the international classification of functioning (icf) core set for breast cancer – a prospective...

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The International Classification of Functioning (ICF) Core Set for breast cancer – a prospective surveillance tool to identify rehabilitation needs Cooney MA 1 , Galvin R 2 , Connolly E 3 and Stokes E 1 1 Discipline of Physiotherapy, Trinity College Dublin. 2 Division of Population Health Sciences (General Practice), Royal College of Surgeons in Ireland, 3 Breast Care Department, St. James’s Hospital, Dublin, 8. Department of Physiotherapy, Trinity College Dublin

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A presentation given at the Irish Cancer Society's Survivorship Research Day at the Aviva Stadium, Dublin on Thursday, September 20th, 2013. The International Classification of Functioning (ICF) Core Set for breast cancer – a prospective surveillance tool to identify rehabilitation needs - Marese Cooney

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Page 1: The International Classification of Functioning (ICF) Core Set for breast cancer – a prospective surveillance tool to identify rehabilitation needs - Marese Cooney

The International Classification of Functioning (ICF) Core Set for breast cancer – a

prospective surveillance tool to identify rehabilitation needs

Cooney MA1, Galvin R2, Connolly E3 and Stokes E1 1Discipline of Physiotherapy, Trinity College Dublin.

2Division of Population Health Sciences (General Practice), Royal College of Surgeons in Ireland,

3Breast Care Department, St. James’s Hospital, Dublin, 8.

Department of Physiotherapy, Trinity College Dublin

Page 2: The International Classification of Functioning (ICF) Core Set for breast cancer – a prospective surveillance tool to identify rehabilitation needs - Marese Cooney

KEY MESSAGES There are aspects of women's

health altered by treatment for breast cancer that are not addressed by health professionals which are remediable

The ICF Core Set for breast cancer may be an appropriate surveillance tool

Department of Physiotherapy, Trinity College Dublin

Page 3: The International Classification of Functioning (ICF) Core Set for breast cancer – a prospective surveillance tool to identify rehabilitation needs - Marese Cooney

Global description of health International

Classification of Functioning (ICF)

Approved World Health Assembly 2001

It contains over 1,400 categories

Department of Physiotherapy, Trinity College Dublin

Page 4: The International Classification of Functioning (ICF) Core Set for breast cancer – a prospective surveillance tool to identify rehabilitation needs - Marese Cooney

Core Set for breast cancer

80 ItemsFunctionStructureActivities & participationEnvironment

Department of Physiotherapy, Trinity College Dublin

Page 5: The International Classification of Functioning (ICF) Core Set for breast cancer – a prospective surveillance tool to identify rehabilitation needs - Marese Cooney

Developed without the voice of women

330 women in an Irish validation study

Mixed methods – focus groups & survey

M Cooney, R Galvin, E Connolly & E Stokes “The International Classification of Functioning (ICF) Core Set for breast cancer from the perspective of women with the condition”, Disability & Rehabilitation,

2013 May; 35(9):740-8

Page 6: The International Classification of Functioning (ICF) Core Set for breast cancer – a prospective surveillance tool to identify rehabilitation needs - Marese Cooney

Not everything was in initial core set

Department of Physiotherapy, Trinity College Dublin

Page 7: The International Classification of Functioning (ICF) Core Set for breast cancer – a prospective surveillance tool to identify rehabilitation needs - Marese Cooney

New categories

Attention & Memory >50%Word finding 47%Pace of thought 35%Receiving spoken messages 31%

Department of Physiotherapy, Trinity College Dublin

Page 8: The International Classification of Functioning (ICF) Core Set for breast cancer – a prospective surveillance tool to identify rehabilitation needs - Marese Cooney

60% of women reported pain in two locations

40% > two locations

87% pain ever, 71% current, Kahn et al., (2012) 74% current

Chest/breast 41%Back 46%

Lower limb 32%

Shoulder/Arm 48%

Joint pain 53%

Page 9: The International Classification of Functioning (ICF) Core Set for breast cancer – a prospective surveillance tool to identify rehabilitation needs - Marese Cooney

All associated with poor quality of life

Energy & drive (77%)

Endurance (63%)

Exercise tolerance (49%)

Sleep (70%) Joint mobility (59%)

Reduced strength (56%)

Weight maintenance (47%)

Lymphoedema (21%)

Page 10: The International Classification of Functioning (ICF) Core Set for breast cancer – a prospective surveillance tool to identify rehabilitation needs - Marese Cooney

WORK

INTIMATE RELATIONS

PREPARATION MEALS

HAND & ARM USE

DAILY ROUTINE

LIFTING & CARRYING

Page 11: The International Classification of Functioning (ICF) Core Set for breast cancer – a prospective surveillance tool to identify rehabilitation needs - Marese Cooney

Sources of support

Health professionals 77%

Department of Physiotherapy, Trinity College Dublin

80-83%

Page 12: The International Classification of Functioning (ICF) Core Set for breast cancer – a prospective surveillance tool to identify rehabilitation needs - Marese Cooney

HELPFUL56%Wigs SwimsuitsOnline shopping

HINDRANCE47%ProsthesesSeatbelts

Department of Physiotherapy, Trinity College Dublin

ENVIRONMENTAL FACTORS

Page 13: The International Classification of Functioning (ICF) Core Set for breast cancer – a prospective surveillance tool to identify rehabilitation needs - Marese Cooney

We propose the revised Core Set as a prospective

surveillance tool for women with breast cancer in Ireland

Marese Cooney [email protected]

Department of Physiotherapy, Trinity College Dublin