so what do the consumers think? developing a model of paediatric asthma education mr craig moore...
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So What Do The Consumers Think?Developing a Model of Paediatric
Asthma Education
Mr Craig MoorePaediatric Asthma Educator
Dr Claire HarrisProject Manager
Ms Fiona WilkinsonSenior Project Officer
Partnership for clinical effectiveness
Academic and hospital Community and local
government General Practitioners State government Advocacy groups Research
Health for Kids in the South East
To improve health outcomes for children and young people in the Southern Health catchment through
Best practice
Partnerships
Strategies
HFKSE
GP IntegrationInnovative Hospital
ServicesCommunity Health
Strategy
Community Asthma Education Service
Clinical PracticeGuidelines and
Pathways
Cuture of Clinical Effectiveness
Strategy Strategy Strategy Strategy
Consumer Representation
Community Asthma Education Service
To provide health education to children with asthma and their families
To link with and enhance existing health promotion activities in the community, school and early childhood settings in partnership with the Asthma Foundation of Victoria
To provide education to GPs, MCHNs, pharmacists and other community health providers so that patients receive consistent information
A History Lesson
1982: Victorian Mental Illness Awareness Council 1991: Mental Health Statement of Rights and
Responsibilities 2001: Southern Health Consumer Advisory Committee
established 2006: DHS launched ‘Doing it with us not for us’
How We Did It
Plan
Recruit
Educate
Support
Involve
Value
Review
Plan
Recruit
Educate
Support
Involve
Value
Review
Plan
Existing structures– Asthma Foundation of Victoria– Australian Association for the Wellbeing of Children in
Healtcare (AWCH) Literature review of resources
– ‘Improving Health Services through Consumer Participation: a resource guide for organisations’ (Dept of Health and Ageing)
Health for Kids Consumer Participation Plan– Key practical strategies in rolling out a Consumer
Participation program across the program
Plan
Plan
Inclusion Criteria– Must have asthma– Or care for a child with asthma– Live in Melbourne’s SE suburbs
Exclusion Criteria– Requires an interpreter– Had other agenda
Plan
Recruit
Educate
Support
Involve
Value
Review
Recruit
Advertise with posters– Maternal and Child Health Centres– Outpatients– Wards– Emergency Department– Community Health Centres– Libraries
Media release Targeted recruitment
Recruit
Recruitment Source
Posters
Newspaper
Targeted Approach
Plan
Recruit
Educate
Support
Involve
Value
Review
Educate
Introductory meeting Facilitator Explain role Manage expectations Set ground rules around feedback
Plan
Recruit
Educate
Support
Involve
Value
Review
Support
Reimburse expenses– Childcare– Carparking– Travel costs– Meals
Debrief Champion role to others Refusal to participate – is ok!
Plan
Recruit
Educate
Support
Involve
Value
Review
Involve
Format:– Steering Committees– Project Management Group– Casey Asthma Working Group– Forums– Service reviews– Survey design– Consultation sessions
Information overload? Fax, email, post, face-face, etc Hands-on tours
Plan
Recruit
Educate
Support
Involve
Value
Review
Value
Feedback forums– Tell Consumer Representatives what they have done– Demonstrate how they assisted the project
Overtly value the consumer perspective as being equal to others
Plan
Recruit
Educate
Support
Involve
Value
Review
Review
Outcome of involvement Feedback on the role Evaluation of process Mainstream into wider healthcare program
– “core business”
The Future
Include the consumer perspective in everything we do Advocate for the inclusion of participation around public
policy in the tertiary education of health professionals Mandate consumer participation activities in PDs Include a consumer on job interview panels View complaints by consumers as a gift