wchn consumer and community newsletter – issue 32, april 2018 · engaging workshops, interactive...
TRANSCRIPT
WELCOME
As Consumer Representatives there are three approaches to storytelling: to inspire,
educate and challenge. Storytelling is a powerful way to bring focus, draw attention or
promote empathic involvement. When consumers tell their story, keep in mind, the
grief they share has softened them; the heartache they share has wisened them and
the suffering they have endured has strengthened them. Active listening is an
intergrated, consumer experience that will grow you.
Inspire: Stories of hope and encouragement or even sadness or grief based on the
human experience tend to move people. They can shift people towards empathic
involvement or encourage giant leaps of innovation.
Educate: To bring therortical compliexities to life. clinicans and health corporate
workforce must remember the distinction between providing healthcare service and
experiencing it as a consumer. Healthcare is an integrated experience, but caution
must prevail, if a clinican believes they can recall what it is like to be the consumer.
Experience is personal, experience must be lived and experience cannot be made up.
Storytelling is critical to collaborative healthcare practice.
Challenge: A story used right, can often provoke an altered thought process, as
different experiences lend people to think about varied solutions. When stories are
used or feedback is shared, challenging does not mean blame or guilt; it encourages
reflective practice by asking “have we seen it from this perspective”? It is about
encouraging people to think about viewing a sceniro from different vantage points and
to do this through an appreciative enquiry lense.
A story must be felt, not just heard.
Now we know the formula; how frequent and where do stories need to be shared. A
consumer story must have a specific purpose and the intent of the story must be given
equal consideration.
In April, as the state celebrates SA Youth Week, the WCHN Youth Advisory Group and
WCHN Kids Klub will host a Grand Round on 18 April to share thie rcollective story.
They will showcase what they have been up to in their first 24 months, launch the
WCHN Child and Youth Engagement Framework and clinican vlog response to
T.U.N.E. Core to this is the essence of story telling, in a developmentally appropriate
manner and everyone is encouraged to come along. In another newsbite, the
organistion will welcome our new Chief Executive Officer on 9 April, Mrs. Lindsey
Gough. Lindsey along will other member of our Executive team will attend the Grand
Round.
.
Allan Ball | Director Consumer and Community Engagement
Issue 32 - April 2018
Nothing about children and young people, without children and young people.
What’s happening in
April 2018
Consumer Governance
Updates
SA Youth Week
Look back over the past
30 days
CONSUMER TRAINING
THE DETAILS FOR WHO
Masterclass: Meetings, and
Safety and Quality Methdologies
An interactive skill-buillding workshop to
understand how safety and quality decision
making occurs and a chance to develop your
confidence speaking up in meetings.
Delivered by Director, Safety and Quality and
Director, Consumer and Community
Engagement.
5 April. 9:30am – 11:00am.
RSVP to Allan
All consumer and carer
representatives
WCHN Kids Klub and Youth
Advisory Group Grand Round.
Hear from our young consumers about their
journey establishing South Australia’s peak
health consumer and carer advisory groups.
18 April. 12pm – 1:30pm.
RSVP to Allan
All consumer and carer
representatives
Grand Rounds (Lecture series on
innovation, health and research)
4 April. Improving Trauma Care for children
and adolescents in our region. Presented by
A/Prof Nicole Williams, Dr Rebecca Cooksey
and Ms Jackie Winters.
11 April. Meet our new CEO.
18 April. Kids and teens takeover
All consumer and carer
representatives
CONSUMER VACANCIES
MONTH EVENTS BASECAMP
New vacancies click here. Event schedule for March click here. Your Child’s Health and
Development birth to 6
years, plan on a page.
OTHER INFORMATION
Not a member of Basecamp? Visit our website to learn how to get involved. Invitations are open to WCHN staff,
consumers, caregivers, family members and community members. To provide feedback to the survey without
signing up to Basecamp click here
TRAINING AND DEVELOPMENT
WCHN Citizen Jury
With two hot topics and six jurors ready to go, our Citizen Jury met in March to review:
Child to Adult Transitions
What has happened in the last 12 months in the GP Liaison Unit.
There were a few key milestones for the Jury. Firstly, a Consumer Representative joined staff as an expert
witness. Expert witnesses provided valuable knowledge and insights into specific cases to help jurors deliberate
and inform verdicts. Since the beginning of the Jury, expert witnesses have typically been staff, but for this Jury a
Mother who has accessed Rehabilitation Services with her son sat alongside other transition services staff
members. Secondly, the Jury welcomed it’s first father as a jury member.
Six verdicts were reached, with two verdicts focusing on GP Liaison service, including consulting wider with the
WCHN consumer database around the experience of accessing a GP and further transparency in the role of the
GP Liaison Unit to the community. The other four verdicts focused on transitions and ensuring the adult receiving
services are preparing for our teens to provide a smooth service. These four verdicts will look at human
resourcing, communication, transparency of information and role clarification. .
