4results together association of university centers on disabilities

4Results Together4Results Together

Association of Association of University Centers University Centers

on Disabilitieson Disabilities


Association of Association of University Centers University Centers

on Disabilitieson Disabilities

FORGING NEW FORGING NEW PARTNERSHIPS:PARTNERSHIPS:

Making Them WorkMaking Them Work

FORGING NEW FORGING NEW PARTNERSHIPS:PARTNERSHIPS:

Making Them WorkMaking Them Work

LAYING THE GROUNDWORKLAYING THE GROUNDWORKLAYING THE GROUNDWORKLAYING THE GROUNDWORK


IRISH FABLEIRISH FABLEIRISH FABLEIRISH FABLE

A traveler stopped a A traveler stopped a farmer to ask farmer to ask directions to a town. directions to a town. The farmer replied: The farmer replied: “It’s only twenty “It’s only twenty miles, but I wouldn’t miles, but I wouldn’t start from here.”start from here.”

A traveler stopped a A traveler stopped a farmer to ask farmer to ask directions to a town. directions to a town. The farmer replied: The farmer replied: “It’s only twenty “It’s only twenty miles, but I wouldn’t miles, but I wouldn’t start from here.”start from here.”


NATIONAL NETWORKSNATIONAL NETWORKSNATIONAL NETWORKSNATIONAL NETWORKS

1.1. AUCD (Association of University AUCD (Association of University Centers on Disabilities)Centers on Disabilities)

2.2. 64 UCEDDs (University Centers for 64 UCEDDs (University Centers for Excellence in Developmental Disabilities Excellence in Developmental Disabilities Education, Research & Service)Education, Research & Service)

3.3. 35 LENDs (Leadership Education in 35 LENDs (Leadership Education in Neurodevelopmental and Related Neurodevelopmental and Related Disabilities)Disabilities)

4.4. 19 DDRCs Developmental Disabilities 19 DDRCs Developmental Disabilities Research CentersResearch Centers

1.1. AUCD (Association of University AUCD (Association of University Centers on Disabilities)Centers on Disabilities)

2.2. 64 UCEDDs (University Centers for 64 UCEDDs (University Centers for Excellence in Developmental Disabilities Excellence in Developmental Disabilities Education, Research & Service)Education, Research & Service)

3.3. 35 LENDs (Leadership Education in 35 LENDs (Leadership Education in Neurodevelopmental and Related Neurodevelopmental and Related Disabilities)Disabilities)

4.4. 19 DDRCs Developmental Disabilities 19 DDRCs Developmental Disabilities Research CentersResearch Centers


AUCDAUCDAUCDAUCD

1.1. Provides networking and information Provides networking and information sharing venues for the Centerssharing venues for the Centers

2.2. Manages, awards and monitors Manages, awards and monitors multiyear grants on RTOIs (with CDC)multiyear grants on RTOIs (with CDC)

3.3. Develop and test prototype Pediatric Develop and test prototype Pediatric Medical Units and expedited selection Medical Units and expedited selection process (with SSA)process (with SSA)

4.4. Operates a National Service Inclusion Operates a National Service Inclusion Project (with Boston UCEDD and Project (with Boston UCEDD and Corporation for National Community Corporation for National Community Service) to perform community serviceService) to perform community service

1.1. Provides networking and information Provides networking and information sharing venues for the Centerssharing venues for the Centers

2.2. Manages, awards and monitors Manages, awards and monitors multiyear grants on RTOIs (with CDC)multiyear grants on RTOIs (with CDC)

3.3. Develop and test prototype Pediatric Develop and test prototype Pediatric Medical Units and expedited selection Medical Units and expedited selection process (with SSA)process (with SSA)

4.4. Operates a National Service Inclusion Operates a National Service Inclusion Project (with Boston UCEDD and Project (with Boston UCEDD and Corporation for National Community Corporation for National Community Service) to perform community serviceService) to perform community service

Examples:


