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6 December 2019 London, United Kingdom
Forum to Explore the Role of Patient Organisations in VaccinationExpert Meeting Report
Authors Ms. Megan Acton Dr. Jane Barratt
Contents
Background 1
Barriers patient and health advocacy organisations face in advocating vaccination to their constituents 1
Good Practice 2
Health Policy Partnership 2
JDRF 2
Meningitis Now 3
Lupus UK 3
Age UK 4
Meningitis Research Foundation 4
British Lung Foundation 5
NAT (National AIDS Trust) and Positively UK 5
Conclusion and Next Steps 6
1. Continue the Momentum 6
2. Acknowledge and address barriers organisations may face in promoting vaccination 6
3. A Life Course Approach to Vaccination is Essential 7
4. Assuming Responsibility 7
5. Cross-Sectoral Collaboration 7
6. Forming Effective Messaging 7
References 8
1VACCINES4LIFE / FORUM TO EXPLORE THE ROLE OF PATIENT ORGANISATIONS IN VACCINATION
Pfizer had no involvement in the event or in the development of this report.
BackgroundPeople with chronic diseases such as HIV, heart disease and lung disease, as well as those with
1 The highest rates of pneumonia in the United Kingdom (UK), for example, are found amongst people with respiratory, heart and kidney disease,2
3 and adults living with HIV are at an approximately
adults.4
5
of individuals and their families.
brought unlike groups together and challenged them to look across sectors and disciplines and learn from one another.
Barriers patient and health advocacy organisations face in advocating vaccination to their constituents
2VACCINES4LIFE / FORUM TO EXPLORE THE ROLE OF PATIENT ORGANISATIONS IN VACCINATION
The “Forum to Explore the Role of Patient Organisations in Vaccination” was fully funded by an unrestricted charitable donation from Pfizer UK.Pfizer had no involvement in the event or in the development of this report.
Good Practice
gaps, gaining an understanding of how common barriers have been addressed, and encouraging
a common agenda.
Health Policy Partnership
The Health Policy Partnership (HPP) is a specialist health policy consultancy that works to create
6
7 was undertaken to support engagement with policymakers to improve
video were then developed and launched at the European Health Forum.8
This body of work contributed to the dialogue on the inclusion of a life course approach in the
9 aimed to support policymakers looking
approaches. A literature review was conducted which informed interviews and case studies, drawing
comprehensively.10
an opportunity for all to hear ‘the other side of the story’ and work together to address barriers to
JDRF
works with academia, industry, and government to ensure that the lives of people with type 1 11
3VACCINES4LIFE / FORUM TO EXPLORE THE ROLE OF PATIENT ORGANISATIONS IN VACCINATION
The “Forum to Explore the Role of Patient Organisations in Vaccination” was fully funded by an unrestricted charitable donation from Pfizer UK.Pfizer had no involvement in the event or in the development of this report.
environmental triggers may play a role in the onset of type 1 diabetes, which in turn led to the
12
Meningitis Now
Their
the support they need to rebuild their lives.13
disease – A, B, C, W and Y. awareness of the importance of these vaccines, as well as vaccines that protect against other
.14
It is crucial that advocacy It is reasonable, for example, to deploy
of meningococcal disease amongst children and adolescents, which was published in the Lancet 15
Lupus UK
many others on the symptoms prior to diagnosis.16
4VACCINES4LIFE / FORUM TO EXPLORE THE ROLE OF PATIENT ORGANISATIONS IN VACCINATION
17
their members in simple, clear messages. Lupus UK has, however, found it useful for their members
Age UK
Age UK is the country’s leading charity dedicated to helping everyone make the most out of later life,
policymakers.18
Every year, Age UK holds a ‘Keep Well This Winter’ health campaign, which encourages older people to take steps to ensure their health throughout the winter season.19 Within this campaign, a wide variety of health materials are disseminated including cold weather alerts and messaging through their website and social media.
As an element of the ‘Keep Well This Winter’ campaign, Age UK promotes the importance of
it is important to ‘go back to the basics’ in order to educate people and dispel myths surrounding
intermediaries and trusted groups.
Meningitis Research Foundation
20
21 MRF advocated
22
23
The “Forum to Explore the Role of Patient Organisations in Vaccination” was fully funded by an unrestricted charitable donation from Pfizer UK.Pfizer had no involvement in the event or in the development of this report.
