tips from a new home hd care partner · 2017. 10. 10. · “we’re all about making things as...

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Call us today: 405-767-6740 | newdirectionhomedialysis.com OCTOBER 2017 Kidney Tips © 2017 New Direction Home Dialysis Here are some things I have learned as a care partner: Communicate. I could never get over the fear of hurting someone so I don’t do the sticking part. This worked out well, since the patient knows what feels right. Organize the treatment area. We set up our room like the room where we trained so it felt very familiar when we were ready to go home. In the room, we: • Keep a rolling cart stocked with supplies • Have manuals with error codes nearby • Keep phone numbers handy for our training nurses • Use a nearby closet for backup supplies • Write key dates on a wall calendar (labs, deliveries, clinic visits) Make the treatment room comfortable. We use a separate room at home for treatment. It’s nice to be able to close the door on nights off. We have TV, snacks, lap desk for the patient, and comfortable chair for me. We keep pets out, but they are in the next room and sleeping most of the time. It’s possible to work, too. It’s not easy, but both of us work full time and do sessions five nights each week. If we have work to do, we make sure we know this week’s schedule and how to adjust it. We have come to appreciate Wednesdays and Saturdays (our days off) and try to do something fun at least once each week. It’s okay to be scared at first. It can seem overwhelming the first few days. I found myself thinking “You want us to go home and do all this stuff our- selves?” And, now, 6 months later we are doing exactly that! Give yourself time to learn the process and don’t feel like you have to learn it all the first day. We’re only human. Some nights we make mistakes, but I think the best thing they taught us during training was the confidence to trouble shoot and handle problems. You are not alone. Our center made a sign for us to post in our home treatment room that says “Keep calm and carry on,” and it truly has become our mantra. Tips from a New Home HD Care Partner

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Page 1: Tips from a New Home HD Care Partner · 2017. 10. 10. · “We’re all about making things as easy as possible for our home dialysis patients,” said Leslie Whiles, clinic

Call us today: 405-767-6740 | newdirectionhomedialysis.com

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Kidney Tips

© 2017 New Direction Home Dialysis

Here are some things I have learned as a care partner:

Communicate. I could never get over the fear of hurting someone so I don’t do the sticking part. This worked out well, since the patient knows what feels right.

Organize the treatment area. We set up our room like the room where we trained so it felt very familiar when we were ready to go home. In the room, we:

• Keep a rolling cart stocked with supplies

• Have manuals with error codes nearby

• Keep phone numbers handy for our training nurses

• Use a nearby closet for backup supplies

• Write key dates on a wall calendar (labs, deliveries, clinic visits)

Make the treatment room comfortable. We use a separate room at home for treatment. It’s nice to be able to close the door on nights off. We have TV, snacks, lap desk for the patient, and comfortable chair for me. We keep pets out, but they are in the next room and sleeping most of the time.

It’s possible to work, too. It’s not easy, but both of us work full time and do sessions five nights each week. If we have work to do, we make sure we know this week’s schedule and how to adjust it. We have come to appreciate Wednesdays and Saturdays (our days off) and try to do something fun at least once each week.

It’s okay to be scared at first. It can seem overwhelming the first few days. I found myself thinking “You want us to go home and do all this stuff our-selves?” And, now, 6 months later we are doing exactly that! Give yourself time to learn the process and don’t feel like you have to learn it all the first day.

We’re only human. Some nights we make mistakes, but I think the best thing they taught us during training was the confidence to trouble shoot and handle problems. You are not alone. Our center made a sign for us to post in our home treatment room that says “Keep calm and carry on,” and it truly has become our mantra.

Tips from a New Home HD Care Partner

Page 2: Tips from a New Home HD Care Partner · 2017. 10. 10. · “We’re all about making things as easy as possible for our home dialysis patients,” said Leslie Whiles, clinic

© 2017 New Direction Home Dialysis

Resources for the Kidney PatientNew Direction Home Dialysis: [email protected] Kidney Foundation: www.kidney.orgAmerican Association of Kidney Patients: www.aakp.orgNational Kidney Foundation: [email protected] Education Institute: www.kidneyschool.comMy Food Coach Free App: kidney.org/myfoodcoach

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CPR Classes Offered Every 1st and 3rd Tuesday of the month at 9:00 a.m.Classes offered:BLS Healthcare Provider Adult/Child/Infant CPR AED (student cost $65)Health Saver Adult/Child/Infant CPR AED (student cost $65)Health Saver Adult/Child/Infant First Aid/CPR/AED (student cost $85)

To sign up go to our website at: newdirectionhomedialysis.com on the CPR Class Form or call our office at 405-767-6740AHA Instructor: Delaura (Dede) Pickle RN, BSN, CNNClasses will be held in the New Direction Home Dialysis Conference Room.

