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Julie Zenger Hain, Ph.D., FACMG Department of Clinical Cytogenetics Oakwood Hospital & Medical Center Unidas por la Salud: A Comprehensive Breast Cancer Program for Women in Southwest Detroit These slides are the property of the presenter, do not duplicate without express written consent.

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Page 1: Unidas por la Salud: A Comprehensive Breast Cancer Program ... · lack access to healthcare • Breast cancer is the most commonly diagnosed cancer among Hispanic women & the leading

Julie Zenger Hain, Ph.D., FACMG

Department of Clinical Cytogenetics

Oakwood Hospital & Medical Center

Unidas por la Salud: A Comprehensive Breast Cancer Program for Women in

Southwest Detroit

These slides are the property of the presenter, do not duplicate without express written consent.

Page 3: Unidas por la Salud: A Comprehensive Breast Cancer Program ... · lack access to healthcare • Breast cancer is the most commonly diagnosed cancer among Hispanic women & the leading

Unidas por la Salud United for Health

Goal 1: Increase awareness of breast cancer risk among women in Southwest Detroit. Goal 2: Increase proportion of breast cancer diagnosed at earlier stages among women in Southwest Detroit Goal 3: Reduce financial barriers for timely and complete breast cancer screening follow-up and treatment among women of Southwest Detroit Goal 4: Increase awareness of breast cancer risk factors among women and promote education for women at increased risk in Southwest Detroit to seek appropriate services through their healthcare professional

These slides are the property of the presenter, do not duplicate without express written consent.

Page 4: Unidas por la Salud: A Comprehensive Breast Cancer Program ... · lack access to healthcare • Breast cancer is the most commonly diagnosed cancer among Hispanic women & the leading

Genomics Objectives G1: Increase the proportion of women with a family history of breast and/or ovarian cancer who received genetic counseling

Health People 2020

These slides are the property of the presenter, do not duplicate without express written consent.

Page 5: Unidas por la Salud: A Comprehensive Breast Cancer Program ... · lack access to healthcare • Breast cancer is the most commonly diagnosed cancer among Hispanic women & the leading

These slides are the property of the presenter, do not duplicate without express written consent.

Page 6: Unidas por la Salud: A Comprehensive Breast Cancer Program ... · lack access to healthcare • Breast cancer is the most commonly diagnosed cancer among Hispanic women & the leading

These slides are the property of the presenter, do not duplicate without express written consent.

Page 7: Unidas por la Salud: A Comprehensive Breast Cancer Program ... · lack access to healthcare • Breast cancer is the most commonly diagnosed cancer among Hispanic women & the leading

Primary Focus

• Hispanic Women in Southwest Detroit

• Women under age 40 and over age 64

These slides are the property of the presenter, do not duplicate without express written consent.

Page 8: Unidas por la Salud: A Comprehensive Breast Cancer Program ... · lack access to healthcare • Breast cancer is the most commonly diagnosed cancer among Hispanic women & the leading

Why Women in Southwest Detroit?

• 57.2% of the population is Hispanic origin • Medically underserved, high rates of unemployment and poverty &

lack access to healthcare • Breast cancer is the most commonly diagnosed cancer among

Hispanic women & the leading cause of cancer death • Breast cancer is diagnosed less often among women of Hispanic

origin but more frequently at a later stage • Hispanic women are about 20% more likely to die of breast cancer

than non-Hispanic women at a similar age and stage – Lower utilization of screening tests – Disparities in access to care and treatment 2010 US Census and Data Driven Detroit ACS CA Facts & Figures for Hispanics/Latinos

These slides are the property of the presenter, do not duplicate without express written consent.

Page 9: Unidas por la Salud: A Comprehensive Breast Cancer Program ... · lack access to healthcare • Breast cancer is the most commonly diagnosed cancer among Hispanic women & the leading

Why Women in Southwest Detroit?

