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A User-Centred Approach to Designing an eTool for Gout Management Anna FERNON a , Amy NGUYEN a,b , Melissa BAYSARI c and Richard DAY a,b a University of New South Wales, Australia b St Vincent’s Hospital, Darlinghurst c Centre for Health Systems & Safety Research, Macquarie University Abstract. Introduction: Gout is a chronic inflammatory arthritis with increasing prevalence in Australia and rates of non-adherence to therapy higher than for any other chronic disease. Electronic health interventions can increase adherence to treatment for many chronic diseases. This study set out to involve end-user patients in the design of a gout self-management eTool. Methods: Four semi- structured focus group sessions were held in July and August 2015 with 13 patients with gout (age range 39-79 years). Focus groups involved group discussions of potential eTool features and critiquing disease self-management websites and applications. Focus group sessions were audio-taped, transcribed and analysed by two independent researchers to identify useful eTool features and patient perspectives of using technology to manage their health. Findings: Participants were open to using a supportive gout self-management eTool and identified a number of potentially helpful features, including educational material, serum uric acid monitoring and medication reminder alerts. Discussion: Focus groups with patients with gout revealed a number of features that should be included in a gout self-management eTool. These results will inform the design and implementation of an eTool for patients with gout and may be broadly applicable to teams designing eTools for other chronic diseases. Keywords. Gout, electronic health, eTool, app, user-centred design Introduction Gout is a chronic inflammatory arthritis with increasing prevalence in Australia[1]. Gout is caused by the deposition of monosodium urate crystals in joints and other tissues in the presence of persistent hyperuricaemia. It is characterised by acute inflammatory attacks causing severe pain, impaired function and ultimately, with recurrent acute attacks, joint erosion and other organ damage[2]. Managing Gout Guidelines for the diagnosis and management of gout are readily available[3]. It is known that gout can be essentially cured with adherence to an appropriate urate lowering therapy protocol[2]. However, urate lowering therapy is often not taken in accordance with evidence-based guidelines and rates of non-adherence to chronic gout medications are higher than for any other chronic disease[4-6]. Self-management strategies have been shown to be effective in increasing adherence to gout therapy and providing curative gout treatment[5, 7, 8]. Digital Health Innovation for Consumers, Clinicians, Connectivity and Community A. Georgiou et al. (Eds.) © 2016 The authors and IOS Press. This article is published online with Open Access by IOS Press and distributed under the terms of the Creative Commons Attribution Non-Commercial License 4.0 (CC BY-NC 4.0). doi:10.3233/978-1-61499-666-8-28 28

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Page 1: A User-Centred Approach to Designing an eTool for … › files › 62426667 › Publisher...A User-Centred Approach to Designing an eTool for Gout Management Anna FERNONa, Amy NGUYENa,b,

A User-Centred Approach to Designing an

eTool for Gout Management

Anna FERNONa, Amy NGUYENa,b, Melissa BAYSARIc and Richard DAYa,b a

University of New South Wales, Australia b

St Vincent’s Hospital, Darlinghurst c

Centre for Health Systems & Safety Research, Macquarie University

Abstract. Introduction: Gout is a chronic inflammatory arthritis with increasing

prevalence in Australia and rates of non-adherence to therapy higher than for any

other chronic disease. Electronic health interventions can increase adherence to

treatment for many chronic diseases. This study set out to involve end-user

patients in the design of a gout self-management eTool. Methods: Four semi-

structured focus group sessions were held in July and August 2015 with 13

patients with gout (age range 39-79 years). Focus groups involved group

discussions of potential eTool features and critiquing disease self-management

websites and applications. Focus group sessions were audio-taped, transcribed and

analysed by two independent researchers to identify useful eTool features and

patient perspectives of using technology to manage their health. Findings:

Participants were open to using a supportive gout self-management eTool and

identified a number of potentially helpful features, including educational material,

serum uric acid monitoring and medication reminder alerts. Discussion: Focus

groups with patients with gout revealed a number of features that should be

included in a gout self-management eTool. These results will inform the design

and implementation of an eTool for patients with gout and may be broadly

applicable to teams designing eTools for other chronic diseases.

