webinar presented on april 12, 2012 for the arc by: bernadette irwinsue jones
DESCRIPTION
THE ASSOCIATION FOR SUCCESSFUL PARENTING: ENHANCING THE LIVES OF FAMILIES WHEN PARENTS HAVE LEARNING DIFFICULTIES. Webinar presented on April 12, 2012 for the Arc by: Bernadette IrwinSue Jones Co-President of TASPCo-President of TASP [email protected] [email protected] - PowerPoint PPT PresentationTRANSCRIPT
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Webinar presented on April 12, 2012 for the Arc by:
Bernadette Irwin Sue JonesCo-President of TASP Co-President of [email protected] [email protected] Lindsay Brillhart
TASP Board Member – Chair of Self-Advocacy Committee
THE ASSOCIATION FOR SUCCESSFUL PARENTING: ENHANCING THE LIVES OF FAMILIES WHEN PARENTS HAVE LEARNING DIFFICULTIES
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HEAR FROM TWO PROGRAMS THAT SUPPORT PARENTS WITH ID
HEAR FROM A PARENT ON THE CHALLENGES/JOYS OF PARENTING
LEARN ABOUT THE ASSOCIATION FOR SUCCESSFUL PARENTING: ENHANCING THE LIVES OF FAMILIES WHEN PARENTS HAVE LEARNING DIFFICULTIES
IMPORTANT THINGS TO THINK ABOUT WHEN PROVIDING SERVIES TO PARENTS WITH ID
Q/A
GOALS FOR TODAY….
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Bernadette Irwin, The Growing Together Supported Parenting Program in Baltimore, MD at PACT: Helping Children with Special Needs
Sue Jones, Positive Parenting Program of the United Arc, Greenfield, MA
TWO PROGRAM MODELS
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Bernadette Irwin, The Growing Together Supported Parenting Program in Baltimore, MD at PACT: Helping Children with Special Needs
GROWING TOGETHER
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Growing Together is Maryland’s only supported parenting program for mothers and fathers who have intellectual disabilities and have young children. We help parents provide safe, supportive and stimulating environments for their children.
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How are we funded?
100 % from MD Developmental
Disability Administration(DDA) for 18
families
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Wow, Who Knew….
There are approximately 120,000 children born each year in the U.S. to parents with cognitive limitations
(APA)
In Maryland, there are approximately 16,000 parents who have intellectual disabilities (ARC of Maryland)
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Another interesting
fact….
The majority of children born to parents with intellectual disabilities are born with normal IQs.
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GROWING TOGETHER PARENT
COMPONENT Group Sessions Peer Support and
Socialization Social Work
Counseling Referral to community
resources Transportation to/from
program
CHILDREN’S COMPONENT
Child-focused activities Developmental
assessments On-site physical,
occupational, speech/language therapy and special instruction, as needed (through the Baltimore City Infants and Toddlers Program)
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GROWING TOGETHER
Eligibility Requirements
Twenty years of age or older Have a child under age 3 living with them Have an identified cognitive disability Must be non-substance abusing and not
currently in treatment for substance abuse Live in Baltimore City or certain areas of Balto.
County
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STRUCTURE – choices, routines, set rules for safety and fairness
ENGAGE -- have fun, be silly, use materials you know your child will like, use favorite colors
NURTURE – support, calm, encourage, comfort, smile, kiss, cuddle, lots of I LOVE YOU and GREAT JOB
CHALLENGE – learn something new – make something easy for them to do just a little bit harder
WHAT WE TELL OUR PARENTS ABOUT PLAY….SENC
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The Center for Applied Research in Education, Darlene Mannix -- Academic and Practical Living Skills Activities
Color Me Healthy, Dunn, C.,(N.C. Cooperative Extension), Thomas, C., (NC Division of Public Health), Pegram, L., (NC Cooperative Extension)
The Health and Wellness Program, Alexander J. Tymchuk, www.brookespublishing.com
Sunny Side of the Street, Iris Media ---www.lookiris.com
Resources that we use….
