respecting diversity: exploring cultural, spiritual and ... · systems and authorities and few...
TRANSCRIPT
![Page 1: Respecting Diversity: Exploring Cultural, Spiritual and ... · systems and authorities and few culturally safe resources and supports specific to EOL • Addresses myths about advanced](https://reader036.vdocument.in/reader036/viewer/2022081400/5f0eca227e708231d440f286/html5/thumbnails/1.jpg)
Respecting Diversity: Exploring Cultural, Spiritual and Religious Aspects of Care
Glen R. Horst MDiv, DMin, BA Shahina Siddiqui BAKali Leary BSc, MBT
![Page 2: Respecting Diversity: Exploring Cultural, Spiritual and ... · systems and authorities and few culturally safe resources and supports specific to EOL • Addresses myths about advanced](https://reader036.vdocument.in/reader036/viewer/2022081400/5f0eca227e708231d440f286/html5/thumbnails/2.jpg)
What is a Virtual Hospice?
Most comprehensive online resource in the world on living with advanced illness, palliative care, loss and grief.
8 online platforms + social media
5 national and international awards
1.6 million visitors
![Page 3: Respecting Diversity: Exploring Cultural, Spiritual and ... · systems and authorities and few culturally safe resources and supports specific to EOL • Addresses myths about advanced](https://reader036.vdocument.in/reader036/viewer/2022081400/5f0eca227e708231d440f286/html5/thumbnails/3.jpg)
Features
Support• Ask a Professional• Discussion Forums• MyGrief.ca• KidsGrief.ca
Inform• Topics Articles• Asked and Answered• Videos• MyGrief.ca • KidsGrief.ca• LivingMyCulture.ca• Programs & Services
For Professionals • 800+ Tools for Practice • Ask a Professional• Quick Consults• Videos• Methadone4Pain.ca• LivingMyCulture.ca
Tous bilingue
![Page 4: Respecting Diversity: Exploring Cultural, Spiritual and ... · systems and authorities and few culturally safe resources and supports specific to EOL • Addresses myths about advanced](https://reader036.vdocument.in/reader036/viewer/2022081400/5f0eca227e708231d440f286/html5/thumbnails/4.jpg)
Indigenous Voices:Stories of serious illness and grief
Video series and print materials based on stories of First Nations, Inuit and Métisabout advanced illness, loss and grief.
• Support tool for Indigenous people to understand what quality palliative care is and to advocate for it
• Educative tool for health care providers
![Page 5: Respecting Diversity: Exploring Cultural, Spiritual and ... · systems and authorities and few culturally safe resources and supports specific to EOL • Addresses myths about advanced](https://reader036.vdocument.in/reader036/viewer/2022081400/5f0eca227e708231d440f286/html5/thumbnails/5.jpg)
Widespread mistrust of non-Indigenous health systems and authorities and few culturally safe resources and supports specific to EOL
• Addresses myths about advanced illness, PEOLC
• Validates and embraces beliefs, values, traditions
• Supports advocacy for safe, respectful, inclusive care
• Increases involvement in decision-making
All work has been guided OCAP principles
Objectives
![Page 6: Respecting Diversity: Exploring Cultural, Spiritual and ... · systems and authorities and few culturally safe resources and supports specific to EOL • Addresses myths about advanced](https://reader036.vdocument.in/reader036/viewer/2022081400/5f0eca227e708231d440f286/html5/thumbnails/6.jpg)
Print materials
Free to download from LivingMyCulture.ca
• What is palliative care?
• Compassionate caring
• Care at home and away
• Helping you feel better
• What to expect
• Honouring wishes
• Making memories
• Grief and letting go
![Page 7: Respecting Diversity: Exploring Cultural, Spiritual and ... · systems and authorities and few culturally safe resources and supports specific to EOL • Addresses myths about advanced](https://reader036.vdocument.in/reader036/viewer/2022081400/5f0eca227e708231d440f286/html5/thumbnails/7.jpg)
LivingMyCulture.caVideo series of personal narratives by members of 11 cultures about living with serious illness, end of life and grief.
