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ACCESS TO HEALTH CARE AMONG UNDER FIVE CHILDREN IN THE BANJARA COMMUNITY, KARNATAKA BEVIN VINAY KUMAR V N Dissertation submitted in partial fulfillment of the Requirement for the award of Master of Public Health ACHUTHA MENON CENTRE FOR HEALTH SCIENCE STUDIES SREE CHITRA TIRUNAL INSTITUTE FOR MEDICAL SCIENCES AND TECHNOLOGY Thiruvananthapuram, Kerala. India 695011 OCTOBER 2015

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ACCESS TO HEALTH CARE AMONG UNDER FIVE CHILDREN IN THE

BANJARA COMMUNITY, KARNATAKA

BEVIN VINAY KUMAR V N

Dissertation submitted in partial fulfillment of the

Requirement for the award of

Master of Public Health

ACHUTHA MENON CENTRE FOR HEALTH SCIENCE STUDIES

SREE CHITRA TIRUNAL INSTITUTE FOR MEDICAL SCIENCES AND

TECHNOLOGY

Thiruvananthapuram, Kerala. India – 695011

OCTOBER 2015

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Acknowledgements

I thank the Lord almighty for helping me to come this far and for comfort during difficult times.

I would like to express my gratitude to my guide Professor Mala Ramanathan for guiding me

throughout the study and for teaching me about research and how to be a good researcher.

I would like to thank Professor TK Sundari Ravindran for help in conceptualizing the study topic

on marginalized groups.

I thank Dr K.R Thankappan, Dr V. Raman Kutty, Dr P. Sankara Sarma, Dr Biju Soman, Dr K.

Srinivasan, Dr Manju Nair, Dr Ravi Prasad Varma and Ms Jissa V. T for their valuable inputs. I

would like to thank Dr.Jayasingh, Deputy Registrar and Ms. Jayasree Neelakantan, UDC,

AMCHSS for all the administrative support rendered to facilitate the conduct of the study.

I thank Dr Solomon and the extended family in Basel Mission hospital, Gadag for taking care of

me during data collection. I would like to acknowledge with gratitude the contribution of

various authors who shared versions of their papers with me when the same were not accessible

through pubmed.

I would like to thank Aakshi K, Peeyush and Souvik P for the peer review during different stages

of the dissertation, mock presentations, late night discussions over a cup of coffee and for

standing by me and motivating me during difficult times. I would also like to thank Tijo G and

Minu A for all their support.

I would like to thank all the participants of the study for sharing their experiences which

enhanced my understanding of their problems.

Finally I would like to thank my wife, mom and dad for their support in my work.

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DECLARATION

I hereby declare that this dissertation titled “Access to health care among under five children

in the Banjara community, Karnataka” is the bonafide record of my original research. It has

not been submitted to any other university or institution for the award of any degree or

diploma. Information derived from the published or unpublished work of others has been

duly acknowledged in the text.

Bevin Vinay Kumar V N

Achutha Menon Centre for Health Science Studies

Sree Chitra Tirunal Institute for Medical Sciences and Technology

Trivandrum, Kerala

October 2015

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CERTIFICATE

Certified that the dissertation titled “Access to health care among under five children in the

Banjara community, Karnataka” is a record of the research work undertaken by Mr Bevin

Vinay Kumar V N in partial fulfilment of the requirements for the award of the degree of

“Master of Public Health” under my guidance and supervision.

Dr. Mala Ramanathan

Professor

Achutha Menon Centre for Health Science Studies

Sree Chitra Tirunal Institute for Medical Sciences and Technology

Trivandrum, Kerala

October 2015

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TABLE OF CONTENTS

LIST OF FIGURES

LIST OF TABLES

GLOSSARY OF ABBREVIATIONS

ABSTRACT

Chapter No Page No

Chapter 1 Introduction 1 - 5

1.1 Background 1

1.2 Rationale of the study 4

1.3 Research Question 4

1.4 Objectives 5

1.5 Chapterization plan for the dissertation 5

Chapter 2 Review of Literature 6 - 19

2.1 Type of care sough and facilities visited 7

2.2 Factors that affect health care utilization 8

2.2.1 Characteristics of the Primary care giver of the child 8

2.2.2 Economic status of the household 9

2.2.3 Caste differentials 10

2.2.4 Rural-Urban Residence 10

2.2.5 Sex of the child 11

2.2.6 Distance to the health facility 12

2.2.7 Provider related factors 12

2.3 Discrimination as a barrier to access care 13

2.3.1 Types of Discrimination 13

2.3.2 Consequences of Discrimination 15

2.4 Summary of Literature Review 16

2.4.1 Factors that affect utilization 16

2.4.2 Discrimination as a barrier to access health care 18

Chapter 3 Methodology 20 - 27

3.1 Study Design 20

3.2 Study Setting 20

3.3 Sample Size 21

3.4 Sample Selection 21

3.5 Subject Selection 22

3.6 Data Collection 23

3.7 Data Collection Tool 23

3.7.1 Quantitative component 23

3.7.2 Qualitative component 24

3.8 Ethical Considerations 24

3.9 Data Storage 25

3.10 Data Entry 25

3.11 Data Analysis 25

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Chapter No Page No

3.12 Variables 26

3.12.1 Dependent Variables 26

3.12.2 Independent Variables 26

3.12.3 Codes for Qualitative Analysis 27

3.13 Expected Outcome 27

Chapter 4 Results 28 - 48

4.1 Introduction 28

4.2 Sample Characteristics 28

4.2.1 Individual Characteristics 28

4.2.2 Household Characteristics 30

4.3 Self-reported experience of discrimination 31

4.4 Prevalence of Diarrhea, ARI and overall morbidity 33

4.5 Diarrhea health care seeking 33

4.5.1 Bivariate analysis with Prevalence of diarrhea as the

outcome variable

35

4.5.2 Correlates of facility visited for diarrhea 36

4.6 ARI healthcare seeking 37

4.6.1 Bivariate analysis with ARI as the outcome variable 38

4.6.2 Correlates of facility visited for ARI 39

4.7 Care seeking for Morbidity 40

4.7.1 Correlates of overall morbidity 40

4.7.2 Correlates of facility visited for Morbidity 41

4.8 Analysis of in-depth interviews 42

4.8.1 Four types of perceived discrimination 42

4.8.2 Reasons for being discriminated 46

Chapter 5 Discussion and Conclusions 49 - 56

5.1 Summary of key findings 49

5.2 Diarrhea and its correlates 50

5.3 ARI and its correlates 52

5.4 Self-reported experience of discrimination 54

5.5 Limitations of the study 55

5.6 Strengths of the study 55

5.7 Conclusions 56

5.8 Policy Implications 57

References

ANNEXURE I

ANNEXURE II

ANNEXURE III

ANNEXURE IV

ANNEXURE V

ANNEXURE VI

ANNEXURE VII

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List of Tables

Table No Title Page No

4.1 Individual profile of the primary care givers and

children, Gadag district, Karnataka

29

4.2 Household characteristics of the primary care givers,

Gadag district, Karnataka

30

4.3 Discrimination experienced at a health facility by

primary care givers in village and thanda (N = 20),

Gadag district, Karnataka

32

4.4 Prevalence of Diarrhea, ARI and overall Morbidity

(N=320), Gadag district, Karnataka

33

4.5 Distribution of children in village and thanda by

health care seeking for Diarrhea (N = 30), Gadag

district, Karnataka

34

4.6 Association between the prevalence of diarrhea with

water location, type of house and education of the

primary care giver in village and thanda, Gadag

District, Karnataka

35

4.7 Association between the facility visited for diarrhea

with the location of residence and education of

primary care giver, Gadag district, Karnataka

36

4.8 Distribution of children in village and thanda by

health care seeking for ARI (N = 60), Gadag district,

Karnataka

37

4.9 Association of the prevalence of ARI with water

location, type of house and education of the primary

care giver in village and thanda, Gadag district,

Karnataka

38

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Table No Title Page No

4.10 Association between the facility visited for ARI with

the location of residence and education of primary

care giver, Gadag district, Karnataka

40

4.11 Association of the prevalence of overall Morbidity

with water location, type of house and education of

the primary care giver in village and thanda, Gadag

district, Karnataka

40

4.12 Association between the facility visited for overall

Morbidity with the location of residence and

education of primary care giver, Gadag district,

Karnataka

42

List of Illustrations

Figure No Title Page No

1 Flowchart of literature review process

6

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Glossary

UNICEF United Nation’s Children Fund

NFHS-3 National Family Health Survey - 3

DLHS-4 District Level Household and Facility Survey - 4

SC Scheduled Caste

ST Scheduled Tribe

OBC Other Backward Caste

VJNT Vimuktha Jati and Nomadic Tribe

ARI Acute Respiratory Infection

PI Primary Investigator

SD Standard Deviation

BAMS Bachelor of Ayurveda, Medicine and Surgery

RMP Rural Medical Practitioner

ORS Oral Rehydration Salts

IMNCI Integrated Management of Neonatal and Childhood Illness

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ABSTRACT

Background

Variation in health care seeking is shaped by barriers to access. These barriers are determined by

individual traits or health system responses. Children constitute a vulnerable group whose care

is given primacy and therefore care seeking is most likely. By studying health care seeking

behaviors for childhood morbidities, access barriers that emanate from health systems can be

best understood. The study aims to describe patterns of health care utilization for diarrhea and

ARI among under 5 in Banjara and non Banjara groups in rural Karnataka.

Methods

Mixed methods approach was used - a cross-sectional comparison study for the quantitative

component with a structured interview schedule and negative case description for the qualitative

component using an interview guide. Primary care givers of Banjara (n=160) and non-Banjara

(n=160) children were surveyed from 16 randomly selected Banjara settlement and villages in

Gadag district. Analysis used R open source software and SPSS V21 for quantitative and

manual analysis for qualitative data.

Results

The prevalence of Diarrhea and ARI was 8.8 percent (95% CI 3 – 10.8) and 22.5 percent (95%

CI 14.3 – 16.9) and 13.1 percent (95% CI 5.8 – 15.4) and 26.9 percent (95% CI 17.75 –31.05)

among the non-Banjaras (village) and Banjaras (thanda) respectively. Government facility and

local providers were more used by Banjaras (11% and 28.9% vs 1.1% and 20%) whereas Non-

Banjaras used private providers (21.1% vs 17.8%). The education of the primary care giver and

their location was associated with the type of care sought. Self-reported experience of

discrimination did not vary between the two groups. However there is evidence suggestive of

class-based discrimination.

Conclusions

Banjaras had higher levels of morbidity and higher utilization of public sector facilities when

compared to non-Banjara groups. These choices may be shaped by class-based discrimination.

More specific tools are needed to capture this.

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CHAPTER 1

INTRODUCTION

1.1 Background

Diarrhea and respiratory infections are major causes of morbidity and mortality among

children under five years of age. Deaths due to diarrhea and pneumonia account for about 30

percent of the deaths in children worldwide and 90 percent of these deaths occur in sub-

Saharan Africa and South Asia with India accounting for about 28 percent (UNICEF, 2012;

Walker et al, 2013). India has the highest burden of diarrhea in South Asia. It is an important

public health problem as most of these deaths are preventable (UNICEF, 2010).

The distribution of health outcomes are unequally distributed over segments of the

population and this distribution is influenced by the prevailing social, economic and political

conditions (Balarajan et al, 2011). Improvements in health outcomes in a population need

not be uniformly distributed across the population sub groups and is often influenced by

gender, caste, social class, urban-rural residence and geographical location (Bajpai and

Saraya, 2012)

Large inequities in health outcomes exist between Scheduled Tribes(ST), Scheduled

Caste(SC) and mainstream groups. There are differences in mortality and morbidity patterns

across these groups. As per the estimates of the National Family Health Survey (NFHS-3)

the infant mortality rate among SC and ST were 66.4 percent and 62.1 percent compared to

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48.9 percent among other groups who belonged to the general category. The under five

mortality among SC and ST groups was 88.1percent and 95.7 percent respectively, when

compared to 59.2 percent among those in the general category. The prevalence of diarrhea

among the three groups showed a similar trend (8.7 percent, 8.8 percent and 8.6 percent

among SC, ST and general category, respectively). However, the variation was observed in

those who were taken to a health provider for treatment, 60.7 percent and 54.3 percent among

the SC’s and ST’s and 64.9 percent in the general category. The prevalence of acute

respiratory infection among SC, ST and others was 5.3 percent, 4.6 percent and 7 percent and

the proportion who sought care from a health provider was 73.5 percent and 57.4 percent

among the SC and ST and 70.6 percent among the general category population groups (IIPS,

2007). These variations in health care seeking could be because of the barriers faced by

these communities in accessing care. Access refers to the use of health care, qualified by

need for care. Utilization is realized access and often used as a proxy for access (Levesque et

al, 2013).

The indigenous groups are people who identify themselves with pre colonial /pre settler

societies, who maintain a distinct language, culture and beliefs and have distinct social,

economic or political systems (UN, 2006). Globally indigenous people suffer from poor

health and likely to die younger than their non-indigenous counterparts (UN, 2014). Access

to and utilization of health services are low among the indigenous population and this is

attributed to their location, communication and socio-economic status (Marrone, 2007). In

India there are about 461 indigenous groups and they are usually referred to as adivasis or

Scheduled Tribes (STs). They are called scheduled tribe because tribes and tribal

communities were notified in accordance with article 342 of the constitution. However there

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are many ethnic groups that do not fall under this category and have varying status in

different states. The Banjaras or Lamanis are one such indigenous group who were nomadic

tribes. Their population is largely concentrated in the states of Karnataka, Maharashtra and

the erstwhile state of Andhra Pradesh. They were declared as a criminal tribe under the

British and after independence they were declared as a denotified ex criminal tribe. In

Maharashtra they are considered as VimukthaJati and Nomadic Tribe (VJNT), in undivided

Andhra Pradesh as Scheduled Tribe (ST) and in Karnataka as Scheduled Caste (SC). They

stay in a nuclear settlement with the houses clustered together called as thandas. The thandas

are considered part of the village although the two habitations could be distinct from each

other(Burman, 2010). Until the late 90’s the Banjaras were viewed with suspicion and

hostility due to their past history. The consequence of such labeling was mutual mistrust and

discriminatory behavior by the majority(World Bank, 2001).

Social groups classified as Scheduled Caste (SC), Scheduled Tribe (ST), Other Backward

caste (OBC) and General, each of which represents a very heterogeneous grouping. In a

community individuals or groups belonging to any of these groups may face exclusion or

more discrimination. However this may uniform across all contexts. A person belonging to

ST may not experience caste based discrimination in an urban city where they have some

degree of anonymity when compared to a village where identities are known and therefore a

person belonging to a disadvantaged caste may experience discrimination related to caste.

Similarly it is possible for individuals belonging to the SC category to not experience any

discrimination while accessing health care but face discrimination from the community

members in everyday life and vice versa in a livelihood context.

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What this indicates is that individuals in a society may face multiple axes of discrimination

like gender, class and religion and these vary by context. The context in which discrimination

is experienced is shaped by the kind of political, social or economic power that the individual

or the socio-economic group to which they belong possess. They may face deprivation or be

a victim of discriminatory targeting by the health system.

1.2 Rationale of the study

There are differences in health outcomes for children, particularly by caste affiliation, place

of residence and socio-economic status. The Banjaras are a group belonging to the Scheduled

Caste in Karnataka who are marginalized due to many factors and experience many barriers

in accessing health care. The aim of the study is to study the variation in barriers to access

health care for childhood illness among the Banjaras and compare it with the population of

non-Banjaras in the village that the thanda is a part of. Children are a vulnerable group, fall

sick very often and need more care and studying the barriers faced in seeking care for their

illness will give an idea of the overall barriers in the community for seeking care.

1.3 Research Question

What is the effect of community base discrimination on health care seeking, for childhood

ailments, that are more likely to be addressed?

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1.4 Objectives

1. To describe the pattern of health care utilization for acute respiratory infection and

diarrhea among children aged less than 5 years among Banjaras and non-Banjaras

2. To identify the various forms of self-reported discrimination experienced by the

Banjaras and non-Banjaras in health care setting

1.5 Chapterization plan for the dissertation

The chapter one gives a brief overview of introduction, rationale for the study, research

question and objectives. Chapter two provides a summary of the relevant literature that was

reviewed. Chapter three describes the methodology of the study including the interview tools,

data management, data analysis, variables and ethical considerations. Chapter four gives the

results along with the descriptive tables. Chapter five includes the discussion of the results,

the conclusions, strength and limitations of the study and policy implications.

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CHAPTER 2

REVIEW OF LITERATURE

The literature search was done on PubMed and Google Scholar for articles published

between 2005 – 2015 using the following search terms “Diarrhea”, “Diarrhoea”,

“utilization”, “ARI”, “Acute respiratory infection”, “access”, “under five morbidity”, “India”

and “discrimination”. Additionally the bibliography section of each article was scanned to

identify articles that might have been missed during database search.

Figure 1. Flowchart of literature review process

* Five articles that were not accessible were obtained by writing to the authors

Search from Pubmed and Google

Scholar yielded 192 results

Records were screened for eligibility

and full text access*

results

30 Key studies were identified (pertained to health care utilization for

childhood morbidity)

39 studies were included in the final

review

9 studies identified through

snowballing and expert

recommendation

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The articles were read to identify common themes across them. These themes were then

listed, categorized and summarized in terms of their relevance to the subject of research.

The themes identified were type of care sought and facilities visited, factors that affect health

care utilization, discrimination as a barrier to access care and types of discrimination.

There are several factors that affect health seeking in children, including the age of the child,

age of the mother, educational and economic status of the family, ethnic background, the

environment a child lives in, health beliefs of the family and factors related to the health

system.

