UK Obstetric Surveillance System

UKOSS Annual Report 2017The UKOSS 2017 Annual Report is now available online! The full report can be accessed as a PDF here: www.npeu.ox.ac.uk/ukoss/annual-reports

Thank you to all of the reporters and centres who have contributed to UKOSS over the last year!

Notice for those affected by the recent Cyber AttackSince the recent cyber attacks that affected multiple NHS trusts we have been informed that some reporters are unable to access the report links. It would be appreciated if you could contact your IT teams and ask for UKOSS links to be made accessible. We recognise that the NHS IT teams are likely to be overstretched at present and so we appreciate this may continue to be an issue for some time. In the meantime, if you cannot access the report request links, please report to UKOSS by emailing your report to the UKOSS team (ukoss@npeu.ox.ac.uk). When reporting via email please clearly state your name, hospital and the month for which you are reporting. As always notifications of “nothing to report” are just as important as case reporting. For a list of current studies please see the UKOSS website.

https://www.npeu.ox.ac.uk/ukoss/current-surveillance

This month:

Changes to the UKOSS team

The newsletter goes digital- Study questionnaires

- Study reminders

THIS MONTH

NEWSLETTER 50 - July 2017 5050

Epilepsy Study Incidence CheckFollowing the conclusion of the Severe Epilepsy in Pregnancy study, we are checking case numbers to make sure all women are identified. Because of this you may receive an email from a specialist epilepsy nurse confirming reported case numbers. If you are notified of a case that is yet to be reported please contact the UKOSS team as soon as possible. ukoss@npeu.ox.ac.uk

Thanks to the following hospitals who have returned reports for March, April and May 2017:Aberdeen Maternity HospitalAltnagelvin Area HospitalArrowe Park HospitalBarnsley Hospital NHS Foundation TrustBasildon HospitalBedford HospitalBirmingham City HospitalBirmingham Heartlands HospitalBirmingham Women’s HospitalBorders General HospitalBradford Royal InfirmaryBronglais HospitalBroomfield HospitalCaithness General HospitalCalderdale Royal HospitalCauseway HospitalChesterfield & North Derbyshire Royal HospitalCity Hospitals Sunderland NHS TrustColchester General HospitalCountess of Chester HospitalCraigavon Area HospitalCroydon University HospitalCumberland InfirmaryDaisy Hill HospitalDarent Valley HospitalDarlington Memorial HospitalDerby Hospitals NHS Foundation TrustDiana Princess of Wales HospitalDoncaster Royal InfirmaryDorset County HospitalDr Gray’s HospitalDumfries & Galloway Royal InfirmaryEast Sussex Healthcare NHS TrustEpsom General HospitalForth Valley Royal HospitalFrimley Park HospitalGeorge Eliot HospitalGlan Clwyd District General HospitalGloucestershire Royal HospitalGood Hope HospitalGuy’s and St Thomas’ HospitalHarrogate District HospitalHinchingbrooke Hospital NHS TrustHomerton University HospitalHull Royal InfirmaryIpswich HospitalJames Paget University Hospitals TrustJersey General HospitalJohn Radcliffe HospitalKettering General HospitalKing’s College HospitalKing’s Mill HospitalLancashire Teaching HospitalsLeicester General HospitalLeicester Royal InfirmaryLincoln County HospitalLister HospitalManor Hospital - WalsallMedway Maritime HospitalMilton Keynes Hospital NHS Foundation TrustNevill Hall HospitalNew Cross HospitalNinewells Hospital & Medical SchoolNobles HospitalNorth Devon District HospitalNorth Manchester General HospitalNorthampton General HospitalNorthwick Park HospitalNottingham City HospitalPeterborough City HospitalPilgrim HospitalPoole HospitalPrince Charles HospitalPrincess Alexandra Hospital

Princess Anne HospitalPrincess Elizabeth HospitalPrincess of Wales HospitalPrincess Royal Hospital - Haywards HeathPrincess Royal Hospital - TelfordPrincess Royal Maternity HospitalQueen Alexandra HospitalQueen Charlotte’s and Chelsea HospitalQueen Elizabeth Hospital - GatesheadQueen Elizabeth Hospital - Kings LynnQueen Elizabeth Hospital - Woolwich, LondonQueen Elizabeth the Queen Mother HospitalQueen’s Hospital - Burton-on-TrentQueen’s Hospital - Romford, EssexQueen’s Medical CentreRaigmore HospitalRosie Maternity HospitalRoyal Albert Edward InfirmaryRoyal Alexandra HospitalRoyal Berkshire HospitalRoyal Bolton HospitalRoyal Cornwall HospitalRoyal Free HospitalRoyal Glamorgan HospitalRoyal Gwent HospitalRoyal Jubilee Maternity ServiceRoyal London HospitalRoyal Oldham HospitalRoyal Surrey County HospitalRoyal Sussex County HospitalRoyal United HospitalRoyal Victoria InfirmaryScarborough HospitalScunthorpe General HospitalSimpson Centre for Reproductive HealthSingleton HospitalSouth West Acute HospitalSouthend University Hospital NHS FTSouthern General HospitalSt George’s HospitalSt Helier HospitalSt James’s University HospitalSt John’s HospitalSt Mary’s Hospital - LondonSt Mary’s Hospital - ManchesterSt Mary’s Hospital - NewportSt Michael’s HospitalSt Richard’s HospitalStoke Mandeville HospitalTaunton and Somerset HospitalThe Great Western Hospitals NHS Foundation