64 UCEDDs64 UCEDDs64 UCEDDs64 UCEDDs

1.1. Provide pre-service preparationProvide pre-service preparation2.2. Perform services: TA, community Perform services: TA, community

education, direct serviceseducation, direct services3.3. Engage in research and information Engage in research and information

disseminationdissemination4.4. Increase the independence, productivity Increase the independence, productivity

and community integration of and community integration of individuals with developmental individuals with developmental disabilitiesdisabilities

1.1. Provide pre-service preparationProvide pre-service preparation2.2. Perform services: TA, community Perform services: TA, community

education, direct serviceseducation, direct services3.3. Engage in research and information Engage in research and information

disseminationdissemination4.4. Increase the independence, productivity Increase the independence, productivity

and community integration of and community integration of individuals with developmental individuals with developmental disabilitiesdisabilities

Examples:


35 LENDs35 LENDs35 LENDs35 LENDs

1.1. Improve healthcare delivery system for Improve healthcare delivery system for children with developmental disabilitieschildren with developmental disabilities

2.2. Provide interdisciplinary education to Provide interdisciplinary education to health professionals which emphasizes health professionals which emphasizes service integrationservice integration

3.3. Provide health professionals with skills Provide health professionals with skills to foster community partnershipsto foster community partnerships

4.4. Promote innovative practice models that Promote innovative practice models that enhance cultural competency and enhance cultural competency and family-centered approaches to carefamily-centered approaches to care

1.1. Improve healthcare delivery system for Improve healthcare delivery system for children with developmental disabilitieschildren with developmental disabilities

2.2. Provide interdisciplinary education to Provide interdisciplinary education to health professionals which emphasizes health professionals which emphasizes service integrationservice integration

3.3. Provide health professionals with skills Provide health professionals with skills to foster community partnershipsto foster community partnerships

4.4. Promote innovative practice models that Promote innovative practice models that enhance cultural competency and enhance cultural competency and family-centered approaches to carefamily-centered approaches to care

Examples:


19 DDRCs19 DDRCs19 DDRCs19 DDRCs

1.1. Prevent and treat disabilities through Prevent and treat disabilities through biomedical and behavioral researchbiomedical and behavioral research

2.2. Conduct multidisciplinary and Conduct multidisciplinary and innovative research on developmental innovative research on developmental disabilitiesdisabilities

3.3. Train scientific investigators and Train scientific investigators and cliniciansclinicians

4.4. Seek solutions to practical issues and Seek solutions to practical issues and problemsproblems

1.1. Prevent and treat disabilities through Prevent and treat disabilities through biomedical and behavioral researchbiomedical and behavioral research

2.2. Conduct multidisciplinary and Conduct multidisciplinary and innovative research on developmental innovative research on developmental disabilitiesdisabilities

3.3. Train scientific investigators and Train scientific investigators and cliniciansclinicians

4.4. Seek solutions to practical issues and Seek solutions to practical issues and problemsproblems

Examples:


ISSUES FACING THE ISSUES FACING THE CENTERSCENTERS

ISSUES FACING THE ISSUES FACING THE CENTERSCENTERS

• Years of outstanding experience in doing Years of outstanding experience in doing outstanding workoutstanding work

• Need to nourish present partnerships while Need to nourish present partnerships while addressing changing needsaddressing changing needs

• Must stay relevantMust stay relevant• Contraction in traditional funding streamsContraction in traditional funding streams• Devolution of responsibility from Feds to Devolution of responsibility from Feds to

StatesStates• Changing demographics anad cultural Changing demographics anad cultural

relevancerelevance• Technological changesTechnological changes

• Years of outstanding experience in doing Years of outstanding experience in doing outstanding workoutstanding work

• Need to nourish present partnerships while Need to nourish present partnerships while addressing changing needsaddressing changing needs

• Must stay relevantMust stay relevant• Contraction in traditional funding streamsContraction in traditional funding streams• Devolution of responsibility from Feds to Devolution of responsibility from Feds to

