Regaining momentum on our rights

Getting rights in practice in the next decade

A decade of rights

• 2000 a Commission• 2001 New duties in education• 2004 Premises and physical features• 2005 Positive duties, wider coverage• 2010 Pre-employment health questions

We achieved a lot through joint working: Rights Now, formal and informal coalitions, allies

Some headway?• Employment gap between disabled and non-

disabled people is down by over 10% since 1998 – but still 30% (2 million people)

• Disabled people who report transport difficulties - down by 5%

• More disabled people now go to university• Good practice in some companies • Independent living accepted in principle by all

parties• And the Paralympic effect

Across the world - Russia

BUT…Power and lack ofpower• Disabled people only now speaking up

about Savile allegations: Caroline Moore, Stoke Mandeville, Stephen George, Broadmoor

• Winterbourne View. Panorama 2012 noted if someone is in a restrictive and hostile environment, it can affect their behaviour, so the restrictions increase

• Our objective: to mobilise disabled people’s leadership and control

But… Poverty• Disabled people are twice as likely to live in

poverty as non-disabled people• Less likely to be able to afford fruit and

vegetables• More likely to say cost is a barrier to leisure,

transport • And that is before major benefit reductions• Our objective: to break the link between

disability and poverty• Apprenticeships. Employment opportunities and

support. A fair system of benefits

Access to Work

• We wrote to the Minister Nov 2012: numbers down last 2 years from 37,000 to 30,000, all regions except North/mid Wales

• Urging action: concerted marketing, remove list of restrictions, reduce bureaucracy, cover all work experience and internships

But…Freedom to live independently?• ‘I am a woman who lives independently in the

community in social housing employing enablers…I keep my postman electrician gasman binman local shop chip shop takeaway petrol station supermarket bank delivery men and women employed…My local authority say if my needs are over £500 a week I will be put in a care home. I am becoming more disabled by society than ever before – it’s a crime against disabled people’s human rights and there isn’t a darned thing I can do about it’ (response to blog)

Source: NHS Information Centre for Health and Social Care (2012) Inpatients formally detained in hospitals under the mental Health Act 1983, and patients subject to supervised community treatment, Annual figures, England, 2011/12, Health and Social Care Information Centre

2007-2008 2008-2009 2009-2010 2010-2011 2011-201238000

40000

42000

44000

46000

48000

50000

52000

54000

44093 4454346600 46348

48631

2134

4107 3834

4220

Total number of uses of the 1983 Mental Health Act 2007-2009(compulsory detentions in hospital and supervised community

treatment orders issued)

Number of Supervised Community Treatment Orders Issued

Number of detentions in hospital under the Mental Health Act

44093

46677

50707 50182

52851

2007-2008 2008-2009 2009-2010 2010-2011 2011-20120

5000

10000

15000

20000

25000

15181 16073 16622 16647 17503

17553325 4291

4764

Number of people compulsorily detained in hospital or subject to Supervised Community Treatment Orders at March 31st

Number of people sub-ject to Supervised Community Treatment Orders at 31st March

Number of people de-tained in hospital under the Mental Health Act at 31st March

1518117828

19947 20938 22267

2007-2008 2008-2009 2009-2010 2010-2011 2011-20120

500

1000

1500

2000

2500

3000

3500

4000

4500

2134

41073834

4220

Number of Community Treatment Orders Issued

2007-2008 2008-2009 2009-2010 2010-2011 2011-201241000

43000

45000

47000

49000

51000

44093 44543

46600 46348

48631

Number of detentions in hospital under the Mental Health Act 2007 - 2012

Note: Supervised Community Treatment Orders only in operation for 5 months of 2008-9

2006-2007 2007-2008 2008-2009 2009-2010 2010-2011 2011-20120

2000

4000

6000

8000

10000

12000

14000

16000

18000

63877538

8759

12300

1439915240

Number of uses of Place of Safety Orders (s136 and s135)

Source: NHS Information Centre for Health and Social Care (2012) Inpatients formally detained in hospitals under the mental Health Act 1983, and patients subject to supervised community treatment, Annual figures, England, 2011/12, Health and Social Care Information Centre

Aspire: spinal cord injured adults in care homes

‘To keep me in this place, weekly costs £800 and for what for what? Look at how I’m living. No quality of life now whatsoever’.(Lawrence)

‘I am a prisoner here. I’m a prisoner in my body, but that’s not what I’m upset about; that’s accepted. It’s the care home system holds me prisoner. But I’ve done nothing wrong!’ (Harry)

‘It’s easier for them [care home staff] to just leave me lying in bed. But I insist every day and tell them, ‘What time are you getting me up?’ Sometimes they might say, ‘We can’t get you up today; we’re short staffed’, and then I have to accept that. I’ve no control even over the very basics like getting up in the morning’. (Phillip)

Our objective: independent living in practice. Personal budgets in health, education, employment , sport….Better use of resources

What we have done so far• Worked with members – strategy, regional

events, surveys, joint projects • Half a million people use our advice and

information – on PIP, ESA, independent living, employment, sport, IT…….

• 6,600 get specialist advice• Projects with DPOs to test new approaches to

personal budgets, apprenticeships, leadership• Influence: secured a trial period for PIP,

portability of social care/support, access to work

• Over 5,000 involved in campaigns so far

Using a range of methods