a community designing the future

Joyce Lee, MD, MPH Nightscout Community

@NightscoutProj @joyclee #wearenotwaiting

Nightscout: A Community Designing the Future of Healthcare

Social Media Editor, JAMA Pediatrics

Healthdesignby.us

@joyclee

75% of children fail to achieve

recommended blood sugar goals in Type 1 Diabetes

Healthcare: “Fax us your numbers!” Kid: “Mom, what’s a fax? Is it compatible with Snapchat?”

Some people wonder why almost no one uploads their pump data…

I think I know why: because getting it to work can be like

CRAWLING. THROUGH. BROKEN. GLASS.

@HowardLook

75% of providers/healthcare

systems fail to help children achieve

recommended blood sugar goals in Type 1 Diabetes

Patient problems are really

design problems

Joyce Lee, MD Medical Designer

Fix the design, and it’s no longer the

patient’s problem

Joyce Lee, MD Medical Designer

Let patients and caregivers design, and they will

fix the problem!

The Nightscout Project

Patient as

expert maker

collaborator #thefutureofdiabetestechnology

Patient as

expert

http://bit.ly/10IUyph

Patient as

maker

Patient as

collaborator

“We continued to work on our apps and tools, more folks on twitter began to notice – and it became very clear that people really wanted this tool. It was life changing for us, and other parent’s immediately saw the value, the hope for a less complex, safer, healthier life it can bring.”

“Freedom!”

“We continued to work on our apps and tools, more folks on twitter began to notice – and it became very clear that people really wanted this tool. It was life changing for us, and other parent’s immediately saw the value, the hope for a less complex, safer, healthier life it can bring.”

“Freedom!” -John Costik

12,500+ members

#diyps OpenAPS.org

Upcoming Nightscout Studies

•  Descriptive Survey

•  Ethnography (Health communities/Makers)

•  Facebook Mining

•  Patient-driven Research Network?

Take the survey! www.nightscoutsurvey.info

# of completed surveys 1 day after release!

MD to Patient Passive Solitary Closed

Patient to Patient Active

Collaborative Open

THANK YOU The CGM in the Cloud community Emily Hirschfeld, Preciosa Choi, Weston Nordgren, Ben West,

Dana Lewis, Scott Leibrand, Jason Adams, John Costik, James Wedding,

Nightscout Foundation Twitter: @NightscoutProj

FB: CGM in the Cloud #wearenotwaiting