2.1 Type of care sough and facilities visited

Health care seeking for childhood illness varied from 83 percent in Kerala to 28 percent in

rural UP (Pillai et al, 2003; Willis et al, 2009). The health care providers included allopathic

doctors in public and private facilities, Ayurvedic doctors, faith healers, chemists and peons

at a health facility. The utilization of public health facilities was comparatively low compared

to private facilities and it ranged from 5 percent in Bihar to 31 percent in Delhi. Private

providers were preferred for childhood illness and high utilization was seen in Bihar (73

percent) (Gupta et al, 2007; Thind, 2004). In Rajasthan and Orissa the utilization of public

health facilities was more when compared to private health facilities. The highest utilization

of public facilities was seen in Orissa (67percent) and lowest in UP (2 percent)(Lahariya et

al, 2012; Mohan et al, 2008). People in Bihar (22 percent) and rural areas of UP (50 percent)

preferred traditional providers for healthcare(Thind, 2004; Willis et al, 2009).In Rajasthan 64

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percent did not seek any treatment compared to 17 percent in Kerala(Mohan et al, 2008;

Pillai et al, 2003).

2.2 Factors that affect health care utilization

2.2.1 Characteristics of the Primary care giver of the child

The educational status of the mother was significantly associated with health care utilization.

Higher education of the mother enhances the information available in deciding where to seek

care. The utilization of health care increased as the level of the education of the mother also

increased(Chakrabarti, 2012; Malhotra and Upadhyay, 2013; Sreeramareddy et al, 2006;

Thind, 2004). Mother’s educational status was also related to seeking care from a licensed or

unlicensed provider compared to no care being provided(Manna et al, 2013). Literate

mothers were more likely to seek care compared to illiterate mothers in Rajasthan(Mohan et

al, 2008). Two studies reported that the education of the mother was not associated with

health care utilization(Sreeramareddy et al, 2012; Sur et al, 2004). However a study done in

Kerala found that there was decreased utilization when the educational status of the mother

was higher. The reason for that being the better educated mothers would have better income

and they would have the resources in the household to seek care later on if the illness got

worse (Pillai et al, 2003).

A mother’s awareness and ability to recognize danger signs were also related to increased

utilization of care outside the home. Mothers who had knowledge of Oral Rehydration Salts

had a higher likelihood of receiving care from a health provider(Chakrabarti, 2012).But a

significant proportion of mothers in Delhi and Rajasthan were not aware of the danger signs

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and did not consider it necessary to seek care(Gupta et al, 2007; Mohan et al, 2008). Tribal

people of Chandrapur district in Maharashtra preferred private providers and faith healers for

care for neonatal danger signs as they felt that they were the specialists for treating such

conditions (Deshmukh et al, 2010).

Perception of severity of the illness affected the way in which care was sought. Mothers did

not seek care for their child when they perceived that the illness was mild and would resolve

on its own(Das et al, 2013; Pillai et al, 2003). Children with more than one illness (such as

diarrhea and ARI) were more likely to seek care than those afflicted with just one ailment

(Thind, 2004). Severity of the illness was associated with increased care seeking at a health

facility (Chakrabarti, 2012; Sreeramareddy et al, 2006, 2012). In a study done in Uttar

Pradesh one of the reason mentioned for not receiving care was because the mother did not

perceive it to be severe (Willis et al, 2009).

2.2.2 Economic status of the household

Economic status of the household acts as an enabler or a barrier to seek care. Increased

utilization was seen when the economic status of the household was better(Raushan and

Mutharayappa, 2014; Thind, 2004). Poor economic status of the household acted as a barrier

in seeking care and even if care was sought it was delayed. Children belonging to a rich

family were more likely to seek care compared to the poor(Malhotra and Upadhyay, 2013).

Economic status of the household was also related to where the care was sought. Women

belonging to rich households were more likely to visit a private health care provider

compared to the poor household for the sickness of their child(Sreeramareddy et al, 2012).

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Children belonging to economically disadvantaged families are more likely to use alternative

system of medicine (Sreeramareddy et al, 2006; Willis et al, 2009). However Pillai(2003)

reported that utilization decreased when the household was better off economically due to the

availability of resources to seek care if the illness got worse.

2.2.3 Caste differentials

Children belonging to Scheduled Caste/Tribe or Other Backward Caste are more likely to fall

sick compared to the general population and are less likely to utilize health services. The

children belonging to the Scheduled Caste/Tribe were more likely to be non-users of health

care for illness(Nayar, 2007; Thind, 2004). Children belonging to higher caste were better off

in accessing care compared to the SC/ST or OBC’s. Road connectivity mattered to people

belonging to SC and ST and ST’s were the main users of government services(Raushan and

Mutharayappa, 2014).Families belonging to lower caste in rural Rajasthan were less likely to

seek care from qualified physicians when compared to those of the upper caste(Mohan et al,

2008). Chakrabarti (2012) observed that the probability of seeking care was high among the

Scheduled Caste indicating that they are more prone to contracting diarrhea or acute

respiratory infection or more likely to seek care when compared to others.

2.2.4 Rural-Urban Residence

There is unequal distribution of health care professionals and health infrastructure in urban

and rural areas with more of them being concentrated in urban areas and this leaves people

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residing in rural areas with limited options to seek care. Differences were seen in the ability

to seek care and also the choice of the provider. Most of the people in rural Rajasthan did not

seek care(Mohan et al, 2008). People living in rural areas preferred to seek care from

alternate systems as the healthcare facilities were distant (Pillai et al, 2003). Those residing

in rural areas had a higher odd of seeking treatment when compared to those in urban areas

(Malhotra and Upadhyay, 2013). Care seeking for fever/cough in rural areas was more likely

to be from a public health provider. The utilization of private health care providers was low

in rural areas due to them being expensive or lack of private providers in the

area(Sreeramareddy et al, 2012).

2.2.5 Sex of the child

Sex of the child is an important predictor of health care utilization. The probability of seeking

care was low if the child was a female(Chakrabarti, 2012; Thind, 2004). Male child had a

lower odd of experiencing delay in seeking care compared to the female child(Malhotra and

Upadhyay, 2013). In rural Uttar Pradesh it was seen that private unqualified providers were

preferred for seeking care for the male child compared to the female, however public health

care utilization was more for female child than male child. Reason for that could be that

unqualified providers were seen as being more superior to the public health care providers.

Mothers were less likely to report illness in female child and the time taken to recognize the

symptoms was more than two days when compared to the male child(Willis et al, 2009).

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2.2.6 Distance to the health facility

Distance to the health facility is one of the major barriers to access health care. Utilization

depends on where the facility is located and the means to reach the facility. In Kerala it was

seen that most of the people in rural areas sought care from alternate systems for sickness of

their child which could indicate the lesser availability of allopathic care(Pillai et al, 2003).

Distance to the health facility posed a major problem and resulted in delays in presenting to

the health facility(Malhotra and Upadhyay, 2013) and was also a reason for mothers not

seeking care from a public health provider for diarrhea (Sreeramareddy et al, 2012). Even

when the perception of distance as a barrier is overcome, transportation and connectivity to

the health facility acts as another barrier to seek care. Raushan and Mutharayappa (2014)

reported that people from the Scheduled Tribe were less likely to seek care from a health

facility if the village did not have any road connectivity. Availability of health services close

to the village was associated with increased access. In rural Uttar Pradesh about 4 percent to

7 percent of the households reported lack of transportation as a reason for not seeking care

(Willis et al, 2009). Although distance is seen a barrier to access care, a study done in eight

states in India indicate that the quality of the provider was given more importance over the

distance of the facility in deciding where to seek care(Lahariya et al, 2012).

2.2.7 Provider related factors

In a study done among sick tribal neonates in Maharashtra the parents preferred private

provider over the public provider for seeking treatment for diarrhea. Private providers were

perceived by the parents as being specialists for such treatment and they were always

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available in times of emergency. The treatments that they provided in the form of saline or

injection were considered to give rapid relief. However the government providers were not

available in times of emergency and even if they were available they did not pay the desired

attention to the child. The medicines available in the government centers were considered to

be cheap and not offering any relief(Deshmukh et al, 2010).A study in developing countries

like Vietnam, Malaysia, Cambodia and Lao PDR found that lack of services, lack of

medicines, long waiting times, cost of service, lack of privacy and poor communication

contributed to low satisfaction among users of health care services (Martinez et al, 2012).

2.3 Discrimination as a barrier to access care

Discrimination is defined as the unjust or prejudicial treatment of different categories of

people especially on the grounds of race, age or sex. Discrimination can not only affect

individual health but also reduces compliance with treatment and acts as a barrier in seeking

health care. It affects the trust in health care providers(Akhavan and Tillgren, 2015). Studies

have reported an association between self-reported discrimination, mental and physical

health(Lewis et al, 2015).

2.3.1 Types of Discrimination

Discrimination due to health care system could be operationalized at least two levels i.e

structural and individual level. Structural discrimination refers to generally accepted norms

and behaviors in social structures and institutions that act as obstacles for subordinate groups.

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This form of discrimination would prevent individuals and groups from enjoying equal rights

and opportunities possessed by dominant groups and it could be intentional or unintentional

(Chatterjee and Sheoran, 2007). It could also be in the form of laws or legislations that havea

negative effect on an individual or a group. An example of laws that could be discriminatory

are the many laws against leprosy patients in India which provides for exclusion, segregation

and treatment, grounds for divorce and barring from holding or contesting polls (Rukmini,

2015).It also may be in the form of limiting access by not allocating resources to certain

geographical locations or segments of the population for political-economic reasons such as

the limited access to health care to the people living in the Andaman and Nicobar islands

(Shamim, 2014). Structural discrimination could take the form of differences in treatment

regimes for different groups, inadequate spending on health care for marginalized compared

to the mainstream population and not addressing the cultural barriers for these marginalized

groups(Henry et al, 2004). Access to information is an area where certain social groups do

not receive information required by them in a form comprehended by them to make choices

regarding their health (Thorat and Sadana, 2009).

Discrimination at another level in the health system targets specific individuals. Individuals

experience discrimination because of their own identity or specific attributes of the group

that they belong to by the larger community or the health care system. A study in Gujarat and

Rajasthan found that most of the children belonging to the Scheduled Caste faced

discrimination in health care setting if the provider was of another caste group. The

discrimination was in the form of refusal to touch, making them sit separately, long waiting

time and spending less time during house visits by health workers (Acharya, 2010). Religion

based discrimination has been reported from Mumbai. The forms of discrimination

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experienced by muslim women were rude language, abuse in the labor ward, health care

provider speaking in a language they donot understand, derogatory comments targeted

towards the community and stereotypical behavior by the health care providers (Kandayand

Tanwar, 2013).

The discrimination by the health care system could be in the form of denial of services to

marginalized groups or using them to achieve government targets, a form of “discriminatory

targeting”. This can be seen in the high incidence of Lamani women undergoing

hysterectomy in private hospitals in Karnataka and most of these were unnecessary. There

was discriminatory targeting by private providers for financial gains and targeted towards a

community that is very unlikely to question them (Sivanandan, 2015). Examining data from

the National Family Health Surveys - 3 (IIPS, 2007) surgical sterilization in women

accounted for 37.3 percent of the total contraceptive use compared to 1 percent in men,

which indicate selective targeting of women in family planning services, another form of

discriminatory targeting.

2.3.2 Consequences of discrimination

People belonging to marginalized groups experience some form of discrimination or

exclusion within communities in which they live. The health systems in which these

communities live in would also engage in the same kind of practices, thus reinforcing or

exacerbating the discrimination. Data from NFHS-3 reveal that the health status and under

nutrition indicators for Scheduled Castes (SC) and Scheduled Tribes (ST) are relatively

worse off than other groups. This is because; in addition to the low income and poor

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education they have restricted access to public health services by government institutions.

Even for individuals with similar standard of living and educational levels the health status of

SC and ST populations are lower than the general population. This is indicative of the

unequal access to public services related to their caste and experiences of untouchability and

discrimination (Thorat and Sadana, 2009).

2.4Summary of Literature Review

The utilization of health care facilities varied across different states in India. Primary care givers of

children preferred to seek care from private providers with overall utilization of government facilities

being poor. Only in a few states was the utilization of government health facilities more than that of

private facilities.

The providers generally visited were doctors with modern medicine training, ayurvedic doctors, faith

healers, traditional healers, chemists and peons at health facilities.

2.4.1 Factors that affect utilization

Characteristic of the primary care giver

The education of the primary care giver could affect health care utilization in children. Education of

the primary care giver tended to enhance the information available to them and in turn this helped

them to decide where to seek care and from whom. Such knowledge lead to increased utilization.

However it could also lead to decreased utilization as the mother is aware of what needs to be done

for the child and could end up treating the child at home and seeking care when the illness gets worse.

Education may not play an important role in places with limited health care options as the primary

care giver would have to take the child to whatever is available. Utilization was high when the

primary care givers were able to recognize danger signs in their children. Education was found to

play a role in the ability to recognise danger signs, especially for ARI.

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Economic status of the household

Economic status of the household can act as an enabler or a barrier in seeking care. Better off

households were more likely to seek care from private providers where they had to pay for services.

Poor households delayed seeking care due to their inability to pay for services and increased

utilization of government facilities was seen among them. Although from a health system perspective

it is desirable that there is increased utilization of government services so that people do not have to

incur out of pocket expenditure but the reason for going there is their inability to pay for private

providers.

Caste

Inequality in the distribution of ill-health is seen in children with more children belonging to SCT/ST

or OBC communities falling sick. The utilization of health care was low among these social groups

and this could be because of the barriers they face in seeking care. They could also have increased

utilization as they fall sick very often.

Rural-urban divide

Utilization of health care matters if the child resides in a rural or urban area. The distribution of

health care professionals and health facilities are skewed towards urban areas which increases the

utilization for those living there. Decreased utilization is seen in rural areas where there are not many

facilities and even if they do exist they may come with a cost. There was increased utilization of

traditional providers or alternative system of medicine in rural areas as they are more likely to be

found in these places.

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Sex of child

Sex of the child was important in care seeking and the type of provider visited. A male child often

gets preference over the female child in seeking care from a health facility. This is influenced by the

prevailing norms in the society regarding the girl child. Increased utilization of government facilities

was seen for the female child and unqualified providers for the male child, the reason being

unqualified providers being viewed as superior form of providers.

Distance to the health facility

Distance to a health facility is one of the major barriers to access healthcare. The location of the

facility and the time taken to reach it does affect utilization. If the health facilities were far off then

there alternate system of medicine was preferred as these are closer. Distance could also lead to delay

in the child being taken to a health facility. The time taken to reach a facility depends on the

connectivity and available transportation with increased utilization with better connectivity.

Although distance is a barrier in seeking care the quality of the provider was given preference over

distance in deciding to seek care.

Provider related factors

The provider related factors that affect utilization of services were lack of services, medicines

shortage, long waiting times, privacy concerns and poor communication which affected care seeking.

Government health facilities were often seen as providing inferior services compared to the private.

The medicines in government hopsitals were thought to be inferior compared to the saline or injection

that was provided in the private hospital which provided fast relief.

2.4.2 Discrimination as a barrier to access health care

Discrimination due to a health system could be operationalized at two levels i.e structural and

individual. Structural discrimination in health care could be in the form of laws or legislation that has

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a negative effect on individuals or groups. Individuals might face discrimination because of their

own identity or any specific attributes of the social or religious group they belong to. This may take

various forms like refusal to touch, making them sit separately, longer waiting times and spending

less time during house visits by community workers. Another form of discrimination that is practiced

by the health system is discriminatory targeting where marginalized groups are used to achieve

government targets.

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CHAPTER 3

METHODOLOGY

3.1 Study Design

The study used a mixed methods approach i.e explanatory sequential design, using both

qualitative and quantitative approaches to collect data. This involved collecting and

analyzing the quantitative data followed by a qualitative approach to explain the results.

Cross-sectional design was chosen over retrospective cohort design as it would enable us to

study multiple outcomes i.e prevalence of diarrhea and ARI in childhood and the care

seeking for this illness. In a retrospective cohort the follow up stops with the development of

the outcome so technically the study would stop once the child is identified with diarrhea or

ARI. We would not be able to capture and analyze health care seeking for these conditions.

For this reason, a cross-sectional study design was preferred.

3.2 Study Setting

The study was conducted in Gadag district, Karnataka. The proportion of Banjaras among

the total population in Gadag district is 4.7% next only to Gulbarga which has 7.2%, the

highest Banjara population in Karnataka(Census, 2011). Gadag was selected as the overall

prevalence of morbidity among children under five years of age was 32.6% compared to

19.2% in Gulbarga(Lahariya et al, 2012). Acute Respiratory Infections (ARI) and Diarrhea

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in children was chosen as markers of the health status of the children with the assumption

that it reflects the overall health status of the community.

3.3 Sample Size

The sample size was estimated using open epi version 3.03. Data from NFHS-3(IIPS, 2007)

was used to calculate the proportion of children with ARI/fever and diarrhea and the

proportion who sought care from a medical facility among SC/ST and others. Conditional

probability of children falling sick and seeking care from a medical facility was obtained by

multiplying the two probabilities which was estimated to be 0.2527 for the SC/ST’s and

0.2606 for others. Using a precision of 10% and design effect of 2 the sample size was

estimated to be 145 primary care givers of Banjara children and 148 primary care givers of

non Banjaras. The calculated sample size was rounded off to 160 for both the groups. The

final total sample size was 320 primary care givers.

3.4 Sample Selection

The sample was selected in two stages. The first stage was for selection of thandas/villages,

which were to be 16 in number so as to obtain 160 primary care givers in each sub-group.

For this, the population size of all the thandas were listed (N = 90319), then the cumulative

sum of the population size across thandas was calculated. A random number between from 1

to 5645 (that constitutes one-sixteenth of the total number of persons living in tandas in

Gadag), was generated which was 5150. Starting from the first person in the population, the

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thanda where the 5150th

person resides was selected. By adding 5645 to 5150 the second

thanda to be included was identified. This process was repeated until 16 thandas were

selected. The villages to which the thanda belonged were also selected to obtain the non-

Banjara sample for the study.

