south west specialised commissioning group selena blake - programme manager teenage and young adults...
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South West Specialised Commissioning Group
Selena Blake - Programme ManagerTeenage and Young Adults Cancer Services
South West Specialised Commissioning Group
Improving Outcomes Guidance (IOG) in Cancer and the Younger Person
South West Specialised Commissioning Group
Today
Background
The IOG and the Younger Person
What has happened so far
Next Steps
South West Specialised Commissioning Group
Background
Epidemiology
Impact; late effects and survival
Experiences
Challenges
South West Specialised Commissioning Group
Improving Outcomes Guidance (1)
NICE CYPIOG August 2005
An IOG defined by age and not tumour type
Opportunity to not only improve clinical outcomes, but also the experience of young people as patients AND their families
South West Specialised Commissioning Group
Improving Outcomes Guidance (2)
An appropriate balance of service provision and resource allocation
Safe and effective services as locally as possible, NOT local services as safely as possible
Clear organisational structures Identified PTCs providing range of sustainable
services with defined staffing
South West Specialised Commissioning Group
Improving Outcomes Guidance (3)
Shared care with defined agreed responsibility Care delivered by Multidisciplinary Teams
(MDTs) Skilled, professional key workers identified to
coordinate care; provide information; assess needs
Young people under 19yrs in age-appropriate facilities, with those 19yrs and over to have unhindered access
South West Specialised Commissioning Group
Improving Outcomes Guidance (4)
All young people must have access to tumour-specific expertise
All young people with cancer to be offered entry to clinical trials, treatment and care via agreed protocols and pathways
Registration of cancer in 15 – 24yr olds Full implementation by 2010/2011
South West Specialised Commissioning Group
What has happened so far? (1)
Baseline assessment in January 2007 showed:
- variation in patients being treated at PTCs- inequalities in access to shared care- inequalities in access to IOG recommended services- TYA MDTs not generally established- transitional arrangements weak- workforce gaps
South West Specialised Commissioning Group
What has happened so far? (2)
8 x Programme Managers for 2yrs (March 2008) Advisory Board > SCGs and Cancer Networks Workload data for the SW SCG area produced Core principles for commissioners working with providers
regarding development of:
- Services- PTCs- TYA MDTs- Shared Care Arrangements- Age Range- Place of Care
South West Specialised Commissioning Group
Next Steps (1)?
National co-ordination, local development:- TYA centres with age appropriate facilities- TYA Shared Care facilities- TYA MDT- Supportive and palliative care for TYAs- TYA Workforce
National Framework to inform Services; PTCs; MDT and Shared Care
Cancer network young people’s working groups:- gap analysis- care pathways / shared care arrangements
South West Specialised Commissioning Group
Next Steps (2)?
Regional strategic working group – advisory group to SW SCG
Stakeholder event - 16th June 2008 (flyer) Develop and submit Implementation Summary
30th September 2008 to NCAT Develop Project Plan for implementation by
2011
South West Specialised Commissioning Group
Summary (1)
Clear need and remit for separating TYA services as distinct from paediatric and adult
Dedicated implementation resource
Framework for development
Opportunity to improve outcomes
South West Specialised Commissioning Group
Summary (2)
Philosophy of (individualised) patient care Physical environment Clinical practice / expertise - planning Resourcing Workforce Any questions? [email protected] or 07770702028