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Sue Jones, Positive Parenting Program of the United Arc, Greenfield, MA
POSITIVE PARENTING PROGRAM
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Fitting the Pieces TogetherSupporting Parents with Intellectual and
Developmental Disabilities
The United Arc’s Positive Parenting Program
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How We Started
1980’s – Initial referrals from DMR and DPW primarily to support parents during TPR
Early 1990’s – Panel discussions at disability conferences in MA regarding unmet needs of parents with ID and DD and their families
1995- Urban and rural county surveys of professionals & focus groups with parents to identify service gaps and unmet needs
1997 – Initiation of parenting group with CTF PESP funds 1998 – Establish Positive Parenting Resource Center with
DDS Innovation Grant
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Program Visionwhich has guided development
activities
Activities to decrease parent isolation, promote learning, networking, foster peer support:
Parent education & support groups
Individualized support, skills training and case management:
Individualized Parenting Support & Home Visiting
Development and enhancement of natural networks: Volunteer “Family Friends”
Intensive Supports/Reunification: Transitional Supported Living Program
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The United Arc Model:Positive Parenting Program Components
• Individual parenting support, case management & skills training - serving 40 plus families each month
• Parent education & support groups - typically 3-7 ongoing groups (contingent on funding)
• Transitional Supported Living - (quasi-residential services) an apartment building housing 5 apartments for families, a supportive neighbor and parent educators’ office
• Volunteer mentoring – 15-20 active volunteers that provide program and family support
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Parent Education & Support Groups
General & topic specific subject groups: understanding abuse & neglect parent-child communication promoting literacy healthy relationships Positive discipline, boundaries, limit setting, family routines health & wellness
Age, geographic or situation focused groups: parents of young children parents whose children are being removed parents of teens grandparents raising grandchildren Couples Moms or Dads
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Parent Education & Support Groups
Use of Evidence-based Curricula: Health & Wellness – Alexander Tymchuk Nurturing Parent – Alexander Tymchuk Family Game – Maurice Feldman Sunny Side of the Street - Iris Media
Supplemental Materials: Channing Bete scriptographic booklets Activity or Game-based learning – Bingo, flash cards, role
play
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Parent Education & Support Groups
Logistical Support to Enhance Participation: Reminder calls Transportation Child care Incentives for attendance and active involvementWelcoming Environment: Sharing time Snacks or meals Located in family friendly settings with community
connection
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FundingParent Education & Support Groups
• Private grant for initial needs study• Children’s Trust Fund• Community Foundations• United Way• Women’s Fund• Agency on Aging Funds (grandparents groups)• Dept. of Children & Families (approved but not
yet funded)• Local community grantors (hospitals)
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FundingParent Education & Support
Groups – supplemental support
• Small local grants – for transportation & child care costs, special events such as family dinners & picnics
• Community Partnerships – Literacy Centers and Family Centers for use of space & child care
• Food pantries, church donations & individuals - for materials & children’s activities, games, food
• AmeriCorps – child activities & program support• College interns/Volunteers – child care and
transport volunteers, co-facilitators
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Home Visiting & Parenting Skills Training
Address pressing issues/priorities of parentFocus on parenting/family life skills training child development infant/toddler care child discipline home safety & basic first aid nutrition & meal planning health care & wellness, hygiene, stress & anger
management social boundaries & healthy relationships household management, organization and cleanliness family budgeting, money management, resources
Offer Case Management & Service Coordination
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FundingHome Visiting & Parenting
Skills Training
• State Funding:Dept. of Children & Families (child protection)Dept. of Developmental Services (disability)
• Private & Other Public Funding:Community Foundations (private)Area Agency on Aging (federal)United Way (community fund)Block Grants (federal through towns)Private Foundations & Donors
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Transitional Supported Living
Focus on stabilization and reunification Apartment model – 5 apartments for families Supportive neighbor and office located in
building Intensive Support – individual support from
parent educators, on-site supportive neighbor, parenting group on-site
Monthly meetings & family events Children’s activities & play yard
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FundingTransitional Supported Living
Start up: State Arc Grant from private foundation for start-up and pilot of program
Ongoing: Dept. of Children & Families refers
families for 1-2 yearsparticipation; DCF pays monthly fee per family
Families have housing subsidies AmeriCorps member provides children’s support
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Volunteer MentoringFamily Friends
Individualized family support by fostering & supporting long-term voluntary relationships
Focus on community connections Focus on expanded opportunities & experience Experienced volunteers share wisdom & gain
relationship with new family: “win – win” experience
Focus on current wellbeing of family and future wellbeing of children
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FundingVolunteer Mentoring – Family Friends
Start up: Multi-year grant from National Council of Aging to promote elder volunteerism
Ongoing: Coordinator position written into multiple grants, i.e.
