the chronic care model presenter improving chronic illness care, a national program of the robert...
TRANSCRIPT
The Chronic Care Model
Presenter
Improving Chronic Illness Care,a national program of the Robert Wood Johnson Foundation
Living with chronic illness is like piloting a small plane
To get safely to their destinationpilots need:
• Self-Management Support
• Effective ClinicalManagement
• Treatment Plan
• Close Follow-up
• Flight instruction
• Preventive Maintenance
• Safe Flight Plan
• Air Traffic ControlSurveillance
Usual care works well if your plane is about to crash
Three Biggest Worries About Having A Chronic Illness (Age 50 +)
1. Losing Independence
2. Being a Burden to Family or Friends
3. Not Being Able to Afford Needed Medical Care
Percent Somewhat or Strongly Disagreeing With Statements
Age 50-64 Age 65+
Government programs are adequate to meet the needs of people with chronic medical conditions
Health insurance pays for most of services chronically ill people need
People with chronic medical conditions receive adequate medical care
65%
55%
66%
47%
43%
52%
Number of Chronic Conditions per Medicare Beneficiary
Number of Conditions
Percent of Beneficiaries
Percent of Expenditures
0 18 1
1 19 4
2 21 11
3 18 18
4 12 21
5 7 18
6 3 13
7+ 2 14
63%63% 95%95%
Prevalence of chronic conditions
• 10.3 % have heart disease
• 23% have HTN
• 9.1% have asthma
• 6.2% have diabetes
• Prevalence of HTN and diabetes increased in Hispanics and blacks
The IOM Quality report: A New Health System for the 21st Century
http://www4.nas.edu/onpi/webextra.nsf/web/chasm?OpenDocument
The IOM Quality Report:Selected Quotes
• “The current care systems cannot do the job.”
• “Trying harder will not work.”
• “Changing care systems will.”
IOM Report: Six Aims for Improving Health Systems
• Safe - avoids injuries
• Effective - relies on scientific knowledge
• Patient-centered - responsive to patient needs, values and preferences
• Timely - avoids delays
• Efficient - avoids waste
• Equitable - quality unrelated topersonal characteristics
Recent literature on care
• Insert here
• Recently published literature that demonstrates the gap between what we know and what we do.
•
Diabetes
• 69% had HbA1c test in last year
• 63% had feet checked
• 64% had dilated eye exam
• Among uninsured, only 62% had HbA1c, 48 % a foot exam, 49% an eye exam)
Asthma
• 48% take prescribed medications
• 29% report using steroid inhalers
• 17% report having a peak flow meter at home
Use of statins in pts with MI
• 60% of patients over age 65 with a history of a heart attack were on a cholesterol-lowering medication
• 33% knew the result of their most recent cholesterol measurement
Ayanian et al Arch Inter Med 2002;162:1013
Hypertension care in US
• Over 16,000 patients
• 27% had hypertension
• 15-24% had controlled hypertension
• 27-41% unaware that they had hypertension
• 25-32% had treated uncontrolled hypertension
• 17-19% aware of hypertension but it was untreated
NEJM 2001;345:479-486
Physician treatment practices for hypertension
• 41% had not heard of JNC guidelines
• JNC guidelines recommend treatment to 140/90
• 43% of MDs would not start therapy unless systolic >160 and 33% would not start treatment unless diastolic >95
• Most would choose ACE for first drug
Hyman et al Arch Inter Med 2000;160:2281
Children with asthma
• Affects 75 children per 1,000
• Disproportionately affects children of low income families, males and blacks over whites
• 24% of children with asthma miss two or more weeks of school (8% of children without asthma have the same attendance figures.)
• The healthcare expenditures for a child with asthma are 2.5 times that of a child without asthma.
Diabetes Care in the U.S.Harris. Diab Care 2000;23:754-8
0%
20%
40%
60%
80%
100%
HbA1c<8
BP<140/90
LDL<130
ASA Use
Eye Exam
Flu Shot
Systems are perfectly designed to get the results they achieve
The Watchword
Improving Chronic Illness CareA national program of the Robert Wood Johnson Foundation
Mission
to improve the health of chronically ill patients
by helping health plans and provider groups,
especially those that serve low income
populations, improve their care of the
chronically ill.
