The Penn CFAR CAB Welcomes You to the

City of Brotherly Love and Sisterly Affection

The Penn CFAR CAB Welcomes You

To The 2nd Cross CFAR CAB Meeting

June 10 -11, 2013Philadelphia, Pennsylvania

Case/UHC/MetroHealth ACTU CAB

Case Center for AIDS Research

University Health CenterMetroHealth

AIDS Clinical Trials Unit Community Advisory Board

CWR U CFAR Mission Statement

To integrate community involvement in HIV/AIDS-related research & clinical trials in order to promote developments in the medical treatment of people living with HIV/AIDS & in preventing further HIV transmission.

Community MembersClinical research

participants (past & present), cross

representation of targeted community

Community Medical Personnel

Clinical Physicians, Research Principal & Junior

Investigator, Nurses

Community/Agency Connections

ACTU, CWRU, Recovery Resources, Domestic

Violence Shelter, ATFGC, AFC, Ryan White Planning

Council, Regional Advisory Group

Describe the makeup of your CAB:

CWRU

Case/UHC/MetroHealth ACTU CAB

Case/UHC/MetroHealth ACTU CAB:

Network Engagement

• ACTG- AIDS Clinical Trials Group• CFAR- Center for AIDS Network

• HVTN- HIV Vaccine Trials Network• MTN- Microbicide Trials Network

Case/UHC/MetroHealth ACTU CAB:

Community Involvement

Established, June 2010

Chicago CFAR CAB

Name Role AffiliationJuana Ballesteros Member Independent Consumer AdvocateLesley Craig Chair HHS, Region VMoctezuma Garcia Member Independent Consumer AdvocateSanford Gaylord Member HHS, Region VDale Green Co-Chair AIDS Legal CouncilKeith Green Member Stroger Hospital of Cook CountyLisa Lee Member Christian Community Health CenterPeter McLoyd Member Ruth Rothstein CORE CenterYaa Simpson Member Chicago Department of Public HealthEnid Vasquez Member T-PANAlan Landay Ex-officio Member Rush University Medical CenterLinda Baum Ex-officio Member Rush University Medical CenterAudrey French Ex-officio Member Cook County Health & Hospitals SystemKevin Tomlinson Ex-officio Member Rush University Medical Center

Chicago D-CFAR CAB Membership

Chicago D-CFAR CAB

CAB Mission: To foster & maintain partnerships & open communication between community members and CFAR researchers to enhance HIV education, prevention, treatment & research activities reflecting the interest of the community & the investigators.

Consumers: Chicago has the 4th highest HIV prevalence of large cities in the US with ~21,000 known infections and another 5,000 presumed infected who are undiagnosed. Those affected are predominantly impoverished minority men, women & adolescents residing in Chicago's inner city neighborhoods where HIV prevalence reaches 400-1,200/100,000. 79% of those infected in Chicago are men, 52% are non Hispanic Black, & 57% are MSM.

Chicago D-CFAR National Testing Day

The Chicagoland National HIV

Testing Collaborative

(CNHTC)

The CNHTC)is a social marketing & HIV testing campaign established by

staff of the Ruth M. Rothstein CORE Center

&> 30 community-based agencies & organizations throughout Cook County

in recognition of National HIV Testing Day.

Our goal is to test 5,000 citizens, educate on the importance of

routine screenings & to link those who are

directly impacted into HIV medical care.

To achieve this goal, the collaborative annually hosts 2 large community HIV testing

events & coordinates with over 30 CBOs to host small

neighborhood HIV testing events.

In 2012, the 23 agencies administered 5,693 tests identifying 28

newly-diagnosed HIV-positive individuals.

DC D-CFAR CAB

George Washington U

Mission StatementMission Statement

The DC D-CFAR CAB seeks to provide community perspectives & guidance to the DC D-CFAR & to inform the HIV/AIDS research agenda in Washington, DC.