StatesStates• Changing demographics anad cultural Changing demographics anad cultural

relevancerelevance• Technological changesTechnological changes


CURRENT AND NEEDED CURRENT AND NEEDED PARTNERSPARTNERS


1.1. Federal fundersFederal funders2.2. State fundersState funders3.3. State and local government State and local government

agenciesagencies4.4. Universities and collegesUniversities and colleges5.5. Departments of educationDepartments of education6.6. State and local health and social State and local health and social

service agenciesservice agencies

1.1. Federal fundersFederal funders2.2. State fundersState funders3.3. State and local government State and local government

agenciesagencies4.4. Universities and collegesUniversities and colleges5.5. Departments of educationDepartments of education6.6. State and local health and social State and local health and social

service agenciesservice agencies

#1#1#1#1




7.7. Advisory groupsAdvisory groups8.8. ConsumersConsumers9.9. State Medicare and Medicaid State Medicare and Medicaid

officesoffices10.10. Housing and transportation Housing and transportation

servicesservices11.11. Ethnic and minority advocacy Ethnic and minority advocacy

organizationsorganizations12.12. Business and philanthropyBusiness and philanthropy

7.7. Advisory groupsAdvisory groups8.8. ConsumersConsumers9.9. State Medicare and Medicaid State Medicare and Medicaid

officesoffices10.10. Housing and transportation Housing and transportation

servicesservices11.11. Ethnic and minority advocacy Ethnic and minority advocacy

organizationsorganizations12.12. Business and philanthropyBusiness and philanthropy

#2#2#2#2


The future ain’t The future ain’t what it used to be.what it used to be.

The future ain’t The future ain’t what it used to be.what it used to be.

””””

““““Yogi BerraYogi BerraYogi BerraYogi Berra


RESOURCESRESOURCESRESOURCESRESOURCES

From REVENUEFrom REVENUEFrom REVENUEFrom REVENUE

To RISK MANAGEMENTTo RISK MANAGEMENTTo RISK MANAGEMENTTo RISK MANAGEMENT


LEADERSHIP LEADERSHIP IMPLICATIONIMPLICATIONLEADERSHIP LEADERSHIP IMPLICATIONIMPLICATION

Promoting risk Promoting risk promotes the greatest promotes the greatest

number of number of opportunities.opportunities.

Promoting risk Promoting risk promotes the greatest promotes the greatest

number of number of opportunities.opportunities.

SIX STRATEGIESSIX STRATEGIESSIX STRATEGIESSIX STRATEGIES


Pay attention to the Pay attention to the

questions you need to questions you need to ask, not the answersask, not the answers

you want to hear.you want to hear.

Pay attention to the Pay attention to the questions you need to questions you need to ask, not the answersask, not the answers

you want to hear.you want to hear.

””””

““““Len HirschLen HirschLen HirschLen Hirsch


One:One: TAP PERSONAL TAP PERSONAL

ASSETSASSETS

One:One: TAP PERSONAL TAP PERSONAL

ASSETSASSETS


Curious things, habits. Curious things, habits.

People themselves People themselves never knew they had never knew they had

them.them.

Curious things, habits. Curious things, habits. People themselves People themselves

never knew they had never knew they had them.them.

””””

““““Agatha ChristyAgatha ChristyAgatha ChristyAgatha Christy


PASSION SOURCESPASSION SOURCESPASSION SOURCESPASSION SOURCES

• CUSTOMSCUSTOMS

• LANGUAGESLANGUAGES

• PREFERENCESPREFERENCESBegettingBegetting BecomingBecoming Being Being BequeathingBequeathing

• CUSTOMSCUSTOMS




PASSION SOURCESPASSION SOURCESPASSION SOURCESPASSION SOURCES

• CUSTOMSCUSTOMS



• CAPABILITIESCAPABILITIES

• CUSTOMSCUSTOMS



• CAPABILITIESCAPABILITIES


ASSETSASSETSASSETSASSETS

• AuthorityAuthority

• ConnectionsConnections

• ExpertiseExpertise

• FacilitationFacilitation

• PersonalityPersonality

• AuthorityAuthority

• ConnectionsConnections

• ExpertiseExpertise

• FacilitationFacilitation

• PersonalityPersonality

• ReputationReputation

• ResourcesResources

• RewardsRewards

• ReputationReputation

• ResourcesResources

• RewardsRewards

• ConfrontationConfrontation• ConfrontationConfrontation


CELEBRATECELEBRATECELEBRATECELEBRATE

Each person!Each person!

