the good life with ms - research proposal
TRANSCRIPT
• Enabling people to take a ‘greater role’ in the non-medical side of their disease
• Correlation between socio-economic backgrounds
• What factors contribute to the long-term disease
• What is currently missing in the market
R S A B R I E F - K E Y Q U E S T I O N S ?T H E G O O D L I F E
H T T P : / / S D A . T H E R S A . O R G / E N / C H A L L E N G E / R S A - S T U D E N T- D E S I G N - AWA R D S - 2 0 1 6 / P H A S E / R S A - S T U D E N T- D E S I G N -AWA R D S - 2 0 1 6 / T R A C K / T H E - G O O D - L I F E - E N
“But it’s a story until we convert it into data”
“And we convert that information into this structure, this understanding, this ability to convert those stories into
something that is computable”
H T T P S : / / W W W. T E D . C O M / TA L K S / J A M I E _ H E Y W O O D _ T H E _ B I G _ I D E A _ M Y _ B R O T H E R _ I N S P I R E D ? L A N G U A G E = E N
“Laugh and the world laugh’s with you”
I N A U G U R A L A N D P R O F E S S O R I A L L E C T U R E W E D N E S D AY 1 4 T H O C T O B E R 2 0 1 5 5 : 4 5 - 7 : 0 0 P M
“‘Over 14 million deaths from NCDs occur between the ages of 30 and 70, of which 85% are
in developing countries.’”
H T T P : / / A P P S . W H O . I N T / I R I S / B I T S T R E A M / 1 0 6 6 5 / 1 2 8 0 3 8 / 1 / 9 7 8 9 2 4 1 5 0 7 5 0 9 _ E N G . P D F ? U A = 1
“other NCDs including, but not limited to, Neuromuscular (eg
Parkinson’s disease, Multiple Sclerosis),”
H T T P : / / W W W. W C P T. O R G / P O L I C Y / P S - N C D
H T T P S : / / W W W. Y O U T U B E . C O M / WAT C H ? V = T W Q Q L H M H O N I 2 1 - 4 2 S E C S & 1 . 2 8 - 2 . 1 5 S E C S
H T T P : / / D R G A R Y H A R D Y. C O M / M U LT I P L E - S C L E R O S I S
“Regionally, the median estimated prevalence of MS is greatest in Europe (80 per 100 000), followed by the Eastern
Mediterranean (14.9)…”
H T T P : / / A P P S . W H O . I N T / I R I S / B I T S T R E A M / 1 0 6 6 5 / 1 2 8 0 3 8 / 1 / 9 7 8 9 2 4 1 5 0 7 5 0 9 _ E N G . P D F ? U A = 1
H T T P : / / W W W. W H O . I N T / M E N TA L _ H E A LT H / N E U R O L O G Y / AT L A S _ M S _ W E B . P D F
“‘Large differences are seen between high income countries and countries with low or middle
incomes with regard to the availability and the type of services and resources.’”
• Pain
• Fatigue
• Muscle Spasms
• Balance
• Speech
M S - S U B T L E & H I D D E N S Y M P T O M S
T H E G O O D L I F E
H T T P S : / / W W W. M S S O C I E T Y. O R G . U K / W H AT- I S - M S
H T T P S : / / W W W. M S S O C I E T Y. O R G . U K / W H AT- I S - M S / S I G N S - A N D - S Y M P T O M S / S PA S M S - A N D - S T I F F N E S S / C A U S E S -A N D - T R I G G E R S
• “an increase in your body temperature (perhaps because of a fever or too much exercise)
• ”something as simple as loosening tight clothing might provide some relief.”
• “emotional stress”
• “stretching, or icing the muscle, warming the muscle, or taking a bath with Epsom salt.”
M U S C L E S PA S M S - T R E AT M E N T ST H E G O O D L I F E
H T T P S : / / W W W. M S S O C I E T Y. O R G . U K / W H AT- I S - M S / S I G N S - A N D - S Y M P T O M S / S PA S M S - A N D - S T I F F N E S S / C A U S E S -A N D - T R I G G E R S
H T T P : / / W W W. W E B M D . C O M / PA I N - M A N A G E M E N T / M U S C L E - S PA S M S - C R A M P S - C H A R L E Y- H O R S E ? PA G E = 2
“How can design increase happiness and support people’s efforts to lead full and satisfying lives?”
H T T P : / / W W W. I J D E S I G N . O R G / O J S / I N D E X . P H P / I J D E S I G N / A R T I C L E / V I E W F I L E / 1 6 6 6 / 5 8 7
“the principle of ‘citizens as customers’ will give policy makers and
those responsible for government service delivery a shared voice.”
I D E O , C I T I Z E N - C E N T E R E D D E S I G N A R T I C L E I N T H E H A R VA R D B U S I N E S S R E V I E W, Q U O T E I S R E F E R E N C I N G A N D R E A K E R S H AW A N D L E O N A R D O Q U AT T R U C C I
“While we don’t often think about it, each of these public service experiences are designed’”
I D E O , C I T I Z E N - C E N T E R E D D E S I G N A R T I C L E I N T H E H A R VA R D B U S I N E S S R E V I E W, Q U O T E I S R E F E R E N C I N G A N D R E A K E R S H AW A N D L E O N A R D O Q U AT T R U C C I
G O O G L E E N G L I S H D I C T I O N A R Y D E F I N I T I O N
“an article or substance that is manufactured or refined for sale”
M U S C L E S PA S M S
R E D U C E T H E E N V I R O N M E N TA L T R I G G E R S
B R I D G E T H E G A P B E T W E E N H I G H & L O W I N C O M E
D I S C O V E R M Y TA R G E T M A R K E T
T H E G O O D L I F E
P U R S U I T S
H T T P : / / K I R S T E N M A R K . C O M / C A T E G O R Y / T H E - G O O D - L I F E /