sources - office of the national coordinator for health ......the value of consumer access & use...

2
Giving individuals easy and secure access to their health information increases patient engagement and advances person-centered health. Had to bring an X-ray, MRI, or other type of test result with them to the appointment Had to wait for test results longer than they thought reasonable Had to redo a test or procedure because the earlier test results were not available Had to provide their medical history again because their chart could not be found Had to tell a health care provider about their medical history because they had not gotten their records from another health care provider 1/3 who have seen a health care provider in the last year experienced at least one of the following gaps in information exchange. 1 THE VALUE OF CONSUMER ACCESS & USE OF ONLINE HEALTH RECORDS INDIVIDUALS NEED ACCESS TO THEIR FULL HEALTH RECORDS TO ADDRESS INFORMATION GAPS 1. https://www.healthit.gov/sites/default/files/briefs/oncdatabrief30_accesstrends_.pdf 2. http://www.accenture.com/SiteCollectionDocuments/PDF/Accenture-Silver-Surfers-Are-Catching-The-eHealth-Wave.pdf 3. https://ehrintelligence.com/2014/12/18/why-dont-35-of-patients-know-that-patient-portals-exist/ 4. http://www.healthit.gov/FACAS/sites/faca/files/HITSC_DataUpdate_2014-08-20.pdf 5. Chan KS, Fowles JB, Weiner JP. EHRs and reliability and validity of quality mreasures. A review of the literature. Med Care Res Rev, Feb 11, 2010 6. Gandhi TK, Kachalia A, Thomas EJ, Puopolo AL, Yoon C, Brennan TA, Studdert DM. Missed and delayed diagnoses in the ambulatory setting: a study of closed malpractice claims. Ann Intern Med. 2006 Oct 3;145(7):488-96 7. http://newsroom.accenture.com/news/most-us-doctors-believe-patients-should-update-electronic-health-record-but-not-have-full- access-to-it-according-to-accenture-eight-country-survey.htm 8. http://www.nationalpartnership.org/research-library/health-care/HIT/engaging-patients-and-families.pdf 9. http://newsroom.accenture.com/article_display.cfm?article_id=5842 10. http://share.kaiserpermanente.org/article/my-health-manager-users-more-likely-to-remain-kaiser-permanente-members/ 11. CHCF. Consumers and Health Information Technology: A National Survey.Apr 2010 12. http://www.pewinternet.org/2013/01/28/tracking-for-health/ 13. http://www.pewinternet.org/fact-sheets/health-fact-sheet/ 14. http://www.pwc.com/us/en/industry/entertainment-media/publications/consumer-intelligence-series/wearable-technology.jhtml 15. https://www.healthit.gov/sites/default/files/briefs/oncdatabrief30_accesstrends_.pdf 16. ONC Data Brief ■ No. 26 ■ June 2015 Disparities in Individuals’ Access and Use of Health IT in 2013 By Vaishali Patel, PhD MPH,Wesley Barker, MS, Erin Siminerio, MPH https://www.healthit.gov/sites/default/files/briefs/ oncdatabrief26june2015consumerhealthit.pdf 17. Heisey-Grove, D., Patel,V., Searcy,T. (September 2015) Physician electronic exchange of patient health information, 2014. ONC Data Brief. Office of the National Coordinator for Health Information Technology: Washington DC. 18. https://www.cms.gov/regulations-and-guidance/legislation/ehrincentiveprograms/stage_2.html 19. Delbanco, et al. Inviting Patients to Read Their Doctors’ Notes: A Quasi-experimental Study and a Look Ahead. Ann Intern Med. 2012;157(7):461-470. Available online at: http://annals.org/article.aspx?articleid=1363511 20. Patel V., Barker W. & Siminerio E. (October 2015).Trends in Consumer Access and Use of Electronic Health Information ONC Data Brief, no.2X. Office of the National Coordinator for Health Information Technology: Washington DC. 21. https://www.healthit.gov/sites/default/files/briefs/oncdatabrief30_accesstrends_.pdf 22. BELOW 23. BELOW 24. http://www.nejm.org/doi/pdf/10.1056/NEJMsa063979 SOURCES For more information about efforts to empower individuals with their online health records visit www.HealthIT.gov/bluebutton. INDIVIDUALS VALUE ONLINE ACCESS TO THEIR HEALTH RECORDS INDIVIDUALS VALUE ONLINE ACCESS TO THEIR HEALTH RECORDS. 1 7/10 INDIVIDUALS ARE ENGAGING WITH THEIR HEALTH RECORDS ONLINE MORE THAN HALF (55%) of individuals who were offered access VIEWED THEIR RECORD within the past year. 15 people with online access say it improves their desire to do something about their health 8 6/10 The more frequently individuals access their health information online, the more they report that it motivates them to do something to improve their health. 8 The OpenNotes study showed that patients who access their medical records online feel more in control of their care and are more likely to take their medications as prescribed. 19 67% Used it to monitor their health 33% Shared it with someone else 35% Downloaded it Individuals are using their online access to address information gaps and manage their health. 1 In a given year, the average Medicare patient visits... 24 Primary Care Physicians Specialists Different Practices 2 5 4 INDIVIDUALS CAN SERVE AS THE HUB OF INFORMATION EXCHANGE of those who accessed their health information online found it useful 21 81% 12% Sent it to an app/PHR 67% 67% OF U.S. ADULTS AGE 65 & OLDER say that accessing their medical information online is important. 2 Individuals use of online medical records doesn’t vary by age, setting (rural vs. urban) or race. 16 AGE IS NOT A FACTOR