• 57.2% of the population is Hispanic origin • Medically underserved, high rates of unemployment and poverty

& lack access to healthcare • Breast cancer is the most commonly diagnosed cancer among

Hispanic women & the leading cause of cancer death • Breast cancer is diagnosed less often among women of Hispanic

origin but more frequently at a later stage • Hispanic women are about 20% more likely to die of breast cancer

than non-Hispanic women at a similar age and stage – Lower utilization of screening tests – Disparities in access to care and treatment 2010 US Census and Data Driven Detroit ACS CA Facts & Figures for Hispanics/Latinos

These slides are the property of the presenter, do not duplicate without express written consent.

Page 10: Unidas por la Salud: A Comprehensive Breast Cancer Program ... · lack access to healthcare • Breast cancer is the most commonly diagnosed cancer among Hispanic women & the leading

Why Women in Southwest Detroit?

• 57.2% of the population is Hispanic origin • Medically underserved, high rates of unemployment and poverty &

lack access to healthcare • Breast cancer is the most commonly diagnosed cancer among

Hispanic women & the leading cause of cancer death • Breast cancer is diagnosed less often among women of Hispanic

origin but more frequently at a later stage • Hispanic women are about 20% more likely to die of breast cancer

than non-Hispanic women at a similar age and stage – Lower utilization of screening tests – Disparities in access to care and treatment 2010 US Census and Data Driven Detroit ACS CA Facts & Figures for Hispanics/Latinos

These slides are the property of the presenter, do not duplicate without express written consent.

Page 11: Unidas por la Salud: A Comprehensive Breast Cancer Program ... · lack access to healthcare • Breast cancer is the most commonly diagnosed cancer among Hispanic women & the leading

Why Women in Southwest Detroit?

• 57.2% of the population is Hispanic origin • Medically underserved, high rates of unemployment and poverty &

lack access to healthcare • Breast cancer is the most commonly diagnosed cancer among

Hispanic women & the leading cause of cancer death • Breast cancer is diagnosed less often among women of Hispanic

origin but more frequently at a later stage • Hispanic women are about 20% more likely to die of breast cancer

than non-Hispanic women at a similar age and stage – Lower utilization of screening tests – Disparities in access to care and treatment 2010 US Census and Data Driven Detroit ACS CA Facts & Figures for Hispanics/Latinos

These slides are the property of the presenter, do not duplicate without express written consent.

Page 12: Unidas por la Salud: A Comprehensive Breast Cancer Program ... · lack access to healthcare • Breast cancer is the most commonly diagnosed cancer among Hispanic women & the leading

Why Women in Southwest Detroit?

• 57.2% of the population is Hispanic origin • Medically underserved, high rates of unemployment and poverty &

lack access to healthcare • Breast cancer is the most commonly diagnosed cancer among

Hispanic women & the leading cause of cancer death • Breast cancer is diagnosed less often among women of Hispanic

origin but more frequently at a later stage • Hispanic women are about 20% more likely to die of breast cancer

than non-Hispanic women at a similar age and stage – Lower utilization of screening tests – Disparities in access to care and treatment 2010 US Census and Data Driven Detroit ACS CA Facts & Figures for Hispanics/Latinos

These slides are the property of the presenter, do not duplicate without express written consent.

Page 13: Unidas por la Salud: A Comprehensive Breast Cancer Program ... · lack access to healthcare • Breast cancer is the most commonly diagnosed cancer among Hispanic women & the leading

Why Under Age 40 & Over Age 64?

• Breast & Cervical Cancer Control Program (BCCCP)

– Services women 40-64 years of age

These slides are the property of the presenter, do not duplicate without express written consent.

Page 14: Unidas por la Salud: A Comprehensive Breast Cancer Program ... · lack access to healthcare • Breast cancer is the most commonly diagnosed cancer among Hispanic women & the leading

Unidas por la Salud United for Health

Goal 1: Increase awareness of breast cancer risk among women in Southwest Detroit. Goal 2: Increase proportion of breast cancer diagnosed at earlier stages among women in Southwest Detroit Goal 3: Reduce financial barriers for timely and complete breast cancer screening follow-up and treatment among women of Southwest Detroit Goal 4: Increase awareness of breast cancer risk factors among women and promote education for women at increased risk in Southwest Detroit to seek appropriate services through their healthcare professional

These slides are the property of the presenter, do not duplicate without express written consent.

