a national technical assistance system for ehdi programs
TRANSCRIPT
A National Technical Assistance System for EHDI Programs
Number of Hospitals Doing Universal Newborn Hearing Screening
3 3 11 26 60 120243
462
712
934
1384
0
200
400
600
800
1000
1200
1400
Nu
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Status of Universal Newborn Hearing Screeningin the United States
.
.Percentage of Births
Screened
90%+
21 - 50%1 - 20%
3
51 - 90%
Tremendous Progress During the Last Decade
• Less than 30 hospitals with UNHS in 1993; compared with almost 1400 in May of 2000
• 2 million babies are screened every year prior to discharge
• 33 states have passed newborn hearing screening legislation
• The federal government is providing financial support to encourage expansion
The Other Side of the Coin . . . .
• 2,800 hospitals are not yet screening for hearing loss
• 2 million babies are NOT screened every year prior to discharge
• Many states which have passed legislation have not yet implemented it completely
• Only 9 states (accounting for 7% of the births) have implemented reasonable state-wide programs
Status of EHDI Programs in the United States
• Universal Newborn Hearing Screening
• Effective Tracking and Follow-up as a part of the Public Health System
• Appropriate and Timely Diagnosis of the Hearing Loss
• Prompt Enrollment in Appropriate Early Intervention
• A Medical Home for all Newborns
• Culturally Competent Family Support
• Elimination of geographic and financial barriers to service access
Efforts by the Federal Government toPromote Early Identification of Hearing Loss
• Federal funding for research and program development
• NIH Consensus Development Conference in 1993
• Consortium for Universal Newborn Hearing Screening funded in 1993
• Marion Downs National Center for Infant Hearing Established in 1996
• National EHDI Technical Assistance System Established in 2000
Goal of the National EHDI Technical Assistance System
• Every child born with a hearing loss will be identified before 3 months of age and provided with timely and appropriate early intervention before 6 months of age
• Every family of an infant with hearing loss will receive culturally competent family support as desired
• All newborns will have a medical home
• State will have tracking and data management systems which are linked to appropriate public health information systems
National EHDI Technical Assistance System
• EHDI Network members located in each of ten geographic regions
Region I(38% currently bornin UNHS hospitals)
Antonia MaxonB
Region IV(46% currently bornin UNHS hospitals)
Faye McCollister
Region III(49% currently bornin UNHS hospitals)
Sean Kastetter
Region VI(38% currently born in UNHS hospitals)
Karen DittyPatti Martin
Region VII(33% currently bornin UNHS hospitals)
Les Schmeltz
Region IX(23% currently bornin UNHS hospitals)
Randi WinstonYusnita Weirather
Region II(16% currently bornin UNHS hospitals)
Beth Prieve
Region V(26% currently bornin UNHS hospitals)
Karen Munoz
Region X(21% currently bornin UNHS hospitals)
Curt Whitcomb
Region VIII(91% currently bornin UNHS hospitals)
Terry Foust
National EHDI Assistance Network
-
VIII
IX
VII
VI
V
IV
III
II
I
X
Guam, American Samoa,Marshall Islands, Palau,
No. Mariana Islands,Fed. Micronesia
Puerto RicoVirgin Islands
= indicates the locations of MCHB Regional Offices
Examples of Network Activities
• Training of Trainers Workshop (October 2000)
• Individualized TA with state EHDI programs
• NEC*TAS Webcast for Part C Programs
• MCHB Grant Assistance Workshop May 2001
• Regional workshops on Diagnostic ABR (planned for Oct 2001)
Regional Workshops on Audiological Diagnosis
• First year will focus on diagnostic ABR (subsequent years on behavioral techniques and hearing aid fitting)
• Online materials for mastery learning prior to workshops
• Hands-on small group workshop
• Supervised practicum in local area following workshop
National EHDI Technical Assistance System (continued)
• EHDI Network members located in each of the MCHB regions
• Information dissemination and training
Support for Program Implementation
• Step-by-step Implementation Guide
• Distributed by MCHB to all birthing facilities in the US
• Down load from the web at www.infanthearing.org
• Linked to examples of materials from existing programs
Contents of Implementation Guide
• Enlisting support
• Determining a protocol
• Dealing with procedural issues
• Communicating with parents, physicians, etc.
• Training screeners
• Keeping referral rates low
• Managing data and follow-up
• Financing the program
• Reporting
• Completing diagnostics
• Coordinating with state systems
Sound Ideas Newsletter
• Published Quarterly
• Topical articles, suggestions for program improvement
• Upcoming events
• Available online or mailed
National EHDI Technical Assistance System (continued)
• EHDI Network members located in each of the MCHB regions
• Information dissemination and training
• Web site (www.infanthearing.org)
National EHDI Technical Assistance System (continued)
• EHDI Network members located in each of the MCHB regions
• Information dissemination and training
• Web site (www.infanthearing.org)
• Collaboration with other groups and agencies
National EHDI Technical Assistance System (continued)
• Groups actively promoting and assisting with EHDI activities– AG Bell, NCHH, ASHA, AAA, JCIH, AAP, ASDC
• Relevant groups whose main focus is elsewhere– MCHB Regional Staff, SKI-HI, NEC*TAS, Early Head
Start, 0-3, Family Voices, NCCC, KidsNET, STC, AMCHP, AHEC
Collaboration with Other Groups and Agencies