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Your Choices- Your LifeYou’ve Got the Power!
Advance Directives for Health Care
UIC Department of Disability and Human Development Equip for Equality’s Training Institute on Disability Rights
March 15, 2010 2
Choices You Make Everyday
What are some choices you make for yourself everyday?
UIC Department of Disability and Human Development Equip for Equality’s Training Institute on Disability Rights
March 15, 2010 3
Choices You Make Everyday
Why is it important to make your own choices?
UIC Department of Disability and Human Development Equip for Equality’s Training Institute on Disability Rights
March 15, 2010 4
Telling People About Your Choices
Have you told your family about an important choice you want to make?
What do you do when you disagree?
UIC Department of Disability and Human Development Equip for Equality’s Training Institute on Disability Rights
March 15, 2010 5
Difficult Choices
Is it difficult to make choices at these times?
When you are sick
In the hospital
Have an accident
Are unconscious
UIC Department of Disability and Human Development Equip for Equality’s Training Institute on Disability Rights
March 15, 2010 6
Advance Directives for Health Care
A way to make choices for yourself about health care and treatment ahead of time
Everything you want is written down
UIC Department of Disability and Human Development Equip for Equality’s Training Institute on Disability Rights
March 15, 2010 7
Advance Directives for Health Care
Everyone needs to follow your decisions, even if you can’t tell them at the time what you want
UIC Department of Disability and Human Development Equip for Equality’s Training Institute on Disability Rights
March 15, 2010 8
Advance Directives for Health Care
Four parts:
1. Health Care Agent
2.Treatment Preferences
3.Guardianship
4.Effectiveness and Signatures
UIC Department of Disability and Human Development Equip for Equality’s Training Institute on Disability Rights
March 15, 2010 9
Advance Directives for Health Care
There are many different forms you can use
Make sure what requirements you need for your form to be effective in your state– It lists those things on the form
UIC Department of Disability and Human Development Equip for Equality’s Training Institute on Disability Rights
March 15, 2010 10
Advance Directives for Health Care
Illinois forms: Living Will Power of Attorney for Health Care Mental Health Treatment Declaration DNR order- advance directive for giving
CPR
UIC Department of Disability and Human Development Equip for Equality’s Training Institute on Disability Rights
March 15, 2010 11
Advance Directives for Health Care
Tia discusses her advanced
directive
UIC Department of Disability and Human Development Equip for Equality’s Training Institute on Disability Rights
March 15, 2010 12
You Have the Right To:
1. Make changes at any time
2. Rip up or state you no longer want the
form to be used; write it down
3. Do a completely new form
UIC Department of Disability and Human Development Equip for Equality’s Training Institute on Disability Rights
March 15, 2010 13
Health Care Agent
You choose someone to make decisions for you when you cannot or do not want to make health care decisions for yourself
UIC Department of Disability and Human Development Equip for Equality’s Training Institute on Disability Rights
March 15, 2010 14
Health Care Agent
The person you choose can also make decisions for you after your death- such as choosing organ donation
UIC Department of Disability and Human Development Equip for Equality’s Training Institute on Disability Rights
March 15, 2010 15
People I Trust to Advocate for Me (Health Care Agent)
People I Trust to Take Care of Me (If I needed more supports)
Family I want Involved Friends I Can Talk to About How I Feel
UIC Department of Disability and Human Development Equip for Equality’s Training Institute on Disability Rights
March 15, 2010 16
Health Care Agent
Before you choose this person, talk to them about this important role and how they feel about being your agent
UIC Department of Disability and Human Development Equip for Equality’s Training Institute on Disability Rights
March 15, 2010 17
Treatment Preferences
This part lets you choose how you want to be treated if you have a terminal illness and/or you cannot communicate
UIC Department of Disability and Human Development Equip for Equality’s Training Institute on Disability Rights
March 15, 2010 18
Treatment Preferences
This part only becomes effective if you can’t communicate your wishes
UIC Department of Disability and Human Development Equip for Equality’s Training Institute on Disability Rights
March 15, 2010 19
Guardianship
This part lets you choose a person to be your guardian if you ever need one
UIC Department of Disability and Human Development Equip for Equality’s Training Institute on Disability Rights
March 15, 2010 20
The Guardian
This person could be the same person you selected to be your health care agent or someone different.
UIC Department of Disability and Human Development Equip for Equality’s Training Institute on Disability Rights
March 15, 2010 21
If You Already Have a Guardian
You can still do a Do-Not-Resuscitate (DNR) and/or Living Will Directive
– If your guardian signs the form with you
UIC Department of Disability and Human Development Equip for Equality’s Training Institute on Disability Rights
March 15, 2010 22
If You Already Have a Guardian
You cannot have a Power of Attorney if you already have a guardian
UIC Department of Disability and Human Development Equip for Equality’s Training Institute on Disability Rights
March 15, 2010 23
If You Already Have a Guardian
But, if you have a Power of Attorney in place before you get a guardian you may be able to keep the Power of Attorney for health care decisions
UIC Department of Disability and Human Development Equip for Equality’s Training Institute on Disability Rights
March 15, 2010 24
Effectiveness & Signatures
This part requires your signature and the signature of two witnesses
This part must be filled out so the form can be effective
UIC Department of Disability and Human Development Equip for Equality’s Training Institute on Disability Rights
March 15, 2010 25
Contact Us
Tia Nelis, UIC Department of Disability and Human Development; Rehabilitation Research & Training Center on Aging with Developmental DisabilitiesTel: 312-413-1284; E-mail: [email protected]
Rehabilitation Research & Training Center on Aging with Developmental DisabilitiesWebsite: http://www.rrtcadd.org
Stacy Yusim, Equip for EqualityTel: 800-537-2632; TTY: 800-610-2779; E-mail: [email protected]; Website: www.equipforequality.org
National Disability Resource Network (NDRN)E-mail: [email protected]; Website: http://ndrn.org; Phone: (202)-408-9514; Fax : (202)-408-9520; TTY: (202)- 408-9521