The Move of Pediatric Palliative Care Program

32 Participants

OBJECTIVES OF THE PROGRAM

I. To increase healthcare provider’s skills and knowledge in pediatric palliative care for children, including children with cancer and non-malignant conditions II. To develop active pediatric palliative service at each participating hospital, e.g., Yangon Children Hospital (YCH) Pediatric Palliative care Service, 300-bedded Mandalay Children Hospital (MCH) Pediatric Palliative care Service & Yankin Children’s Hospital Pediatric Palliative Care Service. III. To nurture pediatric palliative care services in Myanmar with trained

staff to provide quality palliative and bereavement care for children and family throughout the disease trajectory.

IV. To improve awareness among people, caregivers and the HCPs about the Pediatric Palliative Care

Pediatric Palliative Care Centers with Multidisplinary Involvement Need Assessment and Program Development • Affirmed the needs • need of Pediatric Palliative Care in daily practice • Recognized Pediatric Palliative Care is not only for the children with

oncology • Need of Multidisciplinary involvement (Basic:- Doctor, Nurse and

MSW) • Need of Training among the clinicians, surgeons and HCPs – MSWs,

physiotherapists, pharmacists, volunteers

Pediatric Palliative Care Centers with Multidisplinary Involvement Need Assessment and Program Development

• Affirmed the needs • need of Pediatric Palliative Care in daily practice • Recognised Pediatric Palliative Care is not only for the children with oncology • Need of Multidisciplinary involvement (Basic:- Doctor, Nurse and MSW) • Need of Training among the clinicians, surgeons and HCPs – MSWs,

physiotherapists, pharmacists, volunteers • Need of Public awareness about the PPC • Need of PPC friendly institutional climate • Need of incorporating implementation steps in each and every steps

of training modules • Need of sustainability and evaluating the implementation and

solutions to solve the challenges to meet the targets

Starting with 4 ACTIVE Centers • Yangon Children Hospital • Yankin Children Hospital • No.2 Military Hospital • Mandalay 300 bedded Children Hospital with Strong Networking Facilities Among Each Center

Pediatric Palliative Care Centers with Multidisplinary Involvement Need Assessment and Program Development

Different Strengths and Weakness in Each and Every Hospital

Excellent Networking system in 2MH but No MSW in 2MH

YCH -Involvement of INGOs and NGOs- Counseling

Nutrition program Play Therapy , Music Therapy

Travelling Allowance and Daily Allowances

MCH- Involvement of INGOs and NGO Nutrition Program

YKCH- Less Resources Problem than other hospital

Challenges Assumed

• Resources – • Materials : Space, Data collection tools, medications and Development of

commmon Guidelines and SOP in pediatric palliative care • Training : (Basic:- doc, nurse, MSW, nutritionist)

• Commitment and sustainability • Human Resource -(No full time Palliative care service providers in all centers)

retaining the trained persons and if unavoidable to shift to the PPC providing hospitals

• Implementation at every steps of the training: - depending of strengths and weakness of each center

• Institutional climate : acceptability from the administrative levels, peers, caregivers and families

• Awareness among the HCPs, Caregivers and patients and people

Public Awareness and Readiness Can Progress to • FUTURE PLANS HOSPITAL BASE TO COMMUNITY SERVICES

• HOSPICES • RESPICE CARE • ROLE OF NGOs and Volunteers • PPC Services in Institutions

SCIENCE AND ART OF Pediatric Palliative Care