In the second stage upon entering the central square of the village/thanda a coin was tossed to

decide the direction to start and this method was followed across all thandas and villages.

The first house encountered was selected and then every 2nd

household was systematically

selected until 10 primary caregivers of children under-five years are enrolled in the thanda or

village. In houses where there was more than one eligible subject a coin was tossed to decide

the subject to be enrolled.

For the case studies, cases who reported extreme experience of discrimination and care

seeking were selected from those who were interviewed in the quantitative study.

3.5 Subject Selection

Inclusion criteria for the quantitative component:

1. Primary care givers of children aged less than five years

2. Residents of Gadag district

Inclusion criteria for the qualitative component

1. Primary care givers who reported extreme experience of discrimination and faced

difficulties in care seeking for the child

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3.6 Data Collection

Data collection was carried out by the Principal Investigator (PI) from 1st July, 2015 to 7

th

August, 2015. Three forty nine eligible households were visited i.e 171 households in the

thandas and 178 in the villages. Among the 349 eligible households, 11 (6.4%) in the

Banjara/thanda group and 18 (10.1%) in the non-Banjara/village group declined to participate

in the study. The non-responders were replaced with households from the respective thandas

and villages to achieve the sample size of 160 for each group. Informed consent was

obtained prior to data collection. Care was taken to ensure the privacy and confidentiality of

the respondents.

3.7 Data Collection Tool

3.7.1 Quantitative component

Data was collected using an interview schedule, including an Index of Discrimination tool.

The interview scheduled captured the basic demographic features of the primary care giver

and the child, preferred provider for ARI and diarrhea, experience of ARI or diarrhea in the

past two weeks for the child and health care seeking for these morbidities. The index of

Discrimination tool has been adapted from a study done among Dalit children in Gujarat and

Rajasthan(Acharya, 2010). The tool captures the types of discrimination experienced, the

area in the health care system where it was experienced and the kind of providers who

practiced it. The types of discrimination include being spoken to rudely or derogatorily,

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inappropriate touch or not touching, longer waiting time than others and not giving adequate

information regarding the condition. The areas where discrimination was experienced

includes government or private facility, different places within the facility like registration

counter, interaction with the provider, laboratory or X-ray investigations, dressing room, in-

patient admission and visit by health workers in the community. The kind of providers

includes physicians, nurses, technicians, clerical staff and health workers in the community.

3.7.2 Qualitative component

Interview guidelines were used to document any extreme experiences by the community in

seeking care for childhood illness or experiences of discrimination by the respondents.

The interview schedule and interview guidelines were developed in English, then translated

into Kannada and then back translated into English by a member belonging to the local

community. Necessary changes were made to suit the dialect being spoken in Gadag district.

3.8 Ethical Considerations

The study was carried out only after review by the Ethics Committee of Sree Chitra Tirunal

Institute for Medical Sciences and Technology (SCTIMST). Written informed consent was

obtained from the participants. The interviews were conducted in an environment where the

respondent felt secure and comfortable. The information that was collected was kept secure

and not shared with anyone during or after the interview other than the PI and Guide. Care

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was taken to protect the identity and location of the respondent; no identifiers were

mentioned in the interview schedule other than a unique code.

3.9 Data Storage

All data including the consent forms are secured by the PI, who shall bear sole responsibility

for keeping the data secure and for any breach of confidentiality. All completed interview

schedules, consent forms and notes would be destroyed upon completion of three years from

the date of acceptance of the thesis in keeping with regulatory requirements (ICMR, 2006).

3.10 Data Entry

Data entry and cleaning was done using Epidata Manager and Entry Client, version 2.0.7

(Lauritsen and Bruus, 2008) and exported to csv (comma-separated values) format.

English translated transcripts of interviews were entered in MS word for analysis.

3.11 Data Analysis

Data was analyzed using R, version 3.2.2 and SPSS, version 21. Descriptive analysis was

done to describe and compare the characteristics of both the non-Banjara/village and

Banjara/thanda population. Bivariate analysis was done to test the relationship between

dependent variable and independent variables. The qualitative data was analyzed manually

using deductive codes that were identified by reading the translated transcripts.

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3.12 Variables and Codes

3.12.1 Dependent Variables

The dependent variables were:

1. Diarrhea or ARI in children- Any children in the household who had diarrhea or ARI

in the past two weeks preceding the survey

2. Care seeking for Diarrhea or ARI- The type of care provided or the facility visited by

the primary care givers of children with diarrhea or ARI

3. Discrimination experienced at a health facility- Any discrimination experienced by

the primary care giver during the visit to a health facility as reported by them

3.12.2 Independent Variables

Characteristics of the Primary Care Giver and the Child

1. Age: Age in completed years as reported by the respondent

2. Educational status: If the primary care givers had ever attended school and the

years of formal education completed. The educational status was further

categorized into lower primary (1-4), upper primary (5-7), secondary (8-10), PUC

and above (>10) and no education.

3. Autonomy: The permission required by the primary care giver to seek care

outside the house for the child’s illness

4. Relationship to the child: Relationship of the child to the primary care giver as

reported by them

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5. Age of the child: Age in months as reported by the primary care giver

6. Sex of the child: Male or Female as reported by the primary care giver

Characteristics of the Household

1. Sanitation Facility: The type of toilet facility used by members of the household.

Categorized as toilet within the household, no facility or open spaces and

dysfunctional toilets

2. Type of house: Categorized as pucca, semi pucca and kachha

3. Farm animals: Household owning any farm animals

4. Water source location: The source of water used for drinking water was

categorized into on the premises and elsewhere, if elsewhere then the time taken

to fetch water was recorded

5. Religion: Religion of the head of the household

6. Caste: Caste/Tribe to which the head of the household belongs to

3.12.3 Codes for Qualitative Analysis

The codes for analysis were to be identified after reading through the interviews and listing

the types of perceived discrimination and the felt reasons for the same.

3.13 Expected Outcome

The study aims to find out the prevalence of diarrhea between Banjaras and non-Banjara

groups in the village, the health care seeking behavior between the two communities and the

discrimination faced by them in a health care facility. The case studies would help to

document the nature of discrimination and the extent to which it hinders access.

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CHAPTER 4

RESULTS

4.1 Introduction

This chapter describes the results of the quantitative and qualitative components of the study.

The quantitative component was a cross-sectional comparison which includes description of

the sample characteristic and bivariate analysis. Multivariate analysis was not done as the

predictor variable had multiple distinct categories which could not be merged. The resultant

table had cells with less than 10 cases, an analysis with this input could lead to spurious

results and therefore the effort at multivariate modeling was avoided. The qualitative

analysis included manual coding and thematic analysis. The discussion considered the

quantitative and qualitative findings holistically.

4.2 Sample Characteristics

The baseline characteristics have been compared between the Banjara/thanda and the non-

Banjara/village and presented in tables.

4.2.1 Individual Characteristics

The study population consisted of 320 primary care givers of children, 160 in the Banjara/

thanda and 160 in the non-Banjara/village. Overall the mean (SD) age of the primary care

givers was 25.35 (5.71). The average age of the primary care givers in the Banjara/thanda

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(M= 24.94, SD = 5.44) and non-Banjara/village (M = 25.76, SD = 5.95) was similar. Just

about half the primary care givers in the Banjara/thanda (52.5%) had attended school when

compared to those in the non-Banjara/village (81.9%). Among those who had attended

school the average years of schooling was more in the non-Banjara/village (M=8.18,

SD=3.08) when compared to those in the Banjara/thanda (M=5.79, SD= 3.2). The average

age (in months) of the children under five years in Banjara/thanda (M = 24.89, SD = 16.26)

and non-Banjara/village (M = 26.13, SD = 15.72) were similar.

Table 4.1.Individual profile of the primary care givers and children, Gadag

district,Karnataka

Characteristics Village

[N=160]

n (%)

Thanda

[N=160]

n (%)

Total

[N=320]

n(%)

Primary care giver

Mother

Father

Grandmother

Aunt

Uncle

149 (93.1)

8 (5)

2 (1.3)

1 (0.6)

0 (0)

142 (88.8)

12 (7.5)

4 (2.5)

1 (0.6)

1 (0.6)

291 (90.9)

20 (6.3)

6 (1.9)

2 (0.6)

1 (0.3)

Permission to take child to

a facility

No permission

Some permission

43 (26.9)

117 (73.1)

31 (19.4)

129 (80.6)

74 (23.1)

246 (76.9)

Attended School

Yes 131 (81.9) 84 (52.5) 215 (67.2)

Education of primary care

giver

Lower Primary (1-4)

Upper Primary (5-7)

Secondary (8-10)

PUC & above(>10)

No education

17 (10.6)

36 (22.5)

55 (34.4)

23 (14.4)

29 (18.1)

29 (18.1)

37 (23.1)

12 (7.5)

6 (3.8)

76 (47.5)

46 (14.4)

73 (22.8)

67 (20.9)

29 (9.1)

105 (32.8)

Sex (Child)

Female

Male

76 (47.5)

84 (52.5)

79 (49.4)

81 (50.6)

155 (48.4)

165 (51.6)

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4.2.2 Household Characteristics

There is not much difference in the availability of a toilet facility, transport and BPL card

status between Banjara/thanda and non-Banjara/village. Households in the thanda (45%) had

more livestock than households in the village (36.9%). More people in the thanda (35.6%)

had no access to water source closer to home but the average time taken to fetch water was

more for the village people (M = 19.68, SD = 10.24) when compared to the time taken to

fetch water in the thanda (M = 15.54, SD = 8.62). The kind of care that was preferred for

episodes of diarrhea or ARI did not differ across Banjara/thanda and non-Bajara/village.

Less than half the people in the Banjara/thanda and the non-Banjara/village preferred to go to

a RMP i.e unqualified provider for diarrhea or ARI.

Table 4.2. Household characteristics of the primary care givers, Gadag district,

Karnataka

Characteristics Village

[N=160]

n (%)

Thanda

[N=160]

n (%)

Total

[N=320]

n (%)

Toilet facility

Pit latrine

No facility/open

spaces

Dysfunctional

42 (26.3)

116 (72.5)

2 (1.2)

48 (30)

109 (68.1)

3 (1.9)

90 (28.1)

225 (70.3)

5 (1.6)

Transport*

Motorcycle/Scooter

Car

Animal drawn cart

Cycle

Mini van

Tractor

Tempo

Auto

None of the above

46 (28.8)

4 (2.5)

16 (10)

17 (10.6)

4 (2.5)

5 (3.1)

1 (0.6)

2 (1.25)

90 (56.3)

46 (28.8)

3 (1.9)

11 (6.9)

13 (8.1)

1 (0.6)

3 (1.87)

0 (0)

1 (0.6)

94 (58.8)

92 (28.8)

7 (2.2)

27 (8.4)

30 (9.4)

5 (1.5)

8 (2.5)

1 (0.3)

3 (0.9)

184 (57.5)

Continued….

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Characteristics Village

[N=160]

n (%)

Thanda

[N=160]

n (%)

Total

[N=320]

n (%)

Livestock*

Cows/Bull/Buffaloes

Goats

Sheep

Chicken/Ducks

No Animals

48 (30)

8 (5)

11 (6.9)

16 (10)

101 (63.1)

47 (29.4)

9 (5.6)

26 (16.3)

9 (5.6)

88 (55)

95 (29.7)

17 (5.3)

37 (11.6)

25 (7.8)

189 (59.1)

Water source

In own dwelling

In own yard/plot

Elsewhere

46 (28.8)

67 (41.9)

47 (29.3)

32 (20)

71 (44.4)

57 (35.6)

78 (24.4)

138 (43.1)

104 (32.5)

BPL card 124 (77.5) 131 (81.9) 255 (79.7)

Religion

Hindu

Muslim

143 (89.4)

17 (10.6)

160 (100)

0 (0)

303 (94.7)

17 (5.3)

Preferred Provider for

diarrhea

Government Facility

Private Hospi/Clinic

RMP*

Pvt- BAMS

33 (20.6)

66 (41.3)

24 (15)

37 (23.1)

29 (18.1)

59 (36.9)

28 (17.5)

44 (27.5)

62 (19.4)

125 (39.1)

52 (16.2)

81 (25.3)

Preferred Provider for

ARI

Government Facility

Private Hospi/Clinic

RMP^

Pvt- BAMS

30 (18.8)

62 (38.7)

28 (17.5)

40 (25)

29 (18.1)

57 (35.7)

29 (18.1)

45 (28.1)

59 (18.4)

119 (37.2)

57 (17.8)

85 (26.6) * Individual households had more than one vehicle or livestock in the household

^ RMP- Rural Medical Practitioner

4.3 Self-reported experience of discrimination

There was not much difference in the self-reported experience of discrimination at a health

facility between the Banjara/thanda (6.9%) and non-Bajara/village (5.6%). Overall 20

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(6.3%) reported some kind of discrimination experienced at a health facility. Table

4.3.shows the distribution of the facility, provider who discriminated and the form of

discrimination. Most of them experienced discrimination at a government facility. Nurse

was the healthcare personnel who discriminated the most followed by the physician. The

main form of discrimination experienced by the non-Banjara/village people was rude or

derogatory behavior by the healthcare personnel. In the Banjara/thanda the main forms of

discrimination were rude or derogatory behavior followed by rough touch and not spending

enough time.

Table 4.3. Discrimination experienced at a health facility by primary care givers in

village and thanda(N = 20), Gadag district, Karnataka

Characteristics Village

[N=9]

n (%)

Thanda

[N=11]

n (%)

Total

[N=20]

n(%)

Facility where discrimination was

experienced

Government

Private

Both

5 (55.6)

3 (33.3)

1 (11.1)

9 (81.8)

2 (18.2)

0 (0)

14 (70)

5 (25)

1 (5)

Providers who discriminated

Doctor

Nurse*

Xray/Lab

Registration counter

ASHA

4 (44.4)

4 (44.4)

0 (0)

1 (11.1)

1 (11.1)

2 (18.2)

9 (81.8)

1 (9.1)

0 (0)

0 (0)

6 (30)

13 (65)

1 (5)

1(5)

1 (5)

Forms of discrimination ^

Rude/Derogatory behavior

Touch was rough

Not spending enough time

Avoided touching

Made to wait for long

Inadequate information

5 (55.5)

1 (11.1)

1 (11.1)

1 (11.1)

1 (11.1)

2 (22.2)

7 (63.6)

5 (45.5)

3 (27.3)

1 (9)

1 (9)

0 (0)

12 (60)

6 (30)

4 (20)

2 (10)

2 (10)

2 (10) *one individual in thanda and village experienced discrimination by two providers

^multiple experiences of different forms of discrimination

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4.4 Prevalence of Diarrhea, ARI and overall morbidity

The prevalence of diarrhea (13.1% vs 8.8%), ARI (26.9% vs 22.5%) and overall morbidity

(37.5% vs 29.4%) was more in the Banjara/thanda compared to the non-Banjara/village. The

overall morbidity in the sample was 33.4 percent. Only 2.2 percent had both diarrhea and

ARI. Out of 107 children with diarrhea and ARI, 23 (21.5%) did not seek care outside the

home. Among these, 16 (69.5%) treated the child at home with medications that were left

over from a previous visit to a facility with similar symptoms, 4 (17.4%) of them did not

have money to take the child to the facility and the others provided some home remedy or

felt the illness was not severe to seek care outside.

Table 4.4. Prevalence of Diarrhea, ARI and overall Morbidity (N=320), Gadag district,

Karnataka

Characteristics Village

[N=160]

n (%)

Thanda

[N=160]

n (%)

Total

[N=320]

n(%)

Only Diarrhea

Yes 11 (6.9) 17 (10.6) 28 (8.8)

Only ARI

Yes 33 (20.6) 39 (24.4) 72 (22.5)

Both ARI and Diarrhea

Yes 3 (1.9) 4 (2.5) 7 (2.2)

Morbidity

Yes 47 (29.4) 60 (37.5) 107 (33.4)

4.5 Diarrhea- health care seeking

Among the 35 children with diarrhea 5 (14.3%) did not seek any care outside the home.

Only one child out of the 35 who had diarrhea had blood in the stool.

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Among those who sought care, about 36.8% of primary care givers in the Banjara/thanda

provided some form of treatment at home before going to the facility. The number of days

following which the child was taken to a facility was similar across thanda (M= 1.26, SD =

1.36) and village (M =1.45, SD= 1.75). The preference for government facility was more

among those in the thanda (26.3%). About 80 percent of the children with diarrhea were

given antibiotics with 47.6 percent of children in the thanda with diarrhea receiving injection

for which there was no record or the primary care givers were not aware of the kind of

injection that was administered. Only one child was given Oral Rehydration Salts (ORS) for

the management of diarrhea.

Table 4.5. Distribution of children in village and thanda by health care seeking for

Diarrhea (N = 30), Gadag district, Karnataka

Variables Village

(N = 11)

n (%)

Thanda

(N = 19)

n (%)

Total

(N = 30)

n (%)

Any treatment at home

before going to facility

Yes 2 (18.1) 7 (36.8) 9 (30)

Choice of facility

Government

Private doc/clinic

BAMS

Others*

1 (9.1)

6 (54.5)

1 (9.1)

3 (27.3)

5 (26.3)

8 (42.1)

2 (10.5)

4 (21.1)

6 (20)

14 (46.7)

3 (10)

7 (23.3)

Medicines Prescribed^

Antibiotics

Antimotility

Zinc

Others

Unknown pill or syrup

Antibiotic-injection

Unknown injection

10 (73.7)

3 (27.3)

0 (0)

6 (54.5)

0 (0)

1 (9.1)

2 (14.3)

14 (90.9)

2 (10.5)

1 (5.3)

11 (57.9)

4 (21.1)

1 (5.3)

10 (47.6)

24 (80)

5 (16.7)

1 (3.3)

17 (56.7)

4 (13.3)

2 (6.7)

12 (40) *Includes RMP, shop and temple priest

^ Some children were prescribed one than one medication

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4.5.1 Bivariate analysis with Prevalence of diarrhea as the outcome variable

Bivariate analysis was done with the outcome variable i.e the prevalence of diarrhea and the

exposure variable separately for the Banjara/thanda and non-Banjara/village and presented in

table 4.6. It is seen that in the Banjara/thanda the prevalence of diarrhea is related to the type

of house that the child lives in. Children living in semi-pucca house had a higher prevalence

of diarrhea when compared to those in kacha or pucca houses and this difference was

statistically significant. Water location for household use and education of the primary care

giver were not related to the prevalence of diarrhea in the Banjara/thanda. With respect to

the non-Banjara village, none of the three exposure variables were related to the prevalence

of diarrhea.