Evidence-basedClinical ChangeConcepts
A Recipe for Improving Outcomes
LearningModel
System ChangeConcepts
What are we trying toaccomplish?
How will we know that achange is an improvement?
What change can we make thatwill result in improvement?
Model for Improvement
Act Plan
Study Do
System change strategy
Select Topic
Planning Group
Identify Change
Concepts
Participants
Prework
LS 1
P
S
A D
P
S
A D
LS 3LS 2
Action Period Supports
E-mail Visits Web-site
Phone Assessments
Senior Leader Reports
Event
A D
P
S
(12 months time frame)
System Change ConceptsWhy a Chronic Care Model?
• Emphasis on physician, not system, behavior
• Characteristics of successful interventions weren’t being categorized usefully
• Commonalities across chronic conditions unappreciated.
Model Development 1993 --• Initial experience at GHC
• Literature review
• RWJF Chronic Illness Meeting -- Seattle
• Review and revision by advisory committee of 40 members (32 active participants)
• Interviews with 72 nominated “best practices”, site visits to selected group
• Model applied with diabetes, depression, asthma, CHF, CVD, arthritis, and geriatrics
Essential Element of Good Chronic Illness Care
Informed,ActivatedPatient
ProductiveInteractions
PreparedPractice Team
What characterizes a “prepared” practice team?
PreparedPractice Team
At the time of the visit, they have the patient information, decision support, people,
equipment, and time required to deliver evidence-based clinical management and
self-management support
What characterizes a “informed, activated” patient?
Patient understands the disease process, and realizes his/her role as the daily self manager. Family and caregivers are engaged in the patient’s
self-management. The provider is viewed as a guide on the side, not the sage on the stage!
Informed,ActivatedPatient
•Assessment of self-management skills and confidence as well as clinical status•Tailoring of clinical management by stepped protocol•Collaborative goal-setting and problem-solving resulting in a shared care plan•Active, sustained follow-up
Informed,ActivatedPatient
ProductiveInteractions
PreparedPractice Team
How would I recognize aproductive interaction?
Informed,ActivatedPatient
ProductiveInteractions
Prepared,ProactivePractice Team
DeliverySystemDesign
DecisionSupport
ClinicalInformation
Systems
Self-Management
Support
Health System
Resources and Policies
Community
Health Care Organization
Chronic Care Model
Improved Outcomes
Self-management Support
• Emphasize the patient's central role.
• Use effective self-management support strategies that include assessment, goal-setting, action planning, problem-solving and follow-up.
• Organize resources to provide support
Delivery System Design
• Define roles and distribute tasks amongst team members.
• Use planned interactions to support evidence-based care.
• Provide clinical case management services.
• Ensure regular follow-up.
• Give care that patients understand and that fits their culture
Features of case management
• Regularly assess disease control, adherence, and self-management status
• Either adjust treatment or communicate need to primary care immediately
• Provide self-management support• Provide more intense follow-up • Provide navigation through the health care
process
Decision Support• Embed evidence-based guidelines into daily
clinical practice.
• Integrate specialist expertise and primary care.
• Use proven provider education methods.
• Share guidelines and information with patients.
Clinical Information System
• Provide reminders for providers and patients.
• Identify relevant patient subpopulations for proactive care.
• Facilitate individual patient care planning.
• Share information with providers and patients.
• Monitor performance of team and system.
Health Care Organization
• Visibly support improvement at all levels, starting with senior leaders.
• Promote effective improvement strategies aimed at comprehensive system change.
• Encourage open and systematic handling of problems.
• Provide incentives based on quality of care.
• Develop agreements for care coordination.
Community Resources and Policies
• Encourage patients to participate in effective programs.
• Form partnerships with community organizations to support or develop programs.
• Advocate for policies to improve care.
To Change Outcomes (e.g., HbA1c) Requires Fundamental Practice Change
• Interventions focused on guidelines, feedback, and role changes can improve processes
• Interventions that address more than one area have more impact
• Interventions that are patient-centered change outcomes.