In May, the Jury will be looking at criteria-led discharge; what is happening in this space and how to advance the
consumer voice.
Spotlight for GP Liasion Unit
The General Practice Liaison Unit (GPLU) at the Women's and Children's Hospital (WCH) is a new patient care
initiative to improve the coordination of care for South Australian children living with Asthma and other chronic
conditions. The GPLU has been established through a partnership between the Adelaide Primary Health Network
(PHN), Country SA PHN and the Women's and Children's Health Network.
The GPLU aims to strengthen communication and integration between the hospital and treating GPs, giving
children with chronic conditions the best possible care.
Some of the goals in the last 12 months have been:
Development of the “Do you have a ‘usual’ GP?” brochure, which was developed with consumer advice and has
been distributed throughout the hospital.
Establishment and maintenance of the GPLU webpage including referral pathways, clinical resources, education
opportunities for GPs and links to consumer and community engagement resources.
Establishment of a GP database, including GPs with an interest in paediatrics.
Mapping of practices within 10km of WCH, including GPs with an interest in paediatrics and willingness to see
children at short notice. A map is currently sitting in the Paediatric Emergency Department giving waiting
families options for non-urgent problems, which may assist in reducing wait times.
Conducted audits of quality and timeliness of GP referrals and paediatric discharge summaries.
Surveys of GPs, hospital clinicians and consumers (developed with consumer input) to understand the
challenges of managing asthma and type 1 diabetes, and to explore communication issues.
Identification of GP paediatric education needs. Behavioural issues is the key reason GPs refer children to the
Paedeatic Outpatient Clinic.
Working on development of discharge summary templates to enable improved communication to GPs for clinical
handover and to flag potential mental health issues in certain groups of patients.
Ongoing exploration of potential hospital avoidance strategies in relation to children with chronic conditions with
frequent admissions. An example might be developing more clear shared care plans between families, and
hospital and community services (including GPs)
CONSUMER GOVERNANCE
Identification of key opportunities relating to Paediatric Emergency Department presentations which might be
safely avoided, including identification of key consumer drivers leading to children seeking care at hospital
rather than in primary care.
Influencing culture within WCH about the importance of the GP.
Liaising with Indian and Pakistani Doctors Associations to explore strategies to increase proportion of patients
from such cultural backgrounds to have a regular GP.
Supportive of, and heavily involved in, the rolling out of the Health Pathways across the state.
Taking calls from GPs and hospital staff, following up Discharge Summaries or outpatient letters, linking families
with GPs in their region or connecting GPs to appropriate resources/services within our Health Network. In
March, the GPLU used Basecamp to consult with the wider community on three areas to help inform an 2018 /
19 action plan. The action plan is currently being created. To find out more about the GP Liasion Unit visit the
website.
Youth Advisory Group Sub-Committee
In March, nine of our Youth Advisory Group (YAG) members met as part of the YAG communications sub-
committee. YAG welcomed one of our newest members, 12 year old Anand, who participated in his first meeting
saying "it was not boring, it was actually pretty fun". The group were able to vote, plan, create and discuss nine
items, endorsing five actions:
1. The final drawing created by children as part of the WCHN Kids Klub, that will feature in children's wards, play
areas and waiting rooms explaining the importance of infection control.
2. A set of images to feature in corporate areas around the WCH to educate child and teen patients and visitors
about the importance of infection control.
3. The final version of the "Ask me to explain" folderpromoting three questions that children, teens and parents
can ask staff in the Paediatric Emergency Department, whilst providing a space to write questions to support
shared decision making.
4. The final storyboard and script for an "informed consent" children's video that will be animated and feature the
voice of YAG member Riley. One of the significant changes was to ensure that there was a meaningful
metaphor to help children understand informed consent better.
5. A Kids Klub graphic installation that can sit alongside the SA Health logo to promote the WCHN Kids Klub.
In between their endorsements, members planned for the upcoming Grand Round on 18 April, where the kids will
be taking over.
A big feature of the Grand Round will be creating a kid-friendly environment in a not-so-kid friendly space, whilst
giving the audience a chance to participate.
Additionally, the group were asked to comment on a design for a Child Adolescent Mental Health Services care
plan.
SA Conference 2018 “Power, Diplomacy and Influence”
A big three days for Riley and Kaila
Run by United Nations Youth, South Australian branch with the support of OK Kids, Council of the Care of Children and the
Commmissioner for Children and Young People South Australia, the SA Conference 2018 “Power, diplomacy and influence”
was attended by two of our YAG members, Kaila and Riley. Run entirely by young people for young people, the conference
was an eye opening, powerful experience.