Keywords. Gout, electronic health, eTool, app, user-centred design

Introduction

Gout is a chronic inflammatory arthritis with increasing prevalence in Australia[1].

Gout is caused by the deposition of monosodium urate crystals in joints and other

tissues in the presence of persistent hyperuricaemia. It is characterised by acute

inflammatory attacks causing severe pain, impaired function and ultimately, with

recurrent acute attacks, joint erosion and other organ damage[2].

Managing Gout

Guidelines for the diagnosis and management of gout are readily available[3]. It is

known that gout can be essentially cured with adherence to an appropriate urate

lowering therapy protocol[2]. However, urate lowering therapy is often not taken in

accordance with evidence-based guidelines and rates of non-adherence to chronic gout

medications are higher than for any other chronic disease[4-6]. Self-management

strategies have been shown to be effective in increasing adherence to gout therapy and

providing curative gout treatment[5, 7, 8].

Digital Health Innovation for Consumers, Clinicians, Connectivity and CommunityA. Georgiou et al. (Eds.)

© 2016 The authors and IOS Press.This article is published online with Open Access by IOS Press and distributed under the terms

of the Creative Commons Attribution Non-Commercial License 4.0 (CC BY-NC 4.0).doi:10.3233/978-1-61499-666-8-28

28

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Utilising Electronic Health for Gout Self-Management

A range of novel technology-based interventions are being developed as a socially and

economically viable way to increase patient self-management and adherence to

treatment[9]. Mobile applications (apps) have been shown to be effective in improving

diet, education, access to care, medication use, physical activity and weight in the

management of arthritis and pain[10, 11]. As gout is a chronic arthritis characterised by

episodes of pain, it seems likely that an electronic tool (eTool), such as an app or

website, may be effective in augmenting gout management. However, in designing

such a tool, it is pertinent that patients and physicians are involved in mobile health app

development to ensure that the developed tools are useful and user friendly[12, 13].

Research Questions

Do patients with gout believe they would benefit from the use of a self-management

eTool? What do patients with gout think this eTool should look like?

1. Methods

1.1. Focus Group Development

Focus group questions were developed with input from a rheumatologist, health

services researchers and a medical student. Questions related to how participants

managed gout, how they used technology to manage their overall health and their

preferences on design concepts and potential features. A pilot focus group was

conducted with volunteers who did not have gout to ensure that the questions were

easily understandable and encouraged a natural flow of conversation.

1.2. Recruitment

One hundred and twenty six patients with gout known to us by their GP or

rheumatologist were invited to participate. Participants were excluded from the study if

they were cognitively impaired or were not fluent in spoken English.

1.3. Participants

Thirteen patients with gout participated in the focus groups. This included 11 men and

two women. The mean age of participants was 60 years, the median age was 63 years

and the age range was 39-79 years. Ten participants reported owning a smartphone, 10

reported using a computer to access the Internet multiple times a day and one reported

rarely using computers. The highest level of education completed ranged from primary

school (n=2) to postgraduate study (n=2).

1.4. Procedure

Four semi-structured focus group sessions (with 3-4 participants each) were held in

July and August 2015. A one-page questionnaire was used to collect basic demographic

A. Fernon et al. / A User-Centred Approach to Designing an eTool for Gout Management 29

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information. Each focus group session was moderated by a medical student with the

support of a senior researcher. The focus group sessions involved a group discussion,

an educational presentation about gout by the moderator, and an opportunity for each

participant to use iPads to view six existing gout management apps and one beta web-

app called Healthy.me developed by the Centre for Health Informatics, Macquarie

University. The sessions ranged from 90 minutes to two hours in duration.

