the importance of effective follow-up of preterm … · preterm less likely 21% 36% 67% 15% 63% 68%...

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THE IMPORTANCE OF EFFECTIVE FOLLOW-UP OF PRETERM BABIES REDUCING BURDEN, INCREASING QUALITY OF LIFE Professor Dieter Wolke (Ph.D; Dr rer nat h.c.; C.Psychol; AFBPsS) University of Warwick, Department of Psychology [email protected]

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Page 1: THE IMPORTANCE OF EFFECTIVE FOLLOW-UP OF PRETERM … · Preterm Less Likely 21% 36% 67% 15% 63% 68% 21% 33% 69% Reaching Life Course Goals: Social* *Mendonca, M., Bilgin, A., & Wolke,

THE IMPORTANCE OF EFFECTIVE FOLLOW-UP OF PRETERM BABIES

REDUCING BURDEN, INCREASING QUALITY OF LIFE

Professor Dieter Wolke (Ph.D; Dr rer nat h.c.; C.Psychol; AFBPsS)University of Warwick, Department of [email protected]

Page 2: THE IMPORTANCE OF EFFECTIVE FOLLOW-UP OF PRETERM … · Preterm Less Likely 21% 36% 67% 15% 63% 68% 21% 33% 69% Reaching Life Course Goals: Social* *Mendonca, M., Bilgin, A., & Wolke,

Nursery Primary school Secondary school Apprenticeship/work/study

Employment Retirement

Independence

Family/Sibling relationship

Friendships

Romantic relationships

Sexual relationships

Happiness/Life satisfaction

Life Course Tasks

Page 3: THE IMPORTANCE OF EFFECTIVE FOLLOW-UP OF PRETERM … · Preterm Less Likely 21% 36% 67% 15% 63% 68% 21% 33% 69% Reaching Life Course Goals: Social* *Mendonca, M., Bilgin, A., & Wolke,

Higher Education

Employment

Social Benefits

Preterm Less Likely Preterm More Likely

18%40%

19%

13%

16%78%

Reaching Life Course Goals: Wealth*

*Bilgin, A., Mendonca, M., & Wolke, D. (2018). Preterm Birth/Low Birth Weight and Markers Reflective of Wealth in

Adulthood: A Meta-analysis. Pediatrics. doi:10.1542/peds.2017-3625

ODDS

Page 4: THE IMPORTANCE OF EFFECTIVE FOLLOW-UP OF PRETERM … · Preterm Less Likely 21% 36% 67% 15% 63% 68% 21% 33% 69% Reaching Life Course Goals: Social* *Mendonca, M., Bilgin, A., & Wolke,

Romantic Partnership

Sexual Intercourse

Parenthood

Preterm Less Likely

21%36%

67%

15%

63%68%

21%

33%

69%

Reaching Life Course Goals: Social *

*Mendonca, M., Bilgin, A., & Wolke, D. (under review). Romantic Partnership, Sexual Intercourse and Parenthood

among Preterm Birth/Low Birth Weight Adults: A Meta-Analysis. JAMA Pediatrics.

ODDS

Page 5: THE IMPORTANCE OF EFFECTIVE FOLLOW-UP OF PRETERM … · Preterm Less Likely 21% 36% 67% 15% 63% 68% 21% 33% 69% Reaching Life Course Goals: Social* *Mendonca, M., Bilgin, A., & Wolke,

Childhood Functioning and reaching Life Course Goals *

*Johnson, S., & Wolke, D. (2017). Prematurity and low birthweight. In B. Hopkins, E. Geangu, & S. Linkenauger (Eds.), The Cambridge Encyclopedia of Child Development (2 ed., pp. 705-716). Cambridge: Cambridge University Press.

Autism

Physical health

Parenting

Parent Mental Health

School

Peers

Page 6: THE IMPORTANCE OF EFFECTIVE FOLLOW-UP OF PRETERM … · Preterm Less Likely 21% 36% 67% 15% 63% 68% 21% 33% 69% Reaching Life Course Goals: Social* *Mendonca, M., Bilgin, A., & Wolke,

Improve Quality of

Life

Assessment of child and

family functioning

Arrange appropriate support and

care pathways

Set realistic expectations

Guidelines: Follow up &

continuing care I

Page 7: THE IMPORTANCE OF EFFECTIVE FOLLOW-UP OF PRETERM … · Preterm Less Likely 21% 36% 67% 15% 63% 68% 21% 33% 69% Reaching Life Course Goals: Social* *Mendonca, M., Bilgin, A., & Wolke,

Physical HealthCognitive

Development

Neurodevelopment Social Development

Parenting

Cognitive Development

Language Development

School ReadinessBehavioural and

Emotional Adjustments

ParentingSocial/Peer

Relationships

Early Childhood (0-2 years) Transition to school (4-7 years)

Timing

Page 8: THE IMPORTANCE OF EFFECTIVE FOLLOW-UP OF PRETERM … · Preterm Less Likely 21% 36% 67% 15% 63% 68% 21% 33% 69% Reaching Life Course Goals: Social* *Mendonca, M., Bilgin, A., & Wolke,

Recognition of child and

family functioning

Guidelines: Follow up &

continuing care II

Set realistic expectations

Improve Quality of

Life

Arrange appropriate support and

care pathways

Page 9: THE IMPORTANCE OF EFFECTIVE FOLLOW-UP OF PRETERM … · Preterm Less Likely 21% 36% 67% 15% 63% 68% 21% 33% 69% Reaching Life Course Goals: Social* *Mendonca, M., Bilgin, A., & Wolke,

Case Management into Support

Early Childhood (0-2 years) Transition to school (4-7 years)*

*Johnson, S., Gilmore, C., Gallimore, I., Jaekel, J., & Wolke, D. (2015). The long-term consequences of preterm birth:

what do teachers know? Developmental Medicine & Child Neurology, 57(6), 571-577. doi:10.1111/dmcn.12683

Page 10: THE IMPORTANCE OF EFFECTIVE FOLLOW-UP OF PRETERM … · Preterm Less Likely 21% 36% 67% 15% 63% 68% 21% 33% 69% Reaching Life Course Goals: Social* *Mendonca, M., Bilgin, A., & Wolke,

Happy, having friends and

partner

Reducing Burden, Increasing Quality of Life

Long-term quality of life for parents*

*Wolke, D., Baumann, N., Busch, B., & Bartmann, P. 7 . Very Preter Birth a d Pare ts’ Quality of Life 27 Years Later. Pediatrics. doi:10.1542/peds.2017-1263

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Any Questions