Sixth Meeting of the Washington Group on Sixth Meeting of the Washington Group on Disability StatisticsDisability Statistics

Session 3: In-depth review of cognitive and field Session 3: In-depth review of cognitive and field test results and experiences test results and experiences

CognitionCognition

Alicia BercovichPopulation Census Committee, IBGE, Brazil

Kampala, Uganda, October 10-13 2006Kampala, Uganda, October 10-13 2006

Brazil Brazil Cognitive TestCognitive Test

• Carried out on April 2006;Carried out on April 2006;• In three Brazilian municipalities:In three Brazilian municipalities:

– Rio de Janeiro in the Southeast Region;– Curitiba in the South Region; and– Olinda in the Northeast Region.

• Selection Process:Selection Process:– Used 2000 Census Information on Disabled

People and visited the selected households– Quota Sample of each domain tested– Selected Census Tracts with higher density of

disabled people

Interviewers from IBGE staff on household Interviewers from IBGE staff on household surveyssurveys

1515

MenMen 66

WomenWomen 99

QualificationQualification High SchoolHigh School

CollegeCollege

TrainingTraining 2 days2 days

Forms, Handbook, CD2000 Address File, MapsForms, Handbook, CD2000 Address File, Maps

ObserversObservers 77

RespondentsRespondents 406406

–Persons with at least one type of disabilityPersons with at least one type of disability 227227

–Persons with no disabilityPersons with no disability 179179

Implementation of the cognitive testImplementation of the cognitive test

QuestionnaireQuestionnaire

• Added four questions, called additional Added four questions, called additional questions, which had been used in 2000 Census;questions, which had been used in 2000 Census;

• By request of CORDE we included a question on By request of CORDE we included a question on Body Functions and Structure;Body Functions and Structure;

• The order of the categories of response of the The order of the categories of response of the additional questions have been modified additional questions have been modified considering the results of pilot tests preceding considering the results of pilot tests preceding 2000 Census:2000 Census:

• The core questions and the categories of The core questions and the categories of response were maintainedresponse were maintained

Type of DisabilityTotal Male Female Male Female Male Female Male Female

Total 100,0 100,0 100,0 100,0 100,0 100,0 100,0 100,0 100,0

With Disability 76,1 76,9 75,7 100,0 33,3 74,5 67,5 81,8 100,0

Vision 22,9 17,9 26,3 0,0 50,0 19,1 25,5 17,4 26,8 Hearing 11,7 10,0 12,9 0,0 0,0 10,0 10,9 13,0 15,5 Mobility 21,8 20,7 22,5 14,3 0,0 20,9 21,8 21,7 23,7 Cognition 22,1 18,6 24,4 28,6 50,0 18,2 26,4 17,4 21,6 Self-care 7,4 12,9 3,8 14,3 0,0 12,7 2,7 13,0 5,2 Communicating 7,2 10,7 4,8 14,3 0,0 10,0 6,4 13,0 3,1 Body Functions and Structure 6,9 9,3 5,3 28,6 0,0 9,1 6,4 4,3 4,1

Without Disability 23,9 23,1 24,3 0,0 66,7 25,5 32,5 18,2 0,0

Source: IBGE, Disability CognitiveTest, April 2006

TotalPopulation

Interviews by type of disability (%)

0 to 14 years 15 to 64 years 65 years and over

Self Response

Question on cognitionQuestion on cognition

4.01 - Do you have difficulty remembering or 4.01 - Do you have difficulty remembering or concentrating?concentrating?

01 – No, no difficultyNo, no difficulty

02 – Yes, some difficulty02 – Yes, some difficulty

03 – Yes, a lot of difficulty03 – Yes, a lot of difficulty

04 – Can not do at all04 – Can not do at all

09 – 09 – No Answer/Don’t knowNo Answer/Don’t know

Repeat = Did the respondent need you to repeat any part of the question?Repeat = Did the respondent need you to repeat any part of the question?Options = Did the respondent have any difficulty using the response options?Options = Did the respondent have any difficulty using the response options? Explanations = Did the respondent ask for clarification or qualify their answer?Explanations = Did the respondent ask for clarification or qualify their answer?

Core questionCore question

Total Repeat Options Explanations

Total 55 25 14 16

No, no difficulty 25 10 7 8

Yes, some difficulty 24 12 5 7

Yes, a lot of difficulty 4 1 2 1

Can not do at all 2 2 0 0

Three questions answered by the interviewer immediately after the core question

Question on cognitionQuestion on cognition

¿Why did you answer that way?