Community Foundations United Way Title III – Area Agency on Aging elder services Private grants Also approved program model by DCF under Family
Support & Stabilization but not yet funded
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FY12 Funding & Program Status
Individual Parenting Support/Skills Training – Approximately $200,000 in state DCF funds
Parent Education & Support Groups (combined with home visiting) - $70,000 from 5 grants
Family Friends & Grandparent Support - $19,000 from 2 grants
Transitional Supported Living Program - $90,000 from state DCF funds Serving approximately 100 Families
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ONE SUCCESSFUL FAMILY
LINDSAY, PHIL, JULIANNA AND SARA
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My FamilyPhil Julianna Lindsay and Baby Sara
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Introduction Why I do this?
What inspired me to do what I do?
A parent's love is whole no matter how many times divided. ~Robert Brault, www.robertbrault.com
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Parenting
Tips for parents that have a disability
• Having a pretend baby
• Having a role model that is a parent
• Having a team that will support you
• It is not always easy we all struggle!
“Remember to hug your children and tell them that you love them every day” Vinnie Politan HLN Reporter
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Tips for parents that have a disability that also work with a support person
Let them know your wants and needs for them
Make sure there supportive towards you
Interesting fact : There are 8 Million people in the us that are parents that have a disability
15% of all American parents have a disability of some sort.From the looking glass website
Your Children need your Presence more than presents!-Jesse Jackson
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Many cups of coffee, soda and munchies were consumed during the grueling ordeal of choosing just the right name! The Tag Line says it just right!
TASP WAS “BORN” ON May 28, 2009 at 4:47 PM in Louisville, CO
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OUR MISSION
TASP is dedicated to enhancing the well-being of at-risk parents with learning difficulties and their children. This primarily includes parents who may be identified as persons with intellectualdisabilities or borderline intellectual functioning.
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TASP’S GUIDING PRINCIPLES
We recognized that family life is complex.
We move forward in step with self-advocates in this shared work.
We acknowledge that all families need support and rely on inter-dependent network.
We accept that separation from parents is sometimes in the best interest of children.
We believed that our expertise and resources may also benefit parents with other cognitive challenges and the people that support them.
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How we operationalize our Mission
Facilitating community partnerships
and networking
Offering educational opportunities
Partnering with self-advocates
Promoting evidence-based parenting
skill assessments
Developing and endorsing evidence-
based curricula for training
Honoring family autonomy, self-
determination and parent strengths
Encouraging natural supports,
community acceptance and inclusion
Consulting with partners in child
welfare, early intervention,
education, health care, disability
services and family support
Working within interdisciplinary
teams to individualize services
Establishing and raising quality
standards in assessment,
training, service and research
Promoting and conducting
research
Developing individualized
supports that utilize evidence-
based practices
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OUR ACCOMPLISHMENTS
Great name!501-C3 Status
+ new website
4 successful conferences
Dynamic Board of Directors
Meeting with The
International Association
for the Scientific Study of
Intellectual Disabilities to
discuss collaboration
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TASP’S BOARD OF DIRECTORS
Executive Committee
Bernadette Irwin, Co-President, The Kennedy Krieger Institute/PACT: Helping Children with Special Needs, [email protected] Sue Jones, Co-President, The United Arc, MA [email protected]
Ginny Cruz, Vice President, Metropolitan State College of Denver [email protected]
John Susa, Treasurer, Lifespan, Inc, [email protected]
Ellen Gilmartin*, Secretary, Connecticut Office for Protection and Advocacy for Persons with Disabilities , Membership [email protected]
Carol Boggs, Parent, Self Advocacy Co-Chair
Lindsay Brillhart, ParentSelf Advocacy Co-Chair [email protected]
Maurice Feldman, Research Committee, Centre for Applied Disability Studies, Ontario Canada, Brock [email protected],
Lana Hardy, All About Developmental Disabilities, Decatur, GA [email protected]
Leslie Kinney, Finance Committee, The United Arc, MA [email protected]
Elizabeth Lightfoot, Nomination/By-laws, U. of Minnesota [email protected]
Susan Yuan, Public Policy/Advocacy, University of Vermont [email protected]
Carolyn Harpole, Ph.D., Psychological Association of Bartlesville, OK [email protected]
Sylvia Long, Director, Office of the Public Defender, MD. [email protected]
Catherine Wade, Parenting Research Centre,East Melbourne, Victoria 3002 [email protected]
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Tim and Wendy Booth - - from the UK – now retired but have published many relevant works
Maurice Feldman, Ph.D. (TASP Board Member) – Brock University, CA – recent publication on Assessment + many research articles
Catherine Wade, Ph. D. (TASP Board Member) Parenting Research Center, Melbourne, AU (www.healthystart.net.au)
Alexander Tymchuk Ph.D. “Father” of the Supported Parenting philosophy in the U.S.
Virginia Cruz PH.D. (TASP Board Member) Creator of A Fair Chance video
WHO’S WHO IN SUPPORTED PARENTING……
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David McConnell Ph.D. University of Alberta, CA Gwynnyth Llewellyn Ph.D. University of Sydney, AU
Articles by TASP members include….
Irwin, B., New Ways of Thinking About Parents with Intellectual Disabilities, Impact, Spring/Summer 2010, U. of MN, Minneapolis, MN – http://ici.umn.edu/products/impact/232
http://www.eparentdigital.com/nxtbooks/exceptionalparent/201202/index.php Article by two TASP members – Lindsay Brillhart and Susan Yuan
http://www.people.com/people/article/0,,20314177,00.html Fleming, A, “Mommy is Always There for Me”
Even more great leaders/authors!
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www.achancetoparent.org or .com
Email us at [email protected]
Phone: 1-855-22-8277
The Association for Successful Parenting: Enhancing the lives of families when
parents have learning difficulties
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SO….WHAT NEXT?
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Who are parents with intellectual disabilities?
• Parents with intellectual or developmental disabilities have various levels of cognitive impairment
• Intellectual disability occurs before 18 characterized by significant limitations in intellectual function and adaptive behaviors
• Mild cognitive limitations describe individuals who may have had a diagnosis at some time in their lives (perhaps in school) and have lower than average learning, communication, and understanding abilities. Their eligibility for services varies from state to state; they may not qualify for disability services.
• Parents with intellectual disabilities are typically no different than others in their hopes and dreams for their families. 45
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Issues that parents face
Social and social service biases:• Presumption of incompetence, unfit to be parents• Limited supports made available • Professional emphasis on limitations (rather than building on
strengths)• Public resources often focus on crisis, not long-term support• May be lack of trust in service providers driven by fear of loss
of children• Disproportionate representation in child custody hearings;
often held to higher standards than other parents• Poverty, lack of personal resources and opportunities
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Effective Strategies: Key Principles
• Services need to be responsive to the parents’ individual needs & focus on the whole family
• Services must include long-term, ongoing supports
• Services must consider special learning needs of the parent
• Services must assist parents to become part of their community
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Relationship to Protective Factors
• Parental resilience• Social connections• Knowledge of parenting & child development• Concrete support in times of need• Social & emotional competence of children
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Community Donors for Events, Program and Family Needs
• Community Coalitions – for Family Day Dinners• Hospitals – for health focus in parenting groups• Cultural Councils – for themed events at Family Picnics and special
programming, i.e. “Drumming Circle,” children’s performances and theater, literacy through spoken poetry, children’s photography workshops
• Churches – for supplies, materials, food, holiday gifts• Private Donors – for children’s winter wear , playground
equipment, holiday gifts• Civic groups, women’s groups, businesses,
school groups – for school supplies, food,clothes and holiday gifts
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Funder Priorities & Program NeedsSupported Parenting/Family Support
fits into an array of concerns:
• Parent Disability & Early Intervention
• Child Welfare• Family Health &
Maternal & Child Health• Literacy/School Readiness• Welfare-to-Work• Self Advocacy• Women, Men, Children
• Transition• Child abuse prevention• Children in Foster Care• Volunteerism• Families challenged by
mental health, substance abuse, poverty issues, etc.
• Multigenerational & Non-traditional families
• And more…
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Approaching Funders & Donors
Goal is to match your program needs or aspects of the program to Donor Interest.
Research grants can document need.
Start-up or pilot grants often demonstrate efficacy of a service or program model to future funders.
Build partnerships during needs assessment & funding research. Participate in community coalitions.
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Additional Programs & Resources
• The United Arc Resource Guide• The Arc• The Association for Successful Parenting (TASP)• Through the Looking Glass (TLG) – National Resource
Center for Parents with Disabilities• The Connecticut Parents with Cognitive Limitations
Workgroup• AAIDD & IASSID
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