using interactive multimedia to teach parent advocacy skills
TRANSCRIPT
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Using Interactive Multimedia to Teach Parent Advocacy Skills
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USING INTERACTIVE MULTIMEDIA TO TEACH PARENT ADVOCACY
SKILLSAnn Glang, PhDOregon Center for Applied Science, [email protected]
Funded by National Institute of Child Health and Human Development R44 HD36554
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Thinking about dealing
with the school
professionals regarding my
child is very stressful and I
feel very defensive most of
the time but I try very hard
to hide it.
~ Parent
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As a parent all I know is
after…an IEP meeting you
have 'jet-lag' no matter
how well the session goes.…
You really are at the mercy
of others.
~Parent
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PARENTS PLAY A SIGNIFICANT ROLE
Children whose parents are involved in their education have better school and post-school outcomes
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THE PROBLEM
Many educators are unaware of the effects of childhood brain injury
Most parents of children with brain injury are not knowledgeable about the special education system
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CHALLENGE
Often parent-professional relationship becomes adversarial • Different expectations• High stress
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PARENTS AS ADVOCATES
Breakdown in family-school communication is the most frequent reason for mediation and due process
Parents can learn to use effective advocacy skills (Walker, 1996; Glang, McLaughlin & Schroeder, 2007)
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WEB-BASED PARENT TRAINING
Convenient, easily accessed63% of Americans have high speed internet (April 2009,
Pew Research Center)
Studies by Wade et al: demonstrated therapeutic benefits, participant satisfaction of web-based training
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BRAIN INJURY PARTNERS: NAVIGATING THE SCHOOL SYSTEM
Internet-based advocacy training program for parents of school-aged children
HTTP://FREE.BRAININJURYPARTNERS.COM
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BRAIN INJURY PARTNERS:NAVIGATING THE SCHOOL SYSTEM
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CONTENT DEVELOPMENT
Literature on effective advocacy skillsFocus groups and interviews with families,
educators, professionalsPartnership with Brain Injury Assn. of America
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ADVOCACY SKILLS
1. Communicating effectively2. Identifying and summarizing the problem3. Goal setting and prioritizing4. Learning to access information and resources5. Accessing social support
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FORMAT
Information: text, video testimonialsResources: printable forms, links
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FORMAT
Communication tutorial: Focus on behavioral skills, e.g., “listening skills”• Body language• Eye contact• Checking understanding
Use of text, video, interactive application
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EVALUATION
Randomized controlled trial with 31 parents of school-aged children
Outcome measures: knowledge, skill application and attitudes regarding advocating for children with TBI
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SAMPLE
Parents of children with TBI age 5-14Years post injury: 5.7 (SD = 4.6)83% of children receiving special education services
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METHODS
Random assignment to Brain Injury Partners or Project BRAIN CD
Pretest, posttestAll assessments completed onlineControl group given access to program at conclusion
of study
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RESULTS
Parents who used the Brain Injury Partners program were more likely to score higher in knowledge of and intent to use effective communication skills at both post-test and 3 month follow-up
There were no significant differences between groups in intent to use use self care techniques or on knowledge of useful tools
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Last week we had an IEP
review and I really focused
on my body language. I
think that the
administrators were less
defensive because I did not
take a defensive stance.
~Parent participant
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I'm much less rigid
and confrontational
when approaching
problems…
~Parent participant
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I am able to find a solution to a teacher's complaint
by linking the problem to the symptoms of my son's
brain injury and offering solutions to both my son
and the teacher based on my historical experience in
what works and what doesn’t... It works!
~Parent participant
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FOR MORE INFORMATION
Glang, A., McLaughlin, K., & Schroeder, S. (2007). Interactive multimedia to teach parent advocacy skills: An exploratory study. Journal of Head Trauma Rehabilitation, 22(3), 196-203.