Table 4.6.Association between the prevalence of diarrhea with water location, type of

house and education of the primary care giver in village and thanda, Gadag District,

Karnataka

Diarrhea

Yes (%)

Diarrhea

No (%)

ꭓ2 p value

Village

Water location

In own dwelling

In own yard/plot

Elsewhere

1 (2.2)

8 (11.9)

5 (10.6)

45 (97.8)

59 (88.1)

42 (89.4)

3.782 0.157

Type of house

Kaccha

Semi-pucca

Pucca

1 (4.8)

6 (10.9)

7 (8.3)

20 (95.2)

49 (89.1)

77 (91.7)

0.602 0.791

Education of primary care

giver

Attended school

Not attended school

11 (8.4)

3 (10.3)

120 (91.6)

26 (89.7)

0.720

Continued….

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Diarrhea

Yes (%)

Diarrhea

No (%)

ꭓ2 p value

Thanda

Water location

In own dwelling

In own yard/plot

Elsewhere

5 (15.6)

9 (12.7)

7 (12.3)

27 (84.4)

62 (87.3)

50 (87.7)

0.344 0.908

Type of house

Kaccha

Semi-pucca

Pucca

1 (8.3)

10 (29.4)

10 (8.8)

11 (91.7)

24 (70.6)

104 (91.2)

8.591 0.010

Education of primary care

giver

Attended school

Not attended school

13 (15.5)

8 (10.5)

71 (84.5)

68 (89.5)

0.857 0.483

4.5.2 Correlates of facility visited for diarrhea

Fisher’s exact test was done to test the association of the facility visited for diarrhea with

location of residence and education of the primary care giver and the results are presented in

table 4.7. It is seen that the location of residence and education of the primary care giver

were not related to the type of facility from where care was sought for diarrhea.

Table 4.7. Association between the facility visited for diarrhea with the location of

residence and education of primary care giver, Gadag district, Karnataka

Variable Facility visited for diarrhea

Government Private BAMS/RMP ꭓ2 P value

Location of residence

Village

Thanda

1 (9.1)

5 (26.3)

6 (54.5)

8 (42.1)

4 (36.4)

6 (31.6)

1.252 0.621

Education of Primary Care

giver

Attended School

Not attended School

4 (19)

2 (22.2)

9 (42.9)

5 (55.6)

8 (38.1)

2 (22.2)

0.833 0.773

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4.6 ARI -healthcare seeking

Among the 79 children with ARI 56 (70.9%) had fever along with cough and 9 (11.4%) had

difficulty in breathing or fast breathing or chest-in drawing along with cough. Only 60

(76%) of 79 children were taken to a facility outside the home. The proportion of children

taken to a facility was similar across Banjara/thanda (76.7%) and non-Banjara/village (75%).

Among those who sought care about 33.3 percent of the primary care givers provided some

form of treatment at home before taking the child to the health care facility. The number of

days following which the child was taken to a facility was similar across Banjara/thanda (M=

1.42, SD = 1.27) and non-Banjara/village (M =1.4, SD= 1.42). The overall utilization of

government facility was poor with only 15.2 percent of people in the Banjara/thanda

preferring government facility. More than half the children with ARI in the thanda and

village sought care from Ayurvedic (BAMS) doctors and unqualified providers (RMP).

More than half the children were given antibiotics and 27.1 percent received some kind of

injection for which there was no record or the primary care givers were not aware of what

kind of injection was being administered.

Table 4.8.Distribution of children in village and thanda by health care seeking for ARI

(N = 60), Gadag district, Karnataka

Characteristics Village

[N=27]

n (%)

Thanda

[N=33]

n (%)

Total

[N=60]

n(%)

Treatment at home before

going to the facility

Yes 9 (33.3) 11 (33.3) 20 (33.3)

Choice of facility

Government

Private hospital/clinic

BAMS

Others*

0 (0)

13 (48.2)

8 (29.6)

6 (22.2)

5 (15.2)

8 (24.2)

13 (39.4)

7 (21.2)

5 (8.3)

21 (35)

21 (35)

13 (21.7)

Continued….

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Characteristics Village

[N=27]

n (%)

Thanda

[N=33]

n (%)

Total

[N=60]

n(%)

Medicines prescribed^

Antibiotics

Others

Unknown pill or syrup

Antibiotic injection

Unknown injection

17 (65.4)

20 (76.9)

3 (11.5)

1 (3.8)

8 (30.8)

16 (48.5)

29 (87.9)

3 (9.1)

2 (6.1)

8 (24.2)

33 (55.9)

49 (83.1)

6 (10.2)

3 (5.1)

16 (27.1) *Includes RMP and shop

^ Some children were prescribed one than one medication

4.6.1 Bivariate analysis with ARI as the outcome variable

Fishers exact test was done to test the association between the outcome variable i.e the

prevalence of ARI and the exposure variable separately for the Banjara/thanda and non-

Banjara/village and the results are presented in table no 4.9. In the thanda and the village-

water location, type of house or the education of the primary care giver was not related to the

prevalence of ARI. The prevalence of ARI did not vary much in households in

Banjara/thanda and non-Banjara/village which had a drinking water source close by or far

away from the house. Similarly the prevalence was similar across the primary care givers

who were educated and those who were not. It also did not differ by the type of house that

the child lives in but children in kaccha house in thanda had higher prevalence whereas the

children in similar housing condition in the village had lower prevalence.

Table 4.9.Association of the prevalence of ARI with water location, type of house and

education of the primary care giver in village and thanda, Gadag district, Karnataka

ARI

Yes (%)

ARI

No (%)

ꭓ2 p value

Village

Water location

In own dwelling

In own yard/plot

Elsewhere

10 (21.7)

16 (23.9)

10 (21.3)

36 (78.3)

51 (76.1)

37 (78.7)

0.129 0.801

Continued….

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ARI

Yes (%)

ARI

No (%)

ꭓ2 p value

Type of house

Kaccha

Semi-pucca

Pucca

2 (9.5)

17 (30.9)

17 (20.2)

19 (90.5)

38 (69.1)

67 (79.8)

4.284 0.115

Education of primary care

giver

Attended school

Not attended school

28 (22.1)

7 (24.1)

102 (77.9)

22 (75.9)

0.054 0.815

Thanda

Water location

In own dwelling

In own yard/plot

Elsewhere

8 (25)

21 (29.6)

14 (24.6)

24 (75)

50 (70.4)

43 (75.4)

0.476 0.801

Type of house

Kaccha

Semi-pucca

Pucca

5 (41.7)

9 (26.5)

28 (25.4)

7 (58.3)

25 (73.5)

85 (74.6)

1.578 0.496

Education of primary care

giver

Attended school

Not attended school

22 (26.2)

21 (27.6)

62 (73.8)

55 (72.4)

0.042 0.860

4.6.2 Correlates of facility visited for ARI

Fisher’s exact test was used to test the association between the facilities visited for ARI with

location of residence and education of the primary care giver. It was found that location of

residence and the education of the primary care giver were related to the facilities from

where care was sought and this association was statistically significant.

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Table 4.10.Association between the facility visited for ARI with the location of residence

and education of primary care giver, Gadag district, Karnataka

Variable Facility visited for ARI

Government Private BAMS/RMP ꭓ2 P value

Location of residence

Village

Thanda

0 (0)

5 (15.2)

13 (48.1)

8 (24.2)

14 (51.9)

20 (60.6)

6.509 0.038

Education of Primary Care

giver

Attended School

Not attended School

1 (2.6)

4 (18.2)

19 (50)

2 (9.1)

18 (47.4)

16 (72.7)

12.596 0.001

4.7 Care seeking for Morbidity

Children with ARI and Diarrhea were taken together to estimate the overall morbidity and

this outcome variable was used to test the association with various exposure variables.

4.7.1 Correlates of overall morbidity

Morbidity was not related to the type of house in the Banjara/thanda, water location and

education of the primary care giver in both the thanda and the village. However in the non-

Banjara/village there were more children with morbidity in the semi pucca houses but this

association was not significant at the p<0.05 significance level.

Table 4.11.Association of the prevalence of overall Morbidity with water location, type

of house and education of the primary care giver in village and thanda, Gadag district,

Karnataka

Morbidity

Yes (%)

Morbidity

No (%)

ꭓ2 p value

Village

Water location

In own dwelling

In own yard/plot

Elsewhere

10 (21.7)

23 (34.3)

14 (29.8)

36 (78.3)

44 (65.7)

33 (70.2)

2.089 0.352

Continued….

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Morbidity

Yes (%)

Morbidity

No (%)

ꭓ2 p value

Type of house

Kaccha

Semi-pucca

Pucca

3 (14.3)

22 (40)

22 (26.2)

18 (85.7)

33 (60)

62 (73.8)

5.708 0.059

Education of primary care

giver

Attended school

Not attended school

38 (29)

9 (31)

93 (71)

20 (69)

0.047 0.828

Thanda

Water location

In own dwelling

In own yard/plot

Elsewhere

12 (37.5)

28 (39.4)

20 (35.1)

20 (62.5)

43 (60.6)

37 (64.9)

0.255 0.911

Type of house

Kaccha

Semi-pucca

Pucca

6 (50)

17 (50)

37 (32.5)

6 (50)

17 (50)

77 (67.5)

4.352 0.121

Education of primary care

giver

Attended school

Not attended school

34 (40.5)

26 (34.2)

50 (59.5)

50 (65.8)

0.668 0.513

4.7.2 Correlates of facility visited for Morbidity

Fisher’s exact test was done to test the association between facilities visited for morbidity

with location of residence and education of primary care giver and it was found that they

were related to the facility from where care was sought and this association is statistically

significant. Primary care givers in the Banjara/thanda utilized government facility and

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BAMS/RMP providers compared to the non-Banjara/village and there was more utilization

of the private providers by primary care givers in the non-Banjara/village.

Table 4.12.Association between the facility visited for overall Morbidity with the

location of residence and education of primary care giver, Gadag district, Karnataka

Variable Facility visited for Morbidity

Government Private BAMS/RMP ꭓ2 P value

Location of residence

Village

Thanda

1 (2.8)

9 (18.8)

18 (50)

13 (27.1)

17 (47.2)

26 (54.2)

7.505 0.020

Education of Primary Care

giver

Attended School

Not attended School

5 (8.8)

5 (18.5)

26 (45.6)

5 (18.5)

26 (45.6)

17 (63)

6.366 0.041

4.8 Analysis of in-depth interviews

The narratives of discrimination from in-depth interviews were read carefully to identify the

types of discrimination being described. By the method of constant comparison, four distinct

types of perceived discrimination were identified. In addition, by reading through the notes

of the interviews, perceived reasons for discrimination were also identified.

4.8.1 Types of perceived discrimination

Rude Behavior

Rude behavior by health care personnel was the main form of discrimination reported by

informants in the Banjara/thanda and non-Banjara/village. Rude behavior was in the form of

shouting at them or talking without respect. Such behavior was reported from health care

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settings especially against persons whose dress clearly indicated their caste identity. For

example, a nurse in a scanning center was reported to have shouted at an old lady because her

grandchild passed urine in the waiting area and she wiped it with the child’s wet pant. She

was distinguishable because she was wearing clothes that indicated her caste.

“you people (Banjara’s) are always like this, not clean and always dirty”

-elderly Banjara woman

Such behavior was perceived as insulting by the informant. Rude behavior by field workers

in the community has also been reported. The Accredited Social Health Activist (ASHA) is

reported to have shouted at a pregnant lady in front of her neighbors for demanding antenatal

care services.

“ASHA worker has too much sokku (arrogance) that she will come to the oni (cluster of

houses where people of certain caste reside) and fight in front of others”

- 28 year old woman from the village

This rude behavior resulted in seeking care from alternative sources. Sometimes, women

reported being abused for reasons beyond their control.

They told me that “don’t you have brains, doesn’t your husband have a job, why do you keep

getting pregnant (referring to the 4 children and pregnant with the 5th

)”

- 25 year old Banjara woman

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Withholding services

Withholding of services could be in the form not providing certain services to the

beneficiaries or in the form of delayed care. This form of reported discrimination was being

practiced by nurses in government hospitals and ASHA workers in the community.

“I’m pregnant with my second child and the ASHA worker has to visit me and I should get

injections and other benefits from her but she doesn’t come home. She visits the houses of a

few people whom she likes. She thinks she has all the authority, because of this I have to go

to a private hospital in Gadag and consult doctors for my check up. We have to pay money

and spend from our pockets”

- 28 year old woman from the village

Individuals who have money and are aware are able to go to a private facility for services

even though it means spending money but for those whose options are limited they have to

look for ways within the existing system to get the care they require. The following two

narratives explain the ways through which pregnant women in non-Banjara/village and

Banjara/thanda had to get their delivery done.

“When I was pregnant, the due date was weeks away and the doctor advised us to get the

delivery done otherwise both the mother and child would not survive. So we got admitted in

the evening, the doctor gave some injections and left. Next day morning he came and asked

us to pay 2500 rupees and after that the delivery would be conducted. Till we paid the

money there was no care, the nurses spoke rudely and did not come for rounds, visits or

provide any care. My father paid 2500 rupees and then normal delivery was conducted by

the doctor. We also had to pay 200 rupees each to the two nurses”

- 23 year old woman from the village

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“I developed labor pains and my husband took me to the taluka hospital at 8 in the morning.

I was admitted there and they kept me there till 4 in the evening, the nurses there were not

responding when we called them and I was not given any injection or medicine. My husband

went and shouted at them for not providing any care and they immediately referred us to the

district hospital. We had only 1000 rupees with us and we had to borrow extra 3000 rupees

from the ration shop to go to the district hospital. The ambulance driver was not ready to

take us unless we paid 400 rupees which he said was for the petrol. We reached the district

hospital and I delivered my child there and I was taken good care. If we had paid some

money and not shouted at the nurse then my delivery would have been conducted there itself”

- 26 year old Banjara woman

Not spending enough time

This form of discrimination was experienced with physicians. Informants felt that the

physicians were not spending enough time because they were from the village.

“we don’t go to a government hospital because the doctor there will just touch the patient

and send us off, they don’t spend time with us often and they do this to all kind of patients.

These old people (pointing to a dhoti clad elderly gentleman, squatting on the floor) face

discrimination. When they go to a hospital the doctor is aware that he is from the village and

they don’t treat them properly and spend less time”

- 31 year old man from the village

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Not giving proper information

The information given by the physician was considered to be inadequate or not properly

explained in a way that was understandable.

“the child had fever and cough so we gave him medicines which was at home, it didn’t get

cured so we took him to a children’s hospital in Gadag. There the doctor prescribed

medicines and it didn’t get cured so we went back to him and he prescribed different

medicines, we asked him what was wrong and he didn’t give proper information about what

was happening to the child, so we went to another doctor and he also gave medicines, the

child was a little better but still sick so we went back to him a second time and asked him and

he told us not to give the child anything to eat. How can we not give anything for the child to

eat and starve him? We came back quietly without saying anything. We go there for our

child and for his sake we don’t tell anything. We went to another doctor and he explained

everything to us properly and told us that the child would be alright as he grows. We were

satisfied with his behavior and now we always go to him for treatment”

- 25 year old woman from village

4.8.2 Perceived reasons for discrimination

The main reasons for being discriminated were identified through the interviews. Three

reasons were clearly enunciated and these were related to being poor, wearing distinctive

clothing and poor educational status.

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Being poor or Poverty

Those who were poor were not able to give money to the providers for services which were

free and were perceived to be discriminated against.

“when she visits people houses they offer chai, biscuit and some money but not all can

provide these things. She only visits a few peoples house whom she likes”.

- 28 year old woman from the village

Wearing distinctive clothing

The clothes that people wear determined whether they were discriminated or not. In case of

older Banjaras they can be easily identified by their distinct clothing.

“my mother is hale mandhi (reffering to people belonging to older generation). Fifteen to

twenty years back all old people in our community used to wear traditional Banjara dress

and they continue to this day unlike the younger generation who do not wear such clothes.

The nurse behaved that way because she could make out that my mother was a Banjara”

- 30 year old Banjara man

Persons wearing western clothing like shirt and trousers compared to those wearing

traditional dhotis are less likely to be discriminated or treated badly.

“the nurses in government don’t treat the people properly and talk rudely, it always happens

to people from our thanda. If a well-dressed person or a person wearing pant and shirt goes

they will treat them properly and others are treated badly”

-23 year old Banjara woman

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Low educational status

Lack of education was seen as a reason for discrimination.

“education is important, if people are educated they will have value. People like us have not

studied properly (not having higher education) and we cannot speak in front of such

educated people. Village people are like that. We stand with our mouth shut. If in that place

any educated person would have been the doctors would have spoken properly to them and

got the respect they deserve”

- 25 year old woman from village

However a person who is uneducated but is smart is able to escape from those who

discriminate.

“after my wife delivered the nurse there demanded 500 rupees as their fees. I questioned

them asking what kind of fees is that and I demanded them to give me receipt. Since they

didn’t agree for receipt I didn’t give any money. I pretended to call the minister in front of

them. The nurse on hearing this got scared and left the place. People who are uneducated but

smart are able to escape but old people accompanying their daughters don’t know anything

and pay how much ever the nurse demands”

- 32 year old Banjara man

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CHAPTER 5

DISCUSSION AND CONCLUSIONS

5.1 Summary of key findings

The prevalence of diarrhea, ARI and overall morbidity was more in the Banjara/thandas

compared to the non-Banjara/village. Out of the 320 children studied 107 (33.4%) fell sick.