The three-day conference allowed our YAG members to partner with other South Austrlaian peers to delve into the role of
diplomac. They learnt how influence takes place, from grassroots activism to the halls of the United Nations, through
engaging workshops, interactive problem solving activities, an array of social activities and a day of Model United Nations
Debate!
YAG members represented the vision of the group, “YAG is committed to developing a healthy and resilient health system
for children and young people designed in partnership with children and young people.”
Kaila commented: "We learnt about power, and that there is soft and hard power. You don't need to be the top of your
country for your power to influence people. You just have to believe in what you are trying to change. We also learnt about
adults not taking children and young people seriously, so I think we need to change that by getting more adults on our side."
Kaila and Riley will provide a report back to the Youth Advisory Group this month.
CONSUMER
GROUP
KEY THEMES BY NUMBERS
Consumer and Community Partnering Committee (CCPC)
Endoresed Consumer and Community Engagement Management Vision
Explored raw data from the WCHN Consumer Strategy Evaulation
Celebrated Jason Cutler being named semi-finalist in Channel 9 Young Achiever Awards
7 Correspondance Items
2 Focused Consutlations
1 Endorsedprocedure
5 Operational Reports
WCHN Cultural
Roundtable
Endorsed new procedure
Reviewed ‘Drop the Jargon’ consultation feedback
4 Reports 2 Consultations 7 Members 2 Recommendations
Child and Family
Health Service
Committee
Endorsed Family Huddle trial for Torrens House
Consultation on universal service care plan
Endorsed CaFHS “who we are poster”
Endorsed Safe-Way poster
7 Members 2 Endorsements 70 minute consultation: what could care planning look like
1 Bright idea about engaging young parents
WCHN Citizen Jury
Triggered a consuiltation on GP support and liaison within the community
2 New Jurors
1 Project Updated
6 Verdicts Created
2 Cases for Review
YAG Sub-Group Endorsed ‘Ask me to explain’ final product and folder
Poster design for Infection Control
Designed a Kids Klub graphic device
Planned for the April Ground Round
12 Members, including 1 new member
3 Endorsements Esculted a new issue to the Consumer and Community Partnering Committee
Used Hot-Dot methods for real-time polling in the meeting.
CAMHS Consumer Committee
Healthcare rights procedure review
1 Guest 2 Endorsements 2 new items Group brainstorm for a conference paper
To find out more about what happens in real-time, sign up to Basecamp. Visit our website to learn how to get
involved. Invitations are open to WCHN staff, consumers, caregivers, family members and community members.
CONSUMER GOVERNANCE UPDATES
4 Consumer Surveying on experience WCH Campus. 11am – 1pm. Women’s Wards.
4 Expression of interest closes for Youth, Women’s
Wellbeing and Safety Division
VACANCIES
5 Masterclass: Meetings + Safety and Quality
Methdologies
Alan Crompton Boardroom. 9:30am – 11:00am. RSVP to
Allan.
6 Special Staff Engagement Consultation. Caring
and Kindness on the telephone
See Allan for further details.
9 CaFHS Consumer Advisory Committee Telehealth Meeting Room. 12pm – 2pm. WCH Campus.
11 Consumer Surveying Children's Wards.
11 YWSWS Consumer Engagement Committee See Allan for further details.
11 WCHN Building and Development Strategy
Committee
WCH Campus. 8am – 10pm. Executive Boardroom.
13 CAMHS Consumer Advisory Committee CAMHS Training Room. 10am – 12pm.
12 Roving Consumer Coffee Club WCH Campus. 10 – 11:30am.
16 YAG Quarterly Meeting Executive Boardroom. 11am – 1pm.
16 Ask me to Explain Campaign Launch See Allan for further details
17 Person and Family Centred Care Committee Alan Crompton Boardroom. 9am – 10am. WCH Campus.
18 YAG and Kids Klub take over the Grand Round WCH Campus. Queen Victoria Lecture Theatre. 12pm –
1:30pm. RSVP to Allan.
18 Consumer Surveying WCH Campus. Children's Wards.
19 Kids Klub WCH Campus. Alan Crompton Boardroom. 10am – 1pm.
RSVP to Allan.
19 Strong Kids Aboroginal Expo See Allan for futher details.
19 Youth Volunteer Framework Development PAG WCH Campus. Consumer Lounge. 8:30am – 9:30am.
26 Consumer Coffee Club WCH Campus. 10 – 11:30am. Cafe Level 2.
30 Youth Advisory Sub-Group WCH Campus. 3:30 – 4:40pm. Alan Crompton
Boardroom.
Date for your calendar
Consumer Governance Committee
Open event or invitation, requiring an RSVP
Special event
WHAT IS HAPPENING IN APRIL
SA Youth Week (13-22 April)
South Australian Youth Week intends to be the state’s biggest event for young people aged 10-25 years. It aims to get as
many young people as possible involved in creating it, right from the start, to make the event a true community partnership.