Renders et al, Diabetes Care, 2001;24:1821
Impact of disease management on control (number of positive trials)
• Provider education = 12/32
• Provider feedback = 9/23
• Provider reminders = 6/14
• Patient education = 24/55
• Patient reminders = 6/16
• Patient financial incentives =3/4
Weingarten et al BMJ 2002;325:925
Features of case management
• Regularly assesses disease control, adherence, and self-management status
• Either adjusts treatment or communicates need to primary care immediately
• Provides self-management support• Provides more intense follow-up • Provides navigation through the health care
process
Impact of Planned Care and Collaborative Goal-Setting
• Randomized Danish GPs to diabetes intervention groups
• Intervention group trained to provide regular goal-setting in periodic structured visits with their diabetic patients
• Study team provided guidelines, training, reminders, and regular feedback
• Mean HbA1c significantly better years later
Olivarius et al. BMJ 10/01
Planning Productive Interactions for Chronic Conditions
Additional Diagnoses* 45%
Functional Limits** 50%
> 2 Symptoms*** 35%
Not Good Health Habits 30%
*Arthritis (34%), obesity (28%), hypertension (23%),cardiovascular (20%), lung 17%)** Physical (31%), pain (28%), emotional (16%), daily activities (16%)*** Eating/weight (39%), joint pain (32%), sleep (25%), dizzy/fatigue(23%), foot (21%), backache (20%)
For Example: Diabetic Needs
Advantages of a General System Change Model
• Applicable to most preventive and chronic care issues
• Once system changes in place, accommodating new guideline or innovation much easier
• Early participants in our collaboratives using it comprehensively
The Growing Burden of Non-communicable Disease
• Rapidly aging population
• Increased environmental risks—smoking, changed diet, increasing inactivity, air pollution
• Double jeopardy: still fighting infectious disease and malnutrition while experiencing impacts of chronic disease
W.H.O. Innovative Care for Chronic Conditions, 2002W.H.O. Innovative Care for Chronic Conditions, 2002
Conmmunity is Critical Source of Care and SupportConmmunity is Critical Source of Care and Support
Applying the CCM to prevention
Similarities:
• Require regular attention to behavior change
• Are population-based
• Require planned care and active follow-up
• Use decision guides and occur in primary care
• Require patient involvement
• Require provider training
• Community linkages are helpful
Applying the CCM to prevention
Differences:
• Prevention visits are less frequent
• Changing behaviors to prevent something may be different than when have an illness
• Prevention may not be as well reimbursed
• Benefits of prevention more difficult to perceive
• Few people specialize in prevention
Glasgow et al Milbank Quarterly 2001;79:579
•www.improvingchroniccare.org
Contact us:
thanks
Informed,ActivatedPatient
ProductiveInteractions
Prepared,ProactivePractice Team
Functional and Clinical Outcomes:Reduce readmission rate
Non-significantly lower mortalityIncreased quality of life
DeliverySystemDesign:
Nurse case manager
Hospital and home visits
Telephone F/U
Decision Support:
Guidelines Ongoing
consultation with
cardiologist
ClinicalInformation
Systems
Self-Management
Support:Standardized educational
program
Health System:Barnes-Jewish Hospital St. LouisCommunity
Congestive Heart Failure -- Rich et al
Rich et al, NEJM 1995
Informed,ActivatedPatient
ProductiveInteractions
Prepared,ProactivePractice Team
Functional and Clinical Outcomes:Decreased emergency room use, repeat admits, specialist use
Increased calls to nurses, decreased calls to doctorsIncreased immunizations
Increased satisfaction for patient and provider
DeliverySystemDesign:
Multidisciplinary Group Visits
Decision Support:Provider
Education, Clinical
Priorities
ClinicalInformation
SystemsPatient
Notebook
Self-Management
Support:Group
EducationPeer Interaction
Health System:Kaiser-Permanente ColoradoCommunity
Cooperative Health Care Clinic
Beck et al, JAGS 1997;45:543
Informed,ActivatedPatient
ProductiveInteractions
Prepared,ProactiveGNP reporting to PCP
Functional and Clinical Outcomes:Decreased disability and increased activity levels
Decreased hospitalizationIncreased socialization
