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The dementia sensory palaces
project: reflections on lessons
learntAnthea Innes, PhD.
Coles Medlock Professor and Director Salford
Institute for Dementia
and Jana Haragalova, Learning Producer,
Historic Royal Palaceson behalf of the project team: Sharma M, Scholar H and Klug K
Background
Historic Royal Palaces is an independent charity
responsible for six British Royal Palaces,
Its ‘Sensory Palaces’ programme is designed to promote
access for people living with dementia and their care
supporters to two sites Hampton Court Palace and Kew
Palace.
Historic Royal Palaces
Our aim is to help everyone explore the story of how monarchs
and people have shaped society, in some of the greatest palaces
ever built.
Sensory Palaces
Sensory Palaces
A health and wellbeing programme for people living
with dementia and their carers, managed by the
Learning and Engagement team.
Four strands:
1. Sessions
2. Audience advocacy
3. Developing and sharing
best practice
4. Research and evaluation
• Sessions are suitable for
people with dementia
who are living in the
community and their care
supporters.
• They are designed to
enhance mental health
and wellbeing, by
encouraging participation
in new learning
opportunities in a safe
and welcoming
environment.
• They are based on the 3
S’s model
The Programme
Sessions
Stories – Spaces - Senses
-group setting
-PLWD + carer
-sensory storytelling,
historic spaces, creative media
Hampton Court Palace
• 24 sessions per year
Kew Palace
• 6 sessions per season
(April-September)
Audience advocacy
• Dementia Friends sessions to staff and
volunteers
• Sharing information: conference
presentations, journal articles, web
contributions
• Creating short film
• Supporting dementia-friendly initiatives
across HRP
Dementia-friendly heritage group
(DFHG)• Peer network creating collaborative resource
to guide and inspire heritage
• 18 organisations represented in group
• Resource launch autumn 2017, plan to
continue DFHG
Evaluation and Academic research
External evaluation 2015 Willis&Newson
Academic research project 2017/2018
• Salford University
• Data collection June-December 2017
• Articles/reports-May 2018
A mixed methods approach.
Methods include:
• Ethnographic observations of sessions
• Structured observations of sessions using Dementia
Care Mapping
• Pre and post session questionnaires
• Face-to-face conversations (interviews) with people
living with dementia during and immediately following
sessions
• Telephone interviews with participants three months
after the sessions
• Interviews with session facilitators.
Research Design
Number of
sessions
attended
Number of
participants
(couples)
1 8
2 10
3 4
4 2
Participants (to date)
Participant
Characteristics
N= 48
Males = 23
Females = 2
Average age = 66.8
years
Age range = 45-94
years
“Blue” collar = 6
“White” collar = 42
Early emerging themes from the analysis of
observation and interview data are:
• the heritage setting plays an important and
unique role in participants’ experience of these
sessions.
• encouraging new learning opportunities ‘in the
moment’
• building social connections
Emerging Themes
What participants with
dementia have said:
• “It’s special to us, coming here” (Person
Living with Dementia)
• Well meeting people, with similar likes…”
(Person with dementia)
• The friendliness, the friendliness is the
thing. If it wasn’t for that, it wouldn’t work.”
(Person with dementia)
• “Normally, we probably wouldn’t go to a
historic house just because… it’s difficult…
…how to work out a single thing to look at
…because it would be too long, because
our needs are different. I’d want to go all
the way round, and Sid would see one thing
and that would be it. So this was ideal”
(Care Supporter) (Extract from observation
data)
• “You feel part of something that’s timeless,
that’s bigger than yourself” (Care supporter)
What care
supporters have said
Discussion of data from one
session observed at Hampton
Court
‘Heard it on the Grapevine’ Session
Privileged access to the Great Vine House, standing under the 300 year old vine
“There's something about…it…they’ve stood the
test of time that they're there and, you know, they're
part of history and beyond going…the continuity of
life and I think that must…well hopefully works.”
Interview with Carer
‘it’s like, you know, having the object or the thing,
but then mtaking it out of its kind of expectations
of what it is and putting it somewhere else and
saying, “well this is a time travelling grape”’
Interview with session facilitator
‘Heard it on the Grapevine’ Session
Behaviour Category Codes recorded at Grape Vine session at
Hampton Court
The most
frequently
observed
behaviours
during this
session were:
A – Articulation
K – Kum and
go (walking)
T – Timalation
I – Intellectual
L - Leisure
Well and Ill Being observed during Grape Vine session
at Hampton Court
• No Ill being was observed during the session
• High levels of well being were observed – 63% of the time participants
were in +3 or +5 levels of well-being.
• 37% of the time participants were in an engaged state of well-being (+1).
Hampton Court 20 June 2017
Pre PostEnjoy
mentComments
JG 4 4 5It was a most interesting session. Information
was given **** by both speaking good
MG
©4 4 5
Lovely to have access to info on grape vine.
Session explained well. Took place at a pace
we could cope with. Time line session very
enjoyable.
DM 5 5 5 Enjoy most? … Going down memory lane
BM
©4 5 5
Wonderful session. Interesting, informative and
above all fun.
CHS
S5 4 5
Enjoy most? … The friendliness of the group
CLS
S ©3 4 5
Finding out about the vine and seeing the
grapes ripen. The activity after was also great.
Many thanks for the vine cutting.
Mood evaluation
questionnaire data
Summing up:
“But in terms of using those collections, history…the whole
place is sensory, it is…all the things that go on, you know,
it’s all sort of don’t touch, stand behind here and look at
this, but you know, in all those centuries it’s all been tactile
and physical and smelly and things like that. Interview
with facilitator of session
“…that really got me thinking, that wonderful thing of
laying out all the things that have happened in that
period of the vine, you know, forgetting about our own
personal things, but when you stop and think of them
they're almost trivial, but just thinking in terms of
history all that's happened during that period of time.
So… we talked about that afterwards…… we should
have thought of more significant events and I was
saying to [husband], well what would you have said
differently, and he said about…I can't remember what
he said. Was it independence in India, or something
like that, was that what he said?...and, you know, we
were trying to think what other things we should have
said. So, you know, it does trigger off conversation.”
Interview with spouse of person with dementia
• Ongoing data collection during programme
sessions until December 2017
• Follow up data collection Jan-March 2018
• Full analysis and write up April – June 2018
Next steps
Contact us
Email: [email protected]
Jana Haragalova- Learning ProducerEmail: [email protected]
Tel: 020 3166 6652
Kim Klug- Learning ProducerEmail: [email protected]
Tel: 020 3166 6630
Evaluation:
Prof. Anthea Innes – Evaluation leadEmail: [email protected]
Dr. Monika Sharma, ResearcherEmail: [email protected]
Dr Helen Scholar – ResearcherEmail: [email protected]