1.5. Analysis

The focus group sessions were audio-taped, transcribed and de-identified. The

transcripts were analysed by two independent researchers who coded text segments for

potential themes concerning how patients self-manage their gout, use of technology,

and what features they perceived as useful in an eTool. The two researchers met to

discuss themes, came to an agreement on any discrepancies in theme extraction, and

created a framework of themes[13, 14]. Potential features that were idiosyncratic to a

small number of participants were excluded during data analysis. As the coding

framework developed, transcripts were re-analysed in light of emerging themes.

1.6. Ethics

Ethics approval for this research study was gained from UNSW Human Research

Ethics Advisory Panel, reference number 2014-7-10.

2. Findings

Focus group participants were open to the idea of using a gout self-management eTool.

Participants generally held the attitude, “I don’t use any apps for health stuff at the

moment but I’m very open to doing, to doing that if they can help.

2.1. eTool Features

Participants discussed potential eTool features that they believed would be helpful,

shown in Table 1.

2.2. Scope and Role of the eTool

All participants agreed that an eTool to assist management of all co-morbidities would

be more useful than an eTool specifically for gout self-management and that having

separate eTools for each comorbidity could lead to disuse. One participant said, “If you

had one for gout, one for this, one for all the conditions, right, I’d be up to seven or

eight applications… I wouldn’t use them.” (P5) Participants reported they would use an

eTool as a portable health record to facilitate giving an accurate medical history. For

example, a participant said, “What I would find useful would be an app…to have

access to your history to show to a doctor if it’s a new doctor or you have to see

somewhere.” (P6)

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Table 1. Useful eTool features for patients with gout

Feature Supporting Quote Additional

Information

Supporting Quote

Education “This would have been great when I

was having my first attack because I

really didn’t know anything about it.” –

P7

Include

lifestyle

advice

“One of the biggest things

with me, with my

condition, was my weight

and one of the things to

help me was to try to

reduce a lot of weight…

promoting weight loss…I

think is a big thing.” – P2

Use of

images

“You want some images.

Understand a lot of people

prefer to see the image.” –

P3

Serum urate

monitoring

“If I have a continuous graph of my

levels and I know that I can see that

here I had a gout attack then I’d make

sure I do something about that level.” –

P6

Results

interpreted

for patients

“It’s good to input all that

information but then how

do you assess it, how’s it

then formatted or table-

ised to then show you

where you’re at, what

you’ve got to get to sort of

thing?” – P2

Medication

reminder alerts

“It would be nice if there was a little,

‘Would you like a reminder? What time

would you like your reminder?’ And

then, and then you go, ‘Oh, ok,’ and

then it automatically links up to your

notifications of some sort, and it goes,

‘Hey, don’t forget to take your tablets.’

And you go, ‘Ah, thanks mate.’” – P1

A persistent

notification

may be more

useful

“An alarm alone would

not help… but a persistent

notification should be

available, should be

generated if you haven’t,

let’s say, acted upon the

alarm.” – P6

Record acute

gout attacks

“That would be good for a person

having an initial gout attack because

they don’t know how it affects them so

they can write it all down and take it to

their doctor to work out the

medication.” – P5

Contact details

of health

providers

“When you go to hospital, as far as I

know, they say who’s your heart doctor,

who’s your this doctor, who’s your that

doctor. Geez, what’s his name again? I

only saw him last week. Because my

memory is shit so that kind of thing

would be handy, yes, for me anyway.”

– P12

Gout research

updates

“If there’s an app that, I don’t know,

once a month or once every three

months or something, that brings out

possible new measures to deal with

gout, either medically or exercise or

diet or whatever, that would be useful.”

–P7

Key: P = Participant

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2.3. Barriers to eTool Uptake

Many participants in our focus groups lacked awareness of eTools for gout and eTools

in general. Statements to the effect of, “I didn’t even know they exist,” and, “I wouldn’t

think of it,” were expressed by most participants. Most participants were also

unfamiliar with technology, with a participant stating, “I just don’t feel comfortable

using technology.” (P10) Some participants felt this was a common problem for older

people, saying, “You’re lucky there’s only one person here who really knows, in the

older generation, who really knows about computers... I think there’s only about one in

ten, because a lot of my friends, they’re not interested in computers either.” (P9)