5VACCINES4LIFE / FORUM TO EXPLORE THE ROLE OF PATIENT ORGANISATIONS IN VACCINATION
The “Forum to Explore the Role of Patient Organisations in Vaccination” was fully funded by an unrestricted charitable donation from Pfizer UK.Pfizer had no involvement in the event or in the development of this report.
British Lung Foundation
campaigns to prevent lung disease.24
25 For these reasons, BLF is a strong advocate for
social media and website, including infographics that can be shared. BLF also conducts policy
NAT (National AIDS Trust) and Positively UK
NAT is the UK’s HIV policy and campaigning charity and is dedicated to transforming the UK’s
living with HIV in all aspects of life.
26
An
27
funding and provision across a wide range of services, including
6VACCINES4LIFE / FORUM TO EXPLORE THE ROLE OF PATIENT ORGANISATIONS IN VACCINATION
The “Forum to Explore the Role of Patient Organisations in Vaccination” was fully funded by an unrestricted charitable donation from Pfizer UK.Pfizer had no involvement in the event or in the development of this report.
There is confusing and but referral
services, including all recommended vaccines, to the GP clinic, with follow-up and with engagement
Conclusion and Next Steps
.spuorg ksir-ta fo htlaeh eht evorpmi dna niatniam ot redro ni desserdda eb ot sreirrab nommoc
change through the following areas:
1. Continue the Momentum
19.28
2. Acknowledge and address barriers organisations may face in promoting vaccination
7VACCINES4LIFE / FORUM TO EXPLORE THE ROLE OF PATIENT ORGANISATIONS IN VACCINATION
The “Forum to Explore the Role of Patient Organisations in Vaccination” was fully funded by an unrestricted charitable donation from Pfizer UK.Pfizer had no involvement in the event or in the development of this report.
3. A Life Course Approach to Vaccination is Essential
4. Assuming Responsibility
advice from a clinical expert.
5. Cross-Sectoral Collaboration
successfully.
6. Forming Effective Messaging
advice.
.segassem etairporppa dna lufgninaem dna ecneidua detegrat eht fo gnidnatsrednu gnorts a hguorht
8VACCINES4LIFE / FORUM TO EXPLORE THE ROLE OF PATIENT ORGANISATIONS IN VACCINATION
The “Forum to Explore the Role of Patient Organisations in Vaccination” was fully funded by an unrestricted charitable donation from Pfizer UK.Pfizer had no involvement in the event or in the development of this report.
References1
2 of vaccine preventable pneumococcal disease in UK adults. BMC pulmonary medicine , 16(1), 77
3
PloS one , 11(4), e0153848.
4 2015.
5 Vaccine, 21(7-8), 596-600.
6 Health Policy Partnership (2020). Home. [Webpage] Retrieved from
7
8
9
10
11 JDRF (2020) About Us. [Webpage] Retrieved from
12 Lalwani, A., Warren, J., Liuwantara, D., Hawthorne, W. J., O’Connell, P. J., Gonzalez, F. J., ... & Swarbrick, M. M. Cell reports, 27(8),
2370-2384.
13 are/
14
15 of invasive meningococcal serogroup B disease in children and adolescents (MOSAIC): a case-control study. The Lancet Neurology , 11(9), 774-783.
16 Lupus UK (2020). About Us. [Webpage] Retrieved from
17
18 Age UK (2019). About Us. [Webpage] Retrieved from
19 Age UK (2019) Keep well this winter. [Webpage] Retrieved from wellbeing/keep-well-this-winter/
20
21
9VACCINES4LIFE / FORUM TO EXPLORE THE ROLE OF PATIENT ORGANISATIONS IN VACCINATION
The “Forum to Explore the Role of Patient Organisations in Vaccination” was fully funded by an unrestricted charitable donation from Pfizer UK.Pfizer had no involvement in the event or in the development of this report.
22
Statement_on_MenB.pdf
23
24
25
26 2015.
27 , 17: 619
28
10VACCINES4LIFE / FORUM TO EXPLORE THE ROLE OF PATIENT ORGANISATIONS IN VACCINATION
The “Forum to Explore the Role of Patient Organisations in Vaccination” was funded by an unrestricted charitable donation from Pfizer UK. Pfizer had no involvement in the event or in the development of this consensus statement.
International Federation on Ageing 1 Bridgepoint Drive, Suite G.238 Toronto, ON, M4M 2B5, Canada
www.vaccines4life.com
Published May 2020 © Vaccines4Life
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