US Department of Health and Human ServicesHealth Resources And Services Administration

Maternal And Child Health BureauDiana Denboba

“Facilitate the development of systems of services for children, youth, and

adults with special health care needs”….(OBRA ’89)

Six Core Outcomes

National Centers

National Leadership

Resource Development

Data Collection/Analysis

Evidence Base

Publish Articles

Website

Technical Assistance/

Continuous Quality Improvement

http://www.cahmi.org/pages/Home.aspx

http://www.cahmi.org/pages/Sections.aspx?section=10

Got Data?

www. cshcndata.orgData Resource Center National Survey for CSHCN

Nov.2007

www.familyvoices.org

New page under construction

http://www.familyvoices.org/projects?id=0002

http://nccc.georgetown.edu

http://www.infanthearing.org

http://www.geneticalliance.org

http://www.nccrcg.org//AM/Template.cfm?Section=Home5

http://www.medicalhomeinfo.org

http://www.communitybasedservices.org

http://www.championsinc.org

http://www.gottransition.org

National Center for Project Access (NCPA) provides national leadership on improving access to comprehensive, coordinated health care and other services for children and youth with epilepsy. www.accessforepilepsy.org National Coordinating Center (NCC) for Sickle Cell Disease Treatment Demonstration Program (SCDTDP) provides technical assistance; collects and analyzes data; and implements activities required by the program’s authorizing legislation to grantee networks. http://www.nichq.org/scdtdp/home.php State Public Health Autism Resource Center (SPHARC) is working to increase the capacity of state Title V agencies to enhance services and supports to children, youth and families with autism spectrum disorders (ASDs) www.amchp.org/SPHARC  Traumatic Brain Injury Technical Assistance Center (TBI TAC) supports the efforts of the Federal TBI Program by providing technical assistance and information to grantees and assisting States as they seek to establish system change. https://tbitac.norc.org

For each of 6 systems goals, National Centers, Grants

Condition-Specific Centers and Grants

Core Outcomes

System of Services for

CSHCN