Decreased psychoactive medication use
DeliverySystemDesign:
GNP visits, peer mentors
Decision Support:
Evidence-based
Protocols
ClinicalInformation
Systems:Electronic Chart and Follow-up
System
Self-Management
Support:Individual and
Group Interactions
Health System:GHC and PacifiCareCommunity:
Northshore Senior
Center
Health Enhancement Project
Leveille et al, JAGS 1998;46:1191
Informed,ActivatedPatient
ProductiveInteractions
Prepared,ProactivePractice Team
Functional and Clinical Outcomes:Increased retinal, foot and renal screening rates,
Increased Hemoglobin A1c testing,Increased proactive/planned care,
Reduced costs,Increased satisfaction for patient and provider
DeliverySystemDesign:
Multidisciplinary Group Visits,Planned visits,
Retinal Screening Program
Decision Support:
Guidelines,Expert Team,
Provider Education
ClinicalInformation
SystemsOn-line Registry,
Practice Reports,
Reminders,Patient
Summaries
Self-Management
Support:Right Track
Notebook/Phone Program,
Lorig Support Groups
Health System:Group Health Cooperative of Puget SoundCommunity
The Diabetes Clinical Improvement Roadmap
McCulloch et al Eff. Clin Prac 1998;1:12,
Dis Mgmt 200;3:75
Informed,ActivatedPatient
ProductiveInteractions
Prepared,ProactivePractice Team
Functional and Clinical Outcomes:Incr. Use of antidepressants
Incr. Use of counseling80% remission in 2 yrs (40% for usual care)
Higher role functioning
DeliverySystemDesign:
PCP, nurse and office staff all
involved.Monthly contact
with pts by phone via nurse
Decision Support:AHCPR
guidelinesPsychia-
trist review and advice
on tx adjust
ClinicalInformation
SystemsPt roster with tx
summaries, feedback to care
team
Self-Management
Support:office nurse provided
info on treatment options, readiness
intervention, tx effectiveness assessment
Health System:12 PCPs in US metro and non-metro)Community
Ongoing Depression Treatment
Rost et al BMJ 2002;325:934
Informed,ActivatedPatient
ProductiveInteractions
Prepared,ProactivePractice Team
Functional and Clinical Outcomes:decreased HbA1c
no increase in adverse eventsimproved self-reported health status
DeliverySystemDesign:
case mgmt.RN in clinic,
routine meetingswith PCP
Decision Support:Detailedmanage-
mentalgorithms,specialistconsult.
ClinicalInformation
Systemsdiabetes registry,
patient monitoring logs
Self-Management
Support:1:1 visits withtrained RN,
follow-upsupport,
pt. Ed class
Health System:Prudential JacksonvilleCommunity
Diabetes Nurse Case Management
Aubert et al Ann Int Med 1998;129:605
Patient/Caregiver Problem-Centered
Interactions
Case managerlinked to others
Increased hospitalizationNo change in functional status
DeliverySystemDesign
intensivecase mgmt(home visit
every 6 wks, monthly
phone calls)
Decision Support
no clinical guidelines
consult withgeriatrician
and team
ClinicalInformation
Systemsused a nursing documentation
program
Self-Management
Supporttrained to
emphasize patientstrengths
Health System
Resources and Policiesdeveloped a guidereferred patients
Community Health Care OrganizationRegional health system
Non-specific Nurse Case Management
Gagnon et al, JAGS 1999; 47:1118-1124
UnmotivatedPatient/Family Ineffective
Interactions
Practice Nurse working in isolation
No improvement in QOL, ER useor anti-inflammatory use
DeliverySystemDesign
Asthma nurseworking withpractice nurse
who runs asthma clinic
Decision SupportThoracic Society
Guidelines.Six teachingsessions with
nurses
ClinicalInformation
SystemsNot described
Self-Management
SupportStandardized information
Health System
Resources and PoliciesNo links to ER or hosp.Asthma Resource Centerin hospital
Community Health Care OrganizationRegionalized health system (UK)
Asthma Resource Center
Premaratne et al BMJ 1999;318:1251-1255
Stages of Coping with Data
• Stage 1: The data are wrong.
• Stage 2: The data are right, but it’s not a problem.
• Stage 3: The data are right, it’s a problem, but it’s not my problem.
• Stage 4: The data are right, it’s a problem, and it’s my problem.
"Ultimately, the secret of quality is love. You have to love your patients, you have to love your profession, you have to love your God. If you have love, you can work backward to monitor and improve the system."
Donabedian