3. Discussion

Involving end-users in the eTool design process has been widely called for in the

literature[12, 13]. This study collected end-user opinions to enable the user-centred

design of a future gout self-management eTool. Our results reveal that overall patients

with gout feel they would benefit from the development and use of such a tool. The

direction towards integrated electronic health records, such as the MyHealth record, is

supported by these results. Participants in this study are in part calling for something

akin to the MyHealth record in recommending that an eTool should incorporate

features to support self-management of multiple co-morbidities. Although not raised as

a concern in our study, patients may have security concerns relating to the use of the

MyHealth record[15] and this will be further explored when developing our eTool.

Many of the features that participants felt would be useful to their gout self-

management have been shown to be effective in apps for managing rheumatic diseases

other than gout[11]. The main barriers to using such an eTool are lack of awareness

that such tools are available and a lack of familiarity with requisite technology.

3.1. Limitations

The response rate was low, with only 13 patients participating of the 126 invited.

Although the number of participants was small, theme saturation was achieved

following 4 focus groups. That is, participants recommended the inclusion of the same

features. Some patients reported a lack of interest in using technology as a reason for

declining to participate which may have contributed to a selection bias where focus

group participants may have been more interested in eTools than the wider gout patient

population. This phenomenon will be explored further in future research.

3.2. Future Directions

The results of this study will inform the design of an eTool for patients with gout but

may also be broadly applicable to research in designing eTools for other chronic

diseases. Based on end-user recommendations, the eTool we develop should be

compatible across multiple platforms and ideally would communicate with existing

electronic health infrastructure, such as the MyHealth record. Usability testing will be

undertaken as an objective way of evaluating the design and addressing any potential

A. Fernon et al. / A User-Centred Approach to Designing an eTool for Gout Management32

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user-related issues before wider dissemination of the eTool. A large randomised

controlled trial examining the effectiveness of the eTool is also planned.

References

[1] P.C. Robinson, W.J. Taylor, T.R. Merriman, Systematic review of the prevalence of gout and

hyperuricaemia in Australia. Internal Medicine Journal 42(9) (2012), 997-1007.

[2] F. Perez-Ruiz, Treating to target: a strategy to cure gout. Rheumatology 48(suppl 2) (2009), ii9-ii14.

[3] D. Khanna, J.C. Fitzgerald, P.P Khanna, S. Bae, M.K. Singh, T. Neogi, et al., American College of

Rheumatology guidelines for management of gout. Part 1: Systematic nonpharmacologic and

pharmacologic therapeutic approaches to hyperuricaemia. Arthritis Care & Research 64(10) (2012),

1431-46.

[4] L.R. Harrold, S.E. Andrade, B. Briesacher, M.A. Raebel, H. Fouayzi, R.A. Yood et al., The Dynamics

of Chronic Gout Treatment: Medication Gaps and Return to Therapy. The American Journal of

Medicine 123(1) (2010), 54-9.

[5] F. Rees, W. Jenkins, M. Doherty, Patients with gout adhere to curative treatment if informed

appropriately: proof-of-concept observational study. Annals of the Rheumatic Disease 72(6) (2013),

826-30.

[6] L. Silva, E. Miguel, D. Peiteado, A. Villalba, M. Mola, J. Pinto, et al., Compliance in gout patients.

Acta reumatologica portuguesa 35(5) (2009), 466-74.

[7] N. Martini, L. Bryant, L. Te Karu, L. Aho, R. Chan, J. Miao, et al., Living with gout in New Zealand:

an exploratory study into people’s knowledge about the disease and its treatment. Journal of Clinical

Rheumatology 18(2) (2012), 125-9.

[8] J. Barlow, C. Wright, J. Sheasby, A. Turner, J. Hainsworth, Self-management approaches for people

with chronic conditions: a review. Patient Education and Counseling 48(2) (2002), 177-8.

[9] M.D. Iversen, M.E. Connors, M.R. Menapace, A.J. Samson, E. Tessitore, Technology applications to

improve health outcomes and self-management in patients with arthritis. International Journal of

Clinical Rheumatology 9(5) (2014), 487-504.