DC D-CFAR CAB

George Washington U

Mission Statement (continued)

More specifically, the CAB seeks to:Engage the community in collaboration on new HIV/AIDS research efforts;Ensure community representation on the selection of DC D-CFAR research awards;Ensure that the community is educated about HIV research activities in DC;Carry out roles set out by NIH & priorities as established by the CAB; &Foster partnerships for community research studies.

Source: http://sphhs.gwu.edu/d-cfar/advisorycomm_boardmap.cfm

DC D-CFAR CAB

George Washington U

DC D-CFAR CAB

George Washington U

Activities since Cross CAB Meeting

Community representation Development of By-lawsReview of award applications Participation in Scientific Working GroupsFacilitation of Scientific Interest Groups (e.g., women) Community Education IAS poster and “Turning the Tide” presentation Collaboration with DC Community Coalition (DCCC) and DC Government Participation at scientific conferences – IAS, ECHPP

DC D-CFAR CAB

George Washington U

Community Education Activities Development of Town Hall community seminar series with the following objectives:

Increase community knowledge & understanding HIV researchBuild community capacity to participate in & advocate for HIV research advocacyDevelop community informed HIV research priorities & agenda.

Planned seminars for upcoming year: Prevention Post-CROI Post-IAS

DC D-CFAR CAB

George Washington U

Inter-CAB & Community Relations

Collaboration with DC Community Coalition

Post-conference community updates as a co-sponsor

Advising/orienting other prospective CABs

DC D-CFAR CAB

George Washington U

Future CAB ActivitiesCAB member expansion Planning for reapplication Participation in upcoming meetings – SWG/SIG, SBSRN, ECHPPContinued & expanded collaboration – DCCC, other CABs and community groupsEducation on trial participant protections & rightsMapping of & connectivity with other CABsSupport development of Women & HIV SIG

Harvard University

Center for AIDS Research

Mission: Community input is essential to ensure that HU CFAR – CAB goals are being achieved with respect to community outreach & education. The HU CFAR supports a CAB that will provide the CFAR leadership with input on the most effective use of CFAR resources to address these areas:

Provision of community education

& engagement programming to bring clinical HIV research

awareness via education & outreach

activities.

Timely dissemination of information to ensure that new & recent research

findings related to HIV prevention, care, and treatment are shared with patients, clinicians, caregivers, HIV/AIDS service providers & interested persons in the

community.

Harvard University CFAR

Description of membership*

Former Public Health

Official/Community AdvocatePLWHA

Faith-Based

Leadership

Health Care Providers

Key Community Stakeholder

s

Research/ Hospital

Representatives

* Active recruitment to expand & enhance the diversify of the CAB to a 12- 15 member body (e.g. community youth advocate).

Harvard University

Center for AIDS Research

Pending Membership ApplicationsCommunity Advocate:

A community advocate living with HIV who runs a self-empowerment program for women, & volunteers for a local HIV/AIDS service agency.

Program Director:

The New England AIDS Education and Training Center (NEAETC), established in 1988, is one of eleven Regional Education Centers & 5 National Centers, funded by Health Resources Service Administration (HRSA) with Ryan White Part F dollars & sponsored regionally by Commonwealth Medicine at the University of Massachusetts Medical School.

The New England HIV Education Consortium (NEHEC) is a HRSA Minority AIDS Initiative (MAI) Special Capacity Building funded program serving all 6 states in New England. The primary goal of NEHEC is to address the HIV-related training, educational, & support needs of the full, spectrum of providers as they provide state-of-the-art, quality and compassionate care to individuals living with HIV/AIDS. Innovative training formats address the needs of minority providers, providers serving racial/ethnic/linguistic minorities & communities of color, & those working in settings funded by the Ryan White CARE Act.

