rainbows autumn/winter newsletter 2012
DESCRIPTION
Newsletter Autumn/Winter Newsletter 2012 from Rainbows Hospice for children and young people.TRANSCRIPT
• Meet the Staff
• Our Royal Visit
• Chloe’s Story
Autumn/Winter 2012
Our new Charity Shops are opening.Have a look, they look fab.
See back page for details
Also in this issue:
Keep an
eye on our
‘top tips’
for easy ways
to fundraise
02
Contents:
03 Ourroyalvisit
04 HydrotherapyatRainbows
05 Thepatronsoffersupport
11 Meetsomeoftheteam
13 OurChelseagarden
14 BusinessClubupdate
John and Naomi’s daughter, Chloe, had complex needs which required round-the-clock care. Sadly, she passed away at Rainbows after battling many conditions including an acute neurological disorder, cerebral palsy and underlying heart conditions.
MumNaomi,said:“Chloewasafighterandshewentonherownterms.Shehadmadeuphermindthatshe’dhadenough.
“Thefamilyisjustsothankfulthatshewasn’tinpain,thatshewassurroundedbycarerswhoknewherwellandthatIgottobebyhersidewhenthemomentcame.”
Chloe,whohadbeencomingtoRainbowssinceJuly2010,waswell-knownforherirresistiblesmileandwickedsenseofhumour.
DadJohnsaid:“Shemadeeverybodysmile.Everyoneshemetshetouchedinsomeway,shapeorform.”
OverthepasttwoyearsRainbowsactedasalifelinetotheSpencersandasaresultNaomiandJohndescribethestaffasanextendedfamily.
Naomisaid:“WewerereferredtoRainbowsfollowingaparticularlydifficulttimewhenChloebecameincrediblyunwellandspentsixmonthsinintensivecareatLeicesterRoyalInfirmary.
“Theirsupportmeantsomuchtous,itprovidedmyselfandJohnwithsomerespite,andgaveChloethechancetoenjoynewexperiencesandgainindependence,whilealsoallowingouryoungerdaughter,Hannah,(6)tospendtimewithotherchildrenwhohadsimilarfamilybackgrounds.”
Chloe’sgrandparents,JillandGeraldSpencer,said:“WewouldliketothankeveryonewhohasplayedtheirpartinlookingafterChloeandthefamily.
“Withoutthatsupportwewouldnothavebeenabletoenjoyallthegoodtimessowethankyouallfromthebottomofourhearts.”
A wonderful year for royalty and sport.Thisyearhasbeenayearof
celebrationwitheventsincludingtheQueen’sDiamondJubileeand
theOlympics.Ithasbeenwonderfultoseepeoplejoiningtogethertocelebrateandenjoytheseoccasions.
ThatiswhatwedoatRainbows–weenjoyeachdayasapreciousgiftandwecelebrateeachachievement.
Wehavehadawonderfulyear–wehadaRoyalvisitfromPrincessAlexandrawhonotonlyvisited,butalsotookthetimetospeaktochildren,youngpeopleandfamiliesaswellasstaffmembers,andshemadeeachonefeelspecial.
TheChelseaFlowerShow,forthefirsttime,hadabeautifulRainbowsGardenwhichhasnowcometothehospiceandweareveryproudtoannouncethatitwonaSilverMedal.
Inthisissueyouwillmeetsomeofthepeoplewhoworkhere,andlearnmoreaboutwhatgoesonatthehospice,theoutstandingcare,thelovelyfacilitiesandourfantasticchildrenandyoungpeople.
Ihopethatyouareenjoyingcelebrating2012.Abigthankyouforreadingournewsletter,noneofthisispossiblewithoutyoursupport.
Your Support Means so Much
The Spencer Family Tell us Why
Rainbowsnews03
HerRoyalHighnessPrincessAlexandrawatchedthechildrenandyoungpeopleatRainbowsgettingcraftyforChildren’sHospiceWeekwhenshevisitedinMay.ThePrincessjoinedthechildrenandyoungpeopleastheyfinishedtheirpreparationsforthecharity’sSuperheroFridayandannualWalkofLife,partofthenationalChildren’sHospiceWeekactivity.Thechildrenweremakingsuperheromaskstobeusedonthedaysoffunandfundraising.
ThePrincesswasgivenaguidedtourbyourChiefExecutiveGeoffEllis.HerRoyalHighnessheardfromstaffabouttheprofessionalcareandsawthewonderfultherapyfacilities.
AttheendofhervisitPrincessAlexandrawaspresentedwithaposyofflowersbyEllieNemeth,agedsix,whoissisterofThomaswhoattendsRainbows.
WeweredelightedtowelcomeHRHPrincessAlexandratoRainbowsandtohavetheopportunitytoshowherthefacilities.ShewasabsolutelywonderfulandtookgreatcaretoensureshewaspersonallyintroducedtoeveryoneatRainbowsduringhertour.WehopehervisitwillinspirepeopletosupportRainbows.
Assheleft,PrincessAlexandraremarkedonhowmarvellousthefacilitiesatRainbowswereandwhatawonderfulatmospheretherewasatthehospice.
BeaTreasureandDonateYourUnwantedJewelleryIfyouhaveanyunwantedjewelleryyoucanturnitintorichesforRainbows.SimplysendittousatLarkRise,Loughborough,LE112HSordropitintooneofourshops.Thankyou.