[10] R. de la Vega, J. Miró, mHealth: a strategic field without a solid scientific soul. A systematic review of

pain-related apps. PloS one 9(7) (2014), e101312.

[11] A.R. Pereira Azevedo, H.M. Lopes de Sousa, J.A. Faria Monteiro, A.R.N. Pereira Lima, Future

perspectives of Smartphone applications for rheumatic diseases self-management. Rheumatology

International 35(3) (2015), 419-31.

[12] M. Arnhold, M. Quade, W. Kirch, Mobile applications for diabetes: a systematic review and expert-

based usability evaluation considering the special requirements of diabetic patients age 50 years or

older. Journal of Medical Internet Research [Internet] 16(4) (2014), e104

[13] T. McCurdie, S. Taneva, M. Casselman, M. Yeung, C. McDaniel, W. Ho, et al., mHealth consumer

apps: the case for user-centered design. Biomedical Instrumentation & Technology 46(s2) (2012), 49-

56

[14] K. Moen, A-L. Middlethon, Qualitative Research Methods, Research in Medical and Biological

Sciences: From Planning and Preparation to Grant Application and Publication (2015) 321

[15] E.C. Lehnbom, A.J. McLachlan, E.B. Jo-anne, Health Informatics: Building a Healthcare Future

Through Trusted Information. A qualitative study of Australians’ opinions about personally controlled

electronic health records, IOS Press, HIC, 2012.

A. Fernon et al. / A User-Centred Approach to Designing an eTool for Gout Management 33

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DIGITAL HEALTH INNOVATION FOR CONSUMERS,

CLINICIANS, CONNECTIVITY AND COMMUNITY

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Studies in Health Technology and

Informatics

This book series was started in 1990 to promote research conducted under the auspices of the EC

programmes’ Advanced Informatics in Medicine (AIM) and Biomedical and Health Research

(BHR) bioengineering branch. A driving aspect of international health informatics is that

telecommunication technology, rehabilitative technology, intelligent home technology and many

other components are moving together and form one integrated world of information and

communication media. The series has been accepted by MEDLINE/PubMed, SciVerse Scopus,

EMCare, Book Citation Index – Science and Thomson Reuters’ Conference Proceedings Citation

Index.

Series Editors:

Dr. O. Bodenreider, Dr. J.P. Christensen, Prof. G. de Moor, Prof. A. Famili, Dr. U. Fors,

Prof. A. Hasman, Prof. E.J.S. Hovenga, Prof. L. Hunter, Dr. I. Iakovidis, Dr. Z. Kolitsi,

Mr. O. Le Dour, Dr. A. Lymberis, Prof. J. Mantas, Prof. M.A. Musen, Prof. P.F. Niederer,

Prof. A. Pedotti, Prof. O. Rienhoff, Prof. F.H. Roger France, Dr. N. Rossing,

Prof. N. Saranummi, Dr. E.R. Siegel, Prof. T. Solomonides and Dr. P. Wilson

Volume 227

Recently published in this series

Vol. 226 J. Mantas, A. Hasman, P. Gallos, A. Kolokathi and M.S. Househ (Eds.), Unifying the

Applications and Foundations of Biomedical and Health Informatics

Vol. 225 W. Sermeus, P.M. Procter and P. Weber (Eds.), Nursing Informatics 2016 – eHealth

for All: Every Level Collaboration – From Project to Realization

Vol. 224. N. Maglaveras and E. Gizeli (Eds.), pHealth 2016 – Proceedings of the 13th

International Conference on Wearable Micro and Nano Technologies for

Personalised Health, 29–31 May 2016, Heraklion, Crete, Greece

Vol. 223. G. Schreier, E. Ammenwerth, A. Hörbst and D. Hayn (Eds.), Health Informatics

Meets eHealth – Predictive Modeling in Healthcare – From Prediction to Prevention –