Kidney Friendly Recipe: Pumpkin Mousse Pie

New New Direction Home Dialysis now offers even more in-home services to make treatment convenient for patients. Instead of going to the clinic for a monthly lab draw, patients will now have the option of having a clinical staff member come to their home or workplace to draw blood. The simple procedure takes just about ten minutes.

“We’re all about making things as easy as possible for our home dialysis patients,” said Leslie Whiles, clinic director. “If we can eliminate a trip to the clinic for them, we’re happy to do it. Convenience is one of the greatest benefits of home dialysis and this will make it even easier.” Story

Lab Draws at Home or work is convenient Ingredients: • 1 Baked Pie Shell, cooled

• 1 small package Instant Vanilla Pudding• ¾ cup Milk• ½ cup Canned Pumpkin• 1 teaspoon Pumpkin PIe Spice• ½ teaspoon Cinnamon, Ginger, Nutmeg• 3 ½ cups Nondairy Whipped Topping (Cool Whip)

Preparation: Add milk to pudding mix and beat with whisk for 2 minutes or until thickened.

Mix in pumpkin and spices.

Fold in 2 cups whipped topping and spread mixture into pie shell.

Refrigerate for at least 4 hours.

Top with remaining whipped topping.

Portions: 8 Serving Size: 1 sliceNutrients Per Serving: Calories 238, Protein 2g, Carbohydrate 30g, Sodium 294mg, Potassium 110mg, Phosphorus 128mg

Page 3: Tips from a New Home HD Care Partner · 2017. 10. 10. · “We’re all about making things as easy as possible for our home dialysis patients,” said Leslie Whiles, clinic

© 2017 New Direction Home Dialysis

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Find a Renal Dietitian www.renalnutrition.org/find-an-expert.php

Videos Grocery Shopping for Your Kidney Diet 9 part series www.youtube.com/watch?v=ZJ6leG8lNEI&list=PLgaBYChIaS-3n32OYl6mOMEJiYE6ruEuN

Mobile Device Apps Care After Kidney Transplant Cost: Free Device: iOS & Android

H2Overload: Fluid Control for Heart-Kidney Health Cost: Free Device: iOS

My Food Coach Cost: Free Device: iOS & Android

Delivered Meals • Mom’s Meals

(dialysis meals) www.momsmeals.com/ independent-at-home/renal-menu/

• Magic Kitchen (pre-dialysis and dialysis meals) www.magickitchen.com

Cookbooks • AAKP Delicious! Cookbook (2013).

https://aakp.org/product/aakp-delicious-cookbook/

• Kidney Friendly Cooking, by the Canadian Association of Nephrology Dietitians (2015). Order form: https://www.renalrd.ca/file_uploads/Kidney%20Friendly%20Cooking%20order%20form%20(2).pdf

• The Kidney-Friendly Diet Cookbook: Easy & Delicious Kidney-Friendly Recipes with Helpful Eating Hints, by Louise Stanley and Lolo Courtney (2012).

• Sodium Girl’s Limitless Low-Sodium Cookbook, by Jessica Goldman Foung (2013). (For those on a flexible potassium diet)

For additional list of cookbooks, see the National Kidney

Foundation’s cookbook list: www.kidney.org/atoz/content/list-cookbooks-kidney-patients Choose cookbooks published after 2010.

Meal Planning Services Renal Diet Headquarters www.renaldiethq.com/order-a-renal-diet-meal-plan/

Resources for eating well: for chronic kidney diseases or dialysis

Before you were on dialysis, your doctor may have told you to follow a low-protein diet. This is changed now. Most people on dialysis are encouraged to eat as much high-quality protein as they can. The better nourished you are, the healthier you will be. You will also have a greater resistance to infection and recover from surgery more quickly.

Protein helps you keep muscle and repair tissue. In your body, protein breaks down into a waste product called urea. If urea builds up in your blood, you can become very sick. Some sources of protein produce less waste than others. These are called high-quality proteins. High-quality proteins come from meat, fish, poultry, and

eggs (especially egg whites). Getting most of your protein from these sources can reduce the amount of urea in your blood.

What do I need to know about protein?

HIGH-QUALITY PROTEINS