A Royal Visitor Joins In Our Hospice Week Fun
Top Tip:
Ifyouknowany
celebrities,askthem
tovisitthechildrenat
Rainbows.
A Big Jubilee Garden PartyLeicesterbasedmarketingagency,Big,celebratedtheQueen’sDiamondJubileewithagardenpartyforRainbows.
ThescenewassetforthepartywithbrassbandmusicandUnionJackbuntinggalore.Therewerevariousgamesthroughouttheafternoonincluding“PinthecrownontheQueen”.Therewasalsoa“BakeacakefitforaQueen”competition,andallofthehomemadecakesweresoldtoraisemoremoney.
MikePhillipson,ManagingDirectoratBigcommented:“BighasbeensupportingRainbowsforoverthreeyearsnow,raisingmoneyfromeventssuchassponsoredruns,dragonboatracing,quizzes,auctionsandbingo.It’saveryworthycauseandthepartyhashelpedtoraisemore,muchneededmoneyforRainbows.”
04
OurHydrotherapyPoolopenedattheendof2010andit’snowoneofthefavouritetherapyareasatRainbows.
Thechildrenaregettingalotofenjoymentfrombeinginthewaterandtheyreallybenefitfromtheirsessions–thepooltherapyhelpstoeasestiffjoints,relieveachesandpainsandincreasemobility–allveryimportantforyoungpeoplewhouseawheelchair.
Evenchildrenwhowouldnotnormallybeabletogointoapoolhaveenjoyedaswim,thankstoourspecialiststaffandequipment.Childrenwithtracheotomies
andthosewhoarefullyventilated(usingaventilatorallthetimetobreathe)are,probablyforthefirsttimeintheirlives,usingapoolandlovingit!
Rainbowshasalsowelcomedphysiotherapiststothehospicetoworkinthehydrotherapypoolwithchildrentheyarecurrentlytreating.
Outsidegroupsincludingtwobabyswimgroupsandspecialschoolsalsocomealong.Wecanonlyrunthepoolwiththefundraisingsupportofpeoplelikeourreaders–thankyou!
TheBrearley’sFamilyWalkOnthelastdayofthefootballseasonDad,Lee,withhistwochildren,ConnorandCharlotte,walked15milesfromtheirhometoNottsCountyfootballgroundandraisedover£1,800.
ZipWireThisyearsawthefirsteverZipWireeventacrossPrideParkStadiuminDerbywhere80peopletookupthechallenge.Evenoneofourfamiliestookpart–thankstoeveryone,especiallytheFurlongs.
OurHydrotherapyPoolisLovedbyAll
David Nieper Ltd Match FundsSupervisorSueCookeandMDChristopherNieperarepicturedhandingovertheproceedsofaseriesoffundraisingeventsallofwhichwerekindlymatchedbythecompany.Theyhaveraised£2,300todateandcontinuetofundraise!
RainbowsCircleofFriends“IhavebeenasupporterofRainbowssincetheverybeginningandhelped,whenable,toraisefundsinmanydifferentwaysbutRainbowshasneverhadaguaranteedincome.”
DavidFrench,amemberoftheCircleofFriendssays:“TheCircleofFriendswillhelpbyallowingthefinanceteamtobudgetinamorepredictablewayfortheeverydayneedsofthehospice.”
“Idohopeyouwilljoinmebybecomingamember..”
OurCircleofFriendsisaschemewhereyougiveasmall,monthlydonationtoRainbows.Tofindoutmorevisitwww.rainbows.co.uk/circleorcallDanaSimonson01509638028.
Ourpatrons05
OurPatronsTurnOutForWilliamRoache’sGolfDayInspiteofthetorrentialrain,CoronationStreetstarandRainbows’Patron,WilliamRoacheMBE,wasjoinedbymanyofhiscelebrityfriendsforawonderfuldayofentertainment.
Organisedbyoneofourbiggestsupporters,Champions(UK)Plc,guestsweretreatedtoawonderfuldaywithcelebritiesandentertainment.WiththecoursefloodedintheheavyrainthathitLeicestershire,theentertainmentmovedindoors,wheresnookerlegendandRainbowsPatronWillieThornehostedafascinatingQandAsessionwithsomeoftheimpressivelistofcelebritieswhoturnedoutfortheevent.OtherPatrons,includingEngland’smostcappedfootballereverPeterShiltonOBEandMatthewHoggardMBEjoinedsomeofthecelebritieswhosharedstoriesfromtheirexperiencesattheverytopoftheirsports.
Street partyResidentsofWesternParkRoadinLeicestercouldn’twaitfortheirDiamondJubileestreetparty,soheldtheircelebrationsaweekearly.Nearly100peoplesatdowntolunchinthestreet,whichwasclosedofftotrafficfrommiddayto4pm.
AlexisHutson,oneoftheorganisers,said:“Itwasbrilliant.Wehadthebestweather.Wehadthekidsrunningupanddownthestreetplayingbecausetherewerenocars.Itwasjusthowwehopeditwouldbe.Wedecidedtogoaweekearlysowecouldsaywewerethefirstandbecausethiswaswhenwewouldgetthemostpeople”.
