Science: Together for All of UsExample of Rheumatic Diseases

Swissotel Tallinn, Estonia, 1‐2 March 2012

Organizers and Supporters

East Tallinn Central Hospital

Estonian Rheumatism Association

Department of Public Health, University of Tartu

Bone and Joint Decade

Moderators

Amye LeongUSA

Marika TammaruEstonia

Panel 1 – national and international (Mieke, Tiina V)

1. What is the role of research among inputs for the health policy decisions?

2. Why should the research efforts be international/global?

3. Why should a small country such as Estonia participate in international research?

4. Clinical research: what are the pros and cons of being a small country?

Speakers

Tiina VeldiEast Tallinn Central Hospital

Estonia

Mieke HazesRotterdam Erasmus University

The Netherlands

Panel 2 – patients (Maarten, Tiina J)

1. What do the patients gain from participation in research?

2. What does the research gain from the participation of the patients?

3. What are the ways in which patients can participate in research?

4. Small country, unique language, few patients –what opportunities for participation in research do they have?

Speakers

Tiina JasinskiEstonian Rheumatism Association

Estonia

Maarten de WitEULAR

The Netherlands

Panel 3 – hospitals (Sherine, Kati)

1. What is special about research done by hospitals for the health policy decisions?

2. What does a (non-university) hospital gain from participating in research?

3. What are the crucial points for a hospital to acquire the capacity to participate in the research?

4. Small country and developed info-technology: what is the role of hospitals?

Speakers

Dr Kati OtsaEast Tallinn Central Hospital

Estonia

Prof Sherine GabrielMayo Clinic

USA

Topic of the workshops• What could the state do?

• What could the hospitals do?

• What could the patients do?

• Moderators

– Mieke Hazes, rheumatologist/ epidemiologist

– Sherine Gabriel, rheumatologist/ epidemiologist

– Maarten de Wit, patient/ patients advocate, Amye Leong, patient/ patients advocate

My colleague told me:

“I have no time for the research, I have to treat my patients”

Every day we produce a huge amount of data…

…but we are unable to catch it

?