advocacy in the digital age: leveraging the mental health america/inspire support community

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Advocacy in the Digital Age: Leveraging the Mental Health America/Inspire Support Community June 4, 2015 Brian Loew, CEO, Inspire

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Advocacy  in  the  Digital  Age:  Leveraging  the    Mental  Health  America/Inspire    Support  Community         June 4, 2015

Brian Loew, CEO, Inspire

This document is confidential

Inspire  Overview  

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A  social  network,  organized  by  health  condi7on,  that  connects  pharmaceu7cal  companies  with  pa7ents  and  caregivers  in  a  safe,  permission-­‐based  manner.  

11,000,000  unique  visits/yr  

615,000*  members  (+12K/mo)  

208  health  communi7es    

100+  advocacy  partners    

7  Million  posts  (+4K/day)    *As  of  May  1,  2015  

 

This document is confidential

Inspire  Overview  

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• For  paJents  and  caregivers  (members),  Inspire  offers  a  high  quality,  health-­‐focused,  social  network,  organized  by  disease  area  

• For  paJent  advocacy  partners,  Inspire  offers  a  free,  branded,  online  community  plaPorm  

• For  life  science  companies,  Inspire  offers  access  to  engage  with  members  for  clinical  trial,  market  research,  and/or  marke7ng  ini7a7ves  

 

This document is confidential

Psoriasis  =  54,000+  

Lung  Cancer  =  39,000+    

Type  2  Diabetes  =  30,000+  

Heart  Disease  =  30,000+  

InferJlity  =  25,000+  

Osteoporosis  =  23,000+  

Ovarian  Cancer  =  22,000+  

COPD  =  13,000  

Skin  Cancer  =  12,000+  

Head/Neck  Cancer  =  2,800+  

 

   

A  Few  Disease  States  

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*Listed  above  are  10  of  over  200  communi7es  (and  7,000  health  interests)  as  of  May  1,  2015  

This document is confidential

Inspire’s  Core  Values  

1.   AuthenJc  -­‐-­‐  real  pa7ents,  people  who  need  support  and  informa7on,  people  at  a  cri7cal  stage  in  diagnosis  or  treatment.  

2.   Engaged  -­‐-­‐  ac7ve,  vibrant,  dynamic  community  of  people  connec7ng  with  one  another.  

3.   Trusted,  safe  -­‐-­‐  going  way  beyond  a  basic  privacy  policy.  

4.   Caring,  empatheJc,  welcoming  -­‐-­‐  the  place  members  turn  to  in  7me  of  need.  

5.   AuthoritaJve  -­‐-­‐  trusted  by  partners  who  place  their  confidence  in  Inspire.  

6.   PaJent  empowerment  -­‐-­‐  this  is  a  place  for  support  and  to  connect  with  others  who  understand  what  you’re  going  through.  

 

This document is confidential

“I  wish  that  my  doctor  realized  a  referral  to  a  mental  health  professional  familiar  with  the  pa6ent's  condi6on  would  be  more  helpful  than  a  prescrip6on.”    “I  wish  my  doctor  knew  that  I  am  a  person,  and  not  just  a  pa6ent.”    “The  happy  person  on  the  outside  they  see    is  protec6ng  the  deeply  wounded,  scarred    and  scared  person  on  the  inside.”    “I  wish  my  doctor  knew  me.”      

#IWishMyDoctorKnew    

This document is confidential

mentalhealthamerica.inspire.com  

MHA/Inspire  Support  Community  at  a  Glance    

•  Launched  summer  2010  •  4,700  members  from  all  50  states  and  78  

countries    •  Nearly  70,000  member  posts  

This document is confidential

“We  try  our  best  to  cheer  and  support  each  other  and  help  if  we  can.”    “It  is  so  nice  to  know  that  I'm  not  the  only  one  who  has  experienced  this.”    “I  have  learned  more  from  this  site  than  I  have  in  the  big  old  world  out  there.”    “Everyone's  problems  are  important    here,  and  we  will  listen  and  respond.”      

From  the  MHA/Inspire  Support  Community    

This document is confidential

•  Bipolar  disorder      

•  Depression      •  Schizophrenia      •  Anxiety  and  phobias      

•  Obsessive-­‐compulsive  disorder        

•  Coping  with  the  s7gma  of  mental  illness    

•  Post-­‐trauma7c  stress  disorder      

•  Family  and  caregivers  

 

Common  topics  in  MHA/Inspire  Community  

This document is confidential

Bipolar  disorder    17,000  

Depression                  59,000  

Schizophrenia          1,500    As  of  May  2015  

Inspire  Members  Affected  by  Mental  Health  Issues    

This document is confidential

•  Inspire  offers  a  house  ad  placement  to  help  our  partners  promote  relevant  campaigns,  ac7vi7es,  and  resources  to  their  community  members  

 •  In  the  end  of  March,  Inspire  launched  the  

B4Stage4  campaign  house  ad  in  the  MHA  community  

 •  In  less  than  two  months,  the  house  ad  has  

received  167,000+  impression  and  47  clicks  

PromoJng  Our  Partners  Across  Inspire    

This document is confidential

The  new  and  improved  Inspire  website  will  include:  

Redesigned  Inspire  Pla_orm  Coming  Soon  

A  mobile-­‐first  design  with  a  consolidated  and  simplified  user  naviga7on    A  user-­‐ini7ated  experience  that  will  allow  members  to  customize  content  to  beder  meet  their  needs    

Enhanced  partner  recogni7on,  visibility,  and  benefits  including  the  ability  to  cross-­‐promote  the  MHA  community  to  members  of  other  Inspire  communi7es  

This document is confidential

Brian  Loew  CEO    Inspire  [email protected]  

Together  we’re  be`er