what’s health got to do with it? integrating education & health care transitions to achieve...
TRANSCRIPT
What’s Health Got to Do With It? Integrating
Education & Health Care Transitions to Achieve
Mutual Outcomes
APSE National ConferencePhiladelphia, PAJune 23, 2015
Let’s ChatTwitter: @WSPJ1
Text: 785-764-2472
Online: PAHJ44U9
What Happens to Youth When They Grow Up?Experience a variety of transitions:
School Adult Services
But did you know:
Pediatric Medical Care Adult Medical Care
Pediatric Specialty Care Adult Specialty Care
What is the Goal?
• Quality Adult Life• Health Care• Well-Being• Employment• Independent Living• Community Participation• Relationships
What are Your Experiences with Health Care Transition?
I am currently receiving pediatric medical care
I am currently receiving adult medical care
I am currently in the process of transitioning from pediatric to adult care
I am not currently transitioning but would like to
I would like more information about health care transition
Family
What is Health Care Transition?
Pediatrics Adult Care
HEALTHCARE TRANSITIONS…
PATIENT …
What is Often the Reality?
Family
Pediatrics
The Specialist
Adult Care
HEALTHCARE TRANSITIONS…
PATIENT
…
What is the Impact?
• Range of disparities in health outcomes• Reduced access to health care• More difficulty getting needed care• Poorer health outcomes
What Contributes to “the Gaps” in Transition?• No reimbursement for transition activities• Limited number of adult providers • Youth not considered to be “transition ready”• Lack of knowledge of pediatric and congenital conditions
How Many Youth with Special Health Care Needs Turn 18 Each Year? 100,000
250,000
500,000
750,000
1,000,000
Why is Health Care Transition Important?• 4.5 million youth with special health care needs• 65% of whom are moderately to severely affected• 750,000 of these youth turn 18 every year• Most live well into adulthood
Why Should We Think About Health?• Impacts everything we do• Influences school, work, and quality of life• Importance of access to insurance and medical care
What Often Happens?
Different Worlds
Different Perspectives
Different Models
Concept of Supports
Awareness of Best Practices
Expectations
So How Can We Connect the Two?
What Did Stakeholders Tell Us?
• Focus Groups• Interviews• Survey• Learning Collaborative
What Were the Common Themes?
Information & Education Tools & Resources
Interventions & Protocols
What are Critical Components in Transition?• Developing skills that are credible in adulthood
• Providing youth with access to people in the adult world
• Providing opportunities for youth to participate in the adult world
Transition Engagement Checklist A framework of “talking points” A “current status check” of key aspects of successful
transition
An “action plan” for addressing the skills and supports needed to enhance the adolescent’s self-determined
actions over time.
TRANSITION ENGAGEMENT CHECKLIST
TRANSITION ENGAGEMENT CHECKLIST [Continued]
TRANSITION ENGAGEMENT CHECKLIST [Continued]
Patient Interaction Tool
• Developed by youth with disabilities• Input regarding the type, number, and format of questions• Determined the most important and useful questions• Provides youth with a guide to start conversations
Adolescent Transitioning Clinic• Multi-disciplinary, day long • Comprehensive• Transition readiness• Self-determination• Education• Employment• Community organizations
“I hope…that other families will have this wonderful experience and to provide another young person the opportunity to use this great resource to assist them as they transition to the adult world. I highly recommend it! A++”
How Can I Participate?
• Field testing of the Transition Engagement Checklist
• Field Testing of the Patient Interaction Tool
• Provide input, comments, and feedback
• Stay connected
What Else Can I Do?• Get to know the medical community
• Share resources and what you can do
• Provide “patient summaries” (skills, communication, supports)
• Include health in your work
• Promote skills and experiences important for health care transition
Let’s Hear From You?• http://www.socrative.com
• Enter Teacher’s Room Code: PAHJ44U9
• Click on: Join Room
• Enter Your Name: _____________________
• Click on: Done
For more information, contact
Wendy [email protected](605)357-1468
Richard [email protected]
USD Center for Disabilities (www.usd.edu/cd)