rheumatic diseases and patient organization effort in bandung indonesia
DESCRIPTION
Our effort in educating and advocating people with rheumatic diseases in Bandung IndonesiaTRANSCRIPT
![Page 1: Rheumatic Diseases and patient organization effort in Bandung Indonesia](https://reader038.vdocument.in/reader038/viewer/2022102823/546668a1b4af9f3a3f8b5302/html5/thumbnails/1.jpg)
Rheumatology, a story from Indonesia
Rachmat Gunadi Wachjudi
Rheumatology Division -Dept. of Internal Medicine Faculty of Medicine University of PadjadajaranDr.Hasan Sadikin General Hospital Hospital
![Page 2: Rheumatic Diseases and patient organization effort in Bandung Indonesia](https://reader038.vdocument.in/reader038/viewer/2022102823/546668a1b4af9f3a3f8b5302/html5/thumbnails/2.jpg)
Continues update and
upgrade knowledge and
skill for HCPs
Giving an opportunity to a novel treatment
for patients
Collaborative program with
other institution and support
group
Div of Rheumatology -Dept. of Internal Medicine Faculty of Medicine University of PadjadajaranHasan Sadikin General Hospital
![Page 3: Rheumatic Diseases and patient organization effort in Bandung Indonesia](https://reader038.vdocument.in/reader038/viewer/2022102823/546668a1b4af9f3a3f8b5302/html5/thumbnails/3.jpg)
• Rheumatology Scientific meetings• Continuous Medicine Education• Recommendation Guidelines
![Page 4: Rheumatic Diseases and patient organization effort in Bandung Indonesia](https://reader038.vdocument.in/reader038/viewer/2022102823/546668a1b4af9f3a3f8b5302/html5/thumbnails/4.jpg)
1. Site for Multicenter International and National Phase III and IV Study
• Systemic Lupus Erythematosus • Rheumatoid Arthritis • Gouty Arthritis2. Survey and Study Case report3. Herbal Medicine in cooperation with School of Pharmacy
ITB
Div of Rheumatology -Dept. of Internal Medicine Faculty of Medicine University of PadjadajaranHasan Sadikin General Hospital
![Page 5: Rheumatic Diseases and patient organization effort in Bandung Indonesia](https://reader038.vdocument.in/reader038/viewer/2022102823/546668a1b4af9f3a3f8b5302/html5/thumbnails/5.jpg)
• Uji Efektivitas dan Keamanan ekstrak buah Mahkota Dewa (Phaleria macrocarpa fructus) dibandungkan dengan meloxicam pada penderita osteoartritis (Andri Reza Rahmadi,2013)
• Survey Penatalaksanaan Artritis Gout oleh Dokter Umum di Bandung ( Ignatius Irawan Hidayat,2012)
• Gambaran Fungsional Aktivitas kegiatan sehari-hari pada pasien Lansia dengan osteoartritis Lutut di Klinik Geriatri RSUP Hasan Sadikin Bandung (Salsabila Firdausia, 2012)
• Profil Klinis Penderita Osteoartritis di Klinik Reumatologi RS Hasan Sadikin Bandung Januari-Desember 2011 (Nuraida Wisudani)
• Profil dari penyakit sistemik sklerosis di klinik reumatologi RS Hasan Sadikin Jan 2009-Des 2011 (Melindah, 2012)
• Manifestasi klinis awal dan perjalanan penyakit pasien SLE RS Hasan Sadikin (Liani Christi, 2012)
• Profil pasien rawat jalan di klinik reumatologi ES Hasan Sadikin selama tahun 2011 (Johan Hamik, 2012)
• Manifestasi klinis SLE di RS Hasan Sadikin (Mira A. Najla, 2011)• Hubungan Feritin dengan aktivitas Penyakit pada pasien SLE di RS Hasan Sadikin ( Irene
Gunawan, 2011)• Profil Klinis penderita Artritis reumatoid di RS Hasan Sadikin (Andri Reza Rahmadi, 2011)
![Page 6: Rheumatic Diseases and patient organization effort in Bandung Indonesia](https://reader038.vdocument.in/reader038/viewer/2022102823/546668a1b4af9f3a3f8b5302/html5/thumbnails/6.jpg)
• Kesesuaian antara diagnosis klinis dengan diagnosis USG pada pasien dengan Rotator Cuff Sindrome ( Dewi AL, 2013)
• Prevalensi Penyakit Reumatik di Poliklinik, RS Hasan Sadikin Jan-Des 2012 (Putri Vidyaniati, 2013)• Trombosis Arteri poplitea pada juvenile artritis reumatoid (Retno Hidayah, 2013)• Gambaran klinis Pasien SLE dengan infeksi Tuberculosa di RS Hasan Sadikin Jan 2009-Mar 2013