Therewasaraffle,football,cricketandabouncycastle.About£300wasraisedforLOROSandRainbowshospices.
Strictly Champions with Anton and Erin
Champions(UK)Plccontinuedtheirsupportfor
RainbowswithafabulouseveningfeaturingStrictly
ComeDancing’sAntonandErin.Guestswere
treatedtoaneveningofsophisticatedentertainment
whichincludedabrilliantdancedisplaywhichhad
theaudienceontheirfeet.Championscontinueto
befantasticsupportersraisingover£150,000for
Rainbowslastyearandtheyarealreadyontheirway
tomatchingthatamazingtotalthisyear.Thankyouso
muchtoJohnHayesandalltheteamatChampions.
MatthewHoggardisaRainbowsSuperheroMatthew Hoggard MBE is already a cricketing hero and now he has become a hero for Rainbows Hospice too.
AswellasofficiallystartingtheannualRainbowsWalkofLife‘SuperheroSunday’,theLeicestershireCountyCricketClubcaptainisalsobecomingaPatronofthecharity.
OnavisittothehospiceMatthewsaid:“MymanagementteamatChampionsdoesalotofworkwithRainbowsandtheytoldmeaboutthehospice.MywifeandIareluckythatoursonishealthy,butsomeparentssadlyhavetofacethefactthattheirchildwon’tlivethefulllifethey’dhopedforthem.Rainbowsisthereforthosechildren,theirparents,siblingsandotherfamilymembers.
“Anythinganyofuscandotohelpthisincrediblecauseisworthwhile.”
100YearsofFashion1900-1999RainbowssupportersAnnieTaylorandFelicityAustinorganisedahistoricfashionshow.Itfeaturedoutfitsfrom1900to1999,togetherwithnews,musicandsongsfromeachdecade,plusafewiconicdancesandsurpriseitems!Itwasafantasticnightandthevenuewasabsolutelypacked.Anamazing£2,000wasraisedforRainbowsandLymphomaResearch.
06 CelebrityLuncheon
AngelahasbeenafamiliarfaceandvoiceinBritishbroadcastingfor45years.Shetalkedabouthercareer,whichhasembracedanimpressivevarietyofprogrammesonbothradioandtelevisionforbothcommercialandBBCstationsinBritain,andformajornetworksinAmericaandAustralia.Inthe2004Queen’sBirthdayHonoursshewasawardedanOBE.
ShecurrentlypresentsandappearsonCashintheAttic,RipOffBritainandTheOneShow.
Over300ofoursupporterslistenedtoAngleaspeak.Angelawassomoved
hearingaboutRainbowsthatsheagreedtobecomeapatronshortlyaftertheluncheon.
RainbowswasdelightedwhenpopularTVpersonality,AngelaRippon,OBE,agreedtobetheguestspeakerattheannualcelebrityluncheon.WewereevenmorethrilledwhensheagreedtobecomeaPatronofthehospice.
Top Tip: Keepaneyeoutforourlatesteventsat
www.rainbows.co.uk/events
was a huge success
Angela Rippon’s Celebrity Luncheon
SallyisTopDog
RainbowsAmbassadorsSueandPatJones,wentalongtotheCompanionDogShowheldinEyresMonsell,byJanetHiggins.Theydecidedtotakealongtheirrescuedog,Sally....whothenproceededtowin1stprizeinRescueDog,3rdinSportingDogandwasoverallBestinShow.Notbadforalastminuteentrant.WelldoneSally!
A Summer Serenade‘SingingintheRain’wasnotthecasefortheSummerSerenadeheldinthebeautifulgroundsofSpencerHouseinNuthall.NoelandMegJervisinvitedover250peopletogatherforaneveningofoperaandmusicaltheatre.Afantastic£7,000wasraisedforRainbowsandagreattimewashadbyall.
AtRainbowswearealwaysveryhumbledbyhowpeoplechallengethemselvestosupportusbyholdingtheirownfundraisingevents.Forsomeitcouldbeasponsoredsilence,Knitathonororganisingacoffeemorning.ForothersitcouldbeanythingfromclimbingKilimanjaro,skydivingortakingpartinoneofoursponsoredwalks.TherearemanyamazingpeoplewhosupportRainbows.JustoneofthemisNicholeDryburghwhohaslinkswiththehospiceasherDadwasavolunteerhereformanyyears.Sadly,theyhavehadtodealwithalotoffamilyillnessandNicolawantedtoorganiseaneventtoraisefundswhilstalsounitingfamilyandfriends.ShearrangedaCharnwoodWalkforLifewhichstartedinQuornandtravelled15kmtoOldJohninBradgatePark.Shemanagedtoget50walkerstotakepartandraisedanimpressive£2,277.
Therearealsoawiderangeofdifferenteventsandchallengestotakepartinlistedonthewebsitefromluncheonsandshowstoextremeandadrenalinewww.rainbows.co.uk/events.