Between 9 – 16 April 2018 there will be a variety of events, festivals, forums, workshops and exhibitions, where young
people share their talents and ideas and have a say about things that are to them occur. The theme for SA Youth Week 2018
is 'Your Future - Your Way' – It emphasises the value of young people’s ideas, skills and resilience in local communities, and
champions the benefits that their wide variety of unique backgrounds, interests, identities and perspectives can bring to us
all.
The YAouth Advisory Group want all young people to feel good about themselves, their decisions and life choice. The theme
for the state is interpreted in many different ways; ideally it reflects comfort, good spirits and positive energy.
Our objective
The YAG aim to create a safe and respectful series of WCHN events where young people can participate and better
understand about women’s and children’s health care professions, places and spaces.
What we will deliver
SA YOUTH WEEK
12pm, 18 APRIL
YAG AND KIDS KLUB TAKE OVER THE GRAND ROUND
THROUHGOUT APRIL
YOUTH GUIDE TO PLACES AND SPACES SCAVENGER HUNT
When young people are presented with
oppurtunties, this is when young people thrive.
WCHN Child and Youth Engagement Framework
T.U.N.E by clinicans vlog
Launching:
Art of consumer story telling
WCHN uses stories at in meetings, corporate orientation and target educational exchanges to bring focus to
issues; but only when the story intends to inspire educate or get the audience emotionally charged.
The WCHN chooses to value a developmentally appropriate approach to story telling. Children’s stories are
captured in artwork for student orientation, youth voice is demonstrated through role-plays as evidenced by the
annual theatre production of person and family centred care, and sound clouds are used to convey stories from
culturally diverse women. Capturing and conveying consumer stories is a process and outcome of effective
consumer engagement in healthcare.
The Consumer and Community Engagement Division, in partnership with its consumers, wrote the Partnering with
Consumers: Workforce Educational Development Framework (2015) to guide staff to sensitively and respectfully
use consumer stories.
To understand if a story should be applied, follow these steps:
Will the story inspire, educate, challenge or get the audience emotionally charged?
What is the intent of the story?
Is a consumer available to share their story or will a WCHN staff member convey the meaning of the story?
If a consumer is telling their story; have they been supported (briefed, reimbursed, debreifed)?
If a consumer is not telling their story, do you have permission and consent, have you practiced it with the
consumer who shared the story and do you understand the intent?
Does the story have a place on the agenda?
If you are using a child or youth story, have you thought about an appropriate methodology (artwork, vox-pox,
leet language, emoji, play-based, role-play)?
To request your copy of the framework, contact Director Consumer and Community Engagement.
Aboriginal Health Plan and Aboriginal Workforce Strategy
On 15 March (National Close the Gap Day), WCHN marked an important
milestone with the release of two key reports that will guide our Health Network’s
approach to delivering health services to Aboriginal people into the future.
Our Aboriginal Health Plan 2018-2022 is an important next step in our journey of
tackling indigenous disadvantage and adverse health outcomes, while our
Aboriginal Workforce Strategy 2018-
2022 identifies the drivers required to
build our Aboriginal employee numbers
to ensure that we can provide culturally
safe and competent services to
Aboriginal babies, children, young
people, women and their families.
Both these documents represent
important work that has been developed
around a robust framework of consultation with our Aboriginal
communities, staff and key external partners.
These reports areavailable from the WCH website.
NEWS FEED
2017 Consumer Safety and Quality Report
The WCHN 2017 Consumer Safety and Quality Report is available from the
WCH website.
This is the third annual Consumer and Community Safety and Quality Report,
and within it you will see evidence of our commitment to building and sustaining
excellence in care. The report was first published in 2015 as a response to the
Consumer and Community Engagement Strategy 2015 – 2018 and is a way of
promoting outcomes, data and innovations to the local community.
It showcases how partnerships between staff and consumers have led to
ground-breaking initiatives that form a solid foundation of a modern acute and
community health care service.
Robinson Research Forum
The WCHN adopts the National Health and Medical Research Council model and framework for consumer and
community participation in health and medical research, and recently five of our Consumer Representatives
worked with the Robinson Research Institute (RRI) with Adelaide University to guide future research directions. As
part of the research cycle our consumers helped the RRI decide how to conduct future research by commenting on
the literacy of consent forms, framing questions and proposing risks/benefits to our research community.
WCHN Consumer and Carer Research Engagement Model
The topics covered in the interactive session included:
Does prolonged use of paracetamol and other mild analgesics contribute to impaired fertility and increase the
risk of male urogenital defects by Alice Rumbold
PCOS in adolescents, and strategies to improve blood vessel health in childhood including transcendental
meditation by Alexia Vargas and Stephanie Bryne
Fibromyalgia by Carolyn Berryman
Domperidone for increasing breast milk supply in mothers of preterm infants by Luke Grzeskowiak.