Harvard University CFAR

Active Recruitment EffortsManager of Community Relations/Health Promotion, AIDS Action Committee, Inc. AAC’s Mission: To stop the epidemic and related health inequities by eliminating new infections, maximizing healthier outcomes for those infected and at risk, and tackling the root causes of HIV/AIDS. Youth Linkage to Care Coordinator, Strategic Multisite Initiative for the Identification, Linkage and Engagement in Care of Youth with Undiagnosed HIV Infection (SMILE in Caring for Youth)

Fenway Health/Fenway Institute The SMILE Linkage to Care (LTC) Program is designed to provide linkage to medical care and psychosocial support for youth who are newly diagnosed, having difficulties staying engaged in care, or new to the Boston area. This project is for Boston youth ages 12-24. The SMILE program establishes referral relationships with collaborating agencies to identify HIV infected youth and connect these individuals with a Youth Linkage to Care (YLTC) Coordinator. Mission: The Fenway Institute is an interdisciplinary center for research, training, education, and policy development, focusing on national and international health issues. Our mission is to ensure access to quality, culturally competent medical and mental health care for traditionally underserved communities, including lesbian, gay, bisexual and transgender (LGBT) people and those affected by HIV/AIDS.

Harvard University CFAR

Active Recruitment Efforts #2

Executive Director, Hispanic Black Gay Coalition (HBGC) HBGC’s Mission: Hispanic Black Gay Coalition (HBGC) is one of few non-profit organizations in Boston dedicated to the unique and complex needs of the Black, Hispanic & Latin@ LGBTQ community. Founded in 2009, we work to inspire & empower Latin@, Hispanic and Black LGBTQ identified individuals to improve their livelihood through activism, education, community outreach, & counseling. Medical Case Manager, Whittier St. Health CenterWSHC’s Mission: Our mission is to provide high quality, reliable & accessible primary health care & support services for diverse population to provide wellness & eliminate health and social disparities. In addition: Membership recruitment efforts include seeking local governmental representatives.

Harvard University CFAR CAB

InfrastructureCAB meets bimonthly, or more when additional meetings are required. Meetings are held in the Boston Metropolitan area. Does your CAB have a committee structure? The HU CFAR – CAB is a working board that is broad-based & created from a commitment to involving any & all segments of the community that have an interest in HIV-related research 8 -15 members (core group of 6-10 people)

Two chairs: Chair and Vice- chair• work with HU CFAR staff to set the agenda• seek advice & recommendations from other HU CFAR – CAB

members

Executive Committee• core group of 5 – 6 members

CAB makes decisions by using Robert’s Rules of Order

CAB members will receive a $30.00 stipend to attend meetings

CAB is funded by HU CFAR Executive Committee—Administrative Core

Harvard University CFAR CAB

Infrastructure #2CAB sponsored community education events:

Forgotten Epidemic: Our Collective Responsibility, Response and Solutions to the AIDS Crisis in Black America Project

• Forgotten Epidemic Campaign Study Group• National Survey

National Webinars

National HIV/AIDS Awareness Days

Other Local and national educational HIV programming

In the process of developing a strategic dissemination plan: Community education, outreach and engagement HU CFAR CAB has been in existence since 2009, whereas CAB members actively participated locally and nationally on HU CFAR – Community Education & Engagement Program’s HIV/AIDS programming (e.g. The Forgotten Epidemic Project, National HIV/AIDS Awareness days, etc). However, our CAB’s Bylaws were only recently ratified. Now that there is a procedural infrastructure in place, HU CFAR CAB will began to grow its membership from 7 current members

to 12 (or possibly 15), as well as advance & execute its mission.

Community Participatory Advisory Board

Baltimore HIV Collaboratory

Susan Sherman & David Holtgrave, Co – Directors

Jordan White, Program Manager

Richard E. Chaisson, MD, PI & Chris Beyrer, MD, MPH, Co-PI

JHU CFAR Specific Aims

To develop a new generation of HIV/AIDS researchers and recruit

under-represented minorities into the

HIV/AIDS field

To recruit new investigators from relevant disciplines into

HIV/AIDS research to address the growing need for knowledge in emerging

areas that affect the HIV epidemic

To enhance the productivity by

promoting transdisciplinary

innovation, integration and collaboration

To mobilize the capabilities and capacity of Johns Hopkins

University to combat the HIV epidemic in Baltimore through

training, outreach and community-based intervention

studies.

Baltimore HIV Collaboratory

CFAR AIM #4To mobilize capacity from across Johns Hopkins University to combat the HIV

epidemic in Baltimore through engagement, training, outreach and

community-based intervention studies.