All steps!All steps!

Every success!Every success!

All the time!!All the time!!

Each person!Each person!

All steps!All steps!

Every success!Every success!

All the time!!All the time!!



Talk up Talk up the people involved the people involved

before talking about the before talking about the results to be achieved.results to be achieved.

Talk up Talk up the people involved the people involved

before talking about the before talking about the results to be achieved.results to be achieved.


Two:Two: INVOLVE ALL INVOLVE ALL

PEOPLEPEOPLE

Two:Two: INVOLVE ALL INVOLVE ALL

PEOPLEPEOPLE


Leadership springs up Leadership springs up

at the intersection of at the intersection of personal passions personal passions

and public problems.and public problems.

Leadership springs up Leadership springs up at the intersection of at the intersection of personal passions personal passions

and public problems.and public problems.

””””

““““Barbara Barbara CrosbyCrosbyBarbara Barbara CrosbyCrosby


Being a man or a woman Being a man or a woman

is a matter of birth. is a matter of birth. Making a difference Making a difference is a matter of choice.is a matter of choice.

Being a man or a woman Being a man or a woman is a matter of birth. is a matter of birth. Making a difference Making a difference is a matter of choice.is a matter of choice.

””””

““““Patricia Patricia Russell-Russell-McCloudMcCloud

Patricia Patricia Russell-Russell-McCloudMcCloud


INTENSITY OF INTENSITY OF RELATIONSHIPSRELATIONSHIPSINTENSITY OF INTENSITY OF RELATIONSHIPSRELATIONSHIPS

CooperationCooperationCooperationCooperation CoordinationCoordinationCoordinationCoordination CollaborationCollaborationCollaborationCollaboration


SELECTED SELECTED INVOLVEMENTINVOLVEMENTSELECTED SELECTED

INVOLVEMENTINVOLVEMENT

Core Core InitiationInitiationCore Core InitiationInitiationCollaborationCollaborationCollaborationCollaboration

CoordinationCoordinationCoordinationCoordination

CooperationCooperationCooperationCooperation

RIGHT LEVEL, RIGHT PLACE, RIGHT LEVEL, RIGHT PLACE, RIGHT TIME, RIGHT WORK RIGHT TIME, RIGHT WORK

== PARTNERSHIPPARTNERSHIP

RIGHT LEVEL, RIGHT PLACE, RIGHT LEVEL, RIGHT PLACE, RIGHT TIME, RIGHT WORK RIGHT TIME, RIGHT WORK

== PARTNERSHIPPARTNERSHIP



Involve people in Involve people in different ways: different ways:

the right people in the right people in the right place at the right place at

the right time doing the the right time doing the right work.right work.

Involve people in Involve people in different ways: different ways:

the right people in the right people in the right place at the right place at

the right time doing the the right time doing the right work.right work.


Three:Three: MAP RESULTS MAP RESULTS STRATEGIESSTRATEGIES

Three:Three: MAP RESULTS MAP RESULTS STRATEGIESSTRATEGIES


EVALUATIONEVALUATIONEVALUATIONEVALUATION

E = InE = In

EVALUATIONEVALUATION

VALUE = Valor/StrengthVALUE = Valor/Strength

Finding strength in what we do

Finding strength in what we do


STRATEGIC MAPSTRATEGIC MAPSTRATEGIC MAPSTRATEGIC MAP

Desired Desired End-PointEnd-PointDesired Desired End-PointEnd-Point


ROI: RETURN ON ROI: RETURN ON INVESTMENTINVESTMENT

ROI: RETURN ON ROI: RETURN ON INVESTMENTINVESTMENT

Obtain a Obtain a return return on our on our

investmentinvestment

Obtain a Obtain a return return on our on our

investmentinvestment



Keep the strategic map Keep the strategic map in front of everyone in front of everyone

at all times in all places. at all times in all places. It’s the glue that holds It’s the glue that holds

the collaboration the collaboration together.together.

