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Thank you for joining our session. The presentation will begin momentarily.

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BORN Ontario: NICU/SCN Encounter Enhancements`

Coming April 7, 2014

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Making Improvements for You!

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Objectives

1. Review Enhancement

Process and Principles

2. Review NICU/SCN

Encounter Updates

3. Questions/Discussion

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Enhancements

New Data Elements

New Validation

Rules

New Pick-list Values

• BORN Information System (BIS) enhancements will

occur annually • Implementation date - April 7, 2014

TOTALLY REDESIGNED NICU/SCN ENCOUNTER

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Enhancement Process

Feedback

Technical Team:

● Reviews issue

● Proposes potential solutions

Ensures alignment with best practice

Assesses impact on: data elements, encounters, data quality, reports etc.

Estimates time required to implement change

Performs cost analysis

Clinical implications are reviewed by:

● Data Collection Review Committee

● BORN MNOC Committee

● Neonatal Sub-committee

● Subject matter experts

Technical team works with software developers to develop and test changes

Coordinators

Test changes

Plan rollout strategies & provide training

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Enhancement Principles

• Defects and issues that impact data entry and quality are

addressed as soon as possible

• Major enhancements are reviewed annually and

prioritized for implementation

• Timing of enhancement release coincides with end of

fiscal period so it is important to keep data entry current

• Feedback is welcome at any time

– Contact your local BORN Coordinator

– Email: [email protected]

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Current state

• Single NICU/SCN encounter

• Created in 2008 (Niday)

• 45 Level 2 SCN - manual and upload

• 3 Level 3 NICU entering manually

• 2 Level 3 NICU’s using a CNN upload

• NICU profile report

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Why so many changes?

• Changes to neonatal care

• Requests from members and Neonatal

Subcommittee of MNOC (subject matter experts)

• Level 3 already entering into multiple databases

• Program created to upload from Canadian

Neonatal Network (CNN)

• Provincial QI – e.g. breast feeding, skin to skin,

hyperbilirubinemia QBP

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Enhancements

• New tabs

• New data elements

• New pick lists

• Removed SNAP/TRIPS* and a few other

redundant data elements

Remains a single NICU/SCN encounter

* SNAP = Score for Neonatal Acute Physiology TRIPS = Transport Risk Index of Physiologic Stability

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Admission and Demographics Tab

Data Elements to Review

• NICU/L3 SCN/L2

• Transferred From

• Admission Temperature

• Admission Weight

• Admission Head

Circumference

• Transport Personnel (In)

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“NICU/L3 SCN/L2”

• Visibility of data elements is based on the

organizational level of care

• If the organization only has an SCN/L2 or an

NICU 3, the field will be automatically set to the

applicable value

• If the organization has both an NICU and an

SCN, a manual selection is required

NEW !

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“Transferred From”

Pick list clarifications:

• Labour & Birth Unit same hospital

• Mother/Baby unit (Post Partum)

same hospital

• Paediatric unit same Hospital

Pick list additions:

• Non-medical facility (e.g. taxi,

ambulance, parking lot )

• PICU/PCCU same Hospital

• Clinic same Hospital

• Operating room same Hospital

• Unknown

Pick list items unchanged:

• Other hospital

• NICU/SCN same Hospital

• Admitted from Emergency

Department

• Home

• Birth Centre (added Sept 2013)

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Admission Information

• Temperature

• Weight

• Head Circumference

NEW !

On Admission

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“Transport Personnel (In)”

• MD

• RN

• RRT

• Transport Team

Required if Neonatal Transport

From = ‘Other Hospital”

Multi-select

• CNS/NP

• Paramedic

• Other

NEW !

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Admissions & Demographics Tab - overview

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Health Status Tab

Data Elements to Review

• Neonatal Resuscitation

• Birth Complications

• Neonatal Health Conditions

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“Neonatal Resuscitation”

Changed to align with newest NRP (2010)

“Neonatal Resuscitation”

“Neonatal Resuscitation: Initial Gas Used”

● Air ● Supplemental Oxygen ●100% Oxygen ●Unknown

“Neonatal Resuscitation: Maximum of Oxygen in %

provided during resuscitation”

If “Initial Gas Used” = 100% oxygen, field

will automatically be set to 100 Mandatory if “Initial Gas Used” =

Supplemental Oxygen or if “Neonatal Resuscitation” contains at least one of the following values: CPAP, PPV, CPAP + O2,

FF02, PPV + O2.