Alice Rumbold, RRI researcher commented “as a researcher I got a lot from the session, including things that I
wouldn’t otherwise have thought off”. Julieanne, a Consumer Representative added "Being involved as a
Consumer Representative with the Robinson Research Institute gave me incredible insight into amazing research
that is being undertaken".
“It was good to be able to participate and share our experiences. Our ideas were warmly received by the researchers”. LANA
Conference attendance
On 6 March 2018 Consumer Representatives joined Director, Consumer and Community Engagement for the
Children’s Healthcare Australasia (CHA) Special Interest Group for Child and Family Centred Care. WCHN has
been chairing the committee for the past 12 months. At the March meeting, utilisation of patient stories for clinical
outcomes was discussed, alongside the launch of a new online CHA community of practice. Four actions resulted
from the meeting:
1. WCHN will feature the Child and Youth Engagement Framework at the June 2018 meeting.
2. Our Consumer Co-Chair from the Committee, Lily, will now attend these special interest groups.
3. Our outcomes from the group will be tabled at the WCHN Person and Family Centred Care Committee
(PFCCC).
4. The use of capturing children’s stories using video will be discussed at the PFCCC meeting in May, with the
intent of reminding WCHN staff of one of our core purposes.
Tiffany, Lily, Julie and Allan on the Teleconference
SA Paediatric Chronic Pain Service
The WCHN launched the South
Australian Paediatric Chronic Pain
Service, a specialist service for the
early intervention and care of
young people experiencing
persistent severe pain on 2 March
2018.
Chronic pain is commonly accepted as
pain persisting for more than three
months, or beyond the expected
period of healing. Chronic and
recurrent pain may be present in up to
20-40% of children, and is increasingly
recognised as a significant paediatric
health problem associated with
suffering and resource utilisation.
The shared experience of children and families living with chronic pain is distressing, something that is reflected in the
frustrations of clinicians trying to care for them.
In February 2016 consumer and community engagement occurred, centred around a face–to–face forum with
current and previous consumers who access the WCH for pain-related treatment. The forum which focused on
five questions (below) enabled the business and feasibility plan to develop so the consumer voice was at the core:
1. How easy was it to find support within the health care system for your child with pain and when you found
support who was it from?
2. What difference did it make when you found support from someone who was knowledgeable about your
child’s condition?
3. At the lowest point in your journey what did you need from the hospital that you didn’t get?
4. What could we do better in managing your child’s pain?
5. What was done well in managing your child’s pain?
The Chronic Pain Service brings together expertise from many different clinical disciplines under the auspices of
the Allied Health, Complex, Sub-acute & Spiritual Care directorate.
The team will work together with young people and their families to develop a pain management plan and provide
education and resources to help them actively participate in their own care.
YOU SAID – WE LISTENED – WE DID
Feburary 2016 Consultation with the Community
Enhancing Person and Family Centred Care
In February our Consumer Representatives from
the Consumer Coffee Club and Volunteer
Surveying provided feedback from consumers
and carers that there are some common
questions that can go un-answered. A think-tank
was convened by the Consumer and Community
Engagement Division, and in parternership with
Corporate Communications two strategies are
now in trial.
Our internal staff eNewsletter now features
frequently asked questions from our consumers
and carers and provide responses to equip our
staff. These questions are based on direct
themed feedback from our consumers and carers.
We have also educated our staff to use the
Welcome to the WCH and Welcome to WCHN
booklets to fully inform our consumers about our services and ways they can be involved in their care.
Improving communication and access to information that is accurate, is one of the four pillars of the Person and
Family Centred Care Charter.
Communication for children with complex needs
As part of our approach to supporting
communication needs for our children and young
people with complex communication needs,
Loran French and Debbie Marshall from Adelaide
West Special Education Centre delivered an
insight interactive lecture in late February.
The presentation is one of multiple strategies
aimed at improving staff literacy and experience
collaborating with children with complex
communication needs. One of the next strategies
is to develop an e-library through the Clinical
Practice Unit.
In April, a tips page to communicate with children
will be added to the WCH website, under the
Community Engagement page. A more
comprehensive e-library, including the
communication charter will be available for staff.
Screenshot of the Around the Region March 2018 with Q&A
Allan, Debbie, Lorna and Jenny
Update on the Allied Health Passion Project by Tara Beaumont, who is co-desinging a culturally
appropriate antental physio education session for Aboroginal consumers and carers.
The WCH Human Research Ethics Committee (HREC) and Aboroginal HREC approved the project in early March,
which was an important step to enable the outcomes of this project to be shared more widely. Focus groups will be
run in April with the Aboriginal community.