Events News
Eventsspecialpull-out
Steve’s Amazing Golf ChallengeRainbowsAmbassadorandCharnwoodForestGolfCaptain,SteveAckling,recreatedachallengefirstundertakenbyHarryFlude,amemberatCFGCgolfclub,in1913.Hehadtocomplete150holesinunder14hours!Steveteedoffat5amaimingtoplayoveeightroundsofgolfinanaveragetimeofjustover90minutesper18-holeround.Hisfamilyandfriendsagreedtohelpbycaddyingandball-spotting.Wearedelightedtoannouncethathecompletedthe150thholeafter13hours50minutes,therebycompletingthechallengewithtenminutestospare.Heraisedanamazing£1,954.
A Splash at the Rotary SwimarathonThisyear’sGranthamRotarySwimarathonattracted1,400swimmerswhoraisedanamazing£37,187for50localcharitiesincludingRainbowswhoreceived£500.
Top Tip: Whateveryoureventidea,Rainbowshasateam
ofpeoplewhocansupportyou.Getintouchon08009521133or
Events special pull-out
Join in the Handbag AmnestyDoyoulovehandbags?Well,joininourHandbagAmnesty.Thisisagreatopportunitytodonateabag,buyabagororganiseyourownHandbagAmnestyevent.
Bringoutthoseneglectedtreasuresanddonateyourpre-lovedhandbagstoRainbows.ThencomealongtooneofourHandbagAmnestyeventsandtreatyourselftosomereplacementbags!It’sagreatwaytoraisemoneyforRainbowsandtreatyourselfintheprocess!
TofindoutaboutournexteventorforsomeideasonholdingyourownAmnesty,[email protected].
Rainbows Open Day At Rainbows Saturday15thSeptemberbetween10.30amand3.00pm
Comeandseehowyourkinddonationshelp.Sitintheaward-winningChelseaGarden,tourthehospice,meetourstaffandenjoyourrefreshmentsandstalls.It’sfreeandeveryoneiswelcome.
Derby Concert Band DerbyCathedralSaturday15thSeptemberat7.30pm
It’saveryBritishcelebration–aneveningofgreatmusicfromtheimpressiveDerbyConcertBand.Tickets£10(under16sfree).
Spring into Style Fashion Show PrestwoldHall,LoughboroughThursday18thOctober2012at6.00pm
Whenthenightsaredrawingin,whatbetterwaytocheeryourselfupthanwithsomeretailtherapy?ComeandseethelatesttrendsforSpringandhaveaniceglassofbubbly.AllourguestsgetafreegoodybagandcanapéscourtesyofoursponsorsModelzed.Tickets£20perperson.
Festival of Fireworks LeicesterRacecourseSaturday3rdNovember2012from5.30pm
Thisisoneofourmostpopularevents,sobookearly.Thisyearwe’llbecelebratingthe10thyearofourFestivalofFireworks,socomealongandbethrilled.There’sahugebonfire,funfair,entertainments,stalls
andofcoursefireworks!Advancetickets£5.00(under5sfree).
Fright NightSwadlincoteChurchFriday9thNovember2012between8.00pmand4.00am
Beoneofthefirstpeopleevertospendanactionpackednightina100yearoldspiritualistchurchwherelotsofparanormalactivityhasalreadybeenrecorded.LedbyoneoftheUK’sbestparanormalinvestigators.Youreveningincludes:aghostwalk,workingwiththeparanormalteamandmediums,participatinginworkshopsusingdowsingrods,tabletipping,infraredandnightvisioncamerasandghosthunting,carryingoutvigilsandséancesinthemostactiveareasoftheChurch.Tickets£45.00perperson.
Autumn events
Carol concerts
All tickets cost £5.00 and are available online at www.rainbows.co.uk/events
The Loughborough Carol Concert EmmanuelChurchWednesday5thDecemberat7.30pm
Joinusforafestivesingalongwithlocalschools,guestsoloistsandtheRainbowsChoir.
Grantham Carol Concert StWulfram’sChurch,GranthamThursday6thDecemberat7.30pm
AeveningwithawonderfulselectionoftraditionalandmodernChristmasmusicperformedbylocalschools.You’rewelcometosingalong!Allfollowedbydeliciousmincepiesandfruitpunch.
The Repton Christmas Concert ReptonChurchFriday7thDecemberat7.30pm
EnjoyaneveningofmusicfromchoirsincludingDerbyshireConstabularyMaleVoiceChoir,mulledwineandmincepies.
The Leicester Carol Concert StJamestheGreaterMonday10thDecemberat7.30pm
Joinusforafestivemedleyfromlocalschools,guestsoloistsandtheRainbowsChoir.HostedbyBBCRadioLeicester’sDaveAndrews.
The Derby Christmas Concert DerbyCathedralWednesday12thDecemberat7.30pm
Enjoyaneveningoffestivemusic,mulledwineandmincepies,includingperformancesfroma100voicechildren’schoirfromlocalprimaryschools.
The Nottingham Carol Concert WilliamBoothMemorialHallFriday21stDecemberat7.00pm
JointheNottinghamSalvationArmyforanightofcarolsandfestivemusic.
Santa runs
Christmas events
Christmas Fair
15th November, 9.30am - 4pm.
Holme Pierrepont Hall, Nottingham.
Browse 40 festive stalls offering a variety
of Christmas gifts and speciality foods.
Refreshments and lunch are available.
Top Tip: Tellusaboutanythingyou’redoingforRainbows,bigor
small.Wecanhelpyoualongtheway.
