the interface between old age psychiatry & learning disability susan m benbow wolverhampton city...
TRANSCRIPT
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The Interface between Old Age Psychiatry & Learning
DisabilitySusan M Benbow
Wolverhampton City PCT & Staffordshire University
Norwich November 13th 2008
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ACKNOWLEDGEMENTS
Dr S. BhaumikDr S. BlackDr K. DoddsMembers of the Interface Group
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CONTEXT
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KEY POLICY DOCUMENTS
Valuing people NSF for Mental Health NSF for Older People
Apply to ALL people
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OLDER PEOPLE’S MENTAL HEALTH
Standard 2 NSF-OP:Person-centred care
NHS and social care services treat older people as individuals and enable them to make choices about their own care
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VALUING PEOPLE
Based on people having
Their rights as citizens
Inclusion in local communities
Choice in daily lifeReal chances to be
independent
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EVERYBODY’S BUSINESS
1.2m people with mild/ moderate LD
210,000 People with severe LD in England
25,000 aged 60+
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EB CONT.
Most psychiatric disorders more common in people with LD
High risk of dementia in people with Down’s 55% at age 60-69 Life expectancy increasing
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KEY ELEMENTS 1
Cognitive assessments in adulthood for people with Down’s
Better information & signposting of services Support for family carers & others Involve people in planning, monitoring &
delivery of services Special consideration for people from BME
groups Joined up working Joint training
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KEY ELEMENTS 2
Consider joint teams Joint protocols Better collaboration
between Primary Care OPMH LD services
Consider in Transport Aids & adaptations Access to routine
medical investigations
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‘NOTHING ABOUT US WITHOUT US’
DH Strategy User Group ‘All services should include people with learning
difficulties properly in everything they do … not just one person as a token but several people who can support each other’.
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National Dementia Strategy
Consultation doc 2008
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COLLEGE WORK
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4 MAIN AREAS OF WORK:
Joint protocol for people with Downs syndrome + dementia in partnership with BPS & others
Training Days/ CPD events Psychiatrists Other staff working in both specialist areas
College publication Survey of LD & OA psychiatrists
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DRAFT 7 – 22nd September 2008 Dementia and People with Learning
Disabilities: Guidance on the assessment, treatment
and support of people with learning disabilities who develop dementia
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AIMS OF JOINT PROTOCOL
To collate evidence-based practice, clinical opinion & experience
to provide a framework for good practice to promote assessment, treatment and support for
PWD, their staff & carers guidance for service developers & commissioners to provide a set of standards of good practice to promote service development to provide a training framework to guide future service development
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COMPARATIVE RATES OF DEMENTIA - DOWN’S SYNDROME, LEARNING DISABILITIES, GENERAL POPULATION
Cooper, personal communication
DS
LD
GP
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Key points: assess every adult with Down’s syndrome at age 30
to establish a baseline against which to compare future suspected changes in functioning.
consider screening all adults with Down’s syndrome over 40 regularly because of increased risk of dementia prevalence of undetected treatable illnesses.
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Sharing the information with the person with learning disabilities:
Steps should be taken to share the information with the person with learning disabilities at all stages ……. This process should be undertaken as good practice irrespective of the mental capacity of the person concerned.
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consider the person’s happiness, comfort and security. The focus of care should move away from targets to quality of life.
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Key Points: Wherever possible, people with learning disabilities
and dementia should remain in familiar environments.
Environments can be adapted to make them dementia friendly and enable the person with dementia to make sense of where they are living.
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‘Dying in place’ where the person can stay where they are currently living with appropriate supports adapted and provided. This means that the person stays with what is familiar in their long term memory.
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4 MAIN AREAS OF WORK:
Joint protocol for people with Downs syndrome + dementia in partnership with BPS & others
Training Days/ CPD events Psychiatrists Other staff working in both specialist areas
College publication Survey of LD & OA psychiatrists
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