information therapy:a must, not just a nice to have 2 june 2015 @markduman

Information Therapy:a must, not just a nice to have

2 June 2015

@MarkDuman

Topics

• Understanding what is meant by information for patients

• Personalising the experience of information provision

• Integrating information provision into healthcare delivery

• The need for culture change to make "information therapy“ a reality.

InformationTypes

Types of information

1. Wellbeing & Lifestyle – diet, activity, etc

2. General Clinical – diagnosis, prognosis, treatment, etc

3. Information to facilitate evidence-based Patient Choice

4. Access/ Service – directions, waiting times, support, benefits, quality

Government Portals

tinyurl.com/2msj82

Enlarged Prostate For the following questions, please mark your views on the scalebelow each question. There are no correct (or incorrect) answers.

Q. How important is it to you to retain your ability to have erections?A. 1 2 3 4 5not important very importantat all

Q. How important is it to you to avoid wearing pads to deal with leaking urine?A. 1 2 3 4 5not important very importantat all

Q. How important is it to you to avoid problems with the bowel?A. 1 2 3 4 5not important very importantat all

Shared Decision Making

Self Management /Structured Patient Education

Technology

Board Game

• Action Zone! is a board game about epilepsy and the brain created for children aged 5 years and above.

• It enables them to learn more about epilepsy and to understand that children with epilepsy can do many of the things that other children can do

• Players win tokens by answering the questions correctly as they move closer to the Brain. The winner is the person with the most tokens.

“People”

Key Points: Information as a Therapy

• Quality product(s)

• One size does not fit all – Tailor information

• Elicit behaviour change/ action

• Train staff it’s “Education”

• Consider Design

• Evaluate Impact

Making itPersonal

“We see things as we are, not as they are” *

*Talmud Berachot 55b

Person Patient Condition Treatment ‘X’

‘Soft/ Social’ ‘Hard/ Medical’

Person/ Society

‘Professional/ System’

Medicine/Drug

Poison

Pharmako (φάρμακο)

[Image removed]

‘A Personalised Health Service’

Past Medical History

Current Medication

Ethnicity/ Communication

Preferences

Health Literacy

Medicines Beliefs

Health Beliefs

“A poison”“A miracle cure”

Motivation

Beyond Health

Patient Activation

KPMG

‘Activated' Patients Lower Costs

Users

Individuals

www.kingsfund.org.uk/publications/supporting-people-manage-their-health, May 2014

Integrating patient information into

healthcare delivery

“Map of Medicine”

Information Prescriptions

Care Planning

CultureChange

1. Clinicians

Despite concerted efforts to tackle the “effectiveness of consultations between patients and clinicians,” the biggest problem is the “reluctance of clinical staff to provide active support for patient engagement.”

RCGP, Sep 11

26

“Patients will need better information if they are going to improve

their lifestyle, manage their disease, and participate in complex

decisions about treatment.

Better health-literacy education in schools will help, as will better-

written health materials and well-trained educators for patients.

But a great deal could be accomplished if doctors and other health

professionals took time, at the end of each consultation, to make

sure the patient had understood the key points discussed, and

that they felt free to ask questions.”

Taking health literacy seriously. The Lancet 2005; 366:95

2. Payors/ Purchasers

Information: first line Rx

ww

w.p

ifonl

ine.

org.

uk

3. Public - Increase Expectations

Manager Patients/ Public

HealthSystem

Care Plan: Getting from A to…?

1 million patients in the UK 2013 Doctor-Patient Survey

64% of them said they were as “involved in healthcare as they wanted to be”

But only 3% had a care plan

In summary…

Problem Solution

Think EXPERIENCE, not process

Thank you