SantaFunRunsareagreatwaytokickoffChristmas.AllentrantsgetafreeSantasuitandeveryoneisguaranteedtohaveafabtime.Ifyoudon’tfancyrunning,justhaveanicewalkaroundoneoftheroutesinstead!
Registrationcosts£10peradultand£5perchildandincludesafreeSantasuit.Visitwww.rainbows.co.uk/events
7th Great Loughborough Santa Fun RunLoughboroughUniversity,Sunday9thDecemberat11.00am
Joinover1,000otherSantasandrun,jog,walkorstrolltheflat6kmroute.It’safun-filledeventwithplentyofentertainmenttokeepyougoing.Youmayalsoseesomefamousfacesamongstyou!BookyourplacebycallingRotarianDavidHollinson01162290495.
Elvaston Castle, Derby Sunday,9thDecemberat11.00am
JoinhundredsofSantasforDerbyshire’sSantasontheRunevent.PutonyourfreeSantasuitandrun,jogorwalkthe2.2milerouteandforthemoreseriousrunnerstherewillbea4.4milerouteasyouheadroundthecoursetwice!
Rushcliffe Country Park, Nottingham Sunday,16thDecemberat11.00am
Abeautifulrunaroundthepark.
Thisisafantastic,scenicroutearoundRushcliffePark.Theair’sclearandyou’llbeabletospotsomeinterestingwildlifealongtheway.
All Year Round – Home & Overseas ChallengesFromskydivingandwhitewaterraftingtoconqueringMountKilimanjaroordogsleddinginSweden,thereisachallengeofalifetimeforeveryonewhateveryourleveloffitnessortimecommitment.Visitourwebsiteorcontactustofindoutmore.
For details on any of our events please visit our website www.rainbows.co.uk/events or call the events hotline on 0800 952 1133.
New events are being added regularly!
Events special pull-out
DuringChildren’sHospiceWeekweaskedourbusinesssupporterstodustofftheirsuperherosuitanddosomethingheroiconSuperheroFriday.KateGolding,CorporateFundraiserforRainbows,said:“Thereweremanywaysbusinesseshelpedus;creativetypeslikeSytnerBMWstaffwenttoworkdressedassuperheroes.CarphoneWarehouse,M&S,ChucklebuttiesandIkanoheldheroiccakesalesandhadfunatwork.Thebrave,likeTGWandtrentbarton,dressedupandwentfundraisinginpublic!”
SteveGough,ManagingDirectoratSytners,said:“SuperheroFridaywasgreat.OurSytnerSuperheroconvoytravelledaroundourMidlands’dealershipsinthenewMINIRoadsterandtheMINICoupécollectingmoneyforRainbows.Wealsoheldinternalcakesalesforourstaffandcustomerstoindulgein.Ourfinalstopwasat Rainbows,wherewehandedoveragiantchequeforallmoneyraised.”
ThebraveAngelaHickinbottomfromTGWsaid:“WealwayshavealotoffundoingSuperheroFriday,itmakespeoplelaughwhentheyseeusbutitmeanswegettoraisemoneyforthecharity.I’msuretherewillbeaSuperheroFridaynextyearandIamsuretheladiesatTGWLtdwillbetakingpart–thedifficultpartisthinkingupnewcostumestowear.”
SuperheroFridayWasKapow!
Top Tip: Getinvolvedinnextyear’sChildren’sHospiceWeek,seewww.rainbows.co.uk/hospiceweek
Did it Again!
Our Super Walkers
The annual Rainbows Walk of Life was another fantastic event which took place as part of Children’s Hospice Week. Our 600 plus superheroes had a great walk.
ForafiveyearoldlittlegirlcalledOliviaFurlongandherfamily,theirchallengewastowalk5miles.Shesethersightsonclockingupanimpressive£50target,butdonationssprintedpastthe£600markinjustafewweeks.
Todateshehasraisedover£1,500andalsoraisedawarenessofwhyRainbowsissoimportant-somethingthefamilyknowfirsthand.Oliviaisaveryspecialgirlinmanyways.HerbrotherWilliamneedsalotofspecialistmedicalcareandspendstimeinhospital,butOlivianevercomplainsanddoesherbesttohelpoutwherepossible.
Sheistrulyacaringbigsisterwholovesherlittlebrotherverymuch.OliviahasstayedatRainbowswithherbrotherandtherestofthefamilyandknowswhatanamazingplaceitis.
MumAli,ofMickleover,said:“Itwasquiteabigthingforhertodobecausesheisstillonlylittleherself.ButshewasdeterminedshewantedtodosomethingtoraisemoneyforWilliamandhislittlefriendsatRainbows.Sheissuchanamazinglittlegirl.”
Oliviasaidshewasexcitedtobetakingpartinthewalkandthatshecouldn’twaitto“dressupasasuperhero”and“raisealotofmoneyforWilliamandhisfriends”.
OurChelseagarden11
Inthelastmonthsof2010,Harry’sconditiongotworse.Repeatedchestinfectionsandnumerousepilepticfitsmeanthewasinandoutofhospital.OnaSaturdaynightinearlyDecember,LucyandTimweresettlingdownforatakeawaymeal,“butHarrygotsobadsoquicklythatnight,thatweheadedstraightforRainbows.”
