cash & counseling’s effects on the amount and quality of care received

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Cash & Counseling’s Effects on the Amount and Quality of Care Received. Barbara Lepidus Carlson. AcademyHealth Annual Research Meeting June 26, 2005 Boston, MA. Intended Effects. Medicaid consumers with disabilities direct their personal care Change use of goods and services - PowerPoint PPT Presentation

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Cash & Counseling’s Effects on the Cash & Counseling’s Effects on the Amount and Quality of Care ReceivedAmount and Quality of Care Received

Barbara Lepidus CarlsonBarbara Lepidus Carlson

AcademyHealth Annual Research MeetingAcademyHealth Annual Research MeetingJune 26, 2005June 26, 2005Boston, MABoston, MA

2

Intended Effects

Medicaid consumers with disabilities direct their Medicaid consumers with disabilities direct their personal carepersonal care

Change use of goods and servicesChange use of goods and services

Satisfaction and quality of life improveSatisfaction and quality of life improve

No adverse effects on healthNo adverse effects on health

3

9-Month Survey Sample

Arkansas Florida New Jersey

18-64

65+ 3-17 18-59 60+ 18-64

65+

Study Participants

556 1,452 1,002 914 904 817 938

9-Month Survey 9-Month Survey RespondentsRespondents

473473 1,2661,266 859859 811811 736736 682682 783783

Completion Rate

85.1 87.2 85.7 88.7 81.4 83.5 83.5

4

Selected Baseline Characteristics

15 to 40% dissatisfied with care15 to 40% dissatisfied with care 2/3 needed help to get out of bed2/3 needed help to get out of bed 0 to 1/3 live alone0 to 1/3 live alone 1/6 to 1/2 in poor health1/6 to 1/2 in poor health 1/6 to 1/3 Black1/6 to 1/3 Black Arkansas – 40% rural, few HispanicArkansas – 40% rural, few Hispanic New Jersey – few rural, 1/3 HispanicNew Jersey – few rural, 1/3 Hispanic

5

Receiving Monthly Allowance at 9 Months (Treatment Group Members Living in Community)

77

5461

72

39

6170

0

20

40

60

80

100Non-Elderly Adults

Percent

AR FL NJ AR FL NJ FL

Elderly Adults Children

6

Monthly Allowance Amounts at Enrollment

ArkansasArkansas FloridaFlorida New JerseyNew Jersey

18-6418-64 65+65+ 3-173-17 18-5918-59 60+60+ 18-6418-64 65+65+

2525thth Percentile Percentile $291$291 $216$216 $ 418$ 418 $ 753$ 753 $ 509$ 509 $ 604$ 604 $ 608$ 608

MedianMedian 359359 301301 870870 1,4651,465 817817 1,0911,091 1,0971,097

7575thth Percentile Percentile 441441 414414 1,6631,663 2,5962,596 1,1581,158 1,3641,364 1,4131,413

7

Receiving Paid Assistance at 9 Months

95

76

92 94 94 94

80

68 64

79 79

65

91

82

0

20

40

60

80

100

Non-Elderly Adults

*, ** Significantly different from control group at .05, .01 level, respectively.

Percent

T C AR

Elderly Adults Children

T C FL

T C NJ

T C AR

T C FL

T C NJ

T C FL

**** ** **

****

8

Hours of Paid Care at 9 Months (During Past Two Weeks)

33

39

23

39

23

4039

28

23

18

3031

33

29

0

10

20

30

40

50

Non-Elderly Adults

*, ** Significantly different from control group at .05, .01 level, respectively.

Hours

T C AR

Elderly Adults Children

T C FL

T C NJ

T C AR

T C FL

T C NJ

T C FL

*

**

**** **

9

Hours of Unpaid Care at 9 Months (During Past Two Weeks)

107 112

94

198

101

148

74

126

160

117 112

217

115

97

0

25

50

75

100

125

150

175

200

225

250

Non-Elderly Adults

*, ** Significantly different from control group at .05, .01 level, respectively.

Hours

T C AR

Elderly Adults Children

T C FL

T C NJ

T C AR

T C FL

T C NJ

T C FL

**

* *

**

10

Total Hours of Care at 9 Months (During Past Two Weeks)

145158

97

188

124

237

133140

120133

247

143150

189

0

25

50

75

100

125

150

175

200

225

250

Non-Elderly Adults

*, ** Significantly different from control group at .05, .01 level, respectively.

Hours

T C AR

Elderly Adults Children

T C FL

T C NJ

T C AR

T C FL

T C NJ

T C FL

*

*

11

Summary of Results on Satisfaction with, and Quality of, Paid Care

ArkansasArkansas FloridaFlorida New JerseyNew Jersey

18-6418-64 65+65+ 3-173-17 18-5918-59 60+60+ 18-6418-64 65+65+

Reduced Unmet Reduced Unmet Needs (4)Needs (4)

33 22 44 33 00 33 44

Caregiver Caregiver Reliability and Reliability and Behavior (9)Behavior (9)

88 66 66 33 11 77 55

Satisfaction with Satisfaction with Assistance (5)Assistance (5)

55 55 55 55 00 44 55

Overall (18)Overall (18) 16/1816/18 13/1813/18 15/1815/18 11/1811/18 1/181/18 14/1814/18 14/1814/18

12

Had an Unmet Need for Help with Personal Care

41

34

55

37

47

58

4543

3633

4446

2726

0

10

20

30

40

50

60Non-Elderly Adults

*, ** Significantly different from control group at .05, .01 level, respectively.

Percent

T C AR

Elderly Adults Children

T C FL

T C NJ

T C AR

T C FL

T C NJ

T C FL

**

**

**

*

*

13

Paid Caregiver Neglected Client

19

24

34

26 25

12

16

11

21

14

34

232323

0

10

20

30

40 Non-Elderly Adults

*, ** Significantly different from control group at .05, .01 level, respectively.

Percent

T C AR

Elderly Adults Children

T C FL

T C NJ

T C AR

T C FL

T C NJ

T C FL

**

**

*

****

14

Very Satisfied with Overall Care Arrangements

68

505657

68

52

71

27

54

42

35 37

4748

0

10

20

30

40

50

60

70

80 Non-Elderly Adults

*, ** Significantly different from control group at .05, .01 level, respectively.

Percent

T C AR

Elderly Adults Children

T C FL

T C NJ

T C AR

T C FL

T C NJ

T C FL

**

**** **

****

15

Very Satisfied with Way Spending Life These Days

43

64

38

56

36

4752

29

23

50

21

37

2825

0

20

40

60

80 Non-Elderly Adults

*, ** Significantly different from control group at .05, .01 level, respectively.

Percent

T C AR

Elderly Adults Children

T C FL

T C NJ

T C AR

T C FL

T C NJ

T C FL

****

**

****

**

*

16

Contractures Developed or Worsened

26

14

2022

27

13

9

2018

16

9

2528

25

0

10

20

30

40 Non-Elderly Adults

*, ** Significantly different from control group at .05, .01 level, respectively.

Percent

T C AR

Elderly Adults Children

T C FL

T C NJ

T C AR

T C FL

T C NJ

T C FL

**

**

17

Conclusions

Cash & Counseling increases satisfactionCash & Counseling increases satisfaction More people receive paid careMore people receive paid care Fewer total hours of careFewer total hours of care Works for elderly as well as disabledWorks for elderly as well as disabled No adverse health outcomesNo adverse health outcomes Programs need to help consumers with steps Programs need to help consumers with steps

necessary to receive allowancenecessary to receive allowance

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