• Stories by patients, families, HCP and community leaders
• Tool for patients/families
![Page 8: Respecting Diversity: Exploring Cultural, Spiritual and ... · systems and authorities and few culturally safe resources and supports specific to EOL • Addresses myths about advanced](https://reader036.vdocument.in/reader036/viewer/2022081400/5f0eca227e708231d440f286/html5/thumbnails/8.jpg)
Healthcare services often out of sync with cultural perspectives on illness, death and grieving.
• Support and empower patients and families to advocate for culturally inclusive care
• Promote understanding of how palliative / end-of-life care issues are faced
• Educates health providers on culturally safe and inclusive care
• Improve inclusive and respectful quality care
Objectives
![Page 9: Respecting Diversity: Exploring Cultural, Spiritual and ... · systems and authorities and few culturally safe resources and supports specific to EOL • Addresses myths about advanced](https://reader036.vdocument.in/reader036/viewer/2022081400/5f0eca227e708231d440f286/html5/thumbnails/9.jpg)
By the numbers• 670+ videos in 11 languages
• 11 Cultures
• 64 Storytellers
• 6 Themes
• Traditions, Rituals and Spirituality• Expectations of Care• Care for the Patient and Family• Emotions and Support• Talking About Illness• After Death and Ceremonies
![Page 10: Respecting Diversity: Exploring Cultural, Spiritual and ... · systems and authorities and few culturally safe resources and supports specific to EOL • Addresses myths about advanced](https://reader036.vdocument.in/reader036/viewer/2022081400/5f0eca227e708231d440f286/html5/thumbnails/10.jpg)
Cultural groups engaged
![Page 11: Respecting Diversity: Exploring Cultural, Spiritual and ... · systems and authorities and few culturally safe resources and supports specific to EOL • Addresses myths about advanced](https://reader036.vdocument.in/reader036/viewer/2022081400/5f0eca227e708231d440f286/html5/thumbnails/11.jpg)
Cultural insights
![Page 12: Respecting Diversity: Exploring Cultural, Spiritual and ... · systems and authorities and few culturally safe resources and supports specific to EOL • Addresses myths about advanced](https://reader036.vdocument.in/reader036/viewer/2022081400/5f0eca227e708231d440f286/html5/thumbnails/12.jpg)
Soodi: Navigating the system
![Page 13: Respecting Diversity: Exploring Cultural, Spiritual and ... · systems and authorities and few culturally safe resources and supports specific to EOL • Addresses myths about advanced](https://reader036.vdocument.in/reader036/viewer/2022081400/5f0eca227e708231d440f286/html5/thumbnails/13.jpg)
Huda: The importance of respect
![Page 14: Respecting Diversity: Exploring Cultural, Spiritual and ... · systems and authorities and few culturally safe resources and supports specific to EOL • Addresses myths about advanced](https://reader036.vdocument.in/reader036/viewer/2022081400/5f0eca227e708231d440f286/html5/thumbnails/14.jpg)
Shahina Understanding beliefs
![Page 15: Respecting Diversity: Exploring Cultural, Spiritual and ... · systems and authorities and few culturally safe resources and supports specific to EOL • Addresses myths about advanced](https://reader036.vdocument.in/reader036/viewer/2022081400/5f0eca227e708231d440f286/html5/thumbnails/15.jpg)
Neenu: Respecting beliefs
![Page 16: Respecting Diversity: Exploring Cultural, Spiritual and ... · systems and authorities and few culturally safe resources and supports specific to EOL • Addresses myths about advanced](https://reader036.vdocument.in/reader036/viewer/2022081400/5f0eca227e708231d440f286/html5/thumbnails/16.jpg)
Linda: Welcome other beliefs
