searching for quality information via pubmed and other sources
DESCRIPTION
Many patients spend considerable amounts of time on the internet searching for quality disease and treatment information. David Oziel walks through the well know PubMed search engine and some of derivative websites which enable users to sort through scientific publications for their disease. David Oziel is a consultant in the field of Internet health information. He is specialized in databases, quality of medical information, disease classification, and Web 2.0 tools. He also teaches information management at Paris Universities. His background includes biochemistry and information science studies. He participated to the creation of Orpha.net and was the responsible for the information of the rare disease database. During nine years, his areas of responsibility included relationship with the members of the Scientific Committee, database quality, training for Orpha.net teams in Europe and coordination of their activity.TRANSCRIPT
Searching for quality information
via
Pubmed and other sources
Medical information on the WebMedical information on the Web
Web : 1991Web : 1991
2010 : 200 million websites (Netcraft)
SourcesSources
Public (universities, hospitals, medical libraries,…)
Private (labs, medical websites,…)
Publishers
Support groups
Individuals
…
Search toolsSearch tools
Search enginesSearch engines
Robots
Search on full text
GatewaysGateways
Information evaluated, selected, organized
MedlinePlus (National Library of Medicine)
DatabasesDatabases
Collection of information concerning a defined
domain, organized and described with precise and
specific keywords.
DiseasesDiseases NORD Genetics Home Reference Orphanet
Scientific articles PubMedPubMed
OrphanetOrphanet
5 languages5 languages / 5 700 diseases / 5 700 diseases
Full text EncyclopaediaFull text Encyclopaedia Review articles on rare diseases (500 in english,
300 in french) Summaries (2 000 in english, french,…)
Information on rare diseasesInformation on rare diseases / 36 countries : / 36 countries : search programs, diagnosis tests, clinics, support search programs, diagnosis tests, clinics, support groups,…groups,…
Organisation and indexation of the databaseOrganisation and indexation of the database
Fabry disease
Alpha-galactosidase A deficiency
Research programs
Clinical trials
Drugs
Clinics
Diagnosis
Texts on diseases
PersonsAnderson-Fabry disease
AddressesAngiokeratoma, diffuse
PubMedPubMed
Bibliographic databaseBibliographic database 19 million citations, 5 000 publications19 million citations, 5 000 publications
Medline (1971) PubMed (PubPubMed (Publiclic Med Medlineline): 1997): 1997
2 millions of connexions a day2 millions of connexions a day
NLMNLM (National Library of Medicine, 1836) 7 millions of documents7 millions of documents
Biomedical domainBiomedical domain Diseases, pharmacology, biology, care, public Diseases, pharmacology, biology, care, public
health, health economy, ethics,…health, health economy, ethics,…
Thesaurus
MeSH : Medical Subject Headings