the serious and continuing illness policy and practice study (scipps) is an nhmrc funded program...
DESCRIPTION
Setting: Sydney West Area Health Service & the Australian Capital Territory Target population (purposively sampled): –Patients: years (total=52 including 12 CALD and 7 ATSI) –Family carers (n=14 including 5 CALD) Focus groups with 63 health professionals Reference group discussions with service providers working in the area of Indigenous and CALD health.TRANSCRIPT
The Serious and Continuing Illness Policy and Practice Study (SCIPPS) is an NHMRC funded program conducted at The Australian National University and University
of Sydney and administered by The Menzies Centre for Health Policy
Serious and Continuing Illness Policy and Practice Study (SCIPPS)
The 9th Global Forum of Bioethics Research
03 December 2008
Masoud Mirzaei, MD PhDOn behalf of SCIPPS team
Overview of SCIPPS: the process of inclusion of vulnerable
populations
SCIPPS
- The Serious and Continuing Illness Policy and Practice Study (SCIPPS) is a multi-staged study designed to develop and test policy and systems level interventions to improve outcomes for people with chronic illness in Australia.
• Data to inform the development of interventions come from four main sources: qualitative research with patients, carers and health care providers; literature review; policy analysis and expert groups.
Setting: Sydney West Area Health Service & the Australian Capital Territory
• Target population (purposively sampled):– Patients: 45-85 years (total=52 including 12
CALD and 7 ATSI)– Family carers (n=14 including 5 CALD)
• Focus groups with 63 health professionals• Reference group discussions with service
providers working in the area of Indigenous and CALD health.
AUSTRALIA
SWAHS
New South Wales
Study Setting
• 41% of SWAHS residents age 45 and over born overseas.
• 1.5 % of SWAHS residents are Aboriginal or Torres Strait Islander reaching 14,674 in 2001.
• 29.2% of Australia’s Indigenous population live in NSW.
Demography of CALD and Indigenous populations
SCIPPS
Recruitment process
Indigenous population: - The CEO of the Aboriginal Medical Service
was consulted at the design stage. - Ethics approval sought from AHMRC - Volunteers who were interested in
participating in the study recruited by AMS staff
- All interviews were conducted in the Mt Druitt AMS in a space that was familiar to the participants.
Recruitment process cont.
• SWAHS Multicultural Health Network connected SCIPPS with multi-cultural health service providers.
• The Australian Institute of Health and Welfare definition for CALD was used (i.e. born overseas in non English speaking countries).
• Census data were used to identify the main CALD groups in the area.
Place of birth: residents born overseas
(45 years +)
27,874
8,628
7,008
6,899
6,264
6,181
4,432
4,076
3,937
2,986
2,937
2,363
2,899
2,635
2,484
1,906
1,901
1,865
1,808 31,777
UK
China & Hong Kong
Philippines
Malta
Lebanon
Italy
New Zealand
India
Germany
Netherlands
Greece
Vietnam
Croatia
Sri Lanka
Poland
Turkey
Malaysia
Korea
Ireland
Born elsewhere overseas
Source: ABS, Census 2006 Community Profiles for the LGAs of Blacktown, Blue Mountains, Hawkesbury, Penrith, Parramatta, Holroyd, Auburn, Baulkham Hills and Lithgow
CALD population in SWAHS aged 45 and over
CALD recruitment process
• The SCIPPS team met various CALD groups in Community Centres.
• Brief presentations were given about the aims of SCIPPS and its likely outcome for people with chronic illness (translator assisted).
• SCIPPS team scheduled interview times for those who were interested.
• People from some CALD communities refused to participate (e.g. Russian and Croatian).
• Why didn’t they participate?
• It was part of SCIPPS’ original proposal to include vulnerable population in the study in order to reflect their needs and wants to policy makers.
• Vulnerable populations are those with poorer overall health outcomes who may have poorer access to care because of language and cultural differences.
• SCIPPS used census data to identify vulnerable populations in SWAHS.
• SCIPPS recruited the main vulnerable populations purposefully and interviewed them.
Summary