the s.t.a.r. initiative knowledge exchange and engagement program touring exhibit (k e e p)

This project has been funded in whole or in part with Federal funds from the Department of Health and Human Services, National Institutes of Health, National Library of Medicine, under Contract No. HHSN-276-2011-00005C with the University of Illinois at Chicago. 1

This project has been funded in whole or in part with Federal funds from the Department of Health and Human Services, National Institutes of Health, National Library of Medicine, under Contract No. HHSN-276-2011-00005C with the University of Illinois at Chicago.

.A culturally appropriate methodology for minority communities to identify, select, &

involve researchers capable of engaging communities to conduct Patient-Centered

Outcomes Research (PCOR). It is an opportunity for minority communities to be

involved in research as never before by selecting researchers who are sensitive to

the needs of the minority communities.

Patient Engagement Clusters ©are formed in the community. There will be a strong

educational component to ensure that the community is knowledgeable of research.

It’s universal, replicable, scalable, for any community, population, & group.

Knowledge Exchange and Engagement Program

K E E PPatient-Centered Outcomes Research Touring Exhibit

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.

•Researchers who are in a position and interested to engage minority communities

•Researchers who can help to answer the questions that are most important to

minority patients/caregivers/stakeholders.

•Minority communities are involved in every step of the research from partnering in

the design of the research to the dissemination and sharing of the results

•Poor/Negative relationship between medical centers and community are identified,

addressed, and removed.

•Minority communities and researches maintain relationships to continuously engage

and design of questions for more research



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The S.T.A.R. Initiative Knowledge Exchange and Engagement Program ( KEEP)

Touring Exhibit is a year-long healthcare/research engagement & educational exhibit

that will provide the community with opportunities to obtain information and

resources and to engage in a supportive environment in their places of worship,

libraries, hospitals and health centers.

The “Touring Exhibit” will continue to increase the participation rates of African-

Americans, communities of color, and all underserved communities in patient-centered

outcomes research for better health outcomes and shared decision-making.

The “Touring Exhibit” will assist in providing additional opportunities to learn about

PCOR and increase their capabilities, skill sets to participate and collaborate with

academic partners. Our goal for the community to become empowered to participate

in research as partners.




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The Borrowed Exhibit from NNLMGMRThe S.T.A.R. Initiative “Prototype:



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The KEEP Touring Exhibit is sponsored in part by two awards from

The National Network of Libraries of Medicine:

They are The Borrowed Exhibit Award and The Exhibit and Event Award


.

The National Network of Libraries of

Medicine

Borrowed Exhibit

• The Borrowed Exhibit will provide

consumer health information.

• It has three panels wide, each 4 feet tall

• The entire table top opens to a size 6' x 2' x

4'

• and works best on 8' tables

The S.T.A.R. Initiative Display

• The S.T.A.R. will provide information about

patient-centered outcomes research and the

benefits of participation for patients.

• It will provide an opportunity to researchers and

community members to learn together.

• We will show our work, its, mission, and how we

are becoming empowered to partner with

researchers and promote collaboration and co-

learning for research design , conduct and

dissemination of results.

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.



Get on the Tour Schedule to Be Engaged with S.T.A.R. Participants

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DiabetesObesity

Heart Disease

and Stroke Asthma

Cancers

Dementias




Our Focus for Year 2 (and more)

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HEALTH & Research TOPICS IN THE TOURING EXHIBITChronic Conditions

• Diabetes

• Heart Disease and Stroke

• Cancer

• Obesity

• Dementia

Research Partnership Development

• Comparative Effectiveness Research (what it is)

• Clinical Trials

• Patient-Centered Outcomes Research Institute (www.pcori.org). Non-profit research organization from the Affordable Care

Act.