Proceedings of the 10th eHealth2016 Conference

Vol. 222. E. Ammenwerth and M. Rigby (Eds.), Evidence-Based Health Informatics –

Promoting Safety and Efficiency Through Scientific Methods and Ethical Policy

Vol. 221. J. Hofdijk, B. Séroussi, C. Lovis, F. Ehrler, F. Sieverink, A. Ugon and M. Hercigonja-

Szekeres (Eds.), Transforming Healthcare with the Internet of Things – Proceedings

of the EFMI Special Topic Conference 2016

Vol. 220. J.D. Westwood, S.W. Westwood, L. Felländer-Tsai, C.M. Fidopiastis, A. Liu,

S. Senger and K.G. Vosburgh (Eds.), Medicine Meets Virtual Reality 22 –

NextMed/MMVR22

Vol. 219. B.K. Wiederhold, G. Riva and M.D. Wiederhold (Eds.), Annual Review of

Cybertherapy and Telemedicine 2015 – Virtual Reality in Healthcare: Medical

Simulation and Experiential Interface

ISSN 0926-9630 (print)

ISSN 1879-8365 (online)

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Digital Health Innovation for

Consumers, Clinicians, Connectivity

and Community

Selected Papers from the 24th Australian National Health

Informatics Conference (HIC 2016)

Edited by

Andrew Georgiou

Centre for Health Systems and Safety Research, Australian Institute of Health

Innovation, Macquarie University, Sydney, Australia

Louise K. Schaper

Health Informatics Society of Australia, Melbourne, Australia

and

Sue Whetton

School of Health Sciences, Faculty of Health, University of Tasmania,

Launceston, Australia

Amsterdam • Berlin • Washington, DC

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© 2016 The authors and IOS Press.

This book is published online with Open Access and distributed under the terms of the Creative

Commons Attribution Non-Commercial License 4.0 (CC BY-NC 4.0).

ISBN 978-1-61499-665-1 (print)

ISBN 978-1-61499-666-8 (online)

Library of Congress Control Number: 2016946388

Publisher

IOS Press BV

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fax: +31 20 687 0019

e-mail: [email protected]

Distributor in the USA and Canada

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LEGAL NOTICE

The publisher is not responsible for the use which might be made of the following information.

PRINTED IN THE NETHERLANDS

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Preface

There’s never been a more exciting time to be involved with health informatics. In the

last few decades, health informaticians have established the knowledge base and prac-

tical expertise to facilitate the development of ever-more capable technical systems,

increasing connectivity, expanding access and greater mobility of e-health and infor-

mation management systems. We have seen the evolution from simple computer based

records to systems that allow intra-organisational, national, even international commu-

nication and information exchange. We have also seen progress in e-health and most

recently m-health, facilitating access to information and advice almost anytime, any-

where. The health informatics community is now building on this strong foundation,

taking a central role in the digital transformation of the healthcare sector. The Australi-

an National Health Informatics Conference (HIC), Australia’s premier health informat-

ics event, is a key avenue for facilitating this transformation. This Conference, organ-

ised by the Health Informatics Society of Australia (HISA), with the support of the

Australasian College of Health Informatics (ACHI), provides the ideal professional and

social environment for clinicians, researchers, health IT professionals, industry and

consumers to integrate, educate and share their knowledge to drive innovative thinking,

to enhance services and allow greater consumer involvement. This is emphasised in the

primary theme of the 2016 Conference: Digital Health Innovation for Consumers, Cli-

nicians, Connectivity, Community.

The papers in this volume reflect this theme, highlighting the cutting edge research

evidence, technology updates and innovations that are seeing the digital transformation

of the healthcare sector. The papers are indicative of the wide spectrum of work en-

compassing major theoretical concepts, examples of key applications of new technolo-

gies and important new developments in the field of health informatics. They empha-

sise the central role that health informatics and e-health play in connecting information

systems, being smart with data, and enhancing both practitioner and consumer experi-

ence in healthcare interactions. Welcome to the innovation boom.