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Page 1: SOURCES - Office of the National Coordinator for Health ......THE VALUE OF CONSUMER ACCESS & USE OF ONLINE HEALTH RECORDS IndIvIduals need access to theIr full health records to address

Giving individuals easy and secure access to their health information increases patient engagement and advances person-centered health.

Had to bring an X-ray, MRI, or other type of test result with them to the

appointment

Had to wait for test results longer than they thought

reasonable

Had to redo a test or procedure because

the earlier test results were not

available

Had to provide their medical history

again because their chart could not be

found

Had to tell a health care provider about

their medical history because they had not gotten their records from another health

care provider

1/3 who have seen a health care provider in the last year experienced at least one of the following gaps in information exchange.1

THE VALUE OF CONSUMER ACCESS & USE OF ONLINE HEALTH RECORDS

IndIvIduals need access to theIr full health records to address InformatIon Gaps

1. https://www.healthit.gov/sites/default/files/briefs/oncdatabrief30_accesstrends_.pdf2. http://www.accenture.com/SiteCollectionDocuments/PDF/Accenture-Silver-Surfers-Are-Catching-The-eHealth-Wave.pdf3. https://ehrintelligence.com/2014/12/18/why-dont-35-of-patients-know-that-patient-portals-exist/4. http://www.healthit.gov/FACAS/sites/faca/files/HITSC_DataUpdate_2014-08-20.pdf5. Chan KS, Fowles JB, Weiner JP. EHRs and reliability and validity of quality mreasures. A review of the literature. Med Care Res Rev,

Feb11,20106. Gandhi TK, Kachalia A, Thomas EJ, Puopolo AL, Yoon C, Brennan TA, Studdert DM. Missed and delayed diagnoses in the ambulatory

setting:astudyofclosedmalpracticeclaims.AnnInternMed.2006Oct3;145(7):488-967. http://newsroom.accenture.com/news/most-us-doctors-believe-patients-should-update-electronic-health-record-but-not-have-full-

access-to-it-according-to-accenture-eight-country-survey.htm8. http://www.nationalpartnership.org/research-library/health-care/HIT/engaging-patients-and-families.pdf9. http://newsroom.accenture.com/article_display.cfm?article_id=584210. http://share.kaiserpermanente.org/article/my-health-manager-users-more-likely-to-remain-kaiser-permanente-members/11. CHCF.ConsumersandHealthInformationTechnology:ANationalSurvey.Apr201012. http://www.pewinternet.org/2013/01/28/tracking-for-health/13. http://www.pewinternet.org/fact-sheets/health-fact-sheet/14. http://www.pwc.com/us/en/industry/entertainment-media/publications/consumer-intelligence-series/wearable-technology.jhtml

15. https://www.healthit.gov/sites/default/files/briefs/oncdatabrief30_accesstrends_.pdf16. ONCDataBrief■No.26■June2015DisparitiesinIndividuals’AccessandUseofHealthITin2013ByVaishali

Patel,PhDMPH,WesleyBarker,MS,ErinSiminerio,MPHhttps://www.healthit.gov/sites/default/files/briefs/oncdatabrief26june2015consumerhealthit.pdf

17. Heisey-Grove,D.,Patel,V.,Searcy,T.(September2015)Physicianelectronicexchangeofpatienthealthinformation,2014.ONCDataBrief.OfficeoftheNationalCoordinatorforHealthInformationTechnology:WashingtonDC.

18. https://www.cms.gov/regulations-and-guidance/legislation/ehrincentiveprograms/stage_2.html19. Delbanco,etal.InvitingPatientstoReadTheirDoctors’Notes:AQuasi-experimentalStudyandaLookAhead.AnnInternMed.