Among 107 children who were sick 23 (21.5%) did not seek any care outside the home, the

reasons being financial inability to seek care (17.4%) and more than half (69.5%) the primary

giver treated the children with medications that were left over from an earlier episode.

Among the 35 children with diarrhea, 30 sought care from a facility. More than one third of

the primary care givers provided some form of treatment at home before taking them to a

facility. Among those who sought care from a government facility there was higher

proportion of people from the Banjara/thanda. Four-fifths (80%) of the children were

prescribed antibiotics for diarrhea and less than half the children in thanda received unknown

injections compared to the children in the village. Only one child was given ORS for

management of diarrhea. In the Banjara/thanda the type of house was related to the

prevalence of diarrhea with children in semi pucca house having a higher prevalence of

diarrhea. The facility visited for diarrhea was not related to the location of the residence or

the education of the primary caregiver.

Among the 79 children with ARI only 60(76%) were taken to a facility outside the home.

Almost one third of the primary care givers provided some form of treatment at home before

going to the facility. The overall utilization of government facilities was poor with only a

few people from the Banjara/thanda preferring to seek care there. A higher proportion of

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50

care givers in the Banjara/thanda utilized BAMS/RMPs and Government providers when

compared to those in the village. The use of antibiotics was high with more than half the sick

children being prescribed antibiotics. Less than one third of the children in both

Banjara/thanda and non-Banjara/village received unknown injections for which there was no

record or the primary care givers were unaware of the kind of injection. The prevalence of

ARI was not related to water location, type of house or the education of the primary care

giver. The facility from where care was sought was related to the location of residence and

education of primary care giver with people in the thanda preferring care from government

facility and BAMS/RMP providers compared to the people in the non/Banjara/village.

Primary care givers who had attended school went to private facilities for seeking care

compared to those who had not attended school who went to government facility and

BAMS/RMP. The findings were similar for overall morbidity.

Discrimination

Findings from the quantitative component suggest that the overall experience of

discrimination was 6% and there was not much difference in the experience of discrimination

between the Banjara/thanda and non-Banjara/village. The type of discrimination faced was

rude behavior, withholding services, not spending enough time and not giving proper

information. However the qualitative analysis revealed that discrimination experienced by

the members of the community, both in the Banjara/thandas and in the non-Banjara/village

was class based and not caste based. The perceived reasons for discrimination were being

poor, clothing and educational status.

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5.2Diarrhea and its correlates

The overall prevalence of diarrhea in the present study was found to be 10.9 percent which is

slightly higher than the findings from District Level Household Survey- 4 (DLHS-4)(IIPS,

2014) in Gadag district and NFHS-3(IIPS, 2007)for Karnataka but higher compared to a

multi-district study of which Gadag was a part of (Lahariya et al, 2012). The prevalence of

diarrhea was more among the Banjaras (13.1%) compared to the non Banjaras(8.75%) which

is different from the findings of NFHS-3 where the children belonging to the Scheduled

Caste had lower prevalence compared to the Other Backward Caste. The utilization of

facilities outside the home was more with 85.7 percent seeking care which is more than the

estimates of DLHS-4 and NFHS-3. The care seeking was more among the children in the

Banjara/thanda compared to the non-Banjara/village and this is consistent with the findings

of NFHS-3. The utilization of government facilities was much lower and is almost similar to

the study done in Gadag district (Lahariya et al, 2012). Only one child (3.3%) was given

ORS for the management of diarrhea which is very low compared to 40.4 percent and 47

percent in DLHS-4 and NFHS-3. ORS remains the mainstay of treatment for management of

dehydration in diarrhea but in the current study a shift is seen in the management of diarrhea

with increased use of antibiotics, antimotility drugs and injections which are considered

inappropriate treatment for children. Antibiotics is indicated in diarrhea only when there is

blood in the stools (WHO, 2003); however in the current study large proportion of children

who did not have blood in their stool were given antibiotics and unknown injections which

could have been antibiotics. This suggests an inappropriate and irrational use of antibiotics

which can lead to drug resistance and push up the costs of treatment. This practice is similar

to a study done in Delhi (Kotwani et al, 2012). The prescription practices could be influenced

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by the pressure to deliver faster relief. Most of the primary care givers visited BAMS

doctors and RMP who were practicing modern system of medicine and providing these

inappropriate treatment options.

5.3 ARI and its correlates

The prevalence of ARI was 24.7 percent which was very high compared to previous studies

(IIPS, 2007, 2014; Lahariya et al, 2012). The prevalence of ARI was more among the

children in the Banjara/thanda (26.9%) compared to the non-Banjara/village (22.5%). The

utilization of facilities outside the home was 76 percent which is lesser than the DLHS-4

estimate(IIPS, 2014) but much higher than the study done in Gadag district (Lahariya et al,

2012). Utilization of facilities was same across thanda and village. The utilization of

government facilities for ARI (8.3%) was low compared to other studies (IIPS, 2014;

Lahariya et al, 2012). Among the users of government services all of them were from the

Banjara/thanda. The prescription of antibiotics was high with 48.5 percent in the

Banjara/thanda and 65.4 percent in the non-Banjara/village receiving antibiotics. According

to Integrated Management of Neonatal and Childhood Illness (IMNCI) guidelines antibiotics

are indicated only when the child has cough along with difficulty in breathing or fast

breathing or chest-in drawing (WHO, 2003). In the current study only 11.4 percent of the

children had these symptoms but the proportion of children receiving antibiotics was much

higher which again indicates irrational use of antibiotics in children. The utilization of

BAMS providers and RMP who are unqualified was very high for ARI and this could one of

the reasons for high prescription of antibiotics. The facility visited for ARI was related to the

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location of residence and education of the primary care giver. Educated people would have

more information regarding the providers and the types of facilities and this would explain

the increased utilization of private facilities among educated people.

The difference in the prevalence of ARI and Diarrhea is not explained by the location of

water source, the type of house or the education of the primary care giver; however type of

house was related to the prevalence of diarrhea in the Banjara/thanda where a higher

prevalence was observed among those residing in semi-pucca houses. The difference in

morbidity could be because of the density i.e number of dwelling per area which was more in

the Banjara/thanda compared to the non-Banjara/village. However this study did not measure

the density of dwellings per unit of area. Antibiotics usage was very high for diarrhea and

ARI. Irrational usage was due to the providers prescribing antibiotics and lack of awareness

and information of antibiotic use among the primary care givers. When a child is prescribed

medicines for sickness and is cured the medicines are stored and are used the next time when

the child falls sick with similar symptoms. This practice was seen in the current study where

close to one third of the primary care givers of children with diarrhea and ARI gave them

medicines which were prescribed previously before taking them to a facility. This can lead

to antibiotic resistance which prolongs the duration of illness and increase costs. The bulk of

government and private healthcare facilities are located in the city of Gadag compared to the

rural areas where the government facilities are Taluka hospitals and PHC’s/CHC’s and

private facilities which are run by qualified medical doctors, BAMS doctors and RMPs.

Shortage and non-availability of doctors in government facilities are the reasons for people

seeking care elsewhere. This huge gap is filled by the BAMS providers and RMPs. The

unqualified providers in Gadag district are referred to as RMPs. They are private providers

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who offer allopathic curative care without having any medical degree recognized by the

Government of India (George and Iyer, 2013). They practice by setting up clinics in villages

or thandas or by going door to door providing treatment for any ailments in the house. More

people from the Banjara/thanda were going to government facilities or BAMS/RMPs

compared to the non-Banjara/village even though the geographical accessibility of these

facilities were similar across thanda and village. The reason for this could be the relative

poverty of the people in the Banjara/thanda who sought care from facilities which were free

or where they had to pay less for a BAMS provider or pay at a later date in case of RMPs.

The Banjara/thanda people had better housing compared to the village which itself is a result

of the government schemes directed towards them and therefore is not an indicator of

economically better status.

5.4 Self-reported experience of discrimination

The discrimination experienced was class based and not caste based (Acharya, 2010) or

based on religion (Kanday and Tanwar, 2013). There was not much difference in the

reported experience of discrimination between non-Banjara/village and Banjara/thanda but

the forms of discrimination and the providers who discriminated was similar to the studies

done in Rajasthan, Gujarat and Mumbai (Acharya, 2010; Kanday and Tanwar,2013). This

does not mean that discrimination does not exist in the community or it doesn not act as a

barrier in seeking care. It does exist in the community in subtler forms and is evident from

the qualitative analysis. The qualitative analysis identified poverty, clothing and educational

status as the perceived reasons for discrimination.

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The objective of the study was to describe the pattern of health care utilization for diarrhea

and ARI for children under five years of age and to identify the self-reported forms of

discrimination. Although the utilization was good for diarrhea and poor for ARI for both

thanda and village the treatment being provided was inappropriate for most of the children

with high use of antibiotics. Self-reported discrimination did not come out as a significant

finding but it does exist in the community as evidenced from the qualitative findings.

5.5 Limitations of the study

The index of discrimination tool was not able to capture the discrimination in the community.

The tool was designed to capture the discrimination faced by dalit children in Gujarat and

Rajasthan where the community faced severe discrimination. In the current study the people

in the Banjara/thanda do face discrimination but it may not be as severe as reported in other

places and it could be a subtle form of discrimination which the tool failed to capture.

Multivariate analysis was not done as the predictor variable had multiple distinct categories

which could not be merged and there were cells which had less than 10 cases which would

lead to spurious results.

5.6 Strengths of the study

Findings from the study can be extrapolated to the population of Gadag district. Efforts were

made to verify the health care seeking by going through the prescription slips of the children

who were sick and in cases where the prescription were not available the name of the drugs

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that were prescribed was noted down. The study was a mixed methods design which was

able to offer a better understanding of the self-reported discrimination other than what could

have been inferred from quantitative findings.

5.7 Conclusions

The study finds that the overall prevalence of morbidity was more among the children in the

Banjara/thanda compared to non-Banjara/village. While health care seeking did not vary by

Banjara/non-Banjara statys, it was equally poor across both communities. The health care

seeking for ARI was poor with only 75 percent of the children being taken to a facility.

Although there was not much difference in the utilization of services; differences in the

Banjara/thanda and non-Banjaravillage were seen for the facilities from where care was

sought for both ARI and diarrhea. There was increased utilization of government and

BAMS/RMP providers in the thanda whereas the utilization of private providers was more

among those in the village. Care when sought and obtained was often inappropriate with the

excessive use of antibiotics for both diarrhea and ARI even when it is not indicated. This has

the potential to increase antibiotic resistance in this vulnerable population. The choice of

facility visited may be shaped by the socioeconomic status and class based discrimination,

however more specific tools are needed to capture this. Future studies are needed to look

into power relations within communities and identify the vulnerable groups in each context

and study the health care seeking and the contribution of class based discrimination in

restricting access to health care.

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5.8 Policy Implications

The government needs to take measures to strengthen the public sector health facilities by

identifying the problems with each facility and take measures to correct them so that there is

increased utilization by the public. Interventions are needed to educate the communities

about appropriate use of antibiotics and among the providers so that antibiotics are prescribed

only when indicated. Cracking down on RMPs will lead to them emerging in a different

form or place and instead efforts must be made to train these providers on the lines of IMNCI

to provide basic care in the community.

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Information sheet

I am Bevin Vinay Kumar V N, student of Master in Public Health (MPH) at AchuthaMenon

Center for Health Science Studies (AMCHSS), Sree Chitra Tirunal Institute for Medical

Sciences and Technology (SCTIMST). As a part of my dissertation I am doing a study titled

“Access to health care among under five children in the Banjara community, Karnataka”. This

study is being done under the supervision of Dr. Mala Ramanathan, Additional Professor,

AMCHSS, SCTIMST.

I am undertaking this study to understand the pattern of health care seeking for childhood illness,

the difficulties faced by people in seeking care and also the discrimination faced by them in a

health facility. Four hundred children and their parents would be recruited randomly in this study

across different thandas and villages in Gadag district.

If you agree to participate in the study then you would be required to answer a set of questions.

This would take about 20 to 30 minutes. Your participation in this study will not be of any direct

benefit to you but it would help to find out the difficulties faced by your community in seeking

health care. Participation in the study is voluntary will not harm you in any way. The information

shared by you would be kept confidential and would be used for research purpose. Only two

persons, myself and my guide would have access to this information. Your individual identity

would never be shared with anyone. You are free to refuse to answer any of the questions and

can withdraw from the interview at any point of time and there would be no penalty for the same.

If you have any clarifications regarding the study you can contact me or Dr Mala Ramanathan,

member-secretary of the Institute Ethics Committee of SCTIMST.

Researcher

Bevin Vinay Kumar V N

MPH Scholar

AMCHSS, SCTIMST

Contact number: 9886482006

E-mail id: [email protected]

Guide& Member Secretary, IEC, SCTIMST

Dr. Mala Ramanathan

Additional Professor

AMCHSS, SCTIMST

Contact number: 0471- 2524234

E-mail id: [email protected]

Bevin
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ANNEXURE I
Bevin
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Consent Form

I, ____________________________________________, aged ___ ___years declare that

I have read and understood the information sheet for the study and have had the opportunity to as

questions [ ]

I understand that the participation in this study is voluntary and that I’m free to withdraw at any

time and without giving any reasons [ ]

I agree not to restrict the use of any data or results that arise from this study provided such a use

is only for scientific purpose(s) [ ]

I agree to take part in the study [ ]

Place: ........................... ID: ...................................

Date: ........................... Signature: ............................................

If the Participant is illiterate:

Name of Witness: ............................................

Signature of witness: ............................................

Signature of Researcher: ............................................

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Questionnaire

Access to healthcare among under five children in the Banjara

community, Karnataka

Id: Thanda/Village:

Date of interview:

1 Primary Care

Giver

1.1 Age In which month and year were

you born?

1.2 Educational status Have you ever attended school 1. Yes 2. No

If “Yes” how many years of

schooling did you complete?

(What is the highest standard you

completed)

1.3 Autonomy (wrt

seeking health care

for the child)

Who takes the decision regarding

seeking care outside the house for

the child’s illness?

1. Mother

2. Father

3. Father-in-law

4. Mother-in-law

5. Don’t Know

6. Others_________

2. Relationship to

the child

What is your relationship to the

child?

1. Mother

2. Father

3. Grandmother

4. Grandfather

5. Aunt

6. Others_______

3. Age of the child How old was the child on his/her

last birthday?

4. Sex of the child Is the child a boy or a girl? 1. Male

2. Female

5. Economic status*

5.1 Sanitation

facility

What kind of toilet facility do

members of your household

usually use?

1. Flush or Pour flush toilet

2. Pit Latrine

3. Twin pit/ composting Toilet

4. Dry Toilet

5. No facility/ uses open

space/ field

6. Other________

5.2 Type of house Observe the type of house 1. Kachha

2. Semi-pucca

3. Pucca

Bevin
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Bevin
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Bevin
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ANNEXURE II
Bevin
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5.3 Place for

cooking

Is the cooking usually done in the

house, in a separate building or

outdoors?

1. In the house

2. In a separate building

3. Outdoors

4. Others_____________

5.4 Means of

transport

Does your household have: 1. Motorcycle or Scooter

2. Car

3. Animal drawn cart

4. Bicycle

5. None of the above

5.5 Farm Animals Does your household own any of

the following animals:

1. Cows/Bulls/Buffaloes

2. Horses/Donkeys/Mules

3. Goats

4. Sheep

5. Chickens/Ducks

5.6 Drinking water a. Where is the water source

located

1. In own dwelling

2. In own yard/plot

3. Elsewhere

b. How long does it take to

go there, get water and

come back in one trip?

1. Minutes______

2. On the premises

3. Don’t Know

5.7 BPL Card Do you have a BPL card? 1. Yes 2. No

6.

Religion

What is the religion of the head

of the household?

1. Hindu

2. Muslim

3. Christian

4. No Religion

5. Others__________

7. Caste to which

the child

belongs to

What is the Caste/Tribe that the

head of the household belong to?

1. SC

2. ST

3. OBC

4. None of them

5. Others_____________

*5.1 to 5.7 will be used to compute wealth index

8. Discrimination Sl

No Questions Response

8.1 To your knowledge,

have people in this

community been treated

rudely or made to feel

bad during their visit to

any health care facility?

1. Yes 2. No

8.2 Did you ever

experience a sense of

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being treated badly or

with disrespect when

compared to the others

when you visited a

health care facility?

1. Yes 2. No

End if the response in 2 is “No” for both 1 and 2 and go to Q10. If the respondent has said “Yes”, to

either of the two questions, continue.

8.3 If “Yes” then in which

facility did you

experience this:

1. Government health facility

2. Private facility

3. NGO/Trust hospital

4. Others________________

8.4 Where

within the

facility did

you get

such a

feeling

1. Registration counter

2. Waiting outside the health care providers

chamber

3. Interaction with the health care provider

4. Pharmacy

5. X-ray or Laboratory investigations

6. Procedure or Dressing room

7. Others________________

Y N

Y N

Y N

Y N

Y N

Y N

Y N

I’m going to ask a few questions about your experiences at the health care facility. Please respond to these

on the basis of the facility that you remember the most.