Page 15: Unidas por la Salud: A Comprehensive Breast Cancer Program ... · lack access to healthcare • Breast cancer is the most commonly diagnosed cancer among Hispanic women & the leading

Unidas por la Salud

Patient Care Expense • Clinical Breast Exams • Mammography • Office visits • Genetic risk assessments • Follow-up patient care

– Ultrasounds – Biopsies – Follow-up mammograms – MRI

• Transportation • Interpreters

These slides are the property of the presenter, do not duplicate without express written consent.

Page 16: Unidas por la Salud: A Comprehensive Breast Cancer Program ... · lack access to healthcare • Breast cancer is the most commonly diagnosed cancer among Hispanic women & the leading

American Cancer Society’s Promotoras de Salud Program

These slides are the property of the presenter, do not duplicate without express written consent.

Page 17: Unidas por la Salud: A Comprehensive Breast Cancer Program ... · lack access to healthcare • Breast cancer is the most commonly diagnosed cancer among Hispanic women & the leading

Oakwood’s Faith-based Outreach Program

These slides are the property of the presenter, do not duplicate without express written consent.

Page 18: Unidas por la Salud: A Comprehensive Breast Cancer Program ... · lack access to healthcare • Breast cancer is the most commonly diagnosed cancer among Hispanic women & the leading

These slides are the property of the presenter, do not duplicate without express written consent.

Page 19: Unidas por la Salud: A Comprehensive Breast Cancer Program ... · lack access to healthcare • Breast cancer is the most commonly diagnosed cancer among Hispanic women & the leading

These slides are the property of the presenter, do not duplicate without express written consent.

Page 20: Unidas por la Salud: A Comprehensive Breast Cancer Program ... · lack access to healthcare • Breast cancer is the most commonly diagnosed cancer among Hispanic women & the leading

These slides are the property of the presenter, do not duplicate without express written consent.

Page 21: Unidas por la Salud: A Comprehensive Breast Cancer Program ... · lack access to healthcare • Breast cancer is the most commonly diagnosed cancer among Hispanic women & the leading

These slides are the property of the presenter, do not duplicate without express written consent.

Page 22: Unidas por la Salud: A Comprehensive Breast Cancer Program ... · lack access to healthcare • Breast cancer is the most commonly diagnosed cancer among Hispanic women & the leading

• Personal history of: Breast cancer Ovarian cancer If Yes, age at diagnosis: _________ • Current age • Age at first menstrual period • Age at first live birth • Have you ever had a breast biopsy? If Yes, was atypical hyperplasia found under the microscopy? • Race/Ethnicity • Do any of these family members have a history of breast cancer: Mother – Age of onset: Sister(s) – Age of onset: Daughter(s) – Age of onset: • Do you have any of the following family history? Female breast cancer diagnosed under age 50 Male breast cancer diagnosed at any age Ovarian cancer diagnosed at any age Pancreatic cancer diagnosed at any age Colon cancer diagnosed under the age of 50

These slides are the property of the presenter, do not duplicate without express written consent.

Page 23: Unidas por la Salud: A Comprehensive Breast Cancer Program ... · lack access to healthcare • Breast cancer is the most commonly diagnosed cancer among Hispanic women & the leading

These slides are the property of the presenter, do not duplicate without express written consent.

Page 24: Unidas por la Salud: A Comprehensive Breast Cancer Program ... · lack access to healthcare • Breast cancer is the most commonly diagnosed cancer among Hispanic women & the leading

Process Flow

Grassroots Promotoras

Covenant

Clinical Breast Exams

Midwest

Mammograms

Breast Care Center-

Dearborn

Diagnostics

These slides are the property of the presenter, do not duplicate without express written consent.

Page 25: Unidas por la Salud: A Comprehensive Breast Cancer Program ... · lack access to healthcare • Breast cancer is the most commonly diagnosed cancer among Hispanic women & the leading

Process Flow

Grassroots Promotoras

Covenant

Clinical Breast Exams

Midwest

Mammograms

Breast Care Center-

Dearborn

Diagnostics

These slides are the property of the presenter, do not duplicate without express written consent.