• None

• FFO2

• CPAP + Air

• CPAP + O2

• CPAP

• PPV + Air

• PPV +O2

• PPV

• Laryngeal mask airway (LMA)

• Intubation for tracheal suction

• Intubation for PPV

• None

• Chest compression

• Epinephrine

• Narcan

• Volume Expander

• Unknown

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Newborn Conditions and Complications

Renamed “Birth Complications”

• Birth injury - intracranial hemorrhage

• Birth injury - subarachnoid hemorrhage

• Birth injury - subdural hemorrhage

• Birth injury - unspecified

• Birth injury – other

• Other

• None

NEW !

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Neonatal Health Problems renamed

“Neonatal Health Conditions”

• None

• PDA

• Pneumothorax

• HIE

• Seizures

• Respiratory

• Cardiovascular

• Gastrointestinal

• Sepsis/Infections

• CNS

• Other

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Health Status tab - overview

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Interventions Tab

Data Elements to Review

• Neonatal Therapies/Intervention

• Pain Management

• Neonatal Surgery

• Highest Mode of Respiratory Support

• Respiratory Support in Hospital

• Feeding Methods in Hospital

• Nutritional Support in Hospital

• Reason For Breast Milk Substitute in Hospital

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“Neonatal Therapies/Interventions”

Pharmacological Support in

Hospital:

• Methylxanthines

• Antibiotics for GBS

• Antibiotics-Other

• Surfactant Corticosteroids

• Inotropes

• Paralytic Agents

• Anticonvulsants

Blood Products in Hospital

• Packed Red Blood Cells

(pre-2014: Packed Red

Blood Cell Transfusion)

• Whole Blood

• Platelets

• Fresh Frozen Plasma

• Cryoprecipitate

• Albumin

• Immuniglobulin

• Other Blood products

New pick list values with all pick lists grouped in new sub-headings

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“Neonatal Therapies/Interventions”

Intravascular Devices in

Hospital

• PIV (pre-2014: I.V.)

• PICC Line

• Surgical CVL

• UAC

• UVC

• PAL

Other Interventions in

Hospital:

• Phototherapy

• Exchange Transfusions

• Therapeutic Hypothermia

(pre-April 2014: HIE

Cooling)

• None

• Other

• Unknown

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“Pain Management”

Sedative use | Ketamine

Sedative use | Benzodiazepines

Sedative use | Other

Oral analgesics including

acetaminophen

Unknown

NEW !

None

Opioid analgesic use – Morphine

Opioid analgesic use – Fentanyl

Sedative Use – Midazolam

Sedative Use – Chloral Hydrate

Mandatory Multi-select (throughout stay)

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“Neonatal Surgery”

New pick list values:

• Cardiac surgery

• ECMO

• Other chest surgery

• Other abdominal surgery

• Other surgery

• Cryo/laser treatment renamed

“ROP treatment”

• Craniotomy/CNS renamed

“Neurosurgery/ Central

Nervous System Surgery”

• None

• PDA ligation

• NEC surgery

• Unknown

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Highest Mode of Respiratory Support

Pick list ordered from highest to lowest

Select one value (highest mode)

Invasive High Frequency Ventilation [1-highest]

Intermittent Positive Pressure Ventilation [2]

Non-Invasive Ventilation [3]

Oxygen [4]

Other [5-lowest]

None

Unknown

NEW !

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“Respiratory Support”

• Invasive High Frequency

Ventilation

• Nitric Oxide

• Intermittent Positive

Pressure Ventilation

• Non-Invasive Ventilation

• Oxygen

• Other

• Unknown

Mandatory if “Highest Mode of

Respiratory Support” ≠ None and

NICU/SCN Type = NICU (Level III)

Optional for Level II

Multi-select

If oxygen, invasive ventilation

(IPPV),or non-invasive ventilation is

selected, you must enter the number

of days

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“Feeding Methods in Hospital”

• None

• Breast

• Bottle

• Enteral

• Supplementation

• Device on Breast

• Supplementation Device not

on Breast i.e., finger feed,

cup, other

• NPO

• Gavage tube

• Supplementary feeding

systems

• Gastrostomy tube

• Mucus Fistula Re-feed

• Other

• Not Applicable

• Unknown

Same pick list values as Feeding Methods (on day of discharge)

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“Nutritional Support in Hospital”

• None

• Breast Milk

• Formula

• Donor Milk

• Study Milk

• Human Milk Fortifier

• TPN

• NPO

• Other Additives

• Unknown

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“Reason for Breast Milk Substitute in Hospital” Same pick list values as Reason for Breast Milk Substitute (on day of discharge).

