the aacvpr pulmonary and cardiac rehabilitation registries presenter name here
TRANSCRIPT
The AACVPR Pulmonary and Cardiac Rehabilitation Registries
Presenter Name Here
Disclosures
Add disclosures if needed or “None”
Objectives
Benefits of registry participation Current status Data elements, interface and reporting
features How to subscribe and FAQs
AACVPR Registry CommitteeChris Garvey, Bonnie Sanderson, Chairs
Todd Brown, MD, Director
Bonnie AndersonGerene Bauldoff
Pat BarnesEileen Collins
DorAnne DoneskyJoan Dugan
Kent EichenauerAnne Gavic
Steve Lichtman
Mike McNamaraKeri Ohren
Connie PaladenechDiana Rohloff
Charlotte TenebackRandy ThomasMark Vitcenda
Stacy Wolf
AACVPR Registry Sponsors
Registry Developer
Research tells us what we can do.
Guidelines tell us what we should do.
Registries tell us what we’re actually doing.
What is a “registry”? “Naturalistic” collection of data Designed to fulfill a specific purpose Data derived from patient’s clinical status or
processes of care patient undergoes Specific and consistent data definitions Uniform collection of data from patient to patient
Provide evidence to patients, physicians, administrators, healthcare payers, and regulators that cardiac and pulmonary
rehabilitation produce improvements in patients’ health outcomes beyond what can
be expected or achieved through “usual care”.
Mission
Why should we participate?
Participation Benefits
Strengthen the understanding and awareness of the impact of CR and PR
Supports AACVPR recommendations of outcome tracking and quality improvement
Linking registry data with Program Certification requirements (2014)
Participation Benefits
Easy and convenient way of organizing outcomes and utilization data
Immediate feedback regarding performance Demonstrates your commitment to
improving patient care Raises status of your services in healthcare
system
75yrs
COPD
1650 ft
83.4 kg females
Current Status: PR Registry
June, 2013 launch 142 programs actively participating Over
5,000 patient records entered to date
PR Registry Data Elements Demographics Admitting diagnoses and comorbidities Anthropometric values, smoking status Pulmonary function values Functional capacity (6MWD) Dyspnea/Psychosocial/HRQoL assessments O2 use, prescription, system type Healthcare utilization/events/mortality Programmatic outcomes
Supported Assessment Tools Modified MRC UCSD SOBQ CES-D PHQ-9 PSRF Survey HADS GDS 15 and 30
CRQ St. George Respiratory
Questionnaire SF-36 Ferrans & Powers QLI Dartmouth COOP COPD Assessment Test
See the “Data Elements ” document on the Registry web site for more
information about registry variables
Coming Early 2015…
Get ready for a new and improved AACVPR Pulmonary Rehabilitation Registry experience. Enhancements are coming for the AACVPR Pulmonary Rehabilitation Registry:– New Performance Report displaying your program’s patient outcomes
in a number of key areas compared to state and national benchmarks– Updates to data sets in the following areas: pulmonary function,
dyspnea, psychosocial outcomes, hospitalization and physical activity– Improved user interface to provide helpful field tips and definitions– Addition of more choices to several fields for more precise data entry
2.0
75yrs
414.01
1650 ft
83.4 kg females
CR Registry Data Elements
Demographics Admitting diagnoses and comorbidities Anthropometric, lipid, glucose values Functional capacity (6MWD, peak METs, ETT METs) Psychosocial/HRQoL assessments Healthcare utilization/events Programmatic outcomes
Supported Assessment Tools
CES-D PHQ-9 PSRF Survey MacNew BDI-2
Duke Activity Status Index SF-36/SF-12 Ferrans & Powers QLI Dartmouth COOP
Supported Dietary Assessment Tools
Diet Habit Survey Rate Your Plate-Heart MEDFICTS (from ATP-3) Block Dietary Fat Screener Resources for all tools available on
AACVPR Registry Resources site
Current Status: CR Registry
419 active programs 67,000+ patient records entered
Program Demographics
30% Small (< 100 pts/yr) 38% Medium (100-199 pts/yr) 33% Large (200+ pts/yr) 93% hospital-based
Real Value
Getting Started
!www.aacvpr.org/Resources/OutpatientDataRegistries
www.aacvpr.org/PRRegistry
www.aacvpr.org/CRRegistry
Application Steps
Designate Principal User through Application form (follow directions on registry page)
Log in and go to “My Programs” Principal User updates program information
(used for both Registry and Certification apps) Principal User designates secondary users Check subscription process on Process
dashboard
Test Pulmonary Program
Review Facility and Program information for accuracy
Update information as necessary
Complete program roster
Add “secondary” users (required)
Subscription Steps
Read, sign and return Participation Agreement
Pay subscription fees View training webcast Complete data entry test
Important Documents Frequently Asked Questions (FAQs)
– Everything about everything Data Elements list
– List of all fields in Registry Definitions and Comments
– Description of selected elements and definitions Registry User Guide
– How to get around the Registry interface Data sheets
– Tool for capturing outcomes data
Registry Tour
Reporting features
Individual Patient Outcomes summary Program Outcomes Summary Report Program Comparison Report (like-size,
state, national benchmarks) Performance Report (CR only) Data Extraction utilities
Frequently Asked Questions(or Answers to FAQs)
Participation Agreement and Legal
IRB not required per HIPAA regulations; however, local institution may require review
Patient consent not required AACVPR Participation Agreement document
required as basis for agreement; some language can be modified/added if needed
Program does NOT need to be AACVPR-certified in order to participate
Training
Principal User responsible for seeing that secondary users trained and following protocols
ALL users must view Registry webcast and enter test data before being given access rights
Review documents, review documents, review documents
Data entry
Enter as much data as needed to track patient health and outcomes
Very few required data points, and a handful of “highly recommended” ones
Registry Patient Assessment Tools
No “required” tools Mix of free tools and tools requiring a license Supported tools not provided—programs must
secure required licenses and scoring algorithms.
Telemetry/Registry solutions
Working with partners on methods for uploads
Vendors will be contacting customers with information
!www.aacvpr.org/PRegistrywww.aacvpr.org/CRegistry
Thank You!