Which of the four types of the facility was this: Government/Private/NGO-Trust /others

Sl

No Questions Yes No

Often Occasionally

Registration Counter

Have any of the following things happened to you at the registration counter. Please tell me which

response suits your experience. (Yes,often-3, Yes,occasionally-2, No,never-1)

8.5.1 The clerical staff at

registration counter

spoke rudely or used

derogatory words

while speaking to me

8.5.2 Other fellow patients

spoke rudely or

derogatorily to me

while waiting in the

registration counter

8.5.3 Other fellow patients

were given preference

over me by the

clerical staff at the

registration counter

8.5.4 Other fellow patients

waiting in the Q along

with me pushed me

aside to get the

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registration done

Waiting to see the Doctor

Have any of the following things happened to you while waiting to see the Doctor

8.6.1 I have been forced to

make way for a

person to seek

consultation when it

was actually my turn

8.6.2 The peon/person

outside the chamber

spoke rudely or used

derogatory words

while speaking to me

8.6.3 Other fellow patients

were not willing to sit

next to me while I

was waiting to see the

Doctor

Consultation Room

Have any of the following things happened to you while interacting with the Doctor

8.7.1 The doctor spoke

rudely or used

derogatory words

while speaking to me

8.7.2 The doctor’s ’s touch

was rough and not

kind

8.7.3 The doctor avoided

touching during

examination

8.7.4 The doctor did not

spend as much time

with me as he/she did

for others

8.7.5 The doctor did not

give me as much

information about my

health condition as he

did to others

Dispensing of Medicine

Have any of the following things happened to you while getting your medicines (Pharmacy)

8.8.1 The person dispensing

medicines spoke

rudely or used

derogatory words

while speaking to me

8.8.2 The person dispensing

medicines did not

give the medicines in

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my hand but left it on

the counter for me to

take it but gave it in

the hand to others

8.8.3 I am made to wait

longer to get the

medicines when

compared to others

Pathological test/X –ray

Have any of the following things happened to you while getting a X-ray or during laboratory

investigations

8.9.1 The technician spoke

rudely or used

derogatory words

while speaking to me

8.9.2 I was made to wait for

long to get my tests

done when compared

to others

Procedure/Dressing room

Have any of the following things happened to you while getting an injection or while getting your wound

dressed

8.10.1 The nurse/nursing

assistant spoke

rudely or used

derogatory words

while speaking to

me

8.10.2 The nurse/nursing

technician avoided

touching during

examination

8.10.3 The nurse/nursing

assistant’s touch

was rough and not

kind

8.10.4 I am made to wait

for long to get the

procedure done

when compared to

others

8.10.5 The nurse/nursing

technician spoke

about me or made

fun of my condition

to other coworker in

front of me

Others (if applicable)

Have any of the following things happened to you _________________________

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9. Preferred treatment

provider for people

in this area

If the child had Diarrhea

where would you take him/her

for care?

1. Government hospital

2. Private Hospital

3. Private clinic

4. Pharmacy

5. Traditional healer

6. Vaidya/Hakim/Homeopath

7. Others______________

If the child had ARI where

would you take him/her for

care?

1. Government hospital

2. Private Hospital

3. Private clinic

4. Pharmacy

5. Traditional healer

6. Vaidya/Hakim/Homeopath

7. Others______________

10. Child with

Diarrhea/ARI in

the last two

weeks

Did the child have Diarrhea in

the last two weeks

1. Yes

2. No

Did the child have ARI in the

last two weeks

1. Yes

2. No

8.11.1 The _________

assistant spoke

rudely or used

derogatory words

while speaking to

me

8.11.2 The _________

avoided touching

me during

examination

8.11.3 The _________

touch was rough and

not kind

8.11.4 I am made to wait

for long to get the

procedure done

when compared to

others

8.11.5 The ________

spoke about me or

made fun of my

condition to other

coworker in front of

me.

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If “Yes” for both Diarrhea/ARI or Diarrhea or ARI then proceed to 12, if “No” for both then

thank them for their time and end the interview.

11. If “Yes” for Diarrhea then was there

any blood in the stools?

1. Yes

2. No

If “Yes” for ARI then he/she had any of the following

Cough 1. Yes 2.

No

Difficult breathing 1. Yes 2.

No

Fast breathing 1. Yes 2.

No

Chest-in- drawing 1. Yes 2.

No

Fever 1. Yes 2.

No

Loss of Consciousness 1. Yes 2.

No

12. How long ago did the Diarrhea or

Respiratory illness start?

Days_______

Weeks_______

13. Did you seek medical care for the child

outside the home?

1. Yes 2.

No

If “Yes” go to Q15, if “No” then proceed to next question

14. Reasons for not

seeking care

outside the home

If you did not seek care outside your

home, what were the reasons? (Multiple

responses possible)

1. Clinic/facility too far from

the house

2. Unable to find transport

3. Cost of travel too high

4. Cost of treatment too high

5. other children at home

would be left alone

6. Loss of wages

7. Treated the child at home

8. Others_________

After answering this question go to question 19

15. Delay in seeking

care If yes then how many days after the

beginning of diarrhea/cough did you

first go to the facility

15.1 Date of onset of cough/diarrhea

15.2 Approximate time when the symptoms

were noticed

15.3 Date when taken to the health facility

15.4 Approximate time of reaching the

facility

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16 Treatment at

home Did you provide any treatment at home

before reaching the facility?

1. Yes 2.

No

16.1 If yes then could you please list the

treatment or treatments in order from the

onset of diarrhea or cough till you decide

to seek care

1st

2nd

3rd

17 Choice of

facility Where did you seek advice or treatment

for diarrhea or ARI?

1. Public Medical Sector

1.1Gov/Municipal Hospital

1.2 Gov Dispensary

1.3 PHC

1.4 CHC/Rural hospital

1.5 Subcenter/ANM

1.6 Gov Mobile clinic

1.7 Anganwadi/ICDS center

1.8ASHA

1.9 Other

2.Private Medical Sector

2.1 Private Hospital

2.2 Pvt Doctor/Clinic

2.3 Pvt Paramedic

2.4

Vaidya/Hakim/Homeopath

2.5 Traditional Healer

2.6 Pharmacy/Drugstore

2.7 Other_____________

3. NGO/Trust/Clinic

4. Others

4.1 Shop

4.2 Friends/Relative

4.3 Others__________

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18 Was anything given to treat the diarrhea? 1. Yes 2. No 3.

Don’t know

Was anything given to treat the ARI? 1. Yes 2. No 3.

Don’t know

If “yes” then go to 18.1 or 18.2, if “no” or “Don’t know” skip to 20

18.1 What was given to treat the diarrhea?

(Multiple responses possible)

Pill or Syrup

1. Antibiotic

2. Antimotility

3. Zinc

4. Others(Other than

those mentioned

above)

5. Unknown Pill or

syrup

Injection

6. Antibiotic

7. Non-Antibiotic

8. Unknown Injection

9. Intravenous

10. Home remedy or

herbal medicine

11. Others___________

__

18.2 What was given to treat ARI?

(Multiple responses possible)

Pill or Syrup

1. Antibiotic

2. Others__________

3. Unknown Pill or

syrup

Injection

4. Antibiotic

5. Non-Antibiotic

6. Unknown Injection

7. Intravenous

8. Home remedy or

herbal medicine

9. Others___________

__

19 Reasons for

taking the child

to this facility

What was the reason for taking the child

to this facility for treatment?

Thank the respondent for their time and end the interview

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1

Qualitative Component

In-depth Interview guidelines

I’m trying to find out what you did when your child was sick, what kind of treatment you

used to treat your child when he/she was ill and your experiences with the health care

facility.

1. What were the symptoms that caused you to become alert that your child was sick?

When did this happen and what did you do to cure the child?

2. Did you provide any treatment at home?

3. What else did you do? (Visit a local health provider or someone else?)

4. Are there any other providers to whom you can go to? Who are they and why did you

select this particular one? Have you ever used any other providers?

5. What kind of problems have you faced at these providers? Are these problems the

same or are there any differences in your experiences?

6. Some people have reported being treated badly in the hospital because of their caste.

Have you ever experienced any behavior directed at you that made you feel

demeaned either because of your caste or any other reason? If so, what had happened

– can you describe the incident?

7. How did it make you feel? What did you do about it? Could you do anything to

correct this?

8. Did you seek anyone’s help about this event(s)? How often do you experience this

kind of behavior elsewhere (other than the health care setting)?

Leave taking: Is there anything about your experiences in the hospitals here in your

community you would like to add?

Thank you.

Bevin
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Bevin
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ANNEXURE III
Bevin
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ಆಚೂತ ಮೇನ ೂೇನ್ ಸ ೆಂಟರ್ ಫಾರ್ ಹ ೇಲ್ತ ್ಸ ೈನ್್ ಸ್ಟಡೇಸ್

ಸ್ರೇ ಚಿತರ ತಿರುನಾಳ್ ಇನ್ಸ್್ಿಟೂೂಟ್ ಫಾರ್ ಮಡಕಲ್ತ ಸ ೈನ್್ಸ್ ಅೆಂಡ್ ಟ ಕ್ಾಾಲಜೇ, ಟ ೈವೆಂಡ್ರಮ್-695011

ಮಾಹಿತಿ ಹಾಳ ೆ

ನ್ಮಸಾಾರ, ನಾನ್ು ಬ ವಿನ್ ವಿನ್ಯ್ ಕುಮಾರ್ ವಿೇ. ಎನ್, ಮಾಸ್ಟರ್ ಆಫ್ ಪಬ್ಲಿಕ್ ಹ ಲ್ತ್ ಡಗ್ರೇ, ಆಚೂತ ಮೇನ ೂೇನ್ ಸ ೆಂಟರ್ ಫಾರ್ ಹ ೇಲ್ತ ್ಸ ೈನ್್ ಸ್ಟಡೇಸ್, ಸ್ರೇ ಚಿತರ ತಿರುನಾಳ್ ಇನ್ಸ್್ಿಟೂೂಟ್ ಫಾರ್ ಮಡಕಲ್ತ ಸ ೈನ್್ಸ್ ಅೆಂಡ್ ಟ ಕ್ಾಾಲಜೇಯಲ್ಲ ಿಅಧ್ೂಯನ್ ಮಾಡ್ುತಿ್ಧ ೇನ . ನ್ನ್ಾ ಆಧ್ೂಯನ್ಧ್ ಬಾಘವಾಗ್ “ಕನಾಾಟಕದ ಬೆಂಜಾರಾ ಸ್ಮುದಾಯಧ್, ಐದು ವರ್ಾದ ಕ್ ಳಗ ಮಕಾಳ ಅಡಯಲಿ್ಲ ಆರ ೂೇಗ್ೂ ಪರವ ೇಶ” ಸ್ೆಂಶ ೇದನ ಮಾಡ್ುವ ನ್ು. ಈ ಅದೂಯನ್ವು ಡಾ ಮಾಲಾ ರಾಮನಾಥನ್, ಹ ಕುಾವರಿ ಪ್ರರಫ ಸ್ರ್, ಏ.ಎೆಂ.ಸ್.ಏಚ್.ಎಸ್.ಎಸ್ ,

ಎಸ್.ಸ್ೇ.ಟಿ.ಐ.ಮ್.ಸ್.ಟಿ ಮೇಲ್ಲಿಚಾರಣ ಯಲ್ಲ ಿಮಾಡ್ಲಾಗ್ುತಿ್ದ . ನಾನ್ು ಬಾಲೂದ ಅನಾರ ೂೇಗ್ೂದ, ಕ್ಾಳಜ ಮತು ್ಆರ ೂೇಗ್ೂ ಸೌಲಭ್ೂ ಅವುಗ್ಳನ್ುಾ ಎದುರಿಸ್ುವ ತಾರತಮೂದ ಕ್ ೂೇರುತಿ್ರುವ ಜನ್ರು ಎದುರಿಸ್ದ ತ ೂೆಂದರ ಗ್ಳನ್ುಾ ಕ್ ೂೇರಿ ಆರ ೂೇಗ್ೂ ಮಾದರಿಯನ್ುಾ ಅಥಾಮಾಡಕ್ ೂಳಳಲು ಈ ಅಧ್ೂಯನ್ ಕ್ ೈಗ ೂಳಳಳತಿ್ದ ನ . ನಾನ್ೂರು ಮಕಾಳಳ ಮತು ್ಅವರ ಪಾಲಕರು ಗ್ದಗ್ ಜಲ ಿಯ ವಿವಿಧ್ ತಾೆಂಡ್ ಮತು ್ಹಳ್ಳಳಗ್ಳಲ್ಲ ಿಈ ಅಧ್ೂಯನ್ದಲಿ್ಲ ಯಾದೃಚಿಕಿವಾಗ್ ನ ೇಮಕ ಮಾಡ್ಲಾಗ್ದ . ನ್ಸ್ೇವು ಅಧ್ೂಯನ್ದಲಿ್ಲ ಬಾಗ್ವಹಿಸ್ುವುದಾದರ ಕ್ ಲವು ಪರಶ ಾಗ್ಳನ್ುಾ ಉತ್ರಿಸ್ ಅಗ್ತೂವಿದ . ಈ ಬಗ ೆ20 ರಿೆಂದ 30 ನ್ಸ್ಮಿರ್ ತ ಗ ದುಕ್ ೂಳಳಳತದ . ಈ ಅಧ್ೂಯನ್ದೆಂದ ನ್ಸ್ೇವು ಯಾವುದ ೇ ನ ೇರ ಲಾಭ್ದ ಸಾಧ್ೂವಿಲ ಿ

ಆದರ ಆರ ೂೇಗ್ೂ ಚಿಕಿತ ್ ಪಡ ಯಲು ನ್ಸ್ಮಮ ಸ್ಮುದಾಯದಲ್ಲ ಿಎದುರಿಸ್ುವ ತ ೂೆಂದರ ಗ್ಳನ್ುಾ ಕೆಂಡ್ುಹಿಡಯಲು ಸ್ಹಾಯ ಎೆಂದು . ಅಧ್ೂಯನ್ದಲಿ್ಲ ಪಾಲ ೂೆಳಳಳವಿಕ್ ಯನ್ುಾ ಯಾವುದ ೇ ರಿೇತಿಯಲ್ಲ ಿನ್ಸ್ಮಗ ಹಾನ್ಸ್ ಮಾಡ್ುವುದಲ.ಿ ನ್ಸ್ೇವು ಹೆಂಚಿಕ್ ೂೆಂಡರುವ ಮಾಹಿತಿ ಗೌಪೂವಾಗ್

ಇಡ್ಲಾಗ್ುತ್ದ ಮತು ್ಸ್ೆಂಶ ೇಧ್ನ ಉದ ದೇಶಕ್ಾಾಗ್ ಬಳಸ್ಲಾಗ್ುತ್ದ . ಕ್ ೇವಲ ಎರಡ್ು ವೂಕಿ್ಗ್ಳಳ , ನಾನ್ು ಮತು ್ನ್ನ್ಾ ಮಾಗ್ಾದರ್ಶಾ ಈ

ಮಾಹಿತಿಯ ಪರವ ೇಶವನ್ುಾ ಹ ೂೆಂದರುತ ್ೇವ . ನ್ಸ್ಮಮ ವ ೈಯಕಿಕ್ ಗ್ುರುತನ್ುಾ ಹೆಂಚಿಕ್ ೂಳಳಲಾಗ್ುವುದಲ ಿಎೆಂದು, ನ್ಸ್ೇವು ಪರಶ ಾಗ್ಳ್ಳಗ , ಯಾವುದ ೇ ಉತ್ರವನ್ುಾ ನ್ಸ್ರಾಕರಿಸ್ಬಹುದು. ಯಾವುದ ೇ ಸ್ಮಯ ಹೆಂತದ ಸ್ೆಂದಶಾನ್ದಲ್ಲ ಿನ್ಸ್ಮಮ ಪಾಲನ್ುಾ ಹಿೆಂಪಡ ಯಬಹುದಾಗ್ದ ಮತು ್ಅದ ೇ ಯಾವುದ ೇ ದೆಂಡ್ ಇಲಿ. ನ್ಸ್ೇವು ಅಧ್ೂಯನ್ ಬಗ ೆಯಾವುದ ೇ ಸ್ಪಷ್ಟೇಕರಣ ಹ ೂೆಂದದದರ ನ್ಸ್ೇವು ನ್ನ್ಗ ಅಥವಾ ಡಾ ಮಾಲಾ ರಾಮನಾಥನ್ ,

ಎಸ್.ಸ್ೇ.ಟಿ.ಐ.ಮ್.ಸ್.ಟಿ ಇನ್ಸ್್ಿಟೂೂಟ್ ಎಥಿಕ್್ ಸ್ಮಿತಿಯ ಸ್ದಸ್ೂ - ಕ್ಾಯಾದರ್ಶಾ ಸ್ೆಂಪಕಿಾಸ್ಬಹುದು .