• Institutional Review Boards (IRBs)

Patient/Stakeholder Engagement in Research

• S.T.A.R. Initiative Mobile App – enabling identification and selection researchers and continuous engagement

• Co-Learning between patients and researchers

• Patient/Engagement Clusters (research education)

• Community, Academic Centers, Faith-Based Collaborations (topic development for research



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http://www.pcori.org/

S.T.A.R. INITIATIVE

ENGAGEMENT CLUSTERS

Faith-Based

Research Ministries

VESSELS OF VIRTUE

ENGAGMENT CLUSTER

VICTORY CHRISTIAN INTL

MINISTRIES

2013

MOUNT CALVARY BAPTIST CHURCH

ENGAGEMENT

CLUSTER

HEART 2 HEART

FULL GOSPEL CHRISTIAN

ASSEMBLIES INTL

ENGAGEMENT

CLUSTER

NEW FIRST CHURCH OF

CHRIST ENGAGEMENT

CLUSTER

LIGHTS OF ZION BAPTIST

CHURCHS

ENGAGEMENT CLUSTER

PERFORMING CHRIST

MINISTRIES

ENGAGEMENT CLUSTER

PRAISE TABERNACLE DELIVERENCE

BAPTIST CHURCH

ENGAGEMENT CLUSTER

TRIEDSTONE FULL GOSPEL

BAPTIST CHURCH

ENGAGEMENT CLUSTER

VOICE OF GOD MINISTRIES

GLOBAL EFFECTIVENESS

MINISTRIES

ENGAGEMENT

CLUSTER

WORD MADE FLESH

WORSHIP CENTER

ENGAGEMENT CLUSTER

TRUE FOUNDATION

FULL GOSPEL OUTREACH MINISTRIES

ENGAGEMENT

CLUSTER

NEW SPIRITUAL LIGHT BAPTIST

CHURCH

ENGAGMENT CLUSTER




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NATIONAL NETWORK OF LIBRARIES OF

MEDICINE

“BORROWED EXHIBIT AWARD”

S.T.A.R. INITIATIVE

TOURING EXHIBIT

DISPLAY

S.T.A.R. INITIATIVE

SOCIAL MEDIA

Twitter, Facebook, & Website

FAITH-BASED

ENGAGEMENT CLUSTERS

PASTORS4PCOR RESEARCH MINISTRY

(Research Education/Topic Development "Grand Rounds"

Increased participation and awareness of clinical trails

LIBRARY ENGAGEMENT CLUSTERS

COMMUNITY LIBRARIES

MEDICAL LIBRARIES

HOSPITAL LIBRARIES

(Patient/Stakeholder Engagement

Shared decision-making and better health outcomes

**HOSPITALS & HEALTH CENTERS

HOSPITALS/ NETWORKS

FQHCS**

(Patient/Stakeholder Engagement)

Engagement and relationship building between community

members, researchers, clinicians, and stakeholders

PARTNERS AND

STAKEHOLDERS

(Chronic Conditions)

Development of questions and topics between

community and researchers for study

S.T.A.R. INIITIATIVE

ENGAGEMENT

APP (In Development)



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Research Education/Topic Development “Grand Rounds”

• Comparative Effectiveness Research (what it is)

• Clinical Trials

• Patient-Centered Outcomes Research Institute (www.pcori.org). Non-profit research organization from

the Affordable Care Act.

• Institutional Review Boards (IRBs)

• Co-Learning between patients and researchers

Patient/Stakeholder Engagement in Research

• S.T.A.R. Initiative Mobile App – enabling identification and selection researchers and continuous

engagement

• Patient Engagement Clusters (research education & partnership)

• Community, Academic Centers, Faith-Based Collaborations (topic development for research)



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http://www.pcori.org/


Capacity building - In the areas of cancer, diabetes, asthma, obesity, and dementia

will result in communities becoming well-informed and education to partner with

researchers and clinicians in enhanced shared-decision making for better health

outcomes.

***Technology Use – S.T.A.R. Initiative Mobile App to enable engagement***

Patient/Stakeholder/Community Engagement – co-learning, topic study, & selection



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CONTACT INFORMATION****OUR NEEDS****

• Sponsors – Funding The Touring Exhibit & Mobile App Development and Implementation

• Facilitators – Present The Touring Exhibit to your community, patients, providers

• Hosting the Exhibit – at your church, hospital, clinic, business

Regina Greer-Smith MPH FACHE

President, Healthcare Research Associates, LLC

Principal Investigator, The S.T.A.R. Initiative

Twitter; rgreersmith

Website: www.star-initiative.com, www.healthcarera.com

Email: [email protected], [email protected]

LinkedIIn reginagreersmith

Mobile: 708-764-9607

Office/Fax: 708-335-0519



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http://www.star-initiative.com/

http://www.healthcarera.com/

mailto:[email protected]

mailto:[email protected]

the s.t.a.r. initiative knowledge exchange and engagement program touring exhibit (k e e p)

Health & Medicine