This year’s program maintains the high standard of papers for which the confer-

ence is well-known. All papers were blind-peer reviewed by three experts in the field

of health informatics. These reviewers are widely considered to be prominent academ-

ics and industry specialists. The contribution of the Australasian College of Health In-

formatics, particularly the voluntary participation of Fellows, in supporting this review

process is gratefully acknowledged. Similar contributions made by many senior and

experienced members of the Health Informatics Society of Australia is also acknowl-

edged. Forty papers underwent the initial review and feedback process. Resubmitted

papers were then validated by the Scientific Program Committee to ensure that review-

ers’ recommendations were appropriately addressed or rebutted. In total 20 papers were

selected for inclusion in this volume. Congratulations to all the authors.

Andrew Georgiou

Louise K. Schaper

Sue Whetton

v

cristina.lee
Highlight
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Acknowledgements

The Editors wish to thank the following people for their efforts in reviewing the papers

submitted for HIC 2016.

A/Prof Andrew Georgiou, Macquarie University

Dr Sue Whetton, University of Tasmania

Dr Michael Bainbridge, ASE Health

Dr Melissa Baysari, Macquarie University

Vicki Bennett, Vicki Bennett Consulting

Dr Jen Bichel-Findlay, University of Technology, Sydney

Heidi Bjering, University of Western Sydney

Neville Board, Australian Commission on Safety and Quality in Health Care

Dr Andy Bond, National E-Health Transition Authority

Dr Douglas Boyle, University of Melbourne

Ian Bull, ACT Health

Dr Kerryn Butler-Henderson, University of Tasmania

Dr Joanne Callen, Macquarie University

Paul Clarke, JamPac

A/Prof Elizabeth Cummings, University of Tasmania

Maria Dahm, Australian Institute of Health Innovation

Dr Karen Day, University of Auckland

Cathy Doran, Health Informatics Consultant

Dr Juanita Fernando, Monash University

Joanne Foster, Queensland University of Technology

Janette Gogler

A/Prof Heather Grain, E-Health Education

Dr Kathleen Gray, University of Melbourne

Dr David Hansen, The Australian E-Health Research Centre, CSIRO

Christian Hay, GS1 Switzerland

Leanne Holmes, Holmes Health Information

Dr Evelyn Hovenga, Global eHealth Collaborative

Dr Inga Hunter, Massey University

Jitendra Jonnagaddala, University of New South Wales

Prof Yogi Kanagasingam, The Australian E-Health Research Centre, CSIRO

Dr Kenneth Lee, University of Tasmania

Dr Michael Legg, Michael Legg & Associates

Dr Hugo Leroux, The Australian E-Health Research Centre, CSIRO

Dr Hugh Leslie, Ocean Informatics

Lawrence Lim, Griffith University

Amy Mayer, National Allied Health Classification Committee

Simon McBride, The Australian E-Health Research Centre, CSIRO

Dr Vincent McCauley, IHE Australia

Prof Jon Patrick, Health Language Analytics

Dr Lua Perimal-Lewis, Flinders University

vii

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Dr Mirela Prgomet, Macquarie University