ಸ್ೆಂಶ ೇಧ್ಕ

ಬ ವಿನ್ ವಿನ್ಯ್ ಕುಮಾರ್ ವಿ ಎನ್

ಎೆಂ.ಪೇ.ಹ ೇಚ್

ಏ.ಎೆಂ.ಸ್.ಏಚ್.ಎಸ್.ಎಸ್ , ಎಸ್.ಸ್ೇ.ಟಿ.ಐ.ಮ್.ಸ್.ಟಿ

ಸ್ೆಂಪಕಾ ಸ್ೆಂಖ್ ೂ : 9886482006

ಮೇಲ್ತ ಐಡ : [email protected]

ಗ ೈಡ್ & ಸ್ದಸ್ೂ ಕ್ಾಯಾದರ್ಶಾ , ಐಇಸ್ , ಎಸ್.ಸ್ೇ.ಟಿ.ಐ.ಮ್.ಸ್.ಟಿ

ಡಾ ಮಾಲಾ ರಾಮನಾಥನ್

ಹ ಚುುವರಿ ಪ್ರರಫ ಸ್ರ್

ಏ.ಎೆಂ.ಸ್.ಏಚ್.ಎಸ್.ಎಸ್ , ಎಸ್.ಸ್ೇ.ಟಿ.ಐ.ಮ್.ಸ್.ಟಿ

ಸ್ೆಂಪಕಾ ಸ್ೆಂಖ್ ೂ : 0471- 2524234

ಮೇಲ್ತ ಐಡ : [email protected]

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ಸಮ್ಮತಿ ಪತ್ರ

ನಾನ್ು , ___________________________________ , ವಯಸ್್ನ್ ___ ___ ವರ್ಾಗ್ಳ ಎೆಂದು ಘೂೇಷ್ಸ್ಲು ನಾನ್ು ಓದಲು ಮತು ್ಅಧ್ೂಯನ್ ಮಾಹಿತಿ ಹಾಳ ಅಥಾ ಮತು ್ಪರಶ ಾಗ್ಳನ್ುಾ ಕ್ ೇಳಲು ಅವಕ್ಾಶ ನ್ಸ್ೇಡ್ಲಾಯಿತು [ ]

ನಾನ್ು ಈ ಅಧ್ೂಯನ್ದಲಿ್ಲ ಪಾಲ ೂಳೆಳಳವಿಕ್ ಯನ್ುಾ ಸ್ಿಯೆಂಪ ರೇರಿತ ಎೆಂದು ಅಥಾ ಮತು ್ನಾನ್ು ಯಾವುದ ೇ ಸ್ಮಯದಲಿ್ಲ ಮತು ್ಯಾವುದ ೇ

ಕ್ಾರಣ ನ್ಸ್ೇಡ್ದ ಹಿೆಂದಕ್ ಾ ತ ಗ ದುಕ್ ೂಳಳಬಹುದು [ ]

ನಾನ್ು ಈ ಅಧ್ೂಯನ್ದೆಂದ ಉದಭವಿಸ್ುವ ಯಾವುದ ೇ ಡ ೇಟಾ ಅಥವಾ ಬಳಸ್ುವುದರಿೆಂದಾಗ್ ನ್ಸ್ಬಾೆಂಧಿಸ್ಲು ಇೆಂತಹ ಬಳಕ್ ಯು ವ ೈಜ್ಞಾನ್ಸ್ಕ

ಉದ ದೇಶಕ್ಾಾಗ್ ಮಾತರ ಒದಗ್ಸ್ಲು ಒಪುಪತ ್ೇನ [ ]

ನಾನ್ು ಅಧ್ೂಯನ್ದಲ್ಲಿ ಭಾಗ್ವಹಿಸ್ಲು ಒಪಪಕ್ ೂಳಳಳತ ೇ್ನ [ ]

ಸ್ಥಳ………………………………….. ಐಡ………………………………………….. ದನಾೆಂಕ………………………………………. ಸ್ಹಿ…………………………………………..

ಪಾಲ ೂಳೆಳಳವವರು ಅನ್ಕ್ಷರಸ್ಥ ವಾಗ್ದದರ : ಸಾಕ್ಷಿಯ ಹ ಸ್ರು………………………………………………… ಸಾಕ್ಷಿಯ ಸ್ಹಿ……………………………… ಸ್ೆಂಶ ೇಧ್ಕ ಸ್ಹಿ……………………………………..

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1. ºËzÀÄ 2. E®è

8.2 ¤ÃªÀÅ ªÉÊ0iÀÄQÛPÀªÁV DgÉÆÃUÀå ¸ÀA¸ÉÜ CxÀªÁ

D¸ÀàvÉæUÉ ºÉÆÃUÀĪÁUÀ eÁwUÀvÀ vÁgÀvÀªÀÄå

CxÀªÁ ¨ÉÃzsÀ¨sÁªÀPÉÌ M¼ÀUÁV¢ÝÃgÁ ?

1. ºËzÀÄ 2. E®è

¥Àæ±Éß 8.1 ªÀÄvÀÄÛ 8.2 gÀ°è ºËzÀÄ JAzÁzÀgÉ ªÀÄÄAzÀĪÀgɹ E®èªÁzÀgÉ £ÉÃgÀªÁV ¥Àæ±Éß 9 PÉÌ

ºÉÆÃVj. End if the response in 2 is “No” for both 1 and 2 and go to Q9. If the respondent has said

“Yes”, to either of the two questions, continue.

8.3 ºËzÉAzÀgÉ 0iÀiÁªÀ DgÉÆÃUÀå PÉÃAzÀæzÀ°è ¤ÃªÀÅ

F vÁgÀvÀªÀÄå/¨ÉÃzsÀ¨sÁªÀªÀ£ÀÄß C£ÀĨsÀ«¹¢ÝÃj

?

1. ¸ÀgÀPÁj CgÉÆÃUÀå ¸ÀA¸ÉÜ

2. SÁ¸ÀV DgÉÆÃUÀå ¸ÀA¸ÉÜ

3. J£ï.f.N. CxÀªÁ ¸ÁA¸ÁܤPÀ D¸ÀàvÉæ

4. EvÀgÉÃ

-5-

8.4 DgÉÆÃUÀå PÉÃAzÀæ

D¸ÀàvÉæ0iÀÄ 0iÀiÁªÀ

¨sÁUÀzÀ°è ¤ªÀÄUÉ F

1. £ÉÆÃAzÀt «¨sÁUÀ

2. ªÉÊzÀågÀ PÉÆoÀr0iÀÄ ºÉÆgÀUÀqÉ

¸Á®Ä ¤AwgÀĪÁUÀ

ºËzÀÄ E®è

ºËzÀÄ E®è

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¨sÁªÀ£É PÀAqÀÄ §A¢vÀÄ 3. ªÉÊzÀågÉÆA¢UÉ ¸ÀªÀiÁ¯ÉÆÃZÀ£É

ªÀiÁqÀĪÁUÀ

4. OµÀzÁ®0iÀÄzÀ°è

5. JPÀìgÉ «¨sÁUÀ CxÀªÁ gÀPÀÛ

vÀ¥Á¸ÀuÁ PÉÃAzÀæzÀ°è

6. aQvÁì PÉÆoÀr CxÀªÁ

qÉæ¹ìAUÀ PÉÆoÀr0iÀÄ°è

7. EvÀgÉÃ

ºËzÀÄ E®è

ºËzÀÄ E®è

ºËzÀÄ E®è

ºËzÀÄ E®è

ºËzÀÄ E®è

£Á£ÀÄ ¤ªÀÄUÉ DgÉÆÃUÀå ¸ÀA¸ÉÜ CxÀªÁ zÀªÁSÁ£É0iÀÄ°è ¤ªÀÄä C£ÀĨsÀªÀzÀ §UÉÎ PÉ®ªÉÇAzÀÄ ¥Àæ±ÉßUÀ¼À£ÀÄß

PÉüÀÄvÉÛÃ£É ¤ªÀÄUÉ Cwà ºÉZÁÑV £É£À¦gÀĪÀ ¸ÀA¸ÉÜ CxÀªÁ zÀªÁSÁ£É ºÁUÀÆ D¸ÀàvÉæ0iÀÄ §UÉÎ «ªÀj¹ ?

F ªÀÄÄAzÉ PÁt¹gÀĪÀ 0iÀiÁªÀ DgÉÆÃUÀå ¸Ë®¨sÀåUÀ¼À°è EzÀÄ MAzÀÄ DVvÀÄÛ ?

¸ÀgÀPÁj / SÁ¸ÀV / J£ï.f.N. / ¸ÁªÀiÁfPÀ ¸ÀA¸ÉÜ / EvÀgÉÃ

C.£ÀA ¥Àæ±ÉßUÀ¼ÀÄ ºËzÀÄ E®è

0iÀiÁªÁUÀ®Æ DUÁUÀ

£ÉÆÃAzÀt «¨sÁUÀzÀ°è F WÀl£É £ÀqÉ¢zÀÝgÉ, zÀ0iÀĪÀiÁr ¤ªÀÄUÉ 0iÀiÁªÀÅzÀÄ ¸ÀÆPÀÛªÁVzÉ0iÉÄà CzÀ£ÀÄß

UÀÄgÀÄw¹ (ºËzÀÄ, 0iÀiÁªÁUÀ®Æ-3, ºËzÀÄ DUÁUÀ-2, E®è-1)

8.5.1 £ÉÆÃAzÀt PÉÃAzÀæzÀ UÀĪÀiÁ¸ÀÛ

¤ªÉÆäA¢UÉ CªÁZÀå

±À§ÝUÀ¼ÉÆA¢UÉ

ªÀiÁvÀ£ÁrzÁÝgÉ0iÉÄà ?

8.5.2 £ÉÆÃAzÀt «¨sÁUÀzÀ°è ¸Á®Ä

¤AwgÀĪÁUÀ EvÀgÉÃ

gÉÆÃVUÀ¼ÀÄ CªÁZÀå ±À§ÝUÀ¼À£ÀÄß

§¼À¹ »Ã£Á0iÀĪÁV

ªÀiÁvÀ£ÁrzÀgÀÄ ?

8.5.3 £ÉÆÃAzÀt «¨sÁUÀzÀ ¹§âA¢

£À£Àß ªÀÄvÀÄÛ EvÀgÉà gÉÆÃVUÀ¼À

ªÀÄzsÀåzÀ°è vÁgÀvÀªÀÄå J¸ÀVzÀgÀÄ

ªÀÄvÀÄÛ ¨ÉÃzsÀ¨sÁªÀ ªÀiÁrzÀgÀÄ.

8.5.4 £Á£ÀÄ QüÀÄ eÁw0iÀĪÀ£ÉAzÀÄ/

eÁw0iÀĪÀ¼ÉAzÀÄ £À£ÀߣÀÄß EvÀgÉÃ

gÉÆÃVUÀ¼ÀÄ §¢UÉ MwÛ

£ÉÆÃAzÀt ¸Á°£À°è £ÉÆÃAzÀtÂ

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ªÀiÁr¸À®Ä ªÀÄÄAzÁzÀgÀÄ

8.6 ªÉÊzÀåjUÉ ¨sÉnÖ0iÀiÁUÀ®Ä ¸Á°£À°è PÁ0iÀÄÄwÛgÀĪÁUÀ

¤ÃªÀÅ ªÉÊzÀågÀ£ÀÄß PÁt®Ä ¸Á¯ÁV PÁ0iÀÄÄwÛgÀĪÁUÀ F 0iÀiÁªÀÅzÁzÀgÀÄ WÀl£É ¤ªÉÆäA¢UÉ

¸ÀA¨sÀ«¹zÉ0iÉÄÃ?

8.6.1 £Á£ÀÄ ¸ÀgÀ¢ §AzÁUÀ,

§®ªÀAvÀªÁV £À£Àß §zÀ®Ä

E£ÉÆßç⠪ÀåQÛ0iÀÄ£ÀÄß ªÉÊzÀågÀ£ÀÄß

PÁt®Ä ©qÀĪÀÅzÀÄ

8.6.2 ªÉÊzÀågÀ PÉÆoÀr0iÀÄ PÁªÀ®ÄUÁgÀ

CxÀªÁ D0iÀiÁ ªÉÊzÀågÀ

PÉÆoÀr0iÀÄ ºÉÆgÀUÉ gÉÆÃVUÀ¼À

¸Á®Ä PÁ¬ÄÝj¸ÀĪÁUÀ

£À£ÉÆßA¢UÉ QüÁV/CªÁZÀå

±À§ÝUÀ¼ÉÆA¢UÉ ªÀiÁvÀ£ÁrzÀÝ.

8.6.3 £Á£ÀÄ ªÉÊzÀågÀ£ÀÄß PÁt®Ä

¸Á°£À°è PÁ0iÀÄÄwÛgÀĪÁUÀ

EvÀgÉà gÉÆÃVUÀ¼ÀÄ £À£Àß ¥ÀPÀÌzÀ°è

PÀĽvÀÄPÉƼÀî®Ä

»Adj0iÀÄÄwÛzÀÝgÀÄ?

8.7 ªÉÊzÀågÉÆA¢UÉ ¸ÀªÀiÁ¯ÉÆÃZÀ£É ªÀiÁqÀĪÀ PÉÆoÀr: ¤ÃªÀÅ ªÉÊzÀågÉÆA¢UÉ ¸ÀªÀiÁ¯ÉÆÃZÀ£É

£ÀqɹgÀĪÁUÀ F 0iÀiÁªÀÅzÁzÀgÀÆ WÀl£ÉUÀ¼ÀÄ ¸ÀA¨sÀ«¹ªÉ0iÉÄà ?

8.7.1 ¸ÀªÀiÁ¯ÉÆÃZÀ£É0iÀÄ ¸ÀªÀÄ0iÀÄzÀ°è

ªÉÊzÀågÀÄ £À£ÉÆßA¢UÉ QüÁV

ªÀiÁvÀ£ÁrzÀgÀÄ.

8.7.2 ªÉÊzÀågÀÄ £À£ÀߣÀÄß ªÀÄÄlÄÖªÁUÀ

©gÀĸÁV ªÀwð¹zÀgÀÄ.

8.7.3 ªÉÊzÀågÀÄ £À£ÀߣÀÄß

¥ÀjÃQë¸ÀÄwÛgÀĪÁUÀ £À£ÀߣÀÄß

ªÀÄÄlÖ®Ä »Adj0iÀÄÄwÛzÀÝgÀÄ

8.7.4 ªÉÊzÀågÀÄ £À£ÉÆßA¢UÉ

EvÀgÀjVAvÀ PÀrªÉÄ ¸ÀªÀÄ0iÀÄ

PÀ¼ÉzÀgÀÄ

8.7.5 £À£Àß DgÉÆÃUÀåzÀ §UÉÎ

EvÀgÀjVAvÀ®Æ PÀrªÉÄ

ªÀiÁ»w0iÀÄ£ÀÄß £À£ÉÆßA¢UÉ

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ºÀAaPÉÆAqÀgÀÄ

8.8 OµÀ¢üUÀ¼À «vÀgÀuÁ «¨sÁUÀ: ¤ÃªÀÅ ¤ªÀÄä OµÀ¢UÀ¼À£ÀÄß ¥ÀqÉ0iÀÄÄwÛgÀĪÁUÀ F 0iÀiÁªÀÅzÁzÀgÀÆ

WÀl£ÉUÀ¼ÀÄ ¸ÀA¨sÀ«¹ªÉ0iÉÄà ?

8.8.1. OµÀ¢ «vÀgÀuÉ ªÀiÁqÀĪÀAvÀºÀ

ªÀåQÛ £À£ÉÆßA¢UÉ QüÁV

DªÁZÀå ±À§ÝUÀ¼À£ÀÄß

ªÀiÁvÀ£ÁrzÀ£ÀÄ ?

8.8.2 OµÀ¢ ¤ÃqÀĪÀ ªÀåQÛ EvÀgÀjUÉ

PÉÊ0iÀÄ°è0iÉÄà OµÀ¢UÀ¼À£ÀÄß

¤ÃqÀÄwÛzÀÝgÀÆ £À£ÀߣÀÄß PÀAqÀ

vÀPÀët OµÀ¢UÀ¼À£ÀÄß PËAlgÀ

ªÉÄÃ¯É J¸ÉzÀÄ vÉUÉzÀÄPÉƼÀî®Ä

ºÉýzÀ.

8.8.3 £Á£ÀÄ £À£Àß OµÀ¢UÀ¼À£ÀÄß

vÉUÉzÀÄPÉƼÀî®Ä EvÀgÀjVAvÀ

ºÉaÑ£À ¸ÀªÀÄ0iÀĪÀ£ÀÄß

ªÀå¬Ä¸À¨ÉÃPÁ¬ÄvÀÄ

gÀPÀÛ vÀ¥Á¸ÀuÁ PÉÃAzÀæ ºÁUÀÆ JPÀìgÉ «¨sÁUÀ ¤ÃªÀÅ JPÀìgÉ «¨sÁUÀ CxÀªÁ gÀPÀÛ vÀ¥Á¸ÀuÁ

PÉÃAzÀæ/¯Áå§gÉÆÃlj ¸ÀAzÀ²ð¹zÁUÀ ¤ªÀÄä ¸ÀAUÀqÀ F 0iÀiÁªÀÅzÁzÀgÀÆ WÀl£É ¸ÀA¨sÀ«¹ªÉ0iÉÄÃ

?

8.9.1 C°è PÉ®¸À ªÀiÁqÀÄwÛgÀĪÀ

¹§âA¢0iÀĪÀgÀÄ £À£Àß ¸ÀAUÀqÀ

QüÁV

£ÀqÉzÀÄPÉÆAqÀgÀÄ/CªÁZÀå

±À§ÝUÀ¼À£ÀÄß §¼À¹

ªÀiÁvÀ£ÁrzÀgÀÄ.

8.9.2 £Á£ÀÄ £À£Àß ¥ÀjÃPÉëUÀ¼À£ÀÄß

¥ÀqÉ0iÀÄ®Ä EvÀgÀjVAvÀ®Æ

ºÉaÑ£À ¸ÀªÀÄ0iÀÄ

PÁ0iÀĨÉÃPÁ¬ÄvÀÄ.

8.10 aQvÁì PÉÆoÀr CxÀªÁ qÉæ¹ìAUÀ gÀÆA:

¤ÃªÀÅ aQvÁì PÉÆoÀr CxÀªÁ qÉæ¹ìAUï gÀƪÀÄ£À°ègÀĪÁUÀ F 0iÀiÁªÀÅzÁzÀgÀÆ WÀl£É ¤ªÀÄä

¸ÀAUÀqÀ ¸ÀA©ü«¹ªÉ0iÉÄà ?

8.10.1 PÁ0iÀÄð¤gÀvÀ ±ÀĵÀÆæµÀPÀgÀÄ /

¸ÀºÁ0iÀÄPÀgÀÄ £À£ÉÆßA¢UÉ

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QüÁV

£ÀqÉzÀÄPÉÆAqÀgÀÄ/CªÁZÀå

±À§ÝUÀ¼À°è ªÀiÁvÀ£ÁrzÀgÀÄ.