Baltimore HIV Collabatory

Objectives

1. To promote community linkages between JHU researchers with HIV focused NGOs, the BCHD, & people affected with HIV/AIDS through the creation of forums to exchange data, information, & resources.

2. To identify, recruit, & train under-represented minority undergraduates, graduate students, fellows, & junior faculty in community-based HIV/AIDS research in Baltimore.

3. To facilitate the development of research skills among Baltimore-based, HIV focused nonprofit organizations as well as develop and expand research collaborations between JHU, nonprofits, and BCHD.

Baltimore HIV CollabatoryActivities

1. Bridge the Gap Conference – Annual Conference on HIV/AIDS Issues in Baltimore City Potential Topic – Affordable Care Act

Implementation for at People risk or living with HIV

Trainings and Workshops for NGOs and Community Members

2. Baltimore HIV/AIDS Scholars 15 underrepresented undergraduate students

mentored in a variety of disciplines (epidemiology, chemistry, nursing, bioethics, neurology)

3. Gilead Project Community based HCV testing and

education program for students and peers

Rochester HIV/AIDS CABMission

to provide a formal channel for ongoing education, communication, advocacy, and

problem solving among representatives of the community and those involved in adult and

pediatric HIV/AIDS treatment and preventive vaccine research

Our purpose is to facilitate appropriate, timely, and ethical research efforts

which may ultimately bring about an end to HIV Disease and AIDS.

Rochester HIV/AIDS

Community Advisory Board

The Rochester HIV/AIDS CAB has been in continuous operation since 1991, in

support of UR’s ACTG (Adult & Pediatric) and AVEG/HVTN

clinical research programs.

In April of 2012 the CAB voted to include UR CFAR issues into the agenda of its monthly meetings.

Describe the makeup of your CAB:

RochesterCAB membership

academic faculty, representatives of agencies, organizations & community

members & represents the community’s voice in the ACTG, CFAR, HVTN, IMPAACT,

& Individual Investigator Research.

CAB leadership Executive Committee

(CAB , Vice-chair & Secretary), Active Community Education Committee

Protocol Review Committee

RochesterDecisions are

made by polling the voting CAB members.

Meetings are run by Robert’s Rules of Order.

New items for discussion can be brought forth by

researchers, research staff & CAB members

RochesterCAB membership: academic faculty, representatives of

agencies, organizations and community members &

represents the community’s voice in the ACTG, CFAR,

HVTN, IMPAACT, & Individual Investigator Research.

CAB leadership consists of an

Executive Committee (CAB Chair, Vice-chair

and Secretary), an active Community

Education Committee & Protocol Review

Committee.

Decisions are made by polling the voting CAB members. Meetings are run by Robert’s Rules of Order & new items for discussion can be brought

forth by researchers, research staff & CAB members.

Describe the makeup of your CAB:

Rochester

The CAB meets monthly, except during Summer recess (July & August). Once a year, the usual CAB meeting is replaced

by a retreat (February), a half-day session where topics of the CAB’s

choosing are discussed.

Describe the makeup of your CAB:

RochesterThe Rochester CAB…• Reviews protocols from ACTG & occasionally

discusses HVTN protocols.• Co-sponsors 1 large community education event each

year – usually associated with World AIDS Day or other days recognizing HIV/AIDS.

• Advocates for HIV/AIDS interests on a local basis which may include working with local legislatures, but more often directed at communities that bear the greater brunt of HIV infections.

• Participates in a joint network CAB through monthly meetings to discuss issues & items of common concern.

UCLA CFAR

Community Advisory Board

Sung-Jae Lee, Ph.D.