(Nurul Aliyah, 2013)• Hubungan IMT, Kadar Kalsium dan Vit D dengan kepadatan massa tulang [ada lansia dengan
PPOK (Diah Rahmah, 2013)• Hubungan kadar IL-6, TNF-Alfa, dan Osteoprotegerin dengan osteoporosis pada lansia dengan
PPOK (Elizabeth de Haan, 2013)• Gambaran Klinis Nefritis pada pasien SLE yang baru terdiagnosa di RS Hasan Sadikin Jan-Des
2012 (Hasnur Rahmi, 2013)• Clinical profile of Gout in Rheumatology Clinic dr. Hasan Sadikin Hospital (Hardiantomo, 2013)• Gambaran Klinis dan Penunjang penderita sistemik sklerosis di Poli Reumatologi RS Hasan
Sadikin (Santi CG, 2013) • Suspek Adult Onset Still’s Disease (Case Report, Camelia K. Nissa, 2012)• Trombositopenia refrakter pada pasien SLE di RS Hasan Sadikin (Dinny Prihadi, 2011)
![Page 7: Rheumatic Diseases and patient organization effort in Bandung Indonesia](https://reader038.vdocument.in/reader038/viewer/2022102823/546668a1b4af9f3a3f8b5302/html5/thumbnails/7.jpg)
Patients with Autoimmune
Disease
Primary Health Care
• Patient Home Visit• Support Groups
• Weekly and Annual Gathering• Fund Raising
![Page 8: Rheumatic Diseases and patient organization effort in Bandung Indonesia](https://reader038.vdocument.in/reader038/viewer/2022102823/546668a1b4af9f3a3f8b5302/html5/thumbnails/8.jpg)
Patient home visit
• Patient ID : Mrs. E , 50 y.o, from Cimalaka, West Java, Indonesia, (170 km from Jakarta )
Div of Rheumatology -Dept. of Internal Medicine Faculty of Medicine University of PadjadajaranHasan Sadikin General Hospital
![Page 9: Rheumatic Diseases and patient organization effort in Bandung Indonesia](https://reader038.vdocument.in/reader038/viewer/2022102823/546668a1b4af9f3a3f8b5302/html5/thumbnails/9.jpg)
Support Groups
Div of Rheumatology -Dept. of Internal Medicine Faculty of Medicine University of PadjadajaranHasan Sadikin General Hospital
Syamsi Dhuha Foundation
(Lupus and Low Vision )
Osteoporosis Gym Community
PERMARI (Rheumatic Community)
![Page 10: Rheumatic Diseases and patient organization effort in Bandung Indonesia](https://reader038.vdocument.in/reader038/viewer/2022102823/546668a1b4af9f3a3f8b5302/html5/thumbnails/10.jpg)
Fund Raising
• Charity Night for RA patient• Collaboration with Music Institute
Daya Indonesia
![Page 11: Rheumatic Diseases and patient organization effort in Bandung Indonesia](https://reader038.vdocument.in/reader038/viewer/2022102823/546668a1b4af9f3a3f8b5302/html5/thumbnails/11.jpg)
Weekly and Annual Rheumatic Education
Rheumatic patients Education
Gymnastic for patients with rheumatism
![Page 12: Rheumatic Diseases and patient organization effort in Bandung Indonesia](https://reader038.vdocument.in/reader038/viewer/2022102823/546668a1b4af9f3a3f8b5302/html5/thumbnails/12.jpg)
Patient Education
![Page 13: Rheumatic Diseases and patient organization effort in Bandung Indonesia](https://reader038.vdocument.in/reader038/viewer/2022102823/546668a1b4af9f3a3f8b5302/html5/thumbnails/13.jpg)
Friendly Gathering Doctors and Patients
• The crater of Drajat highland, Garut, West Java.
• 2012
![Page 14: Rheumatic Diseases and patient organization effort in Bandung Indonesia](https://reader038.vdocument.in/reader038/viewer/2022102823/546668a1b4af9f3a3f8b5302/html5/thumbnails/14.jpg)
• In collaboration with
![Page 15: Rheumatic Diseases and patient organization effort in Bandung Indonesia](https://reader038.vdocument.in/reader038/viewer/2022102823/546668a1b4af9f3a3f8b5302/html5/thumbnails/15.jpg)
Acknowledgement
Div of Rheumatology -Dept. of Internal Medicine Faculty of Medicine University of PadjadajaranDr Hasan Sadikin General Hospital
A bunch of thanks and gratitude to all staffs from :
Mira, Dewi, Andri, Lani, Eggi, Erda, Dinda, Dede
Dian, Anne Handono,
Pramudyo
Bayu, Rudy, Nucky, Edi, Nina