Keep the strategic map Keep the strategic map in front of everyone in front of everyone

at all times in all places. at all times in all places. It’s the glue that holds It’s the glue that holds

the collaboration the collaboration together.together.


Four:Four: INCORPORATE INCORPORATE

SELF-INTERESTSSELF-INTERESTS

Four:Four: INCORPORATE INCORPORATE

SELF-INTERESTSSELF-INTERESTS


INCORPORATING SELF-INCORPORATING SELF-INTERESTSINTERESTS

INCORPORATING SELF-INCORPORATING SELF-INTERESTSINTERESTS

RESULTSRESULTS

Self-Interests

Self-Interests

Self-InterestsSelf-Interests


God protect me fromGod protect me from

self-interest self-interest masquerading masquerading

as moral principle.as moral principle.

God protect me fromGod protect me fromself-interest self-interest

masquerading masquerading as moral principle.as moral principle.

””””

““““Mark TwainMark TwainMark TwainMark Twain


Self-interest is Self-interest is

the prime mover the prime mover of people.of people.

Self-interest is Self-interest is the prime mover the prime mover

of people.of people.

””””

““““Saul AlinskySaul AlinskySaul AlinskySaul Alinsky


SELF-INTERESTSELF-INTERESTSELF-INTERESTSELF-INTEREST

Self-interest is not Self-interest is not good or bad. good or bad. It has to be It has to be

acknowledged, acknowledged, not denied.not denied.

Self-interest is not Self-interest is not good or bad. good or bad. It has to be It has to be

acknowledged, acknowledged, not denied.not denied.



Acknowledge and Acknowledge and incorporate incorporate

self-interests.self-interests.They are They are

powerful tools.powerful tools.

Acknowledge and Acknowledge and incorporate incorporate

self-interests.self-interests.They are They are

powerful tools.powerful tools.


Five:Five: IMPLEMENT IMPLEMENT STRATEGIC STRATEGIC

ACTIONSACTIONS

Five:Five: IMPLEMENT IMPLEMENT STRATEGIC STRATEGIC

ACTIONSACTIONS


EFFECTIVE MEETINGSEFFECTIVE MEETINGSEFFECTIVE MEETINGSEFFECTIVE MEETINGS

1.1. Know the Know the purposepurpose

2.2. Choose the Choose the facilitatorfacilitator

3.3. Set the stageSet the stage

4.4. Create the Create the contextcontext

5.5. Manage the Manage the informationinformation

1.1. Know the Know the purposepurpose

2.2. Choose the Choose the facilitatorfacilitator

3.3. Set the stageSet the stage

4.4. Create the Create the contextcontext

5.5. Manage the Manage the informationinformation

6.6. Set ground rulesSet ground rules

7.7. Focus the Focus the discussiondiscussion

8.8. Keep action Keep action minutesminutes

9.9. Evaluate and Evaluate and celebratecelebrate

10.10. End on timeEnd on time

6.6. Set ground rulesSet ground rules

7.7. Focus the Focus the discussiondiscussion

8.8. Keep action Keep action minutesminutes

9.9. Evaluate and Evaluate and celebratecelebrate

10.10. End on timeEnd on time


KEEP ACTION MINUTESKEEP ACTION MINUTESKEEP ACTION MINUTESKEEP ACTION MINUTES

1.1. AttendanceAttendance2.2. Decisions MadeDecisions Made3.3. Responsibilities TakenResponsibilities Taken4.4. Progress MadeProgress Made5.5. Purpose of Next MeetingPurpose of Next Meeting

1.1. AttendanceAttendance2.2. Decisions MadeDecisions Made3.3. Responsibilities TakenResponsibilities Taken4.4. Progress MadeProgress Made5.5. Purpose of Next MeetingPurpose of Next Meeting



Take action more Take action more quickly by planning quickly by planning

meetings and making meetings and making decisions more decisions more

carefully.carefully.