University of California, Los Angeles

Center for HIV Identification Prevention and Treatment Services

(CHIPTS)

UCLA CFAR CAB

Members Representatives

from theprivate sectorPLWHA

Local & State Health

Departments

CBOS

AIDS Service Organizations

Educational Institutions

Established in 1997 as part of CHIPTS at UCLA

UCLA CFAR CAB

Responsibilities

Activities of CFAR/CHIPTS Cores- to ensure that they remain attentive to community concerns, needs, & priorities

Relevance to community of the social/behavioral prevention & intervention research

Efforts to identify opportunities for researchers & staff from racial/ethnic minority groups

Impact on the “practice” of activities of CBOs and its overall relationship with the local community

UCLA CFAR CABMembership

• Consists of 10-15 members

• At least 25% of the members are people living with HIV/AIDS.

• Knowledge and insight into communities affected by HIV/AIDS

• The term of appointment is 2 years. Members may serve no more than two consecutive terms.

UCLA CFAR CABMeetings

• CAB meets quarterly. A yearly meeting schedule distributed at the start of the year

• Agenda prepared by the Executive Director & transmitted to members in advance of each meeting. CAB members can propose agenda items a week in advance of the meeting

• Meeting summary is generated after each meeting

• A yearly orientation for new CAB members

UCLA CFAR CABCompensation

• CAB members are expected to participate in all 4 meetings per year

• Compensation based on attendance ($400 annually)

• CAB members can submit mileage & parking reimbursements forms

• CAB members provided with a 1099 statement each year for tax purposes.

UCSF Center for AIDS Prevention Studies (CAPS)

Community Advisory Board

Presenter:Byron Mason

UCSF CAPS

Specific AimsScience to Community: Facilitate access to & use of HIV prevention science by stakeholders (i.e., community-based organizations, funders & policy makers);

Community to Science: Support CAPS scientists’ use of community expertise;

Foster Collaborative Research: Support community-involved research & ongoing collaborative research partnerships between CAPS scientists & communities.

UCSF CAPSMission

Provide input & feedback to CAPS projects, to bring community concerns to CAPS, & to assist CAPS in disseminating research.

Provides input to all CAPS investigators, with particular input to the Executive Leadership.

UCSF CAPSCommunity Advisory Board

• Supported through CAPS’ P30 Grant (NIH)• 17 members (13 active, 4 emeritus)• 4 meetings per year• Peer /Grant Reviews• Members are paid for each meeting• Formal by-laws govern CAB structure & activities

UCSF CAPSActivities & Products

• Represent CAPS at scientific & community meetings (International AIDS Conference)• CAPS Innovative Dissemination Award• Recommendations for Research Dissemination (2006, 2013)

UCSF CAPSSuccesses & Challenges

Highly “functional” and motivated members• Diversity of disciplines & backgrounds• Close ties to a range of communities• Provider (CBO), consumer, government (local,

state & federal) and corporate inroads

Engagement challenges• General relationship between community &

science • Motivating academics to engage with community

Miami CFAR CABBackground

Mission: To ensure that all research supported by the Miami CFAR is developed, conducted & reported in a manner that recognizes the needs of those affected by HIV living in the South Florida community.

In 2012, the Miami CFAR transitioned from a D-CFAR to a full CFAR.

Admin Core

B C D EEvelyn Ullah & Kira Villamizar

(Broward Health Dept. & Miami Health Dept.)

Co-Chairs:

Chair: Guillermo Prado, PhD (Director of Core E)

Community Advisory Board • HIV Providers & clinic staff

• Health Dept. Staff

• CBOs

• Public School System

• UM researchers & faculty

• Justice System

Membership

Miami CFAR CABStructure

Miami CFAR CAB

Structures & Goals

To convene a group of local researchers & community agency representatives to align CFAR activities & HIV/AIDS research with community needs.

To keep communities informed on Miami CFAR research & special initiatives. To foster idea sharing & collaboration among researchers, community agency representatives, &community members around efforts to reduce the local burden of HIV/AIDS.

