grace meadows - room 217 foundation · 850,00 people in the uk are living with dementia 225,000...

Grace Meadows Programme Director

‘A UK national campaign changing the face of dementia

care through music’

March 2020

Introduction – state of play

Sector support organization for the cultural sector

Funded by Arts Council England

It exists to connect everyone who believes creative & cultural engagement can transform health & wellbeing.

Music in Society – inquiry conducted at House of Lords examining the 360 value of music in UK society

Published first 10-year Strategy in 2010 – shared vision and set of priorities to support and develop arts and culture in England

Arts Council England’s Strategy 2020 -2030

Creativity to be valued, given the change to flourish and access

CAMPAIGN VISION - what do we want to achieve and why?

Music for Dementia 2020 - campaign founded by The Utley Foundation.

Established in 2014, exists to advance social causes.

Music is a personal passion of the founders and trustees.

WHO WE ARE

Commission on Dementia and Music.

Brought together over 1,500 academics, politicians, researchers, practitioners and those affected by dementia.

Published in 2018.

Strengthened case for bringing music and dementia further into public forum

Music for Dementia 2020 was set up in response.

WHO WE ARE

www.musicfordementia2020.com

UK Facts– we’re all affected

850,00 people in the UK are living with dementia

225,000 people will develop dementia this year, that’s one every 3 minutes or a song!

1 in 6 people over the age of 80 have dementia

Over 42,000 people under 65 with dementia70% of people in care homes have dementia

52% of UK public – 34.5 million – have a relationship with dementia

1 in 3 people born in UK this year will develop dementia in their lifetime

Dementia is one of the main causes of disability later in life, ahead of cancer, cardiovascular disease and stroke.

Ensure that everyone living with dementia can access the right music, at the right time and in the right ways for them.

OUR MISSION

For people living with dementia, music isn’t a nicety, it’s a necessity

Creating a hub of information – website

Increasing awareness & understanding – promoting benefits

Encouraging people to have an active role in managing their dementia – supporting & enabling autonomy and self-agency through creativity

Supporting those providing care through music

Joining the dots – map, people, resources

Bringing about a culture / behaviour change

WHAT’S MUSIC FOR DEMENTIA 2020’s role?

Dementia care – state of play

2025 Strategy

Dementia Choices Action Network (DCAN)

Developing a vision and a plan for personalised dementia care

Adult Social Care: Green Paper…?

Why music for dementia care?

People and Music

• Music is people, people are music – we are musical beings• Everyone is inherently musical – no pre-requiste to be ‘musical’ in

order to benefit from it• Music is a relational experience • It connects people to themselves, others, their world around them,

to the present moment as well as memories • Enables people to experience, be and contribute to a creative

experience and process • Music facilitates relationships and speaks where words fail

The Brain, Dementia and Music

• Contactable as musical beings

• Music reaches parts of the damaged brain in ways other forms of communication cannot

• Music accesses part of the brain that remain unaffected by the devastating consequences of dementia

• Processing these takes place across almost every region of the train & nearly every neural system

• Quality of life

6. Physical: delay frailty,

reduce likelihood of

dementia

4. Social – social bonding

engagement,

relationships

2. Creativity: self expression

and identity, agency and

control

1. Psychological & Emotional: - reduces

agitation, anxiety &

depression. It’s fun, lifts mood

& dispels tension.

WHY MUSIC AND DEMENTIA?

3. Neurological: engages

auditory, cognitive, motor,

and emotional processing

7. Benefit for carers and settings: community,

relationships, enjoyment,

leadership. More

enjoyable place to live

and work

8. Positive impact on Quality of Care: supports

CQC’s KLOES

5. Communication: –

provides a channel for

communication when

words are too much, not

enough or no longer

available

Why music and personalised dementia care?

• Connection and communication

• Seeing a person for who they are, beyond their dementia

• Enables people to be contributors and not just recipients of care

• Quality of life

• Music meets the principles of person centred care

• People and relationships

Bespoke Interventio

n

Specific Activity

Universal Experience

Musical Personalised Care

Experience that can be enjoyed at any time

Participation and gain a wide range of benefits

Improve particular aspects of health and wellbeing

Specialist music therapy & music interventions to support communication, psychological, emotional and physical health

Specific singing groups, dementia choirs, personalised live music activities, playing a musical instrument, 1:1 or in groups to support overall health & wellbeing

Singing, listening to a personalised playlist, playing a musical instrument, experiencing live music in the community & social music events

Music and Dementia Pathway

Living Well

Pre-diagnosis

Diagnosis

Post-diagnosis – early years

Post-diagnosis – later years

End of life care

Music and Dementia PathwayPhase Type of

music? (what)

For

who?

Offered by ? Why ? How? Where?

Living

well

Listening to

music –

attending

concerts,

tuning in at

home with

technology

Learning /

playing an

instrument –

on own or

with others

Singing in a

choir

Attending

music groups

/ workshops

All Self –

directed

individuals,

music

facilitators

e.g. choir

leaders,

music

teachers,

with others

Maintenance or development of identity

and self

Cognitive stimulation

Creative expression and stimulation

Self-expression

Supporting emotional and psychological

wellbeing

Enhancing spiritual activity

Social connections – supporting

relationships

Physical engagement

Enjoyment and pleasure

Contributing to a creative outcome

Pleasure and enjoyment

Choice led by

individual

Self-motivated

Self-funded (where

required)

Signposted and

encouraged by

friends / family

Home

Arts venues

Places of worship

Community venues

Informal

and formal settings

Musical Menu of Choice

Listening to music – attending concerts & performancesPlaylists

Singing groupsChoirs

Playing instruments Interactive / participatory music making

Music therapy

Right music, at the right time, in the right way, by the right person

Benefits of personalised musical care

Music supports people living with dementia to be contributors, not just recipients of care

Being with and not doing to

2020what do we want to have achieved?

People living with dementia should be offered music therapy to help promote their wellbeing:

“People with dementia can find it harder to take part in activities, to engage socially, to maintain their independence, to communicate effectively, to feel in control and to care for themselves. Providing enjoyable and health-enhancing activities such as music therapy can help with this.” Prof. Leng, Deputy Chief Exec & Director of Health & Social Care, NICE

Music therapy included in NICE’s updated quality standard on dementia (published June 2019)

Increased awareness and understanding

Greater valuing of music as part of dementia care

Policy change - music included in national and local strategies – making it a right in dementia care

A populated and growing map of services

Music being more readily available for people as part of their care

Music being freely available – solutions in partnership with the music industry

What does success look like?

More funding and support for the provision of sustainable services

Greater valuing of music as part of dementia care

More strategic relationships and partnerships between partners and providers

Music to be included in health and social care training courses

Quality of life being improved for people living with dementia and those who care for them

What does success look like?

grace@m4d2020.comwww.musicfordementia2020.com

Thank youANY QUESTIONS?