11/7/2013

Care Notebook

Texas Parent to Parent

Jeanine Pinner 1

Jeanine Pinner

Training & Outreach CoordinatorTexas Parent to Parent

Care

Notebook

With special thanks to Joni Bruce and the Oklahoma Family Network Care Notebook

Task Force 1

How can a Care

Notebook support

better outcomes?

�organize your most important information in a

central place

�makes it easier for you to find and share key

information with your child’s team

2

Helpful Hints for Your Care

Notebook

�Store it where it is easy to find.

�Add new information as you/your child have a

new evaluation, ARD, surgery, medication

change, diagnosis, etc.

�Take it with you to appointments, hospital visits

and ARD meetings.

�CD forms are PDF – save & print info – need latest Adobe Reader program (free)

3

Setting up your Notebook

� Gather information you already have

� Look through the pages provided

� Decide which information is most important to include

� Put the notebook together

� Review and update it as needed

� Don’t forget to take it with you!

4

Nuts and Bolts

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Care Notebook Tabs:

�My Story

�My Health Care

�My Contacts

�My Plan

�My Coverage

�My Resources

�My Transition

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Care Notebook

Texas Parent to Parent

Jeanine Pinner 2

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My Story

�My Page

�My Typical Status

�My Family Profile & Contact Info

�My Updates/Notes

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� My Emergency Information Form

� My Portable Medical Summary (#1)

� My Portable Medical Summary (#2)

� My Appointment Log

� My Blood Pressure/Sugar Log

� My Medication Log

� My Evaluations

� My Diet Tracking & Nutrition Information

� My Growth Tracking Form

� My Important Tests

� My Catheterization Information/Schedule

� My Hospitalizations/ Surgeries

� My Event Diary

� My Seizure/Behavior Log

� My Updates/Notes

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Coming soon

Diagnosis(es)

Immunizations & Allergy

Nebulizer & Vest Treatments

Respiratory

Dental

Medical Supplies

My Health Care

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My Contacts

�My Medical Contacts

�My School Contacts

�My Early Intervention Contacts

�My Contact/Discussion Record Form

Coming soon: Family Support Resources

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My Plan

�My Social Experiences

Coming soon: Activities of Daily LivingRecreationCommunicationCommunication InformationCoping/Stress/ToleranceMobilitySocial/PlayRest/Sleep

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My Coverage

�My Insurance Information

Coming soon: Medical Bill CommunicationTracking of Medical BillsMedical Travel Expense LogOut-of-Pocket Expense LogNotes

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Care Notebook

Texas Parent to Parent

Jeanine Pinner 3

My Resources

• Any information or organization that serves as a resource for your family!

�case manager contact information

�TxP2P web site

�TxP2P State & National Resource List

�Parent Training and Information center contact information

�child care provider, Catholic Charities, etc.

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My Transition

• Asset Development

• College Information

• Interviews

• Job Application & W-4

• References

• Resumes & Letters

• Health Care Transition

• Developmental Skills Checklists

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My Transition

• Asset Development

�Financial Goal Setting

�Intro Letter for Money Management

�Planning for the Future Career Tech Budget Info

Coming soon: Asset Assessment Tool

Monthly Budget Form

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My Transition

• College Information

�Scholarship Essays

Coming soon: Financial Aid/Scholarship Tracking

Form

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My Transition

• Interviews

�How to Answer Common Interview Questions

�How to Dress for an Interview - Men

�How to Dress for an Interview – Women

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My Transition

• Job Application & W-4

�Directions for Completing Form W-4

�Form W-4

�Subway Job Application Filled Out – Sample

�Subway Job Application – Blank

11/7/2013

Care Notebook

Texas Parent to Parent

Jeanine Pinner 4

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My Transition

• References

�References Blank Template #1 (Word)

�References Blank Template #2

�References Directions

�References Sample & Directions

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My Transition

• Resumes & Letters

�Resume Sample & Directions

�Sample Cover Letter & Directions

�Sample Letter of Resignation & Directions

�Resume Extracurricular Activities Examples

�Resume Extracurricular Activities Worksheet

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My Transition

• Health Care Transition

�Keeping Track of My Own Health Care

�Health Care Transition Checklist

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My Transition

• Developmental Skills Checklists

�Adolescent Autonomy Checklist

�Transition Developmental Checklist

Coming soon: My Transition Worksheet

Texas Parent to Parent

3710 Cedar Street, Box 12Austin, Texas 78705www.txp2p.org

toll-free 866-896-6001

local 512-458-8600

Fax 512-451-3110

Jeanine Pinner

jeanine@txp2p.org512-217-3558 (cell)

THANK YOU!

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