Miami CFAR CABActivities

Community Clinical Collaborations- Reduce care redundancy & enhance the medical home by providing HIV

expertise into CBOs with need- Broaden our reach for HIV community participatory research by leveraging

these resources - Examples of partnerships: OB/GYN, TeleDerm, Psychiatry at Care Resource*,

Borinquin Health Care Center* (*federally funded health clinic)

Project SHARE (Sharing HIV/AIDS Research Efforts)Collaboration between Miami CFAR, Miami-Dade County Health Department & the Broward County Health Department.- “The AMIGAS Study: A CDC Defined Evidence Based HIV Intervention for Latina ‐

Women” by Drs Wingwood & DiClemente - “Evaluating Implementation of the National HIV/AIDS Strategy: Using Community

Viral Load 7& Other Surveillance Indicators” by Dr. Moupali Das

Andre H Ford, PhD (Chair)

Emanuel HamiltonCommunity Rep.

Rev. Wesley Proctor, PhDVictory Christian Church

Gladys ThomasPhilly Faith in Action

Ameena Al AminCardiac Center, UPenn

Roy HayesPhiladelphia FIGHT

Carol Rogers Healthy Philadelphia

Cynthia GreenCommunity Rep.

Wesley Anderson Jeffrey JennePhiladelphia Dept. Public Health (AACO)

Bob Schoenberg LGBT Center, UPenn

Judith PetersSchool District of Phila.

Robert Carter African American Resource Center, UPenn

Andrea Lamour-HarringtonCommunity Rep.

Waheedah Shabazz-El Philadelphia FIGHT

Tyrone SmithCommunity Rep.

Penn CFAR Community Advisory Board

Structure & Leadership- Membership 2013

Penn CFAR Community Advisory Board

Mission & Structure

Mission: To foster & maintain partnerships & open communication between Penn CFAR researchers & community members. The CAB also works to enhance HIV education, prevention, treatment & research activities reflecting both investigators' interests & community needs.

CFAR CAB Chair

CFAR CAB Vice ChairCFAR CAB Executive Committee

Red Ribbon Awards Committee

Finance Committee

Education & Training Committee

Medical Monitoring Project Committee

Research Protocol Committee (new)

AD HOCBylaws Committee

Policy Committee (new)

Penn CFAR Community Advisory Board

Accomplishments (selected)

• Annual Red Ribbon Awards (2004 – 2012)• Just the Facts: Briefing for Elected Officials (2004)• Zip Codes / Focus Group Project (2004)• Meeting of the Minds Symposium (2006)• YOACAP's RARE Neighborhood Project (2006)• CDC Medical Monitoring Project (2007)• CFAR CAB Retreat (2008)• CAB Faith-Based Summit (2008)• First Cross-CFAR CAB National Meeting (2011)• FC2: Bottoms Up (2012)• BTAN Philadelphia Post AIDS 2012 HUB Community

Update (2012)• Individual Achievements

Penn CFAR Community Advisory Board

Looking Ahead & Challenges

Increase engagement activities • Mentoring of other CFAR CABs (via Cross CFAR CAB

network), junior investigators, high school students• Educational opportunities • Faith based communities • Increase engagement & provide more feedback to

investigators from planning to dissemination of research findings

• CFAR developmental awards• NIH funded projects

Challenges:• Concerns about funding opportunities for

continued growth• Diversity

UAB 1917 Clinic Research CAB

UAB 1917 Clinic Research CABMission

The 1917 Clinic Research Community Advisory Board (CAB) exists to provide input

to the HIV/AIDS research clinic staff, & to help share information about HIV/AIDS research activities at the University of

Alabama at Birmingham to the community at large

The goal of this dialogue between the community &d the clinic’s research team is to facilitate AIDS research that meets the needs of medical science & the needs of the community served by our clinic, especially clinical trials participants.

Dr. Michael Saag, CFAR Director

UAB 1917 Clinic Research CABMission

The CAB provides the community an opportunity to: • understand the clinical research process;• provide input regarding the development,

implementation & outcomes of clinical studies;

• offer advice related to the accrual & retention of trial participants;

• give clinical trial participants necessary advocacy & a way to address grievance issues;

• build a meaningful partnership that will lead to improved knowledge of HIV/AIDS disease; &

• promote ethical research purposes & practices.

