113526758 poster 050 assessing children young adults with special health care needs a survey of the...
TRANSCRIPT
Figure 1: Location of CMP Satellite Clinics
The “CYSHCN in MississippiParent/Guardian Survey”included 15 quantitative andqualitative items. The surveywas administered from August2010 to May 2011 at specialtysatellite clinics and BlakeClinic, a multidisciplinaryclinic. The parent/guardiancompleted a survey for eachchild/young adult who was
receiving CMP benefits.
The Children’s Medical Program (CMP), Mississippi’sTitle V Children and Youth with special healthcareneeds (CSHCN) program, provides care coordination andassists with access to specialty services for enrolledchildren at the public health district level. Theprevalence of children with special healthcare needs is15.1% nationally and 16.4% in Mississippi. Gaps inservices for children and youth with special health careneeds in Mississippi need to be identified. A survey toolwas developed for inquiry into parent/guardianconcerns.
BACKGROUND
Assessing Children/Young Adults with Special Health Care Needs: A Survey of the Parent/Guardian Perspective
Stephanie Ivy, MPH , Beryl W. Polk, PhD, MS, CPM , Jason Brown, MHSA1Mississippi Department of Finance and Administration 2Mississippi State Department of Health
METHODS
Evaluate utilization of health care and supportresources
Assess barriers to healthcare utilization
Assess parental satisfaction
OBJECTIVES
Understanding the needs of Mississippi’s CYSHCN is criticalin promoting positive health outcomes. Recommendat ionsfor future improvement of program services include:1) Evaluate the satellite clinic needs in each public
health district2) Increase knowledge and utilization of support services3) Collaborate with medical providers on the
development of a guide for transitioning adolescentsfrom pediatric to adult services
4) Expand and revise the survey based on current resultsand national data for future administration
Respondents were limited to patients enrolled in theChildren’s Medical Program and present for anappointment during the administration of the survey
Survey questions may have been misinterpreted
Two-hundred and twenty-five surveys werecompleted.
The mean age of the child/young adult was 10 yearsof age.
78% of the respondents had Medicaid/CHIP insurance
Respondents reported high levels of satisfaction and
communication regarding their child/young adult’shealthcare.
Clinic services were well utilized although the
child/young adult had to travel long distances to receivemedical care/treatment.
Medicaid was the primary payment source for health care
services; however, some respondents had issues withlimited coverage for needed services.
Most respondents reported that they were referred for
non-medical services, but some community-basedservices were not as well known or utilized.
Health Care Services Utilization
Patients visited Specialty Care Physicians (SCP) anaverage of six times per year, with an averagedistance of 71 miles between their home and SCP.
Primary care physician (PCP) visits occurred, onaverage, seven times per year, with an averagedistance of 16 miles to the PCP from the home.
On average, patients lived 14 miles from theirpharmacy and traveled there 10 times per year.
Health Care/Support Services and Communication
44% of respondents reported they didn’t know orweren’t sure about available support services.
95% of respondents reported satisfaction with theirinvolvement in making decisions with the healthcareteam.
Communication with the healthcare providers ratedat least good by 86% (very good-53%, good-33%).
RESULTS LIMITATIONS
Qualitative Perceptions
Parents/guardians provided comments on Medicaid,financial, and insurance coverage limitations,support and satisfaction related to staff/clinic,location/transportation issues, health status ofchild/young adult, and other concerns.
CONCLUSIONS
RECOMMENDATIONS