Proxy answers for severe cognition problems :

Because he has a mental DiseaseBecause he is not good of headBecause he is very illHe has brain paralysisAutistic with mental problemShe is with AlzeimerMental RetardationHe doesn’t speak nor communicates

Open questionOpen question

Question on cognitionQuestion on cognition

Self Answers

¿Why did you answer that way?

Some difficulty• People speaks with me and I ask to repeat• I have difficulty remembering, even telephone messages• I have bad memory• I forgot even very important things, like medicines and appointments• A lot of difficulty for concentrating

No difficulty• Because I am very good for remembering• I have good memory• I concentrate well• I have no difficulty at all• I know all the telephone numbers of the family and important days

Cognition: Response Patterns

A 44 48 31,21 40,68

B 3 0 2,13 0,00

C 7 2 4,96 1,69

D 2 0 1,42 0,00

E 4 0 2,84 0,00

F 1 4 0,71 3,39

G 1 0 0,71 0,00

H 2 4 1,42 3,39

I 45 44 31,91 37,29

J 4 3 2,84 2,54

K 7 1 4,96 0,85

L 5 4 3,55 3,39

M 1 2 0,71 1,69

N 6 3 4,26 2,54

O 3 1 2,13 0,85P 6 2 4,26 1,69

TOTAL 141 118 100,00 100,00

Source: IBGE Cognitive Test 2006

Proxy (%)

Pattern Self Proxy Self (%)

Response Patterns (%)Cognition

0,00

10,00

20,00

30,00

40,00

50,00

60,00

70,00

80,00

90,00

Consistent Possible Falsenegatives

Falsepositives

Self

Proxy

Response Patterns by level of SchoolingMales

0,00

10,00

20,00

30,00

40,00

50,00

60,00

NoDisability

Likely No Disability LikelyYes

FalseNegative

FalsePositive

Patterns

Per

cen

tag

e (%

)

Less than7 yearsschooling

Eight ormoreyearsschooling

Response Patterns by level of SchoolingFemale

0,00

10,00

20,00

30,00

40,00

50,00

60,00

Patterns

Perc

en

tag

e (

%) Less than

7 yearsschooling

Eight ormore yearsschooling

Final RemarksFinal Remarks• The answers to the additional questions were

generally consistent with the core questions• When compared with the 2000 Census

questions were also compatible, but seemed to detect better some types of problems

• No problems to understand the core questions• Not so good for children with mental retardation

or other problems• Small proportion of false-negatives or false-

positives• Use for policy making?

THE END

Type of DisabilityTotal Male Female Male Female Male Female Male Female

Total 180 65 115 3 3 51 80 11 32

With Disability 137 50 87 3 1 38 54 9 32 Vision 80 25 55 0 1 21 28 4 26 Hearing 41 14 27 0 0 11 12 3 15 Mobility 76 29 47 1 0 23 24 5 23 Cognition 77 26 51 2 1 20 29 4 21 Self-care 26 18 8 1 0 14 3 3 5 Communicating 25 15 10 1 0 11 7 3 3 Body Functions and Structure 24 13 11 2 0 10 7 1 4

Without Disability 43 15 28 0 2 13 26 2 0

Source: IBGE, Disability CognitiveTest, April 2006

Self Response

TotalPopulation

Number of Interviews by type of disability

0 to 14 years 15 to 64 years 65 years and over

4.02 - Do you have difficulty remembering, concentrating or both?

Total No difficulty Some difficulty A lot of difficulty Can not do at all

Total 0 0 0 0 0

Remembering 0

Concetrating 0

Both 0

No Answer / Don’t Know 0

4.01 - Do you have difficulty remembering or concentrating?

Question on cognitionQuestion on cognition

4.02 - Do you have difficulty remembering, concentrating or both?01 - Remembering02 - Concentrating03 - Both 09 - No Answer/Don’t Know

4.03 - How often do you have difficulty remembering or concentrating well?01 - Very often 02 - Somewhat often 03 - Never  09 - No Answer/Don’t Know

4.04 - When you are having difficulty, how much effort do you have to put into remembering or concentrating? 01 - A lot of effort 02 - Some effort 03 - No effort  09 - No Answer/Don’t Know

4.05 - Do you believe that your memory or concentration difficulties are… [MARK ALL THAT APPLY] 01 - because you have too many things to do? 02 - because you getting older? 03 - because of something else?  09 - No Answer/Don’t Know

4.06 - Are there any activities that you cannot do because of a problem with your memory or concentration? 01 - Yes. Which would be this activity?………….02 - No09 - No Answer/Don’t Know

4.07 - How concerned or worried are you about your ability to remember or concentrate?01 - Very concerned 02 - Somewhat concerned03 - Not at all  09 - No Answer/Don’t Know