Recruiting Rare Deficiency Trials

Through Community Outreach

Discussion Topics

1. Best practices for identifying new referral sources

and leveraging existing sources

2. Effectively educating referral sources

3. Increasing the visibility of your study within important

target audiences

4. Why use community outreach

Community

Outreach is…

Goals

1. To establish and grow your site/study presence

within your community.

2. To grow your patient database and recruit potential

patients directly into enrolling studies.

3. To connect study sites with patient pools and referral

sources most likely to yield qualified patients.

4. To find the proverbial needle in the haystack.

Niche Studies

Know where the patients are; go where the patients are.

Traditional

Advertising

Community Outreach

• The most cost-effective

method of recruiting niche

studies

• Yields more eligible,

interested, and compliant

patients

• Initiates/maintains long-term,

mutually-beneficial

relationships

• Time intensive

• Wild goose chase

• Initiating relationships

can be difficult

Identifying

Referral

Sources

Know Your Patients

• Inpatient vs. Outpatient Populations

• Engagement Level

• Specialist Providers

• Caregiver Role

• Other Support Services

From Relationships to Referrals

• Provide study materials targeting each potential

player

• Educate

• Incentivize (within IRB guidelines, of course!)

• Follow up

• Show appreciation

Education

Knowledge is Power Patients

• Discuss inclusion/exclusion criteria

• Provide a risk/benefit assessment

• Acknowledge hurdles/barriers

• Distribute materials

• Lunch-n-learns/Recruitment Events

CASE STUDY: Educational Dinner Series

Increase Visibility

Tactical Overview

• Social Media

• Event Planning/Hosting

• Health Fairs

• Clinics

• Free services (Screenings)

• Educational Events

• Email and eNewsletters

CASE STUDY: Local Clinic Outreach

Social Media Engagement

Why?

Leverage Trusted Referral Sources

Referring Physicians

52% of Americans prefer to learn about a clinical trial

through a PCP; 41% prefer to learn through a specialty

physician*

Pharmacists

20% of Americans prefer to learn about trials from a

pharmacist*

Support and Advocacy Groups

20% of Americans prefer to learn about trials from a

support/advocacy group*

*Source: 2014 CISCRP

Thank you!

Questions?