It’sadreadfultime,preparingtosaygoodbyetoyourdyingson,butthosefinaldaysatRainbowswereeverythingLucyandTimhadhoped.HarrydiedonFriday17thDecember2010.“Itwasso
sad,andyetupliftinganddecentatthesametime”,saysLucy.
Lucysaid:“EveryoneatRainbowswasfantasticduringHarry’slastdaysandwhileTimandIwereabletogetoutsideoccasionallyforsomefreshair,therewasnowherespecificallyforustogotobealonewithourthoughts.ThereisabeautifulgardenofremembranceatRainbows,butthatwasn’tsomewherewecouldfacespendingtime.Atranquilgarden,liketheoneatChelsea,wouldhavebeenperfectforuswhenHarrywasdying.”
Come to Our Open Day and See the Award-winning Chelsea GardenOurPresident,TheDuchessofRutlandtogetherwithparent,LucySmithandnewPatron,TVcelebrityAngelaRippon,openedacontemplationgardenduringChildren’sHospiceWeekattheworldfamousChelseaFlowerShow.WeweredelightedwhenitwasawardedasilvermedalandevenmorepleasedwhenBluePeterdecidedtocometoRainbowstofilmit.
TheGardenisaplaceofrelaxationandreflection.Itprovidesatranquilplacetohelpparentsandstaffdealwiththeextremelyemotionalday-to-daychallengesofworkingandlivingwithlife-limitedchildren.
FreemasonsfromLeicestershireandRutlandalongwiththeGrandCharitymadehugelygenerouscontributionstoensurethatthegardenwasfullyfundedtoberecreatedwithinthehospiceandwillbeofficiallyopeningitduringouropendayonthe15thSeptember.
WithadditionalsponsorshipfromArchCommunicationandplantinghelpgivenbyBBCRadioLeicester’sgardeningexpertandHonoraryAmbassador,AdyDayman,thegardenhasbeencreatedbydesigner,ChrisGutteridgewithaninteractiveelementprovidedbyDeMontfortUniversity’sRetailLab.
Our Parent and Carer Group is a Place for SharingThewordsofonemothersumitup:“It’ssomewheretoshareourstories;happyandsad,ourconcernsandourtriumphs,withpeoplewhodonotjudgeandknowhowwe’refeeling.Aplacetogettheinformationyouwishedtheprofessionalswouldtellyou.”
Thegroupgivesparentsandcarerstheopportunitytobewithotherswhosharetheirexperiences.It’syoursupportthathelpsusrungroupslikethis.
New garden will provide valuable
space for families to reflect
LucySmith’sson,Harrywasbornwithadebilitatingandlife-limitingdegenerativecondition,whichwassorareitstillhasnoname.Hisolderbrother,Thomas,hadthesamecondition.Thomasdiedattheageof10in2004,butheneverwenttoRainbows.
The Chairman Pulls Out The StopsCouncillorBrianWrightandhiswifeSuespentayearorganisingaseriesoffundraisersduringBrian’syearasChairmanofNorthEastDerbyshireDistrictCouncil.Theyraisedover£10,000–AMAZING.
12
OurDiversityForumarrangedaJubileecelebrationthatrecognisedthegreatdiversityoftheCommonwealth.EveryonedressedupeitherwithaCommonwealththeme,intheirbestgardenpartyoutfitorinred,whiteandblue.Weevendecoratedthehospice,sothatonthedayitwasfitforaQueen.
ThecelebrationstartedwiththewonderfulsteelbandfromStAndrew`sSchool,and includedcreamteaonthelawn,amusicgameandfashionparade.
MakeaWillMonth
AHUGEthankyoutoeveryonewhotookpartinRainbowsMakeAWillMonthinMay.
Onesupportersaid:“Ithinkit’sanexcellentideaaswe’renotfinanciallyabletodonateverymuchatthemoment,butfeelveryhappythatwe’vehadtheopportunitytoarrangeawillandleaveadonationintheprocesswhichIprobablywouldneverhavethoughtofotherwise.”
ThroughoutthemontheighteenlocalsolicitorsofferedtheirWill-writingservicesatareducedrate. SomesupportershavemadeadonationandothershavepledgedtoleavesomethingtoRainbowsintheirWill.
LegacygivingisanimportantpartoftheCharity’sannualincomeandgiftsgreatandsmallmakearealdifference.
ManypeoplehavelovedoneswhomtheywishtoconsiderwhentheywriteaWillbut,afterrememberingthosespecialtoyou,pleasespareathoughtforRainbowsandhelptosecureourfutureforyearstocome.
IfyouwouldliketospeaktosomeoneatRainbowsaboutlegacies,pleasecallHelenon01509638027.
An Amazing Result from Rebecca’s SchoolStudentsfromYear6attheCarltonleWillowsAcademyinNottinghamraisedastaggering£10,000duringtheirannual‘EffortsWeek’.ThemoneyraisedwassplitbetweenfiveverydeservingCharitiesandRainbowshadbeenchosenforaveryspecialreason.RebeccaVanWyk,ateacherattheschool,usesRainbowswithherdaughter,Maralise.ShefindsthecareandsupportshereceivesattheHospicealifelinetohelpherdealwithherdaughter’sverycomplexneeds.RebeccawasverytouchedthatthestudentshadchosentosupportRainbowsandwasabletobothattendandspeakatthechequepresentation.