I am a second year Social Work Masters student at Flinders University, with a background in Psychology. I am a strong advocate for the rights of consumers, particularly children and young people, to actively participate in making decisions that impact on their lives. I hope to specialise in working with children and young people, applying a non-pathologising approach to disengagement and mental distress. In January I had the pleasure of meeting Allan Ball, Director Consumer and Community Engagement, and was invited to commence my first learning placement with the WCHN Consumer and Community Engagement Division.
My role during placement
Over the next four months, I will be acting as lead researcher in evaluating the effectiveness of the WCHN
Consumer and Community Engagement and Responsiveness Strategy 2015 – 2018. Key responsibilities include:
Interviewing key stakeholders
Producing a written history of how the WCHN partner consistently, authentically and meaningfully with
consumers and community
Providing evidence-based and stakeholder-informed recommendations for developing the 2019-2024 Strategy.
I also worked with Sandy Keane, Events Coordinator, in planning the Migrant, Refugee and New Arrivals
Community Expo during Cultural Diversity Month (March). The expo was a huge success, with eight new
stallholders this year and the development of new relationships with local high school students as young
ambassadors of the WCHN.
My learning so far
I have been impressed by the variety of ways in which the WCHN creatively and authentically partner with young
consumers to keep them informed and actively engaged, and ensure that the organisation is effectively and
consistently tuning in to the needs, values and preferences of young people who access the health service.
Person and Family Centred Care: What it means to me
For me, person and family centred care means placing the consumer, their family and carers at the heart of
everything we do. In healthcare it means looking beyond the illness or disability to acknowledge and value every
consumer as an individual who has:
Expert knowledge in their own lives
Their own perceptions of what has, or is happening to them and what matters most
The right to be informed and involved in decision making surrounding their own health care.
My goal
I hope to develop skills and techniques to effectively communicate my thoughts and ideas during committee
meetings.
WCHN PASSION PROJECTS UPDATE
INTRODUCING TIFFANY IDLE
Look back
Four Consumer Representatives attended the
Children’s Healthcare Australisa, Special Interest
Group Person and Family Centerd Care Webinar.
Allan met with staff from Department of Health to
review the action plan to support young carers
within the organisation on 1 March.
Darren, a new consumer representative, was
interviewed for the Consumer and Community
Partnering Committee.
Adolescent Ward hosted its inaugural Family
Huddle on 8 March. A group of five gathered to
discuss what was happening, hear feedback,
provide education and share in decision-
making. The team were fully prepared and ready-
to-go; with talking points for the meeting on a range of
areas that advanced the knowledge of the consumer and carer on the ward. Family Huddles now operate on
Rose, Campbell, Newland, Antenatal and Gynecology, Adolescent Wards and Michael Rice Centre.
SA Paediatric Chronic Pain Service was launched on 2 March with carers, parents and consumers who formed
part of the consultation group at the opening.
CAMHS Consumer Advisory Group gathered on 2 March.
Child and Family Health Services Consumer Advisory Group met on 5 March.
WCHN Consumer and Community Engagement Evaulation consultation with the community closed, with 126
written submissions totalling 131 pages of data.
Consumer Representative, Melissa and Director Consumer and Community Engagement became official
members of Strategic Executive. At the meeting the Health Literacy Committee’s “Drop the Jargon” report card
was presented with a view to endorse recommendations from the consultation. The following were
recommended and endorsed by Strategic Executvie:
> Corporate and Community Orientation for workforce members will include the top 50 words and phrases that
WCHN staff will need to take into consideration when verbally communicating with staff.
> Chief Operations Officer along with senior staff will commence a project that will build a culture of staff
communication focusing on phone etiquette.
> Director Consumer and
Community Engagement
will host a series of roving
shows with the Health
Ltieracy Committee by
visiting divisions to
unpack what the
consultation report data
could mean to their
practice.
CONSUMER & COMMUNITY ENGAGEMENT
Adolescent Ward staff, post inaugural Family Huddle
WCHN Chronic Pain staff with our young consumer and
two carers at the launch of the SA Paediatric Chronic Pain Clinic
Cultural Roundtable members gathered on 7 March and welcomed new Consumer Representative, Faharana.
Robyn, Susan and Talia participated in Consumer Surveying throughout March whilst Tara, Sharon, Emily and
Julie participated in two Consumer Coffee Club sessions. On 8 March, the SA Health media team shadowed
the Roving Consumer Coffee Club.
Child Protection Clinic Senior Social Worker met with Director Consumer and Community Engagement to
discuss ways of capturing consumer feedback on experience and ultising communication tools to support kids
with complex verbal communication needs.