2012;157(7):461-470.Availableonlineat:http://annals.org/article.aspx?articleid=136351120. PatelV.,BarkerW.&SiminerioE.(October2015).TrendsinConsumerAccessandUseofElectronicHealthInformationONCData

Brief,no.2X.OfficeoftheNationalCoordinatorforHealthInformationTechnology:WashingtonDC.21. https://www.healthit.gov/sites/default/files/briefs/oncdatabrief30_accesstrends_.pdf22. BELOW23. BELOW24. http://www.nejm.org/doi/pdf/10.1056/NEJMsa063979

SOURCES

For more information about efforts to empower individuals with their online health records visit www.HealthIT.gov/bluebutton.

IndIvIduals value onlIne access to theIr health records

INDIVIDUALS VALUE ONLINE ACCESS TO THEIR HEALTH RECORDS.17/10

IndIvIduals are enGaGInG WIth theIr health records onlIne

More than half (55%)ofindividualswhowere offered access viewed their record within the past year.15

people with online access say it improves their desire to do something about their health86/10

The more frequently individuals access their health information online, the more they report that it motivates them to do something to improve their health.8

The OpenNotes study showed that patients who access their medical records online feel more in control of their care and are more likely to take their medications as prescribed.19

67%Usedittomonitor

their health

33%Shared it with someone else

35%Downloaded it

Individuals are using their online access to address information gaps and manage their health.1

In a given year, the average Medicare patient visits...24

primary care physicians

specialists

different practices

25

4

IndIvIduals can serve as the huB of InformatIon eXchanGe

of those who accessed their health information online found it useful21

81%

12%Sent it to an app/PHR

67%

67% OF U.S. ADULTS AgE 65 & OLDER say that accessing their medical information online is important.2

Individuals use of online medical records doesn’tvarybyage,setting(ruralvs.urban)or race.16

AgE IS NOT A FACTOR

Page 2: SOURCES - Office of the National Coordinator for Health ......THE VALUE OF CONSUMER ACCESS & USE OF ONLINE HEALTH RECORDS IndIvIduals need access to theIr full health records to address

In 2014, 6 out of 10 hospitals provided their patients with the capability to view, download, and transmit their health information—a significant increase

from the previous year.22

IncreasInGlY more patIents have onlIne access

35/64 2558 41

ONLINE ACCESS BOOSTS PATIENT RETENTION

A MAjORITy OF PROVIDERS ARE PROVIDINg ONLINE ACCESS TO HEALTH INFORMATION

say that having online access to their medical records has had a positive effect on their decision to stay with

their physicians8

would be willing to switch doctors to gain online access

to their own electronic medical records.9

Kaiser Permanente patients with online access to keycomponentsoftheelectronichealthrecord’spatient portal, My Health Manager, are 2.6 times

morelikelythannonuserstoremain Kaiser members.23

58% 41%

2.6x

1. http://www.healthit.gov/sites/default/files/consumeraccessdatabrief_9_10_14.pdf2. http://www.accenture.com/SiteCollectionDocuments/PDF/Accenture-Silver-Surfers-Are-Catching-The-eHealth-Wave.pdf3. https://ehrintelligence.com/2014/12/18/why-dont-35-of-patients-know-that-patient-portals-exist/4. http://www.healthit.gov/FACAS/sites/faca/files/HITSC_DataUpdate_2014-08-20.pdf5. Chan KS, Fowles JB, Weiner JP. EHRs and reliability and validity of quality mreasures. A review of the literature. Med Care Res Rev,

Feb11,20106. Gandhi TK, Kachalia A, Thomas EJ, Puopolo AL, Yoon C, Brennan TA, Studdert DM. Missed and delayed diagnoses in the ambulatory

setting:astudyofclosedmalpracticeclaims.AnnInternMed.2006Oct3;145(7):488-967. http://newsroom.accenture.com/news/most-us-doctors-believe-patients-should-update-electronic-health-record-but-not-have-full-

access-to-it-according-to-accenture-eight-country-survey.htm8. http://www.nationalpartnership.org/research-library/health-care/HIT/engaging-patients-and-families.pdf9. http://newsroom.accenture.com/article_display.cfm?article_id=584210. http://share.kaiserpermanente.org/article/my-health-manager-users-more-likely-to-remain-kaiser-permanente-members/11. CHCF.ConsumersandHealthInformationTechnology:ANationalSurvey.Apr201012. http://www.pewinternet.org/2013/01/28/tracking-for-health/13. http://www.pewinternet.org/fact-sheets/health-fact-sheet/

14. http://www.pwc.com/us/en/industry/entertainment-media/publications/consumer-intelligence-series/wearable-technology.jhtml15. PatelV.,BarkerW.&SiminerioE.(October2015).ONC Data Brief, no.2X.OfficeoftheNationalCoordinatorforHealthInformation

Technology: Washington DC.16. ONCDataBrief■No.26■June2015DisparitiesinIndividuals’AccessandUseofHealthITin2013ByVaishali

Patel,PhDMPH,WesleyBarker,MS,ErinSiminerio,MPHhttps://www.healthit.gov/sites/default/files/briefs/oncdatabrief26june2015consumerhealthit.pdf

17. Heisey-Grove,D.,Patel,V.,Searcy,T.(September2015)Physicianelectronicexchangeofpatienthealthinformation,2014.ONCDataBrief.OfficeoftheNationalCoordinatorforHealthInformationTechnology:WashingtonDC.

