15 November 2011 from http://www.meningococcal-australia.org.au/main/symptoms.html

References for images: Image 1: http://www.meningococcal.org/images/page_images/513.jpg Image 2: http://www.meningococcal.org/images/page_images/522.jpg Image 3: http://www.meningococcal.org/images/page_images/512.jpg Image 4: The glass test, http://www.meningococcalaustralia.org.au/img/disease-glass-test01.jpg

References: