welcome from the esa research network 16 chair · tab.1-#abstract for each session of call for...

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Issue 8- New Series (#4) January 2018 01 Welcome from the Esa Research Network 16 Chair 02 Welcome from the Esa RN16 Newsletter Co-Editors 03 Rn-16 Board Members 05 Short Report Rn-16 ESA 2017 Conference in Athens 07 ESA RN-16 Mid Term Conference-Turin 18-20 April 2018 08 The Global Professionalization of Care as Human Activity- Book Review 10 In conversation with Henriette Langstrup: Sociology of Health and Illness in a Country: “Denmark 13 Future Events (congress, conference, workshop) 14 Call for papers/posters/ abstracts/applications 19 Past Events 20 Join the Research Network on Sociology of Health and Illness (RN_16) 21 Note from Newsletter Editors (Call for paper) 22 Renewal of RN-16 Membership and Change Address ESA Dear Colleagues, fourth of the new series renamed “Waves of Sociology of Health and Illness” or in short “Waves of RN-16”. Many thanks go to all who have contributed to its content and especially the newsletter co-editors Pietro Paolo Guzzo and our new co-editor Maria Świątkiewicz-Mośny for their efforts in collating what is going on in our field. You will see in this edition there is an interesting interview with Professor Henriette Langstrup, from the University of Copenhagen, on Sociology of Health and Illness in Denmak. She explains the intellectual currents which have contributed to the discipline in her country and in particular the influence of Science and Technology Studies. She also discusses, among other topics, the role of ethnography in exploring actor‟s experiences of health care practices and the impact of such work on health policy and practice. Also included is information about the ESA-Mid Term Conference “ Health and Illness in the Neoliberal Era: Methodological Approachesin Turin between 18-20 April 2018. Please take note of these to make sure you don‟t miss out. There is also more information on the new members of Board, Roberto Lusardi (Italy), Lia Lombardi (Italy), It is my great pleasure to introduce the eight issue of the ESA RN16 newsletter, the Maria Świątkiewicz-Mośny (Poland), and Sara Ferland (Sweden) who will all be involved in the mid-term conference in Turin. Other notable items include a short report on RN16‟s contribution to last summer‟s successful ESA conference in Athens on (Un)Making Europe: Capitalism, Solidarities, Subjectivities‟, a book review of Global Professionalization of Care as a Human Activity and announcements about other congresses, conferences and workshops. The newsletter is of course only viable if you, the members of RN16, make contributions to or send in comments about current or future activities of relevance to the Research Network. We very much hope that you will continue to send in copy which we can publish in the newsletter. Finally, if your membership of the RN and the ESA is about to expire please do renew them. That way RN16 remains an influential force in the ESA and is more able to represent you‟re your interests. I look forward to seeing as many of you as possible in Turin this spring! 1 Welcome from the ESA Research Network 16 Chair ESA RN-16 Newsletter

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Page 1: Welcome from the ESA Research Network 16 Chair · Tab.1-#Abstract for each Session of Call for paper Esa RN16 Conference of Athens 28 August 1st September 2017 Session Title # abstract

Issue 8- New Series (#4) January 2018

01 Welcome from the Esa Research Network 16 Chair 02 Welcome from the Esa RN16 Newsletter Co-Editors 03 Rn-16 Board Members 05 Short Report Rn-16 ESA 2017 Conference in Athens 07 ESA RN-16 Mid Term Conference-Turin 18-20 April 2018 08 The Global Professionalization of Care as Human Activity- Book Review 10 In conversation with Henriette Langstrup: Sociology of Health and Illness in a Country: “Denmark 13 Future Events (congress, conference, workshop) 14 Call for papers/posters/ abstracts/applications 19 Past Events 20 Join the Research Network on Sociology of Health and Illness (RN_16) 21 Note from Newsletter Editors (Call for paper) 22 Renewal of RN-16 Membership and Change Address ESA

Dear Colleagues,

Dear Colleagues

fourth of the new series renamed “Waves

of Sociology of Health and Illness” or in

short “Waves of RN-16”. Many thanks go

to all who have contributed to its content

and especially the newsletter co-editors

Pietro Paolo Guzzo and our new co-editor

Maria Świątkiewicz-Mośny for their

efforts in collating what is going on in our

field. You will see in this edition there is

an interesting interview with Professor

Henriette Langstrup, from the University

of Copenhagen, on Sociology of Health

and Illness in Denmak. She explains the

intellectual currents which have

contributed to the discipline in her country

and in particular the influence of Science

and Technology Studies. She also

discusses, among other topics, the role of

ethnography in exploring actor‟s

experiences of health care practices and

the impact of such work on health policy

and practice. Also included is information

about the ESA-Mid Term Conference “

Health and Illness in the Neoliberal Era:

Methodological Approaches” in Turin

between 18-20 April 2018. Please take

note of these to make sure you don‟t miss

out. There is also more information on

the new members of Board, Roberto

Lusardi (Italy), Lia Lombardi (Italy),

It is my great

pleasure to introduce the

eight issue of the ESA RN16

newsletter, the

Maria Świątkiewicz-Mośny (Poland),

and Sara Ferland (Sweden) who will all

be involved in the mid-term conference

in Turin. Other notable items include a

short report on RN16‟s contribution to

last summer‟s successful ESA

conference in Athens on „(Un)Making

Europe: Capitalism, Solidarities,

Subjectivities‟, a book review of Global

Professionalization of Care as a Human

Activity and announcements about other

congresses, conferences and workshops.

The newsletter is of course only viable

if you, the members of RN16, make

contributions to or send in comments

about current or future activities of

relevance to the Research Network. We

very much hope that you will continue

to send in copy which we can publish in

the newsletter. Finally, if your

membership of the RN and the ESA is

about to expire please do renew them.

That way RN16 remains an influential

force in the ESA and is more able to

represent you‟re your interests. I look

forward to seeing as many of you as

possible in Turin this spring!

1

Welcome from the ESA Research

Network 16 Chair

ESA RN-16 Newsletter

Page 2: Welcome from the ESA Research Network 16 Chair · Tab.1-#Abstract for each Session of Call for paper Esa RN16 Conference of Athens 28 August 1st September 2017 Session Title # abstract

Issue 8– New Series (#4) • January 2018

Dear colleagues,

We are very pleased to present the Sixth Issue of the

Newsletter of the ESA Research Network on

Sociology of Health and Illness, hereinafter renamed

“Waves of RN-16”.

In this Newsletter you will find a brief presentation

of the RN-Board, information on the last ESA

Conference in Athens and several alerts on different

events (Congress, etc.) in our scientific area

This newsletter aims to be a tool for future

collaboration between researchers working in the field

of the Sociology of Health and Illness in Europe. Thus

is for this reason that we have some information about

the current Publications of RN-16 members. In this

issue we also continue to present publications

relevant to our field of interest that were published

in a Journal. In this number we publish an interview

with Prof. Henriette Langstrup that provide an

interesting look on Sociology of Health and Illness in

Denmark.

In addition, in this issue Waves issues a Call for ESA

Rn-16 Mid Term Conference in Turin on 18-20

April 2017. Your collaboration is essential for our newsletter therefore

we invite you to share your ideas or suggestions about our future activities. Please feel free to email us at the

address below.

We would also like to invite you to renew your

membership for RN-16 and ESA, as this is vital for the

success of our Research Network, namely in the planning

of future events and activities. ---- Enjoy the reading! All the best, RN-16 Newsletter Co-Editors E-mail: [email protected]

2

Stípková

Welcome from the RN-16 Newsletter Co-Editors

(Past Newsletter Co-editor) (New Newsletter Co-editor)

Maria Swiakiewicz-Mosny

Welcome to the new entries in the ESA Rn16 Board!!!!

Sara Ferland (Sweden), Lia Lombardi (Italy), Roberto Lusardi (Italy), Maria Świątkiewicz-Mośny (Poland).

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Issue 8 – New Series (#4) •January 2018

3

Jonathan Gabe is Professor in Sociology, Royal Holloway University of London, United Kingdom. His research focuses on pharmaceuticals, chronic illness and health care organization. He was an editor of the Journal of Health & Illness twice, between 1994-2000 and 2006-2012.Since 2013 he has been chair of the Foundation for Sociology of Health & Illness. Before becoming chair of RC16 he was President of the International Sociological Association RC15, Sociology of health. E-mail:[email protected] Web-site: https.//pure.royalholloway.ac.uk/en/persons/jonathan-gabe(a61d244e-30d3-45cf-b875-042ff7df267).html

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Issue 8 – New Series (#4) •January 2018

4

Pietro Paolo Guzzo, Ph.d. is contract Professor in Social Policy University “Magna Græcia” of Catanzaro (Italy),scientific coordinator of the Dependencies Observatory of the Provincial Health Authority of Cosenza (Italy), Board of Directors of the Italian Society of Sociology of health (Società Italiana di Sociologia della Salute, S.I.S.S.) and collaborator

[email protected]

E-mail:

[email protected]

In the next number the

bio-prophiles of the new

members of Board!

Page 5: Welcome from the ESA Research Network 16 Chair · Tab.1-#Abstract for each Session of Call for paper Esa RN16 Conference of Athens 28 August 1st September 2017 Session Title # abstract

Last summer Athens hosted around 700 sessions organized by ESA’s 37 Research Networks – including the RN16 “Sociology of Health and Illness” – as well as Research Streams, many semi-plenaries and plenaries, a special PhD workshop and of course even more interesting scientific and social events. Invited speakers included David Harvey, Margaret Abraham, Gerard Delanty, Donatella della Porta, Silvia Federici, Eva Illouz, Maria Kousis, Hartmut Rosa, Markus Schulz, Yanis Varoufakis, Michel Wieviorka, Ruth Wodak and others.

RN-16 Call for papers was very successful. We have received a great number of abstract (223), beating the previous records of past Conferences (see tab.1) Tab.1-#Abstract for each Session of Call for paper-Esa RN16- Conference of Athens 28 August-1st September 2017

Session Title # abstract

RN General Call 50

RN16_b Loneliness, social relations and health 9

RN16_c Coopetition in welfare systems: Cooperative practice in capitalist societies 2

RN16_d Unemployment, precarious work, and health (care) from a comparative perspective: contributions to the development of an institutional approach

7

RN16_e Chronic diseases and new health policies in the capitalist e 12

RN16_f Analysing the relationship between migration, health conditions, health care access and utilization in a time of crisis

6

RN16_g Precarity and health in the wake of the crisis- 3

RN16_h Ethical implications for the sociological approach to health and illnes 7

RN16_i The pharmaceuticalisation of performance: consumption practices across generations 6

RN16_j Neoliberalism and challenges to medical professionals 6

RN16_k Health and disability: health policy for autism 4

RN16_l Violence against women as a public health issue in European patriarchal societies 7

RN16_m Health of Roma in Europe: gender perspectives and inequalities. Gender, class and generational intersectional perspective on minority populations' health

1

RN16_n Forced migration, health, policy. Challenges for Europe 6

RN16_o Making publics and building solidarities in 21th century public health 7

RN16_p Discussing mental health and illness 34

RN16_q Health, body-weight and everyday life: studying subjectivities through time 24

RN16_r Citizen participation, genomics and bio-banking 10

Joint Sessions

Title # abstract

RN16_RN19 Valuable health care? Curing and caring in the shadow of the social and economic crisis 4 RN16_RN01 European health policy and ageing societies: challenges and opportunities 5 RN16_RN28 Promoting health through sports and physical activity 1 RN16_RN35 Migrations and health inequalities in Europe 16

The number of abstracts received for each session was a sign of the wide participation of a large number of

scholars and researchers across Europe. During the conference the 133 papers were presented. Many thanks

to all RN-16 session organizers and members for attending the conference.

Issue 8 – New Series (#4) •January 2018

(Un)Making Europe: Capitalism, Solidarities, Subjectivities

Athens 2017

RN-16 Short report of Conference

5

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RN-16 Sociology of Health and Illness

The Hellenic Sociological Society (HSS) was an excellent organizer of the 13th ESA Conference in Athens in August 2017. The conference venue was PANTEION University of Social and Political Sciences and

HAROKOPIO University, which jointly offered their facilities for this mega-event of social sciences. Both

universities are in walking distance and closely cooperate in many academic and research actions. The city centre of Athens with its historical buildings, museums and exhibitions is only a few paces away. Both

universities are situated close to the UNESCO World Heritage Centre of Acropolis, while many important

cultural sites of interest such as the Acropolis Museum, Thissio, Panathenaic Stadium (where the first

modern Olympic Games were organised in 1896), Keramikos and the Benaki Museum are nearby. The venue is easily accessible by Metro and bus, while it is in close distance from the seafront and the Stavros Niarchos

Foundation Cultural Centre (SNFCC). The opening of the conference took place in Christos Lambrakis Hall

of MEGARON The Athens Concert Hall. The whole of the sociological community of Greece together with the relevant academic departments enthusiastically supported the event and were actively involved in the

smooth running of the conference.

Many thanks again to all contributors for this great exchange of idea and great meeting

opportunity!

6

Issue 8 – New Series (#4) •January 2018

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Health and Illness in the Neoliberal Era

ESA MID TERM CONFERENCE Research Network 16 ‘Sociology of Health and

Illness’ joint conference with AIS Italian Association of Sociology, Sociology of Health and

Medicine April, 18-20 April 2018, University of Turin, Italy

The aim of the conference is to discuss the configuration of health and illness in the neoliberal era in Europe.

In the social sciences neoliberalism has been defined simultaneously as an ideology, a set of policies and

programmes and a set of distinctive institutional forms. It also refers to a complex array of normative

conceptions of agency and responsibility that are rooted in ideology and embodied in policies, programmes

and institutional forms. Neoliberal discourse has strongly influenced the social construction of health and

illness in European societies. For example, it has encouraged a focus on productivity, efficiency, individual

responsibility, and arguably has brought about new inequalities, discrimination and victim blaming.

The conference will foster discussion of the impact of neoliberalism on the

social construction of health and illness at three main levels:

-macro level in terms of European or national health policy, health care organisations and systems

-meso level considering sub-national policy and the institutional level (regional or local health policy and

practice),

-micro level considering the impact on the individual level from the point of view of patients and their family

as well as the health care professions.

We welcome papers that consider the effects of neoliberalism on health and illness discourses in Europe.

How, where and in what forms do the various processes of neoliberalism impact the social construction of

health and illness in Europe? The board encourages the submission of abstracts offering a comparative

European perspective, although global, national or local studies

will also be considered.

The conference will focus on the following topics:

1)Body and Health; 2) Mental Health; 3) Health Organisations and Policy; 4)Health

Inequalities; 5) Health Techonologies and Biomedicine; 6) Illness Narratives and Narrative

Medicine; 7) Ageing ; 8) Chronic Illness; 9) Health and Spirituality

Open session: contributions that do not fit with these main topics of the conference will be considered for

an open session.

Abstract should be no longer than 400 words and presented as follows:

1)theoretical background; 2) research question; 3) methodology; 4)results; 5) discussion

Abstract should be submitted in English, by email to:

[email protected]

Abstract proposals should be submitted by 31t January 2018

Authors will be informed on the status of their abstract no later than 15 February 2018

7

Issue8 – New Series (#4) •January 2018

Page 8: Welcome from the ESA Research Network 16 Chair · Tab.1-#Abstract for each Session of Call for paper Esa RN16 Conference of Athens 28 August 1st September 2017 Session Title # abstract

The Global Professionalization of Care as Human Activity

A.M.Gonzales, C.Iffland, Care Professions and globalization.Theoretical and Practical

Perspective, Palgrave Macmilian, New York, 2014., XVI, 271 p. ISBN 978-1-137-37648-0,

Printed book: (Hardcover and softcover €79,99; e-book (format: EPub, PDF) € 69,99; Printed e-

book € 24,99 , Digitally watermarked, DRM-free

By L.M. Guadalupe and P. Garcia

This book is a comprehensive perspective of care professions nowadays and their thought and urgent challenges. First of all this work emphasizes the relevance of understanding the nature of care, in a society that does not know exactly what it implies nor always values care. Theoretically, it may help to explore ways of solving possible tensions between care, emotions, and professionalization, which require a good deal of discerning thought. Practically, care is often understood as an action derived from the mere impersonal routine of “having to solve” other people’s needs. There are certainly several kinds of care needs to be responded to, but beyond basic shortages such as health, food, shelter, education, work, even social recognition, there is an increasing need of particular and professional care that is a sign of our times, as the authors accurately state. The different chapters provide an interdisciplinary perspective to give light on the importance of care and its professionalizations.

Also, the book highlights an increasingly problematic situation of dependency from many human groups, such as the elderly, the terminally ill people who have chronically sickness or have to face long periods of dependency or vulnerability, These groups are growing dramatically in number and resources to care for them care are diminishing, i.e. human and material resources to properly attend them. Care that used to be solved within family environment is actually almost lost, even in developed countries. Many cases of Parkinson, Alzheimer and senile dementia in the context of care needs. The authors state there is an immediate need to articulate responsible work in order to address familiar, social and political human needs in the best way possible, it happen mainly in the institutions where professionals provide specialized care teams and specially, domestic work, as a non-human activity. Focusing on developing of creativity and virtues to perform it with perfection, facilitating all others human and cultural activities, while having main necessities solved: food, shelter.

clothes, a pleasant place to rest, medications, etc. The main aim is to situate care as something more inspiring and profound then merely solving momentary problems. This means to conceive care in the sense that Heidegger argues: a dimension that marks us as human beings. It is not plausible for anybody not to depend in some moment of our lives of others. Therefore, we need to understand care as an attitude of concern -caring about- centering individually on the wellbeing of each persons who is cared for. Another point the reader must pay attention to, is the ethics of care “double irony”. Professional caregivers are being judged by the norms of ethics of care, meaning intimate relations. On the other hand, the practice of informal caregiving is also judge by theorists, using the same norms of professional caregivers. From the practical perspective, the authors also reflect well on some concrete matters such as finding ways of solving tensions between care and emotions. Caregivers’ emotions and our identities as moral persons.

Issue8 – New Series (#4) • January 2018

8

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Issue 8 – New Series (#4) •January 2018

It is of thorough importance what the book proposes about three relations all human beings go through, which affect our personality: natural, practical and social, each of theme give rise to a cluster of emotions. The balance we make internally between these emotional inputs defines what we really care about, and mostly the act of caring itself. The achievement of personal self is dependent on one’s ultimate objects of care and concerns. These ideas greatly clarify in great extent the nature of care in every human activity and open a field to develop strategies to understand and control the emotional, personal, social and cultural strictures to implement a comprehensive, non reductionist approach to the serious study and implementation of effective ways to control tension, for instance in a UCI, focusing in attending the patients with kindness and expertise; giving nursing a fundamental role in health care, giving respect a primary part, a an essential ethical attitude. It is remarkable to discover some light on the roles which different actors may play in the caring process. They refer to three main actors: familiar, social and political. Each one with their specific responsibilities, that is not easy to articulate, but must be addressed immediately. One solution most authors propose in this works, each one in their own filed, is to increase consciousness concerning the value of the human being who receives any form of care, as the utmost relevant part of their professionalism. Beyond doubt, the topicality of the themes treated in this book and its projection for a fresh vision of care professions may help to better comprehend new practical

paradigms, which solve actual drawbacks such as lack of competent personal who understand care as an active attitude of worrying for somebody’s needs (caring about), and acting with responsibility to fulfill those needs (caring for), which enrich mostly the care giver. ___ (*) yet published as Book review in «Medic»

2013, 21,2,pp.126-127 http://www.medicjournalcampus.it/fileadmin

/MEDICS/archivio/vol1-

2015/numero_2/17_RECENSIONE_01.pdf

9

Box #1

Health Care Globalization Source: Courtinois A.A., Downey S.,Closson T., Jadaad A.R. (2003), Hospital in a Globalized Worls: A View from Canada,« HealthcarePapers» , 4,2,,

November, pp.14-32 doi:10.12927/heapap..16881

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11

Issue8 – New Series (#4) •January 2018

Langstrup, Henriette is Associate

Professor of sociology at Copenhagen

University. Henriette's research is in

the area of Health-it and User Practices

with a special emphasis on qualitative

and ethnographic explorations of the

social and organizational implication of

innovative technologies in the area of

chronic care management. In particular

she studies the implication of the

increased involvement of patients in

their own care made possible through

health-it. More recently she has been

exploring organizational challenges

related to the global dissemination of

welfare technologies in the area of

diabetes treatment. Her current

research concerns the use of tele-

PROMs (patient rated outcome

measures provided to patients on

digital platforms) in cancer

rehabilitation and other disease areas.

In Conversation with…Henriette

Langstrup

Sociology of Health and Illness in a COUNTRY:

Denmark

By Pietro Paolo Guzzo and Angela Genova

In this fourth issue of Waves, we focus on the state of art of Sociology of Health and Illness in Denmark with the aid of Professor Henriette Langstrup, University of Copenhagen.

Waves: «Professor Langstrup can you give a short parable of the studies of

Sociology of Health and Illness in Denmark from the beginning until today?»

Langstrup: «Sociology of Health and Illness in Denmark does not have one particular home or origin – as to my knowledge – but has always been part of a number of different scientific environments and fields: Obviously sociology, but also organization studies, information science, social medicine, health promotion and health services research, where I have had my own home turf for a number of years. Denmark is a small country with only 8 universities and only three departments of sociology and only one formal specialization in sociology of health at Aalborg University. Historically there has been a strong interest in patients' experiences and rights – not least in relation to clinical research1 - and situated and everyday life perspectives on illness2. As is the case in many other countries, Danish studies have over the years adopted critical theory, foucauldian perspectives and symbolic interactionism to criticize dominant biomedical discourses and problematize welfare institutions from the perspectives of patients and health professionals3. Recent years there has been a significant overlap between researchers working within a Science, Technology and Society framework and those working within Sociology of Health and Illness and a turn toward more ethnographically informed studies. The research center, which I am currently heading, Centre for Medical Science and Technology Studies at University of Copenhagen4, is dedicated to studying the ethical, social, organizational and societal implications of emergent regimes of knowledge and technologies in the area of healthcare. Studies of emerging care practices in the areas of (tissue) donation5 6, prenatal risk assessment7, ehealth8 9 and translational medicine 10 are examples of themes that have cast particular light on the everyday experiences of patients and health professionals and the unexpected implications of health policy and medical innovations. Overall, I think it will be fair to say, that the Danish “scene” for Sociology of Health and Illness is recognizable in its primarily ethnographical engagement with the lived experience of actors within healthcare practices».

Continued on next page 10

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Waves: What kind of perspectives and results have these studies obtained in relation to the core of health policy, practice and research?»

Langstrup:«Many Danish scholars participate in public debate and deliberations on issues of political interest or controversy in relation to health, not least in the area of biotechnical innovations and healthcare reforms. This can be in the media or in expert panels and deliberative forums such as The National Ethics Council, a public, independent council providing advice to the Danish parliament in particular on the developments within the biosciences. Denmark has a long tradition for deliberative models and user-involvement in both policy making and health technology assessment, something, which can partly be attributed to the long-time involvement of the social sciences11. Also, we must not forget that our students taught on these issues at university often come to occupy positions as policy makers in the healthcare arena. The area of inequality in health has always had significant presence in both research and health politics in Denmark and researchers are often vocal in their critique when health policy or innovation leaves such considerations aside. Still, I think that researchers in the field have their major influence in the collaborations they engage with in the field of healthcare. Valuable constructive dialogues across epistemological boundaries are created when we set up collaborative and cross-disciplinary research projects with clinicians, health researchers or health technology designers. Such collaborations are not always easy or without frictions, but enable more nuanced insights and hopefully also more socially sustainable decisions and innovations». Waves:«What critical and reflective views are important in order to bring Danish perspectives into health?»

Langstrup:«Delineating a particular Danish

perspective to be exported – I find this difficult if not also problematic to do. Our research is increasingly international in its scope and themes. Still, the particular context of our research in Danish society, a rather wealthy, technologically advanced and small welfare society with universal health care provision, does give Danish research some particular insights of possible relevance in a comparative perspective. Some of the more reflective ones, I suspect, are studies that do not depart from normative assumption that the much-heralded „empowerment‟ of the individual patient or citizen – whether with choices, technology or data-rights – isn‟t only to be applauded. Various forms of „empowerment‟ come with various costs, for the individual as for society. Studying versions of the increasing responsibilization of the individual and a withdrawal of state and institutions raise relevant questions of the role, value and legitimacy of institutions in late modernity.

and the shortcomings of „empowered citizenship‟. In her new project, MeInWe on Personal medicine in Denmark, Prof. Mette Nordahl Svendsen is studying the co-production of the person and the collective in the national ambitions to map all citizens‟ genomes for providing individualized treatment. Danes have generally had a great willingness to contribute to the collective „good‟ through data and research participation, but how is this reconfigured when treatment is increasingly seen as dependent on knowledge about the individual rather than the population? Also, what may we risk losing in terms of solidarity across disease, class, and geography? Also in the area of ehealth and patient generated data, often celebrated for its empowering effects and triumph over paternalistic health professionals, it might be relevant to ask what might we lose if public health professionals are disempowered? With intensified datasourcing12, what alternative powers lurks in the shadows, or more specifically in the apps, algorithms and data-economy? These might be some relevant questions to pose elsewhere too».

Waves: «How do interdisciplinary approaches- related to gender and inequalities in different health sectors (addiction, mental health, etc.)- help us to address issues of health care internationally?» Langstrup:«I am very fortunate in working in a highly interdisciplinary environment within Health Services Research, involving social scientists, public health scholars and researchers with a medical background. Our experience is, that our collaboration is particularly relevant on issues of inequality for example in access to healthcare services, in that these challenges equally involve problems on policy level, professional practice and patient experience. Researchers working on immigrants‟ access to and experiences with Danish health services13 can thus – throught interdisciplinary collaboration – provide both quantitative and qualitative evidence on unequal access to services as well as experiment with and further the implementation of a more culturally sensitive approach to healthcare provision». Waves: «Are the attitudes of health professionals an obstacle to person-sensitive health care in health care organizations?» Langstrup:«I generally think that one should be reluctant to talk about attitudes of health professionals as one big category and as an independent phenomenon. As I see it, how health professionals reason, the values that they pursue in their day to day work have to be understood in relation to the specificities of the institutional, technological, epistemological assemblages that they operate within – the infrastructures of care, so to speak14.

Continued n next page

11

Issue 8– New Series (#4) • January 2018

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Issue 8 – New Series (#4) •January 2018

In a Danish context it would be very difficult to find a health professional who is not supportive of a person-sensitive healthcare paradigm – at a general level. The most successful slogans these days concern Personalized Medicine, Patient Centred Care, Patient Reported Outcomes and Value-based Health Care – all ideas arguing that the patient is to be put in the driver‟s seat of healthcare. In everyday practices, it is of course another case. Here the individual health professional will often have to balance the normative ideal of person-sensitivity with the practical reality characterized by budget cuts, time constraints, more and more data- and screen-work and unclear demarcations of authority and responsibility. In particular, as initiatives that delegate more responsibility to patients themselves to do self-care tend to privilege those who are the most health and technological literate, health professionals may experience new challenging tasks of balancing their reduced time between the connected but „worried well‟ and the complicated and disconnected patients. As researchers, we need to study the everyday practices that shape the values and choices made by health professionals». Waves:«What risks and opportunities do you see for multilevel-partnerships between third sector organizations in the health care systems in the Denmark and Europe?

Langstrup: «Community health perspectives and third sector involvement will be part of the future organization of healthcare, I am convinced, though I am not without some concern. When politicians talk about “crowdsourced healthcare” and praise the joy of “giving care tasks back” to relatives, I get very concerned. Who will benefit, who will define care standards, who will have to do “invisible work”, and who will fall through the cracks? On the other hand, the demands for healthcare know few limits and every new demand cannot be satisfied if based on public funding alone.

Discussion of what are core-tasks to be maintained by the public sector and what are auxiliary services that can be taken on by charities, communities and families are needed at every step. Here researchers from SHI and related fields can contribute, both with insight from all the ways in which care work is already shared in much more diverse care infrastructures than often recognized, but also by studying and comparing the unintended implications in practice of multi-level partnerships for care across Europe». Waves: «What kinds of practical suggestions would you give to younger ESA sociologists of health and illness?».

Langstrup: «Find pleasure in how complicated the area of health and illness is and how it operates on many societal levels at once. Travel different disciplinary roads available to explore these issues – each offers new insights. Experiment with forms of engagement and stay close to messy, everyday practices of care and cure». Waves: «Many thanks for your courtesy and good work!» _____________ 1 Scocozza, L. (1989). Ethics and medical science. On voluntary participation in

biomedical experimentation. Acta Sociologica, 32(3), 283-293. 2 Gannik, D. E. (1995). Situational disease. Family Practice, 12(2), 202-213. 3 Mik‐Meyer, N., & Obling, A. R. (2012). The negotiation of the sick role: general

practitioners‟ classification of patients with medically unexplained

symptoms. Sociology of health & illness, 34(7), 1025-1038. 4 http://medicalsts.ku.dk/ 5 Hoeyer, K. (2010). After novelty: The mundane practices of ensuring a safe and

stable supply of bone. Science as Culture, 19(2), 123-150. 6 Jensen, A. M. B. (2011). Searching for meaningful aftermaths: donor family

experiences and expressions in New York and Denmark. Sites: a journal of social

anthropology and cultural studies, 8(1), 129-148. 7 Schwennesen, N., & Koch, L. (2012). Representing and intervening:„doing‟good

care in first trimester prenatal knowledge production and decision‐making. Sociology

of health & illness, 34(2), 283-298. 8 Schwennesen, N. (2017). When self-tracking enters physical rehabilitation: From

„pushed‟ self-tracking to ongoing affective encounters in arrangements of

care. DIGITAL HEALTH, 3, 2055207617725231. 9 Langstrup, H., Iversen, L. B., Vind, S., & Erstad, T. L. (2013). Langstrup et al.:

The Virtual Clinical Encounter: Emplacing Patient 2.0 in Emerging Care

Infrastructures. Science & Technology Studies. 10 Dam, M. S., Juhl, S. M., Sangild, P. T., & Svendsen, M. N. (2017). Feeding

premature neonates: Kinship and species in translational neonatology. Social Science

& Medicine, 179, 129-136. 11 Prainsack, B., Svendsen, M. N., Koch, L., & Ehrich, K. (2010). How do we

collaborate? Social science researchers‟ experience of multidisciplinarity in

biomedical settings. BioSocieties, 5(2), 278-286 12 http://policyaid.ku.dk/about-policyaid/ 13 http://mesu.ku.dk/ 14 Langstrup, H. (2013). Chronic care infrastructures and the home. Sociology of

health & illness, 35(7), 1008-1022.

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CALL FOR PAPERS/ ABSTRACTS/APPLICATIONS By Maria Swiakiewicz-Mosny

Old Tensions, Emerging Paradoxes in Health: rights, knowledge, and trust 6-8 June, 2018, 17 biennial conference ESHMS, Lisboa, Portugal https://eshms2018.wixsite.com/eshms2018lisbon DEADLINE FOR ABSTRACT is: 15th December Under the theme „Old tensions, emerging paradoxes in health: rights, knowledge, and trust‟, the congress aims to offer a forum for new insights into the tensions and paradoxes health systems are currently facing as a result of broad social and political transformations. These include climate change, migrations, economic crises, citizens‟ quest for inclusiveness and freely deciding on their own lives, distrust of professional self-regulated work models and decisions, struggle for recognition and legitimacy by different professional groups, or the growing role of the market in the provision of care and funding of scientific research. Despite the progress of academic research in addressing these issues, the exposure of healthcare to the market, to politics, as well as to countervailing forces, rationalities and interests makes the renewal of this debate both timely and necessary.

War: the beginning and end of antibiotics? Brocher Fundation workshop, Genova, Switzerland 1-3November, 2018 Organised by: Landecker Hannah, University of California, Los Angeles, Associate Professor, Sociology and the Institute for Society and Genetic, Dewachi Omar, nguyen vinh-kim Medicine and war have long been entwined, with massive social disruptions and new weapons engendering the spread of disease and producing unprecedented kinds of injury, in turn driving medical innovation and practice whose impacts last long beyond the conflict in which they originated. So began penicillin in the Second World War: antibiotics arose in war. Today in the context of long-running military conflicts we see harbingers of the end of antibiotics. Our subject is multidrug resistant Acinetobacter baumannii, which emerged as a major health threat in 2003 with the US invasion of Iraq and has been increasing in both virulence and resistance at an alarming rate, leading it to be assessed as the number one priority pathogen for research and development by the WHO. We focus specifically on the social and physical factors that have driven the rapid genetic evolution of this formerly little-known and non-pathogenic organism, including historical legacies of sanctions affecting antibiotic availability, wounding, munitions, refugee movement, and destruction of the built environment. http://www.brocher.ch/fr/events/321/war-the-beginning-and-end-of-antibiotics

Issue 8– New Series (#4) • January 2018

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The Meaning(s) of Global Public Health: scholarly and policy implications

Brocher Fundation workshop, Genova, Switzerland

28-30 , November 2018 Organised by: Cueto Marcos, FIOCRUZ, Rio de Janeiro, Professor, Rodogno Davide, Nicole Bourbonaiss

The new subfield of Global Health History is becoming popular among historians of medicine and the term is

used by scholars, officers of health organizations and policy makers. Some scholars consider it a perspective

that emphasizes transnational circulation of people and health programs. This perspective aims to examine

discourses and practices that traversed, interacted and transcended the borders of nation-states. Other

scholars consider Global Health History the study of medical developments during a period, i.e. the years after

the end of the Cold War (c. 1991). However, is not clear Global Health History‟s features, challenges and policy

implications. In addition, other related concepts are problematic, such as Global South, used with little

discussion and awareness of its limitations (for example in geographical terms). Another important element

missing in the discussion of Global Health History are the proactive role played by developing countries and

the persistence of local and national developments. Moreover, more discussion is needed on how experts

reframe notions of „reception‟, „recreation‟, `center`, `periphery‟ ´governance´and `asymmetries`; dear to

historians of international health until a few years ago. The purpose of this workshop will be: first, to explore

the characteristics, implications and potentialities of the new subfield giving preference to theoretical and

regional studies done by historians. Second: to establish a dialogue between historians and officers of the

World Health Organization, WHO, and other global health agencies based in Geneva. It is important to stress

that over past ten years the WHO has organized seminars and other activities around Global Health History.

Thus, the workshop will build on the connections between historians and practitioners developed with his

history of global health history seminars. Third, explore how to create meaningful engagement between

scholars and practitioners interested in global health history.

http://www.brocher.ch/fr/events/331/the-meaning-s-of-global-public-health-scholarly-and-policy-

implications

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Issue 8– New Series (#4) •January 2018

Conference series on Medical Sociology & Public Health Exploring the Sociological interrelations between Health, Illness and Medicine

September 21-22, 2018 Dallas, Texas, USA

Conference series in conjunction with its institutional partners and Editorial Board Members, is delighted to invite you all to the 3rd World Congress on Medical Sociology and Public Health which will be held at Dallas, USA from September 21-22, 2018. Medical Sociology 2018 conference mainly aims in bringing Medical Sociologists, Sociologists, Healthcare Professionals, Doctors, Professors, Social workers, Public Health Professionals, Healthcare Policy Makers, Nurses, Healthcare administrators, Social Science Researchers and students from around the world under a single roof, where they discuss the research, achievements and advancements in the field of Health and Medical Sociology. This conference will continue with objectives of helping medical professionals in the Medical Sociology field as well as general public to understand, empathize, and take prompt actions to help old people across the globe.

Conference series organizes a conference series of 1000+ Global Events inclusive of 1000+ Conferences, 1000+ Upcoming and Previous Symposiums and Workshops in Europe, USA & Asia with support from 1000 more scientific societies and publish 700+ Open access journals which contains over 30000 eminent personalities, reputed scientists as editorial board members.

Scope and Importance:

Medical sociology mainly includes the societal dimensions of health and medicine and it provides an analytical framework for understanding the social contexts of health, illness and health care. It focuses on the social aspects of health and disease, the social behavior of patients and health care providers, the social functions of health organizations and institutions, the social patterns and the utilization of health services, the relationship of health care delivery systems to other social institutions, and social policies toward health. What makes medical sociology important is the social factors play in determining or influencing the health of individuals, groups, and the larger society.

More informarion: https://medicalsociology.conferenceseries.com

Global mental health and therapeutic assemblages: concepts, controversy and necessary tensions University of Sheffield UK February 12-13th 2018 Call for abstracts and participation Global mental health as a field of study and practice involves a wide heterogeneous assemblage of actors and is a controversial field that despite huge achievements has also attracted much critique. While for some the very concept of global mental health is an oxymoron and a form of medical imperialism (Summerfield, 2013), for others it has proved a practical way of leveraging political attention on a much-neglected area. This makes for a sometimes hostile and polemic intellectual climate that risks reaching an impasse (Cooper, 2016). This conference aims to draw out the necessary tensions of this field through critical interdisciplinary discussion and debate. It aims to create space to explore how activists, mental health users and survivors, and academics from various fields (such as, Mad Studies, Postcolonial Theory, Disability Studies, Human Geography, History, Literary studies, Education, and Science and Technology Studies, and many more) can enrich and / or trouble debates around global mental health. The conference is open to all working in and around global mental health and wider therapeutic assemblages, and especially welcomes postgraduate and early career researchers, those who have lived experience of a psychiatric diagnosis, or of distress, and those who live and/or work in the global South on mental health issues. It aims to explore and showcase the multiple contemporary (converging and diverging) directions of, and innovations in, global mental health research and practice. For further information on conference content, funding opportunities, and submission of abstracts (deadline 11th December), see https://www.eventbrite.co.uk/e/global-mental-health-and-therapeutic-assemblages-concepts-controversy-and-necessary-tensions-tickets-39612412793?aff=es2 <https://www.eventbrite.co.uk/e/global-mental-health-and-therapeutic-assemblages-concepts-controversy-and-necessary-tensions-tickets-

39612412793?aff=es2>

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East Midlands Medical Sociology Group Winter Event Chronicity, care and emotion work Friday 15th December 2017 11.30am - 3.30pm Room 4.09 Edith Murphy House De Montfort University, Leicester. You are invited to attend a seminar organised by the East Midlands Medical Sociology Group, hosted by De Montfort University. Keynote Speaker: Professor Jon Gabe, Professor of Sociology, Royal Holloway University of London 'Making sense of childhood asthma' Kerry Quincey, De Montfort University 'Exploring shifting masculinities amongst men diagnosed with breast cancer' Charlotte Overton and Dr Fiona Moffatt, University of Nottingham 'The value of emotional labour and confessional tales in routine ethnographies' Cost of attendance: A light lunch and refreshments will be provided and there will be the opportunity for networking and discussion. To cover our costs and to enable us to hold future events the following charges will be applied: Academic staff and salaried researchers BSA members £10; Non BSA members £15 Postgraduate researchers BSA members £5; Non BSA members £10 Booking your place: Booking is essential. Venue numbers are restricted and it is advisable to book early. Book your place here: https://portal.britsoc.co.uk/public/event/eventBooking.aspx?id=EVT10682

Professor Jon Gabe, Professor of Sociology, Royal Holloway University of London: 'Making sense of childhood asthma' Asthma has been described as one of the most common non-communicable diseases of childhood, with a UK prevalence rate of over 24% in young people aged 13-14. In Ireland the prevalence rate for this group is close to 22%. Given these prevalence rates it is surprising how so little attention has been paid by sociologists to researching children and young people's experience of this condition. In this presentation findings will be reported from a study of young people with asthma in south west Ireland, conducted in conjunction with Lee Monaghan from Limerick University. Thirty one in depth interviews were conducted with young people diagnosed with asthma in this part of Ireland. The sample included boys (n=15) and girls (n=16) aged between 5 and 17, from the Irish Traveller community and the larger settled community. Particular attention will be paid to the impact of asthma on these young people's embodied health identities and the extent to which they experienced the condition as biographically contingent. Kerry Quincey, De Montfort University: 'Exploring shifting masculinities amongst men diagnosed with breast cancer' Under-acknowledged both clinically and socially as a threat to men's health, breast cancer in men continues to be a critical health issue, with complex ramifications for those affected. Research exploring men's experiences of breast cancer, and life for men beyond the illness episode, remains limited. Hence, this inquiry asked 'How do we understand the experiences of men diagnosed with breast cancer?' Photo-phenomenological interviews were undertaken with 31 British men with a history of breast cancer who drew on self-authored photographs to illustrate their experiences. These visual and verbal data were analysed together using Interpretative Phenomenological Analysis leading to the identification of three superordinate masculinities: 'threatened/exposed', 'protected/asserted' and a 'reconsidered/reconfigured' masculinity. This presentation will explore how together, these themes demonstrate the ways in which the participants implemented and transitioned between masculinities across the breast cancer trajectory, as they managed, made sense of, and lived through the illness. It concludes with a discussion of the schematic representation this research identified to explain how these masculinities were processed by the men from pre-diagnosis through to being 'in-recovery'. Charlotte Overton and Dr Fiona Moffatt, University of Nottingham: 'The value of emotional labour and confessional tales in routine ethnographies' Ethnography is an increasingly used methodology organisational research. A number of papers have described the emotional labour inherent in such research, but these have generally been confined to critical ethnographies, or areas of extreme sensitivity.

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This paper extends Hochschild's concept of emotional labour - the process of regulating feelings to fulfil the emotional requirements of a job - to consider routine ethnographies conducted in a setting that is familiar to the researcher. The premise is that in such a situation, the 'insider status' of the researcher confers particular identities, values, virtues and beliefs. The researcher may be exposed to experiences that challenge these professional ideologies, requiring them to reflexively manage, and conceal, the associated discomfort or distress. Such insider status, and the resultant emotional labour, has been discussed as potentially problematic, with implications for data collection, analysis, representation and researcher wellbeing. This paper offers an alternative stance. Utilising an autoethnographic perspective, and specifically drawing on the 'confessional tales' of an experienced healthcare professional conducting an ethnography of healthcare quality improvement, the authors suggest that emotional labour can instead be used to add methodological integrity. Specifically, emotional labour can be utilised by the researcher as a 'trigger' to challenge initial conceptions, preserve ethical integrity, facilitate connection with the 'actors' under observation and subsequently attain a higher level analytical position. Researchers should be cognisant of the value of emotional labour in routine ethnographies, in terms

of enhancing scholarship. Power, Violence and Justice: Reflections, Responses and Responsibilities Toronto, Canada, July 15-21, 2018 Since the inception of the discipline, sociologists have been concerned with power, violence and justice. Current social, economic and political challenges enhance their relevance. As capitalist globalization expands and deepens, corporate power increases along with global, national and local inequalities. New geo-political power configurations and confrontations are emerging, with violence being used as a tool to oppress and also to resist oppression. Colonial histories and contemporary land appropriations reflect the structures and cultural processes that perpetuate violence against indigenous and minority communities. States‟ failures to meet their responsibility to provide basic resources are often deflected by blaming the most vulnerable. Both global economic and geo-political processes create crises and massive displacements of people and, at the same time, fuel racism, nationalism and xenophobia. We have also seen an increasing buildup of a culture of fear as a powerful tool used by states, corporations and other institutions to generate popular support for curtailing freedom in the name of security. Efforts to curtail the flow of desperate refugees, attest to the reinforcement of national and racialized borders. Despite visible progress on equality issues, violence against women and intersectional violence point to the entrenchment of the gender border around the world. Equally significant is the need to consider the role of state and institutional power relations to ongoing everyday violence. In response to disempowerment, violence, and injustice we have also witnessed nonviolent movements, humanitarian interventions, and peace processes that have empowered communities, reduced violence, and promoted justice. These diverse communities have built solidarities outside the neo-liberal frames of state-global capital nexus. This XIX ISA World Congress of Sociology will focus on how scholars, public intellectuals, policy makers, journalists and activists from diverse fields can and do contribute to our understanding of power, violence and justice. Mentoring Session to be held for ISA RC15 in Toronto, July 2018 We invite PhD research students, post-doctoral fellows and early career researchers to join senior scholars in this Session. This ninety-minute Session will comprise three small groups. Young scholars can circulate between the three at thirty-minute intervals. Each small group is covened by at least one senior scholar eminent in this area of expertise One group will address how to attract funding to support your research, convened by Professor Michael Calnan from the University of Kent, Canterbury. A second group will examine publishing your research in a peer-reviewed journal, edited book and/or a research monograph, convened by Professor Mike Saks from the University of Suffolk. And, a third group will discuss communicating and promoting your research findings with non-academic audi

- e from McGill University. Please contact us if you are interested in attending as a junior scholar or if you are able to share your ideas and expertise as a senior scholar. Sincerely, Prof Stephanie Short Prof Miwako Hosoda [email protected] [email protected]

http://www.isa-sociology.org/en/conferences/world-congress/toronto-2018/

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Issue 8– New Series (#4) • January 2018

PAST EVENTS:

III National Scientific and Training Conference "Sociology of medicine - health promotion -

media" was held in Wrocław, Poland, from 25 to 27 September 2017. The initiator and main organizer of

the conference was the Creatively for Health Foundation, Wrocław and the Department of Humanistic

Sciences in Medicine, Wroclaw Medical University.

The interdisciplinary conference and was devoted to the problems of the media in the context of broadly

understood health, in the individual, social and cultural dimension. During the conference, the latest trends

in scientific concepts and empirical research results were presented. Over 150 specialists from leading

scientific centers in Poland discussed issues such as socio-cultural and ethical aspects of the media's impact

on health; media images of medicine and medical personnel; media influence on doctor-patient relations;

the importance of the media in promoting a healthy lifestyle. In addition, measures have been taken to

develop effective methods of practical application of theoretical knowledge and empirical research results

in the practice of social life. Therefore, special sessions were devoted to the so-called good practices in

health promotion.

For up to date information in English please go to:

www.kreatywniedlazdrowia.pl/IIIsocialconference.htm

Contact person:

dr Małgorzata Synowiec-Piłat

Chairman of the board of Creatively for Health Foundation, Wroclaw [email protected]

Department of Humanistic Sciences in Medicine, Wroclaw Medical University

[email protected]

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Issue 8– New Series (#4) •January 2018

Note from Newsletter Editors A Special Number Newsletter (Waves of RN-16) No 1 will be a Special issue on short

papers sent in by members of the ESA RN-16 Network (see below) It is scheduled for May 2017.

We welcome notices and Calls for Papers of interest to RN16 members Your notices and Calls for Papers that are of interest for RN-16 members are very

welcome and must be sent as a word file; please note: no pdf files or email announcements will be considered!

You can also send us pieces of information regarding relevant topics or events for our field and

that might be of interest to your colleagues of RN-16 (report of a conference, critical book review, etc.) or a short paper reporting a topic/research note in our area of study. Such inputs should be limited to three pages (A4 format) and should not exceed 30,000 characters.

Next Deadline: March 15, 2018 (write to the following recipients: [email protected] [email protected] indicating “Short Paper for Waves” in the Subject box). Please note that publication is at the Waves editors‟ discretion.

Thank you very much for your collaboration

Best regards,

Pietro Paolo Guzzo, Maria Swiatkiewicz-Mosny RN-16 Newsletter Co-Editors

E-mail: [email protected]

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Renewal of RN-16 Membership

Dear RN-16 members, We should be very grateful if you would renew your membership. Please send

an email to:

[email protected]

European Sociological Association FMSH – 54, boulevard Raspail

Bureau A2-27 75270 Paris Cedex 06

France

Office hours: From Monday to Friday – 9.30am to 17.30pm (Paris time).

Phone: +33 140486444 E-mail address [email protected]

Thank you.

Change of Address Dear RN-16 members,

In case you have changed your email address, please let us know by sending an email to:

[email protected] Thank you.