Infant Medical

• Hypoglycemia

• Inborn Errors of Metabolism

• Pre-term (<32 weeks)

• Very low birth weight (<1500 gms)

• Significant weight loss in the

presence of clinical indications

• Other

Maternal Medical

• Active herpes

• Additional Health Concerns

• Contraindicated maternal

medication

• HIV infection

• Severe maternal illness

• Birth mother not involved in care

• Informed Parent Decision to use Any Breast Milk Substitute

• Parental Consent not obtained

• Unknown

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Interventions tab - overview

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Screening Tab

Data Elements to Review

• Bilirubin Measured Within 72 Hours of Birth

• Hyperbilirubinemia Requiring Treatment

• Pain Relief Measures During Newborn Screening or Serum

Bilirubin

• ROP Eye Screening Performed; ROP Treatment

• Neuroimaging

• RSV Prophylaxis Eligible; RSV Prophylaxis Administered

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Bilirubin & Hyperbilirubinemia

Bilirubin Measured Within 72

Hours of Birth

Transcutaneous bilirubin (TCB)

Total Serum Bilirubin (TSB)

Newborn Transferred Out

Not Done

Declined

Unknown

Allow multi-select only for TSB and TCB

Mandatory

Hyperbilirubinemia requiring

treatment

Hyperbilirubinemia Requiring

Treatment

●Yes ●No ●Unknown

Mandatory if “Neonatal Health

Conditions” = hyperbilirubinemia

NEW

Hyperbilirubinemia

Treatment

• Phototherapy

• IVIG administration

• Exchange transfusion Multi-select Mandatory if “Hyperbilirubinemia Requiring Treatment” = Yes

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“Highest Serum Bilirubin”

Highest Serum Bilirubin

>340 mmol/l

• Yes

• No

• Unknown

Optional if “Bilirubin Measured

Within 72 hours of Birth” = Total

Serum Bilirubin (TSB)

Highest Serum Bilirubin

>425 mmol/l

• Yes

• No

• Unknown

Optional if “Highest Serum

Bilirubin >340” = Yes

NEW !

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BORN supports Quality Based Procedure

• The hyperbilirubin data elements were added to support Ontario’s Quality

Based Procedure (QBP) on hyperbilirubinemia in Term and Late-Preterm

Infants (≥ 35 weeks)

• Health Quality Ontario – to improve evidence-based standards of care,

recommend best practices, monitoring and public reporting on quality of care

• Added data fields will allow for evaluation of this QBP (i.e. all babies should

receive bilirubin testing in the first 72 hours of life; percent of infants with

critical hyperbilirubinemia; percent of infants who require phototherapy etc.)

• A copy of the Clinical Handbook for Hyperbilirubinemia in Term and Late

Pre-Term Infants (≥ 35 weeks) is posted on the Ministry of Health and

Long-Term Care Website and can be downloaded: http://health.gov.on.ca/en/pro/programs/ecfa/funding/hs_funding_qbp.aspx

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“Pain Relief Measures During Newborn

Screening or Serum Bilirubin”

• Sucrose

• Breastfeeding

• Skin to skin

• None

• Other

• Unknown

Mandatory if “Newborn Screening (NSO) Offered” = Obtained or if “Bilirubin

Measured Within 72 Hours” = TSB Serum

Multi select

NEW !

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ROP (screening)

Retinopathy of Prematurity (ROP) Screening renamed “ROP Eye Screening

Performed”

• Yes/No/Unknown (same pick list values)

Mandatory if Gestational Age At Birth < 32 Weeks and Birth Weight < 1500g

“ROP Worst Stage”: Left eye/ Right eye/ Both eyes

• None, I II III IV V , Immature, Unknown

Mandatory if “ROP Screening” = Yes and “NICU Type” = (Level III)

Single select

“ROP Eye Screening Type”

Physical exam

RetCam

Unknown

NEW !

NEW !

Mandatory if “ROP Eye Screening Performed” = Yes

Select all that apply

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“ROP Treatment”

• None

• Left eye – Cryotherapy

• Left eye - Laser Therapy

• Left eye - Anti-VEGF injections

• Left eye - Other eye surgery

• Right eye – Cryotherapy

• Right eye - Laser Therapy

• Right eye - Anti-VEGF injections

• Right eye - Other eye surgery

• Unknown

NEW !

Mandatory if “ROP Screening” = Yes, and “NICU/SCN Type” = NICU L3 Multi-select

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“Neuroimaging Screening”

Neuroimaging Screening Performed • Yes

• No

• Unknown

Neuroimaging Screening Results Left/Right • No abnormalities found

• Blood in Germinal Matrix

• Blood in Ventricles

• Ventricular Enlargement Mild

• Ventricular Enlargement Moderate

• Ventricular Enlargement Severe

• Intraparenchymal lesion

• Periventricular Leucomalacia

• Infarct

• Cerebellum Hemorrhage

• Other Brain Lesions

• Unknown

NEW !