Health Literacy Committee member Debbie met with WCHN staff including the Director Consumer and
Community Engagement, Facilities and Planning, WCH Web Services, Media and Corporate Communications
to co-design an external media campaign for upcoming building works.
Penny, Phil, Lisa and Allan planned the 23 March Consumer and Community Partnering Committee (CCPC)
Agenda. Based on feedback the agenda was reorganised to prioritise consultative items requiring consumer co-
design and highlighting items requiring noting. The aim is to streamline the meeting, increase member
satisficiation and mature the consumer voice. The CCPC is evaluated after each meeting.
A team from Pharmacy met to look at the feasibility of having a “Happy or not” feedback terminal.
Tara and Penny represented the Consumer and Communtiy Partnering Committee on the WCHN Building
Works program committee.
WCHN Aboroginal Health Plan 2018-2022 and Aboriginal Workforce Strategy 2018-2022 was launched on 15
March (National Close the Gap Day).
Courtney, Angela and Talia participated in their second Volunteer Youth Framework Project Advisory Group. At
the meeting members endorsed the background report on the purpose of the framework and desktop review.
Director Consumer and Communtiy Engagement met with parents from Newland Ward who are now benefiting
from a re-purposed parent retreat.
A Pallative Care Consultation was held on 24 March with 50 families to enhance the grieving process for parents
from culturally linguistically diverse backgrounds.
A brainstorming session was held with key community stakeholders on 22 March to plan for an inclusive
volunteer “thank you” event. This was another direct action from the 2017-2027 Volunteer Strategy for the
WCHN Volunteer Unit to take a leadership role in centralising volunteer support, consultancy and services for
the organisation.
Consumer and Community Partnering Committee met for the first time at a community site (Metropolitan Youth
Health at Christies Beach) on 23 March.
Riley and Kala from the Youth Advisory Group represented the organiation at a three day getaway for the United
Nations Youth Chapter of SA, with the focus on illuminating the importance of primary healthcare prevention.
YAG Sub-Group met on 26 March, alongside other children and young people from the community, as they
captured headshots of why “Tuning into them” matters. The Gallery of TUNE will feature this month and is
supported by the Women’s and Children’s Hospital Foundation.
Heidi and Lana conducted a safety and quality walk-around with staff from Post-Natal Ward to assess the
enhancements of breastfeeding areas within the Women’s and Children’s Hospital.
Person and Family Centred Care Committee met with a team from the Women’s and Babies Division to start the
investigation for a culturally appropriate welcome video for women from cultural and linguistically diverse
cultures.
On 16 March, Penny our Co-Chair
Consumer and Community Partnering
Council gathered with executive, senior
management, staff and stakeholders
including Sids and Kids SA and
Childhood Cancer to launch The first 48
hours: after your child has died booklet.
In mid-2017 a number of our parents,
family members and friends participated
in a consultation and it was sensitively co-
designed to consider what parents and
caregivers needed in a time
of grief.
Regional Director Allied Health, Acute
and Sub-Acute Care; Heather Baron
opened with a quote from Basecamp "I did not know that this information exsisted and it would have been
benefetical for our family", adding that the need for literate information in the first 48 hours is something our
families have asked for and has now been delivered.
The sensitively written booklet offers both understanding and practical advice about the many matters that need
to be dealt with following a child’s death. Topics include rights and entitlements, legal requirements, how to
explain a death to a deceased child’s siblings, arranging a funeral and, importantly, where a family can go for
support.
Cultural Diversity Month
For 30 days the organisation shined a spotlight on Cultural Diversity with a series of events, training oppurtunties,
community pop-up expo and lectures.
Over 40 teams submitted photo entries as part of “paint the organisation orange” campaign to celebrate the
principle of diversity. On 21 March there were 13 registered events across the Health Network to mark Harmony
Day.
The Migrant, Refugee and New Arrivals Community Expo on 22 March attracted 14 stall holders and was attended
by over 100 WCHN staff champions, volunteers, consumer representatives and consumers. Stalls included:
Australian Migrant Resource Centre STARRS SA
Donate to Life Turbans and Trust
KidSAFE SA Multicultural Youth South Australia Uniting Care SA
Legal Services Commission of SA
Migrant Health Service. SA Health
Nepalese Community Association
Relationships Australia, South Australia. PEACE
Multicultural Services
United Care Wesley Bowden
Welcome to Australia
Women’s Domestic Violence Court Assistance
Service
Women’s Legal Services
A full wrap up of Cultural Diversity Month will appear in the May edition.
Launch of The first 48 hours: after your child has died booklet
Look back
Four Consumer Representatives attended the Children’s Healthcare Australisa, Special Interest Group Person
and Family Centerd Care Webinar.