Our Diamond Jubliee Celebration
Our Learning Disabilities NurseMaggieSmalequalifiedasaLearningDisabilitiesNurseinPortsmouthin1982andthenworkedfortwelveyearswithchildrenwithlearningdisabilities.ShehasbeenatRainbowssince2010.
Maggiesays:“Iloveworkinghere–everydayisdifferent,bringingitsownchallenges.IusealltheskillsIhadbeforeandIhavelearntnewonestomeetthosechallenges.Thechildrenandfamiliesarefantastic–thereareverygood,happytimesandtheinevitablesadtimes.
ThebestkindofdayiswhenIhavebeenabletotakeachildwhohasspentalotoftimeinhospitalintothehydrotherapypooloroutonatrip.Maybetheycanhaveafirsttimeexperienceofthemulti-sensoryroom,justgenerallyenjoylife.
IamstillalwaysanursebutsomuchmoreatRainbows”.
Duringhertimehere,shehasworkedwithhundredsofchildren,youngpeopleandtheirfamilies.Becauseofherexperienceandfriendliness,threeyearsagoshewasappointedtoworkasourFamilyLiaisonWorker.HerjobistosupportthosefamiliesthatkindlychoosetohelpRainbowsfundraise.
Juliesays:“Ittakesalotofcourageforourparentstostandupataballorafundraisingeventtotelltheirstory.It’sanincrediblyemotionalexperienceforeveryonewhenamotheristalkingtoajournalistaboutthechildshelost.I’mthereforthemeverystepoftheway.
“Therearealsomanyexcitingtimesforallofus.Wehavebeentoballs,hadteaatNumber10,metOneDirectionandseenmanyotherfamouspeople.”
Rainbowsneedsthehelpoffamiliestohelpraiseessentialfundsandifwecanmakeitanenjoyableandmemorableexperienceforthemthenthatisevenbetter.Julie’ssupportisalwaysawelcomehelp.
MeetSomeFundraisersNeilSwiftisourFundraisingAssistant,whohelpsoutwithalltheeventsandsupportspeoplewhentheywanttofundraiseforus.He’sevendonesomefundraisingofhisown.Hesays:“Ienjoyeveryminuteastwodaysareneverthesame.FormeRainbowsisaspecialplacetowork,especiallyasI’llbeadadsoon.
IworkwithBeccy.IfyouhaveevertakenpartinachallengeforRainbowsorsetupanonlinegivingpagewehavebeentheoneswhosendtheemailsofencouragement,orwehavebeenontheendofthephonetogiveyouasmuchsupportaspossible.”
BeccyMay,picturedaboveleft,wasavolunteeratRainbowsforthreeyearsuntilshebecametheEventsAssistant.Shesays:“Mybiggestroleinvolvesco-ordinationandsupportformajorfundraisingevents.
Mylifeisalwaysonfullspeed.InmysparetimeIamanactivememberofLadies’Circle,aScoutLeaderandfortheremainderofmytimeIamrunraggedbymytwoadorablekiddywinkles!”
MeetOurFamilyLiaisonWorkerJulie Macauley, pictured on the left above, our Family Liaison Worker, came to Rainbows nine years ago to work as a member of the care team, so she’s a well-known face at the hospice.
Meetsomeoftheteam13
14
Loadsofcompanies,bigandsmall,arejoiningup.We’rehopingtohaveover100membersbythetimewewritethenextnewsletter!
Welcomeandthankyoutoournewestmembers.
Afulllistofourmemberscanbefoundatwww.rainbows.co.uk/businessclub
Membershavefoundournetworkingeventsbothbeneficialandenjoyable.Withkeyspeakersandchancestomingle,they’reprovingtobeahugesuccess.
YoutoocouldjoinourBusinessClub.Foraminimummonthlydonationofonly£30+vatyourcompanycanjoinandshowyourcommitmenttosupportingRainbows.
Pleasejointodayandhelpusmakeadifference!
Capital One Europe (Plc)
Cathy Bown Associates
Jo Kehoe Training Ltd
Funky Edit Wholesale Ltd
NSI Ltd
trent barton
Print Monkey
Arch Communications
Pochin
Mr Tax
Words & Graphics
Goold & Associates Ltd
MyOwnPhotos
Punch Communications
NewEnglish Design
Lighthouse (UK) Ltd
Executive Image (Leicester) Ltd
GEM 106
Independent Freight Solutions Ltd
bmibaby
Prima Solutions
Barton Petroleum Ltd
Hinckley & Rugby Building Society
The Carillon Court Shopping Centre
Aerosol Solutions Ltd
Blues Point Ltd
Morningside Pharmaceuticals
Advanced Learning Centre
Clear Financial
AMC Groundworks Ltd
SGP Ltd
OurBusinessClubWelcomesEvenMoreNewMembers
Abig‘thanks’toallofthemembersoftheRainbowsBusinessClubfortheirfantasticsupport.
Holding a Business Meeting Can Help RainbowsRainbowsnowhasafantasticconferencevenuethatbusinessescanuseandwewantallourcompanysupporterstoknowaboutit.