Mandatory if “Neuroimaging Screening Performed” = Yes & “NICU/SCN Type” = NICU 3 Multi select

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RSV (Screening)

Meets Respiratory Syncytial Virus (RSV) Prophylaxis Criteria renamed

“RSV Prophylaxis Eligible”

• Yes/No/Unknown

“RSV Prophylaxis Administered”

• Yes

• No

• Unknown

“RSV Prophylaxis

Criteria”

Infant < =32 6/7 weeks and less than or equal to 6 months at the start of RSV season

RSV Risk Assessment Tool score > 49 for infants 33 0/7 to 35 6/7

Confirmed Downs syndrome

Confirmed Bronchopulmonary dysplasia

Confirmed hemodynamically significant congenital heart disease

Special Consideration with physician letter and medical justification

Birth Sibling qualifies

Unknown

Mandatory if RSV Prophylaxis Eligible= Yes. Multi select

NEW

Mandatory if RSV Prophylaxis Eligible = yes

NEW

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“Neonatal Growth and Development Follow-up” Renamed “Meets Neonatal Follow-up Criteria”

New pick list values:

• Yes

• No

• Unknown

Pick list values removed:

• Not required

• Refused by parents

• Regional Centre

• Tertiary Centre

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Screening tab - overview

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Discharge Tab

Data Elements to Review

• Feeding Type on Day of Discharge

• Reason for Breast Milk Substitute on day of discharge

• Discharge Interventions

• Neonatal Discharged/Transferred to

• Transfer Personnel (Discharge)

• Corrected Age at Discharge

• Days of Age at Discharge

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Infant Feeding

Feeding Type on Day of D/C

Same pick list as “Nutritional Support

in Hospital”

Reason for Breast Milk Substitute on

day of discharge

Same pick list values as Reason for

Breast Milk Substitute in Hospital

Newborn Feeding at D/C removed

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Infant Feeding Method renamed

“Feeding Methods (on day of discharge)”

New pick list values

• None

• NPO

• Gavage tube

• Supplementary feeding

systems

• Gastrostomy tube

• Mucus Fistula Re-feed

• Other

• Unknown

Pick list values unchanged:

• Breast

• Bottle

• Enteral

• Supplementation Device

on Breast

• Supplementation Device

not on Breast

(i.e. finger feed, cup, other)

• Not Applicable

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Discharge Interventions

• None

• Oxygen

• Ostomy

• Tracheostomy

• Gastrostomy

• Ventilation

• CPAP

• Phototherapy

• Unknown

On day of discharge

Multi select

NEW !

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“Neonatal Discharge Or Transfer To”

• Home

• Transfer to other hospital

• Transfer to Mother / Baby unit, same hospital

• Transfer to Paediatric unit same hospital

• Transfer to Labour & Birth unit, same hospital

• Transfer to Level II, same hospital

• Transfer to Level III, same hospital

• Transfer to PICU/PCCU, same hospital

• Transfer to Emergency department, same hospital

• Transfer to clinic, same hospital

• Transfer to operating room, same hospital

• Transfer to same hospital, other

• Transfer to Palliative Care

• Child and Family Services Apprehension

REVISED

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“Transport Personnel (Discharge)”

Added to Pick List

• CNS/NP

• Paramedic

• Other

Pick list values unchanged

• MD

• RN

• RRT

• Transport team

Same Pick list as “Transport Personnel In” Must be provided if “Newborn discharged or transferred to” =

Transfer to other hospital

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Other Discharge Data Elements….

Discharge Weight

Mandatory

Discharge Head Circumference

Mandatory

Corrected Age at Discharge – Renamed “Gestational Age at Discharge”

Modified calculation. Days of age at discharge (DOD-DOB)/7 + GA at birth = GA

in weeks and days (38 weeks + 6 days).

“Days of Age at Discharge”

Mandatory

Date of Discharge – DOB

NEW !

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Discharge tab - overview

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Retired

• SNAP, TRIPS

• D/C to Health Care

Professional

• Reason for admission

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Reports Under Construction

• NICU profile Report, NICU Cube

• BIS enhancements have a significant impact on

reporting.

• Over 55 clinical reports to be examined to see if anything needs to

change as a result of the enhancements/changes

• This process will not be completed by go-live on April 7th, 2014.

• An impact analysis and report corrections is underway

• The prioritization of which ones to correct first is mainly based on

reports having the highest volume of use in the BIS.

• We’ll have an ‘under construction’ note on the BIS home page during

the report repair period

• The Clinical reports page, will also display a temporary note next to

each affected report indicating that the report can be run only for data

up to April 6th, 2014

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Resources

• Downtime forms – email, BIS, website

• Pick list resource sheet for health conditions

• Field level help

• Data dictionary

• Webinar on Website

• Coordinators