![Page 17: Respecting Diversity: Exploring Cultural, Spiritual and ... · systems and authorities and few culturally safe resources and supports specific to EOL • Addresses myths about advanced](https://reader036.vdocument.in/reader036/viewer/2022081400/5f0eca227e708231d440f286/html5/thumbnails/17.jpg)
Yohannes: Suspending judgement
![Page 18: Respecting Diversity: Exploring Cultural, Spiritual and ... · systems and authorities and few culturally safe resources and supports specific to EOL • Addresses myths about advanced](https://reader036.vdocument.in/reader036/viewer/2022081400/5f0eca227e708231d440f286/html5/thumbnails/18.jpg)
Dr. Montour: Using Traditional Medicines
![Page 19: Respecting Diversity: Exploring Cultural, Spiritual and ... · systems and authorities and few culturally safe resources and supports specific to EOL • Addresses myths about advanced](https://reader036.vdocument.in/reader036/viewer/2022081400/5f0eca227e708231d440f286/html5/thumbnails/19.jpg)
Lawrence: Finding respectful solutions
![Page 20: Respecting Diversity: Exploring Cultural, Spiritual and ... · systems and authorities and few culturally safe resources and supports specific to EOL • Addresses myths about advanced](https://reader036.vdocument.in/reader036/viewer/2022081400/5f0eca227e708231d440f286/html5/thumbnails/20.jpg)
Dr. Marotta: Meeting clinical needs
![Page 21: Respecting Diversity: Exploring Cultural, Spiritual and ... · systems and authorities and few culturally safe resources and supports specific to EOL • Addresses myths about advanced](https://reader036.vdocument.in/reader036/viewer/2022081400/5f0eca227e708231d440f286/html5/thumbnails/21.jpg)
Simin: Grieving practices
![Page 22: Respecting Diversity: Exploring Cultural, Spiritual and ... · systems and authorities and few culturally safe resources and supports specific to EOL • Addresses myths about advanced](https://reader036.vdocument.in/reader036/viewer/2022081400/5f0eca227e708231d440f286/html5/thumbnails/22.jpg)
Shahina: Assessing clinical needs
![Page 23: Respecting Diversity: Exploring Cultural, Spiritual and ... · systems and authorities and few culturally safe resources and supports specific to EOL • Addresses myths about advanced](https://reader036.vdocument.in/reader036/viewer/2022081400/5f0eca227e708231d440f286/html5/thumbnails/23.jpg)
Bev: Reach out, person to person
![Page 24: Respecting Diversity: Exploring Cultural, Spiritual and ... · systems and authorities and few culturally safe resources and supports specific to EOL • Addresses myths about advanced](https://reader036.vdocument.in/reader036/viewer/2022081400/5f0eca227e708231d440f286/html5/thumbnails/24.jpg)
Father Ben: Equality as the underpinning of quality care
![Page 25: Respecting Diversity: Exploring Cultural, Spiritual and ... · systems and authorities and few culturally safe resources and supports specific to EOL • Addresses myths about advanced](https://reader036.vdocument.in/reader036/viewer/2022081400/5f0eca227e708231d440f286/html5/thumbnails/25.jpg)
Chochinov: Patient dignity question
What do I need to know about you as a person to give you the best care possible?
![Page 26: Respecting Diversity: Exploring Cultural, Spiritual and ... · systems and authorities and few culturally safe resources and supports specific to EOL • Addresses myths about advanced](https://reader036.vdocument.in/reader036/viewer/2022081400/5f0eca227e708231d440f286/html5/thumbnails/26.jpg)
Using LivingMyCulture and Indigenous Voices in practice• Facilitate conversations on difficult topics with
patients and families
• Start and Encourage discussions in support groups
• Professional education and volunteer training
• Resources in libraries and patient packages
• National meetings including Palliative Care Matters Consensus Conference and the Canadian Foundation for Healthcare Improvement CEO Forum