rehabilitation and support for persons with special needs wishes seminar 2 5 december 2014 jean...
TRANSCRIPT
Rehabilitation and Support for persons with special
needs wishesseminar 2
5 December 2014
Jean Pierre Wilken
Introduction: • last time we discussed notions of
ability and disability• the field of disability studies and the
ICF model• Rights perspective: UNCRPD
Programme
Today:• Our challenge: working on Quality of
Life and social inclusion• Working with the Support Model:
personal future planning and social role valorisation
Programme
but let’s first start with the fairy-tale of Winnie the Witch and Wilbur the cat
the social model of disability:
barriers in society
Most mental health services are (only) focused on treatment and clinical recovery
Most services for people with learning disabilities are (only) focused on protection in an institutionalised setting
Most services for people with physical disabilities are aimed at improving only body functioning
Most social services are not used to work with people (formerly) in institutionalised settings.
Services are not focussed (enough) on supporting active citizenship in the community and removing barriers: attitudinal, physical, social, organisational
How do we transform services towards a focus on personal development and social inclusion?
Our challenge
n From focus on the deficit to focus on the person
n Experiential knowledge: the value of personal experience, focus on learning/development
n From illness/disability based to strengths-based
n From individual to environment (contextualized social work)
Shifting towards a new vision:
video people with disability in Russia
Contemporary models of support for people with high and complex needs should be evaluated in terms of the degree to which services support people’s:
• presence in the community;
• active participation in every day life;
• opportunities to develop, exercise and demonstrate to others their competence;
• exercise of individual choice; and
• rights (both legal and human) and dignity of service users
(cf O’Brien, 1992; Wilken, 2007)
Convention on the Rights of Persons with Disabilities
The role of social work specialists
How can you as a social work specialist support:
• active participation in every day life?
• opportunities to develop, exercise and demonstrate to others their competence?
• exercise of individual choice?
• rights (both legal and human) and dignity of service users?
Group discussion (15 minutes)
Quality of Life
support by the social network
(natural support)
individual(self support)
public resources (community support)
participation in the
community: fulfilling valuable social roles; citizenship
Support model
Legal rights(legal support)
professional supportpeer support
advocacy(Wilken, 2007; 2012)
Methods
n Social Role Valorisationn Personal Future Planning
Social Role Valorisation
Goal SRV: to create, support and defend roles that are valued by society for people with a disability or who are at risk of being devalued.
* individual: arranging physical & social conditions for a specific individual that are likely to enhance the competencies of that individual
* social images: arranging physical & social conditions for a specific individual that are likely to enhance positive perceptions of that individual by others
n Images about a ‘good life’: wishes, dreams, passions
n Connecting images to domains of QoL
Life domains Personal domains
Housing Health
Working Self Care
Learning Purpose and Meaning
Leisure Social relationships
Exercise: identify social roles
Domains Social roles:
House and family
Work
Education
Leisure
Exercise: working on social role valorisation
n Choose one of the social rolesn Think of possible interventions to increase the
competencies of an individual with a disability who wants to strengthen this role
n Think of possible interventions for arranging physical & social conditions that are likely to enhance positive perceptions of that individual by others
n Example: Social Role Valorisation in supported employment
n Nova Employment Australia
Personal Futures Planning
n is a planning process that involves:n Getting to know the person and what her life is
like now.n Developing ideas about what she would like in
the future.n Taking action to move towards this, which
involves exploring possibilities within the community and looking at what needs to change within services.
Personal Futures Planning
"Personal Futures Planning moves the locus of change away from the person with a disability toward a focus on changing social roles, responses, and existing organisational structures. As an on-going process of innovation, it can help liberate people from oppressive environments and processes that hurt them."
Beth Mount (1992). 'Person centred planning - finding directions for change using person centred planning'.
(Help) making a Personal Profile
What are important wishes (passion)(make goals out of it)
Generate options using personal and environmental possibilities
Best options in Personal Plan
(Helping) working on plan
Creating a partnership
Mapping wishes and possibilities, client and environment ,
past and present
Activities and tasks in to do list
Monitor the process, learn, evaluate and adjust
If necessary a Personal Support Plan
Personal Futures Planning
n Developing a personal profile
PERSONAL PROFILE Name:
Current possibilities and experiences Wishes and ambitionsPossibilities and experiences
in the past
Housing
Working
Learning - Education
Recreation – Leisure
Health
Personal (self)care
(incl. finances)
Relationships
Meaningfulness
Which wishes are the most important for me?
Hollander & Wilken (2015) Supporting Recovery and Inclusion. the CARe model
Personal Futures Planning
n Also possible: creating ‘maps’ of different aspects of the profile
Relationship Map:n Identifies who is important to the person.
This Map is useful...n to find out who could contribute to the profile or
planning processn to identify relationships that could be
developed or strengthenedn to show the balance of family, friends and paid
workers in the person's life.
Personal Futures Planning
Places Map:n Shows where the person goes.
This Map is useful...n to show how the person spends her timen to identify time spent in segregated and
community placesn to illustrate opportunities for increasing the
time spent in the community.
Personal Futures Planning
Background Map:n Gives an overview of what life has been like
for the person.
This Map is useful...n to keep in touch with the person's historyn to identify experiences which must not be
repeatedn to celebrate achievementsn to identify opportunities and positive
experiences that can be built on.
Personal Futures Planning
Preferences Map:
Describes what the person likes and dislikes.
This Map is useful...n to show what the person enjoys, is good at
and can contribute ton to identify things that the person may want to
do more oftenn to show what situations and experiences
should be avoided.
Personal Futures Planning
Dreams, Hopes & Fears Map:
This Map is useful...n to get a sense of the lifestyle that the person
would like through her eyesn to identify what the person is most afraid of
happeningn to set the agenda for a meeting about the
planning
Personal Futures Planning
Options and Choice Map:
This Map is useful...n to brainstorm about (a lot of) options which
anyone can think of in order to achieve a personal goal
n to make a choice about the best option and the second best option
n as input for the planning
OPTION GENERATOR© J.P. Wilken and D. den Hollander (2011; after Rapp en Gosha, 2006)
Goal:
Options Advantages Disadvantages1.
2.
3.
4.
5.
6.
7.
8.
9.
10.
Best option: Second best option:
Exercise with option generator
Information from background map: n Ilja (26 years, moderate learning disability,
lives by herself with support of a social worker and her parents; passion: painting and writing poems)
n Ilja wants to develop herself more as an artist; maybe have an exposition, in the future: earn some money by selling paintings.
Groups of four: Ilja, social worker, mother/father, observer
OPTION GENERATOR© J.P. Wilken and D. den Hollander (2011; after Rapp en Gosha, 2006)
Goal: I want to become an artist
Options Advantages Disadvantages1.
2.
3.
4.
5.
6.
7.
8.
9.
10.
Best option: Second best option:
Exercise: make a plan how to work on desired social roles of Ilja
n Case example Ilja (26 years, moderate learning disability, lives by herself with support of a social worker and her parents; passion: painting and writing poems)
n Ilja wants to develop herself more as an artist
Groups of four: Ilja, social worker, mother/father, observer