who views on and commitments towards epilepsy tarun dua

WHO views on and commitments towards epilepsy

Tarun Dua

Epilepsy and WHO | 17 Oct 20082 |

Epilepsy: priority area for WHOEpilepsy: priority area for WHO

The past

The present

And the future………….


WHO Programme on Neurological Diseases and Neuroscience

WHO Programme on Neurological Diseases and Neuroscience

Emphasis on public health aspects

Comprehensive analysis of problem

Information on country resources and services

Technical guidance on prevention and management

Strengthen capacities of countries to improve neurological care

In collaboration with relevant stakeholders


Epilepsy: the factsEpilepsy: the facts

Epilepsy is the most common serious brain disorder

Epilepsy is one of oldest disorders known (epileptics seized by the gods or the devil)

People with epilepsy viewed with fear, suspicion and misunderstanding

People with epilepsy subject to horrendous stigma

Many people with epilepsy suffer in silence, afraid to be found out


Epilepsy: The FiguresEpilepsy: The Figures

250.000.000: one seizure in a life time

50.000.000: people with active epilepsy

42.500.000: PWE in developing countries

2.500.000: new cases each year

80% of aed’s sold in 20% of countries

70% pwe can be seizure free with treatment

80% not properly diagnosed, not treated


Epilepsy: The Global CampaignEpilepsy: The Global Campaign

1995 In WHO : revival activities + collaboration with neurology and neurosciences

Increased collaboration with NGO’s

Partnership between Professional (ILAE), Public/Patients (IBE) and Political (WHO) Organizations

(Dr. L.L.Prilipko + Prof. E.H. Reynolds)

WHO ILAE


“OUT OF THE SHADOWS”A Global Campaign against Epilepsy

“OUT OF THE SHADOWS”A Global Campaign against Epilepsy

The Partners:

The International League Against Epilepsy (ILAE)

The International Bureau for Epilepsy (IBE)

World Health Organization (WHO)


What is the Global Campaign? What is the Global Campaign?

Mission Statement

To improve the acceptability, treatment, services and prevention of epilepsy worldwide

The Strategy I. Provide platform for general

awareness

II. Assist Departments of Health in the development of National Epilepsy Strategy


GCAE: The ObjectivesGCAE: The Objectives

Increase public and professional awareness of epilepsy as a universal and treatable brain disorder

Raise epilepsy to a new plane of acceptability in the public domain

Promote public and professional education about epilepsy

Identify the needs of people with epilepsy at national and regional levels.

Encourage governments and departments of health, to address the needs of people with epilepsy including awareness, education, diagnosis, treatment, care, services and prevention


GCAE: The activitiesGCAE: The activities

Awareness and advocacy

Normative work

Information on country resources and services

Country projects


Regional ConferencesRegional Conferences

Goal: Develop and adopt Regional Declarations on Epilepsy

Participants: Delegates of national + international IBE/ILAEPublic health experts of governments + universitiesRepresentatives of Regional WHO + WHO HQ

Results: Between 1998-2003, conferences organized in all 6 WHO regions


Regional ReportsRegional Reports

Contents basic knowledge on epilepsy basic facts such as epidemiological burden

Results AFRO published 2005 AMRO published in 2008 EMRO in progress EURO (almost) ready for publication SEARO published 2005 WPRO published 2005


Epilepsy Atlas: ConclusionsEpilepsy Atlas: Conclusions

Facts and figures that are useful to promote greater awareness

of the need for action among planners and policy-makers

Available resources for epilepsy care are insufficient with large

inequities across regions and income groups of countries

Need for urgent, substantial and systematic aciton to enhance

reources for epilepsy care within countries


Has Project Atlas been useful?Has Project Atlas been useful?

Yes!

Generated awareness among health professionals to collect data about resources

It has been used extensively for advocacy especially in developing countries

Useful source of information for policy makers, academic professionals and public health experts

Helpful for monitoring of resources


Project on Global Burden of Epilepsy Project on Global Burden of Epilepsy

GBD 2005: systematic assessment of the data on all disease and injuries and produce comprehensive and comparable estimates of the burden of diseases, injuries and risk factors for two time periods, 1990 and 2005

Comprehensive estimates of the burden of disease due to

– Idiopathic epilepsy

– Secondary epilepsy

– Epilepsy as a risk factor

who views on and commitments towards epilepsy tarun dua

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