Page 26: Unidas por la Salud: A Comprehensive Breast Cancer Program ... · lack access to healthcare • Breast cancer is the most commonly diagnosed cancer among Hispanic women & the leading

Unidas por la Salud United for Health

Goal 1: Increase awareness of breast cancer risk among women in Southwest Detroit. Goal 2: Increase proportion of breast cancer diagnosed at earlier stages among women in Southwest Detroit Goal 3: Reduce financial barriers for timely and complete breast cancer screening follow-up and treatment among women of Southwest Detroit Goal 4: Increase awareness of breast cancer risk factors among women and promote education for women at increased risk in Southwest Detroit to seek appropriate services through their healthcare professional

These slides are the property of the presenter, do not duplicate without express written consent.

Page 27: Unidas por la Salud: A Comprehensive Breast Cancer Program ... · lack access to healthcare • Breast cancer is the most commonly diagnosed cancer among Hispanic women & the leading

Unidas por la Salud United for Health

Goal 1: Increase awareness of breast cancer risk among women in Southwest Detroit.

• Strong partnership established/providers trained • Unidas por la Salud programs promoted (English and Spanish) • 15 Promotoras culturally trained to educate women on breast health • Exceeded project program goal of 700 women impacted

• 1,109 women participated

These slides are the property of the presenter, do not duplicate without express written consent.

Page 28: Unidas por la Salud: A Comprehensive Breast Cancer Program ... · lack access to healthcare • Breast cancer is the most commonly diagnosed cancer among Hispanic women & the leading

Unidas por la Salud United for Health

Goal 2: Increase proportion of breast cancer diagnosed at earlier stages among women in Southwest Detroit

• Provided 40 clinical breast exams and referred 149 to BCCCP • Provided 14 digital mammograms and 2 biopsies (benign lesions)

These slides are the property of the presenter, do not duplicate without express written consent.

Page 29: Unidas por la Salud: A Comprehensive Breast Cancer Program ... · lack access to healthcare • Breast cancer is the most commonly diagnosed cancer among Hispanic women & the leading

Unidas por la Salud United for Health

Goal 3: Reduce financial barriers for timely and complete breast cancer screening follow-up and treatment among women of Southwest Detroit

• 14 mammograms • 15 ultrasounds • 1 MRI • Referred 149 women to BCCCP for mammograms • 2 biopsies

These slides are the property of the presenter, do not duplicate without express written consent.

Page 30: Unidas por la Salud: A Comprehensive Breast Cancer Program ... · lack access to healthcare • Breast cancer is the most commonly diagnosed cancer among Hispanic women & the leading

Unidas por la Salud United for Health

Goal 4: Increase awareness of breast cancer risk factors among women and promote education for women at increased risk in Southwest Detroit to seek appropriate services through their healthcare professional

• Promotoras and provider education • 30+ identified women/family at higher risk • 7 individuals seen for Genetic Counseling • 1 Mammogram and 1 MRI for woman <40 years of age • 0 referrals for chemoprevention of breast cancer

These slides are the property of the presenter, do not duplicate without express written consent.

Page 31: Unidas por la Salud: A Comprehensive Breast Cancer Program ... · lack access to healthcare • Breast cancer is the most commonly diagnosed cancer among Hispanic women & the leading

Unidas por la Salud United for Health

Lessons Learned

• Promotoras de Salud a successful program • Provider education/implementation impacted by available

follow-up care • Underutilization of available Federal/State funded programs • Follow-up care involved care at facility requiring legal ID • Risk Assessment – follow-up appointments poorly attended • Limited importance on breast health when dealing with acute

medical issues, poverty, and unemployment

These slides are the property of the presenter, do not duplicate without express written consent.

Page 32: Unidas por la Salud: A Comprehensive Breast Cancer Program ... · lack access to healthcare • Breast cancer is the most commonly diagnosed cancer among Hispanic women & the leading

Julie Zenger Hain, Ph.D., FACMG

Department of Clinical Cytogenetics

Oakwood Hospital & Medical Center

Dearborn, MI

313.593.8483

[email protected]

These slides are the property of the presenter, do not duplicate without express written consent.