Two Grand Rounds were held by members of the WCHN Cultural Roundtable, including Mariloly Reeye Munoz
Team Leader from Multicultural Youth South Australia and Enaam Oudith Manager of the PEACE Program with
Relationships Australia. The focus on the Grand Rounds was to educate staff, volunteers and consumer
representatives about their services and how WCHN can partner with the non-government sector.
Look back
Pam, a Consumer Representative, attended her first Clinical Safety and Quality Operations Committee in
March.
Consumer Surveyors spent 12 hours over four weeks within the hospital encouraging families to complete
Consumer Letterbox forms. They surveyors continue to support consumers, carers and family members to
navigate the processes of providing feedback on experience.
Director Safety and Quality Unit and Director Consumer and Community Engagement met to plan for the April
Masterclass.
The WCHN Consumer and Community Engagement Strategy Evaulation is taking shape with the lead
researcher completing 22 interviews with key WCHN staff, reviewing key documentation such as report cards
and evidence lists, and receiving 126 written responses totalling 136 pages. Questionnaire respondents
identified as (77%) Female, (20%) Male, (1%) Gender Diverse and (3%) Prefer not to say. Participants
described their cultural background as 5 (4%) Aboriginal, 19 (15%) Migrant, Refugee or New Arrival, 11 (9%)
English as a second language and 94 (75%) identified as non-migrant, Aboriginal or CALD. Furthermore, 8
(6.4%) identified as being under 17 years of age whilst 117 (93.6%) over 18 years of age.
Lana, Darlene, Heidi and Debbie met for the second time to finalise a top 10 list that will feature in Corporate
Orientation, to help staff understand the importance of health literacy for women, children and teens.
Mario and Leanne from the CAMHS Consumer Advisory Group attended a Lived Experience Forum with the
Department of Psychiatry.
Lived Experience role for CAMHS was advertised on 23 March. This marks a new chapter for the WCHN as it
is the first Lived Experience role within the Health Network.
EDUCATION, TRAINING & INNOVATION
SAFETY & QUALITY
Monthly Award winner – February 2018
Congratulations to Caterina Keelan – Clinical Nurse, Torrens House (pictured),
who was named the monthly winner for February 2018 in the WCHN Person and
Family Centred Care Awards.
A key pillar of person and family centred care is be positive and kind. This gives
consumers confidence to cope and have a positive experience within our services.
Caterina received several praises for the outstanding support she provides.
One consumer said: “Came to Torrens House desperate / last ditch effort at breast
feeding, left confident and positive. Outstanding empathy, knowledge and
attentiveness”.
Caterina’s professionalism is at the forefront of consumer experience helping to
guide them through tough situations.
Congratulations Caterina! A very well deserved monthly winner.
February 2018 nominations
Congratulations also to our February 2018 nominees. Your everyday focus on person and family centred care is
truly appreciated by all at WCHN.
Jenny Johnstone - Torrens House
Caterina Keelan - Torrens House
Cherith Frisby-Smith - Torrens House
Mark Francis - Neurology Department
Trenna Moore - CaFHS Norwood
Rebecca Ponte - Children's Audiology Newborn Hearing
Paula Fragnito - Children's Audiology Newborn Hearing
Chris Onishko - SA Pharmacy
Karen Tucker - CaFHS Norwood
Sue Kent - CaFHS Norwood
All Administration staff - Torrens House
Joanne Pugliese - Paediatric Outpatients
All staff - Paediatric Emergency
All staff - Michael Rice Centre
Rosina Azeez - Michael Rice Centre
Kon Bicanin - Michael Rice Centre
Hayley Salvemini - SA Pathology / SA Clinical Genetics
Shandelle Hill - Michael Rice Centre
Cathy Graham - Oncology Social Worker
Dr Rebecca Manudhane - Michael Rice Centre
Dr Cormac Fahy - Paediatric Anaesthesia
Dr Catherine Powell - Paediatric Anaesthesia
Dr David Barker - Paediatric Anaesthesia
Amanda McFall - Rogerson Operating Suite
Dr Sanjeev Khurana - Paediatric Surgery
Dr Beth Godden - Medical Ward, Paediatric Medicine
Dr Tamas Milassin - Paediatric Emergency Department
Tracy Wilkins - Torrens House
Genevieve Heaslip - CaFHS Jamestown
Annette Barrie - Torrens House
Anne Marie Miller - Torrens House
Deborah Martschink - Torrens House
PERSON AND FAMILY CENTRED CARE
For more details about the WCHN Person and Family Centred Care Awards visit
http://inside.wchn.sa.gov.au/webs/staff_recognition/staffrecognition_PFCCrecognition.html
For more information
Community Engagement Divison Women’s and Children’s Health Network 72 King William Road North Adelaide SA 5006 Telephone: 8161 6935 Email: [email protected] www.wch.sa.gov.au
© Department for Health and Ageing, Government of South Australia. All rights reserved.