GeoffEllis,ourChiefExecutive,says:“Thesearedifficulttimesforeveryone,sobeingabletohireoutourfacilitiesgivesusanotherwaytoraisemoney.Alltheproceedsfromthehireoftheroomshelpustosupportlife-limitedchildrenandtheirfamiliestomakethemostoftheshorttimetheyhavetogether.”
Theconferencecentreoffersalargewellequippedroomthatcanseatupto80people,plusthreebreakoutroomsseatingupto25peopleeach.ThecentreissituatedatRainbowsandisonlyminutesfromjunction23oftheM1.
Forthoseinterestedinhiringouttherooms,pleasecontacttheConferenceCo-ordinatoron01509638011.
www.rainbows.co.uk/businessclub
Kate Golding on 01509 638008
How dressing down can pay off!
CharteredaccountancyfirmNewbyCastlemanhaveraised£1,000forRainbowsthroughmonthlydressdowndays.Partner,JohnGriffin,said“Amonthlydressdowndayisasimpleidea,butweknoweverypennyraisedwillbespentonhelpingtoimprovethequalityoflifeofthechildrenandyoungpeopleatthehospice.”
Top Tip: EncourageyourworkcolleaguestoholdmeetingsintheRainbowsconference
centre.BusinessClubmemberscanbookthefacilitiesat
adiscountedrate.
Beavolunteer15
BeaVolunteerOurvolunteersmeanalottoRainbows.Theydosomuchforusthroughoutthehospiceandinthecommunity.
Arthur,PatandValworkinthegarden.Theysay:“Beinginterestedinconservationandenvironmentalissues,wecouldn’twaittoparticipateinthecreationandmaintenanceoftheecogarden.Rainbowsmeanssuchalottousandwegetsomuchpleasure,notjustbyworkinginsuchaspecialandpeacefularea,butknowingthatthechildren,youngpeopleandtheirparentssharethistoo.”
Sarahasjuststartedworkinginthekitchen:“Mynewyear’sresolution
wasto‘getoutandmeetpeople’andIsettledonvolunteeringatRainbows.TheyhelpedmetodecidewhichareaIshouldjoinandIhelponceaweektotidyupaftertheeveningmeal.My‘properjob’canbehighpressured,soit’sarelieftoputmypinnyonandgetstuckin.It’sbeenagreatwaytomeetnewpeopleandtogivealittlebitback,wecanthoroughlyrecommendit.”
If you’re inspired and would like to volunteer, please contact Paul on 01509 638059 or [email protected].
Eggstra Support From School AbigthankyouallthepupilsatSouthWithamPrimarySchoolforraisingafantastic£250attheirEasterFair.
Rainbows Day at RawlinsRawlinsCommunityCollegeheldaspecialRainbowsDay.TheyboughtaRubyblockinourWallofCelebrationwiththemoneyraised.
Chucklebutties Have Lots of FunChucklebuttiesplaycentreinBelperareholdingeventsduringtheyearandarehopingtohavelotsoffunandraise£1,000forRainbows.
Haddocks Win The Pub Quiz On3July,IkanoFinancialServiceshelditsannualpubquiz.Afteraverycloselyfoughtbattle,RobinGriffithsandhisteam,theAD-hocHaddocks,tookthecovetedtrophyforthethirdyearrunning.Theamountraisedwas£1,054.
Lastyearweraisedawhopping£16,000withourcollectingtins.Wehaveplentymoreofthemthatwouldloveahome.
Ifthereareanyshops,businesses,pubsetc.whowouldliketohaveatinwewillbehappytosupplythemandemptythemregularly.GetintouchwithGrahamPrice,ourbrilliantcollectingtinvolunteer,ifyouhaveahomeforone.Call01509638043oremailgraham.price@rainbows.co.uk
Give a Home to a Little
Collecting Tin, Oh Go On!
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Will you win £1,000 this week?
Rainbowslauncheditsretailinitiativetothedelightofthelocalpublicaswellasstaff,volunteersandlocalfamilies,childrenandyoungpeoplewhousethehospice.21-year-oldJamesEverettwhocomesalongtoRainbows,wasthefirstthroughthedoorstodonatesome‘pre-loved’clothes.
TheMayorofMeltonMowbray,CllrJohnIllingworth,officiallyopenedtheshopjoiningexcitedshoppers,togetherwithRainbows’mascot‘BowBear’andstreetentertainers.
Thenewshopwillhelpuscontinueourworksupportinglife-limitedchildrenintheregionthroughthesaleofclothes,
books,children’stoys,CDs,DVDsandRainbows’ownmerchandise.
CherylHudson-theRainbowsshopmanager-said:
Rainbows’secondshopopensinBlabyduringAugust,followedbyathirdinMatlock,Derbyshire,inSeptember,withplanstorolloutmorestoresacrosstheEastMidlandsfrom2013.
Our First Shop is Open
On 17th July, Rainbows created a milestone by throwing open the doors of the very first charity shop in its new retail initiative. The Melton Mowbray shop is the first of three shops opening in 2012.
Top Tip: Haveaspringcleananddonateanyunwanted
itemstoRainbows.Dropthemoffatashop
oratthehospice.
"Withthesurgeinpopularityof
charityshopping,weweresolooking
forwardopeninginMeltonMowbray
andarethankfultoallthosethat
haveralliedroundanddonated
stocktotheshopsofar."