18. https://www.cms.gov/regulations-and-guidance/legislation/ehrincentiveprograms/stage_2.html19. Delbanco,etal.InvitingPatientstoReadTheirDoctors’Notes:AQuasi-experimentalStudyandaLookAhead.AnnInternMed.

2012;157(7):461-470.Availableonlineat:http://annals.org/article.aspx?articleid=136351120. PatelV.,BarkerW.&SiminerioE.(October2015).TrendsinConsumerAccessandUseofElectronicHealthInformationONCData

Brief,no.2X.OfficeoftheNationalCoordinatorforHealthInformationTechnology:WashingtonDC.21. above22. https://www.healthit.gov/sites/default/files/briefs/oncdatabrief29_patientengagement.pdf23. https://www.healthit.gov/sites/default/files/briefs/oncdatabrief31_physician_e_exchange.pdf

SOURCES

For more information about efforts to empower individuals with their online health records visit www.HealthIT.gov/bluebutton.

The OpenNotes study showed that patients who access their medical records online feel more in control of their care and are more likely to take their medications as prescribed.19

Over75% of eliGiBle providers and 90% of eliGiBle hospitals have received incentive payMents for participatingintheMeaningfulUseProgram.18

Meaningful Use requires participating providers and hospitals in Stage 2 to enable patients with a way to “view, download and transmit” their health information.

meanInGful use as a source of GroWth

$

manY phYsIcIans support patIents updatInG theIr health records

DEMOGRAPHICS

FAMILY MEDICAL HISTORY

MEDICATIONS

ALLERGIES

NEW SYMPTOMS

SELF-MEASURED METRICS (E.G. BLOOD PRESSURE, GLUCOSE)

95%

88%

86%

85%

81%

81%

The majority of US doctors believe that patients should be able to update some or all of the standard information in their health record, including the following7

ABOUT 80% OR MORE HEALTH RECORDS CONTAIN INACCURACIES5

Consumers can serve as a second pair of eyes on their data to improve the quality of their EHRs.

Nearly all hospitals allow patients to view their health information electronically. Most hospitals also allow patients to download & transmit their information.22

There was a 42% increase in the number of physicians* who gave patients access to view, download, or transmit their electronic health information.23

2013 10%

64%2014

more phYsIcIans are provIdInG onlIne access

2013

VIEW

DOWNLOAD

VIEW, DOWNLOAD, OR TRANSMIT

TRANSMIT

10%

40%91%

33%47%

28%

12%66%

82%

64%2014

HOSPITALS PROVIDING ONLINE ACCESS

PHYSICIANS PROVIDING ONLINE ACCESS

Percentage of hospitals providing online access, by type

0 20 40 60 80 100

Nearly all hospitals allow patients to view their health information electronically. Most hospitals also allow patients to download & transmit their information.

2013 2014

2013 2014

In 2014, 6 out of 10 (64%) hospitals provided their patients with the capability to electronically view, download, and

transmit their health information. This is a significant increase from 2013, where 1 out of 10 (10%) hospitals

provided the capability.

0 20 40 60 80 100

Percentage of physicians providing online access, by type

2013

VIEW

DOWNLOAD

VIEW, DOWNLOAD, OR TRANSMIT

TRANSMIT

10%

40%91%

33%47%

28%

12%66%

82%

64%2014

HOSPITALS PROVIDING ONLINE ACCESS

PHYSICIANS PROVIDING ONLINE ACCESS

Percentage of hospitals providing online access, by type

0 20 40 60 80 100

Nearly all hospitals allow patients to view their health information electronically. Most hospitals also allow patients to download & transmit their information.

2013 2014

2013 2014

In 2014, 6 out of 10 (64%) hospitals provided their patients with the capability to electronically view, download, and

transmit their health information. This is a significant increase from 2013, where 1 out of 10 (10%) hospitals

provided the capability.

0 20 40 60 80 100

Percentage of physicians providing online access, by type

The results here are based upon a nationally representative survey of ambulatory care, office-based physicians conducted by the National Center of Health Statistics (funded by ONC). This does not include hospitalists (e.g. physicians working in hospital settings) or physicians who

do not directly interact with patients.