Dr Magdalena Raban, Macquarie University

Derek Ritz, EcGroup

Dr Basema Saddik, King Saud Bin AbdulAziz University for Health Sciences

Dr Antony Sara, South Eastern Sydney Local Health District

Dr Philip Scott, University of Portsmouth

Prof Jeffrey Soar, University of Southern Queensland

Prof Paula Swatman, University of Tasmania

Alan Taylor, eDevelopment Solutions

Dr Chandana Unnithan, Victoria University

Dr Deborah van Gaans, University of South Australia

A/Prof Klaus Veil, eHealth & HL7 Training Partners

Dr Deborah Verran, Sydney Local Health District

James Walters

Prof Jim Warren, University of Auckland

A/Prof Trish Williams, Edith Cowan University

viii

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Contents

Preface v

Andrew Georgiou, Louise K. Schaper and Sue Whetton

Acknowledgements vii

Development of an Electronic Notification System for Influenza-Like Illness

Sentinel Surveillance 1

Mehnaz Adnan, Donald Peterkin and Graham Mackereth

Avoiding Failure for Australia’s Digital Health Record: The Findings

from a Rural E-Health Participatory Research Project 8

H. Almond, E. Cummings and P. Turner

Leveraging the EHR to Facilitate Efficient Surgical Audit: A Case Study

from a Ophthalmic Private Practice 14

Ben Connell and Trevor Ward

Feasibility of Technology Enabled Speech Disorder Screening 21

Andreas Duenser, Lauren Ward, Alessandro Stefani, Daniel Smith,

Jill Freyne, Angela Morgan and Barbara Dodd

A User-Centred Approach to Designing an eTool for Gout Management 28

Anna Fernon, Amy Nguyen, Melissa Baysari and Richard Day

Development of an At-Risk Assessment Approach to Dietary Data Quality

in a Food-Based Clinical Trial 34

Vivienne Guan, Yasmine Probst, Elizabeth Neale, Allison Martin

and Linda Tapsell

Two Studies on Twitter Networks and Tweet Content in Relation

to Amyotrophic Lateral Sclerosis (ALS): Conversation, Information,

and ‘Diary of a Daily Life’ 41

Bronwyn Hemsley and Stuart Palmer

Promoting UV Exposure Awareness with Persuasive, Wearable Technologies 48

M. Sazzad Hussain, Liam Cripwell, Shlomo Berkovsky and Jill Freyne

Hello Harlie: Enabling Speech Monitoring Through Chat-Bot Conversations 55

David Ireland, Christina Atay, Jacki Liddle, Dana Bradford, Helen Lee,

Olivia Rushin, Thomas Mullins, Dan Angus, Janet Wiles, Simon McBride

and Adam Vogel

Classification of Movement of People with Parkinsons Disease Using Wearable

Inertial Movement Units and Machine Learning 61

David Ireland, Ziwei Wang, Robyn Lamont and Jacki Liddle

Predicting Unpanned Return to Hospital for Chronic Disease Patients 67

Sankalp Khanna, Norm Good and Justin Boyle

ix

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Capturing Accurate and Useful Information on Medication-Related Telenursing

Triage Calls 74

R. Lake, L. Li, M. Baysari, M. Byrne, M. Robinson and J.I. Westbrook

Little Things Matter: A Time and Motion Study of Pharmacists’ Activities

in a Paediatric Hospital 80

Elin C. Lehnbom, Ling Li, Mirela Prgomet, Wing Y. Lam

and Johanna I. Westbrook

Healthdirect’s After Hours GP Helpline – A Survey of Patient

Satisfaction with the Service and Compliance with Advice 87

Ling Li, Andrew Georgiou, Juan Xiong, Mary Byrne, Maureen Robinson

and Johanna I. Westbrook

Analysing Health Professionals’ Learning Interactions in an Online Social

Network: A Longitudinal Study 93

Xin Li, Karin Verspoor, Kathleen Gray and Stephen Barnett

An Implementation of Clinical Data Repository with openEHR Approach:

From Data Modeling to Architecture 100

Lingtong Min, Juanjian Liu, Xudong Lu, Huilong Duan and Qingzhi Qiao

Finding and Exploring Health Information with a Slider-Based User Interface 106

Patrick Cheong-Iao Pang, Karin Verspoor, Jon Pearce and Shanton Chang

An Ensemble Approach for Record Matching in Data Linkage 113

Simon K. Poon, Josiah Poon, Mary K. Lam, Qinglan Yin, Daniel M.-Y. Sze,

Justin C.Y. Wu, Vincent C.T. Mok, Jessica Y.L. Ching, Kam-Leung Chan,

William H.N. Cheung and Alexander Y. Lau

Access and Use: Improving Digital Multimedia Consumer Health Information 120

Alex Thomas

Integrating the Radiology Information System with Computerised Provider

Order Entry: The Impact on Repeat Medical Imaging Investigations 126

Elia Vecellio and Andrew Georgiou

Subject Index 133

Author Index 135

x