TrustThe Hillingdon Hospitals NHS Foundation TrustThe Jessop WingThe Portland HospitalThe Tunbridge Wells HospitalTorbay HospitalUlster HospitalUniversity College HospitalUniversity Hospital LewishamUniversity Hospital of Coventry & WarwickshireUniversity Hospital of North TeesUniversity Hospital of WalesVictoria Hospital - BlackpoolVictoria Hospital - KirkcaldyWansbeck General HospitalWarrington and Halton Hospitals NHS FTWarwick HospitalWatford General HospitalWest Cumberland HospitalWest Middlesex University HospitalWest Suffolk HospitalWest Wales General HospitalWestern Isles Hospital

Whipps Cross University Trust HospitalWhiston HospitalWhittington HospitalWilliam Harvey HospitalWishaw General HospitalWorcestershire Royal HospitalWorthing HospitalWrexham Maelor HospitalWythenshawe HospitalYeovil Women’s HospitalYork HospitalYsbyty Gwynedd District General HospitalAiredale General HospitalAntrim HospitalAyrshire Maternity UnitBassetlaw District General HospitalChelsea & Westminster HospitalDerriford HospitalHereford County HospitalJames Cook University HospitalKingston HospitalLancashire Women and Newborn CentreLeeds General InfirmaryLeighton HospitalLuton & Dunstable HospitalMacclesfield District General HospitalNewham General HospitalNorfolk & Norwich University HospitalNorth Hampshire HospitalPinderfields General HospitalPrincess Royal University HospitalRotherham District General HospitalRoyal Devon & Exeter HospitalRoyal Hampshire County HospitalRussells Hall HospitalSouth Tyneside NHS Foundation TrustSouthmead HospitalSt Peter’s HospitalStepping Hill HospitalUniversity Hospital of North StaffordshireWexham Park HospitalNorth Middlesex University HospitalRoyal Free London NHS Foundation TrustUniversity Hospital of North DurhamEast Surrey HospitalFurness General HospitalLiverpool Women’s HospitalRoyal Lancaster InfirmarySalisbury District HospitalSouthport & Ormskirk Hospital NHS TrustTameside General Hospital

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Returned all three reports. Returned two reports. Returned one report. No reports returned.

Chocolates this month go to Beverley Pincher at Manor Hospital Walsall for assisting in the collection of delivery data after a

transfer and Karen Cutler from Poole Hospital for return of all outstanding reports.

Case report summary for current studies up until the end of June 2017

Disorder Actual number of reported cases

Data collection forms returned (%)

Expected number of confirmed cases

Amniotic Fluid Embolism 250 239 (96) 148

Breast Cancer 107 76 (71) 102

Epidural Haematoma or Abscess 22 19 (86) 7

Female Genital Mutilation 206 N/A 74

Seasonal Influenza 92 71 (77) 46

SHiP 20 20 (100) 21

Single Twin Demise 121 94 (78) 319

This month:

Changes to the UKOSS team

The newsletter goes digital

Read more onlineTo read this on your phone or to access our complete archive: Open the BARCODE READER APP* on your phone and scan the code here

*Search your app store for ‘qrcode’

Recently Finished Study: Single Twin Demise

The Single Twin Demise study has now ended. Please can all UKOSS reporters check that they have reported all cases. Please ensure that all outstanding data collection forms are returned as soon as possible. If you have any queries, please do not hesitate to contact the UKOSS team at

ukoss@npeu.ox.ac.uk

Recently Started Study: Cirrhosis in Pregnancy

A new study Cirrhosis in Pregnancy began collecting cases in June 2017. This will appear on reports until May 2018. For further information including the study protocol and definition please see the UKOSS website

https://www.npeu.ox.ac.uk/ukoss/current-surveillance/cirrhosis-in-pregnancy

GMC Revalidation and NMC Continuing Professional DevelopmentWe are aware that as part of your GMC revalidation or NMC Continuing Professional Development you are required to provide evidence of participation in national audit and research. If any UKOSS reporters would like to receive a certificate confirming their contribution to UKOSS, please email us at ukoss@npeu.ox.ac.uk and we will post one to you.

Cystic Fibrosis Genetic Screening QuestionnaireFollowing initial analysis of the Cystic Fibrosis data set the study leads have asked that all cases with unconfirmed genetic screening be reviewed. If you have reported such a case you will have recently received a letter containing instructions on how to confirm this data. If you have not already done so, please complete and return the associated form as soon as possible. If you have any issues please contact the UKOSS team at ukoss@npeu.ox.ac.uk

Admin team: 01865 289714

Email: UKOSS@npeu.ox.ac.uk Web: www.npeu.ox.ac.uk/UKOSS

Studies are additionally funded by Wellbeing of Women, National Institute for Academic Anaesthesia - OAA Grant, North Bristol Hospitals NHS Trust, Betsi Cadwaladr University Health Board (BCU HB) and NIHR HTA.

Vasa Praevia Formal Screening QuestionnaireIn May 2017 all reporters were emailed a link to a questionnaire concerning formal screening for Vasa Praevia. This data will be used as part of the analysis of the Vasa Praevia study conducted in 2014/2015. If you have not already done so please submit your answer to the questionnaire using the link provided.

New Members of the UKOSS Admin TeamSince the beginning of 2017 we have had two new members join the UKOSS admin team. Anna Balchan joined us at the beginning of the year as UKOSS administrative assistant and has been a great help around the office. We have now also been joined by Jennie Duffin who has taken on the role of Deputy Programme Manager and has been getting to grips with all the studies going on. Look out for both them when contacting the UKOSS Admin Team!