Diane Vincent, Rickey Dorsey, Rick Walton – all PAB & CAB Members

UAB 1917 Clinic Research CAB

Meetings

Steve Dellinger (PAB & CAB Member) & Rick Walton (PAB Member & CAB Chair)

The 1917 Clinic CAB meets bi-monthly on the first Mon. of each month.

Lunch & networking begin at 11:30am. The meeting takes place from 12-1.

2013 Meeting Schedule: Feb. 4, April 1, June 3, Aug. 1, Oct. 7, & Dec.2.

At least one meeting will include the Vaccine, MTN, & Pediatric UAB CABs.

UAB 1917 Clinic

Patient Advisory Board

• In addition to the CAB, 1917/CFAR has a PAB that began in 1995.

• The mission of the PAB is: Empower, educate & advocate on behalf of those impacted by HIV, serve as a credible resource for & a liaison between patients & clinical care, support research & programmatic efforts & implement sustainability initiatives.

• The PAB and Research Clinic CAB have distinct roles, but share resources & knowledge.

Rickey Dorsey, PAB Chair & Karen Savage, Research Nurse Manager

UAB 1917 Clinic

For more info, contact:

Karen Savage, 1917 Research Nurse Manager, kgsavage@uab.edu

Rick Walton, 1917 Research CAB Co-Chair, ardey10@hotmail.com

Kelly Ross-Davis, 1917 Clinic, CAB Liaison, KRD@uab.edu

Diane Vincent, 1917 Clinic CAB Member, diane.h.vincent@gmail.com

University of WashingtonCFAR

Community Action Board

University of Washington CFAR CABStructure

MissionEncourage communication & build trustworthy collaborations between UW Center for AIDS & STD (CFAS) researchers & community members & community-based organizations to enhance local, national, & international prevention, treatment, & education activities.

Steering Committee (two co-chairs): Marcos Martinez – Entre Hermanos & Erick Seelbach –HHS Region XMembership

Researchers, CBOs, Government (HHS Region X, Public Health) & CFAR staffCompensation for community members

Flexible Working GroupsDisparities Project & Stigma ProjectOthers as needed

University of Washington CFAR CABActivities

Research ReviewHIV & TB Transmission & Future Trends in the African Population in the U.SiTest: Home HIV testing Study (Seattle)Sexual risk & mobility patternsUsing HIV surveillance data to relink of out-of-care HIV+ substance usersDigital Storytelling for HIV Prevention in African American CommunitiesSexual Concurrency Project (Seattle and Washington DC)

CFAR Principals Course (in progress) Encouraging future researchers to utilize the CAB for feedback on their proposals

CBO Needs Assessment Survey (in progress) Survey for CBOs to provide feedback to researchers on their needs in order to provide adequate input on research

University of Washington CFAR CABEvents

HIV & MSM SymposiumRegional (Portland, OR to Bellingham, WA)Generated ideas for HIV related projects

Meet the Researcher (s) Opportunities for the community to interact with researchers

Where Do We Go from Here? Patrick Sullivan-CFAR Emory, Gregorio Millett-CDC/HHS and George Ayala, MSM GFWafaa El-Sadr, Columbia Professor meet and greet

Support for community projectsBlack Community & Medical Research event (HIV Vaccine Trials Unit)Women & HIV Regional Conference (African American Reach and Teach Health Ministries)

University of North Carolina

Baylor College of Medicine

Leslie Raneri, CAB Chair

•Includes IMPAACT, PHACS, Adolescent Trials Network, RW Part D•Monthly meetings of “small CAB”: academic/ medical staff, community members (parents/ guardians, study participants)•Monthly meetings of adolescent CAB•Quarterly meetings of “large CAB”: academic/ medical staff, community members (parents/ guardians, study participants), community agencies and organizations, health department, school department, child welfare organizations, AIDS service organizations•Meetings held at the medical center

Baylor CAB

Baylor CAB

• Discussions of research protocols, study findings, community activities

• Represent CAB at regional and national IMPAACT and PHACS meetings

• Community education at World AIDS Day and community health events

• Planned involvement with RW Part D CAB and Houston HIV Cross-Network CAB

• Recruitment of new CAB members

Onward!