8.10.2 PÁ0iÀÄð¤gÀvÀ ±ÀĵÀÆæµÀPÀgÀÄ /

¸ÀºÁ0iÀÄPÀgÀÄ £À£ÀߣÀÄß ªÀÄÄlÖ®Ä

»Adj0iÀÄÄwÛzÀÝgÀÄ

8.10.3 PÁ0iÀÄð¤gÀvÀ ±ÀĵÀÆæµÀPÀgÀÄ /

¸ÀºÁ0iÀÄPÀgÀÄ £À£Àß ¸ÀAUÀqÀ

©gÀĸÁV ªÀwð¹zÀgÀÄ

8.10.4 £À£Àß aQvÉì0iÀÄ£ÀÄß ¥ÀqÉ0iÀÄ®Ä £Á£ÀÄ

EvÀgÀjVAvÀ ºÉZÀÄÑ ¸ÀªÀÄ0iÀÄ

PÁ0iÀĨÉÃPÁ¬ÄvÀÄ ?

8.10.5 ±ÀĵÀÆæµÀPÀ «¨sÁUÀzÀ

¹§âA¢0iÀĪÀgÀÄ £À£Àß §UÉÎ CxÀªÁ

£Á£ÀÄ §¼À®ÄwÛgÀĪÀ PÁ¬Ä¯É0iÀÄ

§UÉÎ vÀªÀÄä vÀªÀÄä°è0iÉÄà QüÁV

ªÀiÁvÀ£Ár £ÀUÉ0iÀiÁqÀÄwÛzÀÝgÀÄ.

8.11 EvÀgÉà (CªÀ±ÀåªÉ¤¹zÀÝ°è) EªÀÅUÀ¼À°è 0iÀiÁªÀÅzÁzÀgÀÆ WÀl£ÉUÀ¼ÀÄ ¤ªÉÆäA¢UÉ ¸ÀA¨sÀ«¹ªÉ0iÉÄà ?

8.11.1 ____________ À̧ºÁ0iÀÄPÀ

¤ªÀÄä ¸ÀAUÀqÀ QüÁV

£ÀqÉzÀÄPÉƼÀÄîªÀÅzÁUÀ°, CªÁZÀå

±À§ÝUÀ¼ÉÆA¢UÉ

ªÀiÁvÀ£ÁqÀĪÀÅzÁUÀ°Ã,

ªÀiÁrgÀÄvÁÛ£É

8.11.2 __________ ¹§âA¢0iÀĪÀgÀÄ,

£À£ÀߣÀÄß ¥ÀjÃQë¸ÀÄwÛgÀĪÁUÀ

ªÀÄÄlÖ®Ä »Adj0iÀÄÄwÛzÀÝgÀÄ

8.11.3 __________ À̧àµÀð

C¸ÀA»vÀªÁVvÀÄÛ.

8.11.4 ________EvÀgÀjVAvÀ ºÉZÀÄÑ

ºÉÆvÀÄÛ £À£Àß ¸ÉêÉ0iÀÄ£ÀÄß ¥ÀqÉ0iÀÄ®Ä

PÁ0iÀÄĪÀAvÉ ªÀiÁrzÀgÀÄ.

8.11.5 __________£À£Àß PÁ¬Ä¯É0iÀÄ

§UÉÎ £ÀUÉ0iÀiÁqÀÄwÛzÀÝgÀÄ ªÀÄvÀÄÛ £À£Àß

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9. £ÀªÀÄä Hj£À

¨sÁUÀzÀ°è ºÉZÀÄÑ

d£ÀgÀÄ

§0iÀĸÀĪÀ

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aQvÀìPÀgÀÄ.

J) ¤ªÀÄä ªÀÄUÀÄ«UÉ

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0iÀiÁgÀ §½0iÀÄ°è

PÀgÉzÀÄPÉÆAqÀÄ ºÉÆÃUÀÄwÛÃj

?

1. ¸ÀgÀPÁj D¸ÀàvÉæ

2. SÁ¸ÀV D¸ÀàvÉæ

3. SÁ¸ÀV zÀªÁSÁ£É

4. OµÀzÁ®0iÀÄ

5. ¥ÁgÀA¥ÀjPÀ aQvÀìPÀgÀÄ

6. ªÉÊzÀågÀÄ/ºÀQêÀÄ/ºÉÆëÄ0iÀÄ¥ÀyPÀ

ªÉÊzÀågÀÄ

7. EvÀgÉÃ

©) ¤ªÀÄä ªÀÄUÀÄ«UÉ

J.Cgï.L. ¤ÃªÀÅ CzÀ£ÀÄß

aQvÉìUÁV 0iÀiÁgÀ §½0iÀÄ°è

PÀgÉzÀÄPÉÆAqÀÄ ºÉÆÃUÀÄwÛÃj

?

1. ¸ÀgÀPÁj D¸ÀàvÉæ

2. SÁ¸ÀV D¸ÀàvÉæ

3. SÁ¸ÀV zÀªÁSÁ£É

4. OµÀzÁ®0iÀÄ

5. ¥ÁgÀA¥ÀjPÀ aQvÀìPÀgÀÄ

6. ªÉÊzÀågÀÄ/ºÀQêÀÄ/ºÉÆëÄ0iÀÄ¥ÀyPÀ

ªÉÊzÀågÀÄ

EvÀgÉÃ

10 PÀ¼ÉzÀ JgÀqÀÄ

ªÁgÀUÀ¼À°è

¤ªÀÄä ªÀÄUÀÄ

CwøÁgÀ

¨Éâü/J.Dgï.L.

PÁ¬Ä¯ÉUÀ½AzÀ

§¼À°vÉÛà ?

J) PÀ¼ÉzÀ 2 ªÁgÀUÀ¼À°è ¤ªÀÄä

ªÀÄUÀÄ«UÉ CwøÁgÀ

¨Éâü0iÀiÁVvÉÛà ?

1. ºËzÀÄ

2. E®è

©) PÀ¼ÉzÀ 2 ªÁgÀUÀ¼À°è ¤ªÀÄä

ªÀÄUÀÄ«UÉ J.Cgï.L.

DVvÉÛÃ?

1. ºËzÀÄ

2. E®è

¥Àæ±Éß 10 gÀ°è J CxÀªÁ © 0iÀÄ°è ºËzÀÄ JAzÀÄ GvÀÛj¹zÀÝgÉ CxÀªÁ J ªÀÄvÀÄÛ © JgÀqÀgÀ®Æè ºËzÀÄ JAzÀÄ

GvÀÛj¹zÀÝgÉ ¥Àæ±Éß 11 PÉÌ ºÉÆÃVj CxÀªÁ CªÀgÀ£ÀÄß vÀªÀÄä CªÀÄÆ®åªÁzÀ ¸ÀªÀÄ0iÀĪÀ£ÀÄß ¤ÃrzÀÝPÁÌV ªÀA¢¹

¸ÀAzÀ±ÀðªÀ£ÀÄß E°èUÉ ªÀÄÄPÁÛ0iÀÄUÉƽ¹. If “Yes” for both Diarrhea/ARI or Diarrhea or ARI then proceed

to 12, if “No” for both then thank them for their time and end the interview.

11 Cw¸ÁgÀ ¨Éâ0iÀiÁzÀ°è ªÀÄUÀÄ«£À

¨Éâ0iÀÄ°è gÀPÀÛzÀ CA±À PÀAqÀÄ

§A¢gÀÄvÀÛzÉ0iÉÄÃ ?

1. ºËzÀÄ

2. E®è

“J.Dgï.L.”¢AzÀ ªÀÄUÀÄ

§¼À°zÀÝgÉà CzÀPÉÌ F

0iÀiÁªÀÅzÁzÀgÀÆ ®PÀëtUÀ¼ÀÄ

PÀAqÀÄ §A¢gÀÄvÀÛªÉ0iÉÄà ?

1. PɪÀÄÄä

1 ºËzÀÄ 2 E®è

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2. G¹gÁqÀ®Ä vÉÆAzÀgÉ

3. Cwà ªÉÃUÀzÀ G¹gÁl

4. JzÉ0iÀÄ ¨sÁUÀzÀ°è

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5. dégÀ

6. ¥ÀæeÉÕ vÀ¥ÀÅöàªÀÅzÀÄ.

1 ºËzÀÄ 2 E®è

1 ºËzÀÄ 2 E®è

1 ºËzÀÄ 2 E®è

1 ºËzÀÄ 2 E®è

1 ºËzÀÄ 2 E®è

12 ªÀÄUÀĪÀÅ CwøÁgÀ ¨Éâü¬ÄAzÀ

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1. ºËzÀÄ

2. E®è

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to Q15, if “No” then proceed to next question

14 ªÀÄ£É0iÀÄ ºÉÆgÀUÉ aQvÉì

¥ÀqÉ0iÀÄ®Ä

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ºÉZÀÄÑ PÁgÀtUÀ¼À£ÀÄß

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1) zÀªÁSÁ£É / ªÉÊzÀåQÃ0iÀÄ

PÉÃAzÀæ ªÀģɬÄAzÀ CwÃ

zÀÆgÁVgÀÄvÀÛªÉ?

2) ªÀÄUÀĪÀ£ÀÄß aQvÉìUÁV

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3) ¸ÁjUÉ0iÀÄ ªÉZÀÑ CwÃ

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5) ªÀÄ£É0iÀÄ°è EvÀgÉà ªÀÄPÀ̼À

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F ¥Àæ±Éß ¸ÀASÉå 15 £ÀÄß GvÀÛj¹zÀgÉ £ÉÃgÀªÁV ¥Àæ±Éß ¸ÀASÉå 19 PÉÌ ºÉÆÃV . After answering this question

go to question 19

15 aQvÉì ¥ÀqÉ0iÀÄ®Ä

vÀqÀªÁVzÀÝgÉ

¨Éâü ªÀ G¹gÁlzÀ vÉÆAzÀgÉ0iÀÄ

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¢£ÀUÀ¼À £ÀAvÀgÀ D¸ÉàvÉæ ªÀÄvÀÄÛ

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ªÉÊzÀågÀ£ÀÄß PÀArgÀÄ«j ?

15.1 PɪÀÄÄä / ¨ÉâüUÀ¼À ®PÀët PÀAqÀÄ §AzÀ

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15.2 ®PÀëtUÀ¼ÀÄ PÀAqÀÄ §AzÀ CAzÁdÄ

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16. ªÀÄ£É0iÀÄ°è0iÉÄÃ

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aQvÉì0iÀÄ£ÀÄß ªÀiÁr¢ÝÃgÁ ?

1. ºËzÀÄ

2. E®è

16.1 ºËzÁzÀ°è ¤ÃªÀÅ ¤ÃrzÀ

aQvÉì0iÀÄ/aQvÉìUÀ¼À «ªÀgÀ, gÉÆÃUÀ

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1 £ÉÃ

2 £ÉÃ

3 £ÉÃ

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1.1 ¸ÀgÀPÁj/£ÀUÀgÀ ¥Á°PÉ D¸ÀàvÉæ

1.2 ¸ÀgÀPÁj zÀªÁSÁ£É

1.3 ¥ÁæxÀ«ÄPÀ DgÉÆÃUÀå PÉÃAzÀæ

1.4 ¸ÀªÀÄÆzÁ0iÀÄ DgÉÆÃUÀå

PÉÃAzÀæ/UÁæ«ÄÃt D¸ÀàvÉæ

1.5 G¥À PÉÃAzÀæ /Qj0iÀÄ DgÉÆÃUÀå

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1.7 CAUÀ£ÀªÁr PÉÃAzÀæ/ L.¹.r.J¸ï.

PÉÃAzÀæ

1.8 D±Á PÁ0iÀÄðPÀvÀðgÀÄ

1.9 EvÀgÉÃ

2. SÁ¸ÀV ªÉÊzÀåQÃ0iÀÄ gÀAUÀ

2.1 SÁ¸ÀV D¸ÀàvÉæ

2.2 SÁ¸ÀV ªÉÊzÀågÀÄ/zÀªÁSÁ£É

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2.5 ¥ÁgÀA¥ÀjPÀ ªÉÊzÀågÀÄ

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J.Dgï.L. aQvÉìUÁV

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1. ºËzÀÄ 2. E®è 3. ªÀiÁ»w EgÀĪÀÅ¢®è.

ºËzÁzÀ°è ¥Àæ±Éß 18.1 ªÀÄvÀÄÛ 18.2 UÉ ºÉÆÃV E®èªÉAzÀ°è ¥Àæ±Éß 19 PÉÌ ªÀÄÄAzÀĪÀgɬÄj. If “yes” then go to 18.1 or

18.2, if “no” or “Don’t know” skip to 19 18.1 Cw¸ÁgÀ ¨Éâü0iÀÄ£ÀÄß

vÀqÉ0iÀÄ®Ä 0iÀiÁªÀ

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1. DAn§0iÀiÁnPï

2. DAmÉƪÉÆn°n

3. fAPï

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ZÀÄZÀÄѪÀÄzÀÄÝ:

6. DAn§0iÀiÁnPï

7. £Á£ï DAn§0iÀiÁnPï

8. ZÀÄZÀÄѪÀĢݣÀ ºÉ¸ÀgÀÄ w½¢gÀĪÀÅ¢®è

9. EAmÁæªÉãÀì

10. ªÀÄ£É0iÀÄ

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vÀ0iÀiÁgÁzÀ OµÀ¢üUÀ¼ÀÄ

11. EvÀgÉÃ _____

K.Cgï.L. aQvÉì0iÀÄ£ÀÄß

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2. EvÀgÉÃ

3. OµÀ¢0iÀÄ ¸ÀégÀÆ¥À

w½¢gÀĪÀÅ¢®è

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5. £Á£ï DAn§0iÀiÁnPï

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6. ZÀÄZÀÄѪÀĢݣÀ ºÉ¸ÀgÀÄ

w½¢gÀĪÀÅ¢®è

7. EAmÁæªÉãÀì

8. ªÀÄ£É0iÀÄ ªÀÄzÀÄÝUÀ¼ÀÄ/

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19 ªÀÄUÀĪÀ£ÀÄß F DgÉÆÃUÀå

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PÀgÉzÉÆ0iÀÄÝ PÁgÀtUÀ¼ÉãÀÄ

?

¥Àæ±ÁßyðUÀ¼À£ÀÄß vÀªÀÄä CªÀÄÆ®åªÁzÀ ¸ÀªÀÄ0iÀĪÀ£ÀÄß ¤ÃrzÀÝPÁÌV ªÀA¢¹, ¸ÀAzÀ±ÀðªÀ£ÀÄß ªÀÄÄPÁÛ0iÀÄUÉƽ¹

Page 99: ACCESS TO HEALTH CARE AMONG UNDER FIVE CHILDREN IN …dspace.sctimst.ac.in/jspui/bitstream/123456789/2686/1/6597.pdf · 4.1 Individual profile of the primary care givers and children,

Qualitative Component

In-depth Interview guidelines

¤ÃªÀÅ ¤ªÀÄä ªÀÄUÀÄ C¸Àé¸ÀÜ£ÁzÁUÀ/¼ÁzÁUÀ 0iÀiÁªÀ jÃw0iÀÄ aQvÉì0iÀÄ£ÀÄß ªÀiÁqÀÄwÛÃj ªÀÄvÀÄÛ ¤ÃªÀÅ ¤ªÀÄä ¸À«ÄÃ¥ÀzÀ°ègÀĪÀ

DgÉÆÃUÀå ¸Ë®¨sÀåUÀ¼À §UÉÎ ¤ªÀÄä C¤¹PÉ ºÉÃVgÀÄvÀÛzÉAzÀÄ Cj0iÀÄ®Ä GvÀÄìPÀ£ÁVzÉÝãÉ.

1. ¤ªÀÄä ªÀÄUÀÄ«£À 0iÀiÁªÀ aºÉß / ®PÀëtUÀ½AzÀ ¤ªÀÄä ªÀÄUÀÄ C¸Àé¸ÀܪÁVzÉ0iÉÄAzÀÄ Cj0iÀÄÄ«j ? F C¸Àé¸ÉÜ0iÀÄÄ

0iÀiÁªÁUÀ ¸ÀA¨sÀ«¹vÀÄ ? CzÀgÀ aQvÉìUÁV ¤ÃªÀÅ K£ÀÄ ªÀiÁr¢ÝÃj ?

2. ¤ÃªÀÅ ªÀÄ£É0iÀÄ°è0iÉÄà 0iÀiÁªÀÅzÁzÀgÀÆ aQvÉì ¤Ãr¢ÝÃgÁ?

3. aQvÉìUÁV EvÀgÉà 0iÀiÁªÀ PÀæªÀÄUÀ¼À£ÀÄß vÉUÉzÀÄPÉÆArgÀÄ«j ? (GzÁ: ¸À«ÄÃ¥ÀzÀ aQvÀìPÀgÀ£ÀÄß PÁtĪÀÅzÀÄ

ªÀÄvÀÄÛ E£ÁßgÁzÀgÀ£ÀÄß ¨sÉnÖ0iÀiÁUÀĪÀÅzÀÄ)

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CªÀgÁgÀÄ JA§ÄzÀ£ÀÄß UÀÄgÀÄw¹ ? ¤ÃªÀÅ CªÀgÀ£ÀÄß D0iÀÄÄÝPÉƼÀî®Ä 0iÀiÁªÀÅzÁzÀgÀÆ «±ÉõÀ PÁgÀtUÀ½ªÉ0iÉÄÃ

? UÀÄgÀÄw¹

5. ¤ÃªÀÅ aQvÉì ¥ÀqÉ0iÀÄ É̈ÃPÁzÀgÉ 0iÀiÁªÀÅzÁzÀgÀÆ vÉÆAzÀgÉUÀ¼À£ÀÄß C£ÀĨsÀ«¹¢ÝÃgÁ ? D vÉÆAzÀgÉUÀ¼ÀÄ

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¥ÀæPÀgÀtzÀ §UÉÎ «ªÀgÀuÉ ¤Ãr.

7. ¥Àæ±Éß 6 PÉÌ ¤ªÀÄä GvÀÛgÀ ºËzÁzÀ°è D ¥ÀæPÀgÀt ¸ÀA¨sÀ«¹zÀ §UÉÎ ¤ªÀÄä C¤¹PÉUÀ¼ÉãÀÄ ? CzÀgÀ §UÉÎ ¤ÃªÀÅ

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