Take action more Take action more quickly by planning quickly by planning

meetings and making meetings and making decisions more decisions more

carefully.carefully.


Six:Six: ALIGN INDIVIDUAL ALIGN INDIVIDUAL RESPONSIBILITIESRESPONSIBILITIES

Six:Six: ALIGN INDIVIDUAL ALIGN INDIVIDUAL RESPONSIBILITIESRESPONSIBILITIES


TrustTrustTrustTrust

ConflicConflictt

ConflicConflictt

TRUST/CONFLICTTRUST/CONFLICTTRUST/CONFLICTTRUST/CONFLICT


≠≠

TRUST IS NOTTRUST IS NOTTRUST IS NOTTRUST IS NOT

LikingLiking

Being LikedBeing Liked

Getting My Own WayGetting My Own Way

LikingLiking

Being LikedBeing Liked

Getting My Own WayGetting My Own Way


==

TRUST ISTRUST ISTRUST ISTRUST IS

RELIANCE:RELIANCE: We’ll do what We’ll do what we say we’ll do, we say we’ll do, competentlycompetently

SUCCESS:SUCCESS: We’ll achieve We’ll achieve what we say we’ll what we say we’ll achieve, knowledgably achieve, knowledgably

RELIANCE:RELIANCE: We’ll do what We’ll do what we say we’ll do, we say we’ll do, competentlycompetently

SUCCESS:SUCCESS: We’ll achieve We’ll achieve what we say we’ll what we say we’ll achieve, knowledgably achieve, knowledgably


When the When the

elephants fight, elephants fight, the grass suffers.the grass suffers.

When the When the elephants fight, elephants fight,

the grass suffers.the grass suffers.

””””

““““Kikuyu PeopleKikuyu PeopleKikuyu PeopleKikuyu People


CONFLICTCONFLICTCONFLICTCONFLICT

The feet The feet are in are in

agreementagreementAfrican sayingAfrican saying

The feet The feet are in are in

agreementagreementAfrican sayingAfrican saying


Conflict is working Conflict is working

through a difference of through a difference of opinion. Fighting is the opinion. Fighting is the avoidance of conflict.avoidance of conflict.

Conflict is working Conflict is working through a difference of through a difference of opinion. Fighting is the opinion. Fighting is the avoidance of conflict.avoidance of conflict.

””””

““““Len HirschLen HirschLen HirschLen Hirsch


PERFORMANCE PERFORMANCE CHECKLISTCHECKLIST

PERFORMANCE PERFORMANCE CHECKLISTCHECKLIST

1. Personal assets tapped1. Personal assets tapped2. All people involved2. All people involved3. Results strategies mapped 3. Results strategies mapped 4. Self-interests incorporated4. Self-interests incorporated5. Strategic actions implemented5. Strategic actions implemented6. Individual responsibilities 6. Individual responsibilities

alignedaligned

1. Personal assets tapped1. Personal assets tapped2. All people involved2. All people involved3. Results strategies mapped 3. Results strategies mapped 4. Self-interests incorporated4. Self-interests incorporated5. Strategic actions implemented5. Strategic actions implemented6. Individual responsibilities 6. Individual responsibilities

alignedaligned



Build trust, encourage Build trust, encourage conflict and align roles.conflict and align roles.We are most effective in We are most effective in

our differences,our differences,not in our similarities.not in our similarities.

Build trust, encourage Build trust, encourage conflict and align roles.conflict and align roles.We are most effective in We are most effective in

our differences,our differences,not in our similarities.not in our similarities.

In the End is In the End is Our BeginningOur Beginning

In the End is In the End is Our BeginningOur Beginning

PERSEVERANCE AND PERSEVERANCE AND AUDACITY AUDACITY

GENERALLY WINGENERALLY WIN

PERSEVERANCE AND PERSEVERANCE AND AUDACITY AUDACITY

GENERALLY WINGENERALLY WIN

4results together association of university centers on disabilities

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