jo crawford ctrs, msl barrow connection barrow neurological institute st. joseph’s hospital &...
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Jo Crawford CTRS, MSLBarrow Connection
Barrow Neurological Institute St. Joseph’s Hospital & Medical Center
&Dr. David Sattler
Department of PsychologyWestern Washington University
Bridging the Gap Between Hospital and Community
• 12,426 patients went through rehabilitation in the
State of Arizona in 2013
• 171,994 disabled residents in Maricopa County
• 11,511 are wheelchair users!!
Facts
Decreased length of stayAdjustment to injuryAdjustment to body imageEducation of family/friends
Decreased access to the community while on rehab
Decreased absorption of resources
Challenges in rehabilitation
In drug/alcohol abuse
In secondary conditions
In obesity
In unemployment
Consequences of a Non-Active Lifestyle
Organized activity
Cost
Equipment
Access
Trained staff
Barriers to Participation
Navigational tools needed for an active lifestyle
Educate the hospital and community
Membership is free
Meet our Connectors
The Barrow Connection-what we do
Increase access to living a fuller life in the areas of:
• Education & Work
• Health & Wellness
• Adapted Recreation & Sports
• Quality of life!
Barrow Connection- what we do
Barrow Connectors-Positive mentors
Membership card
Connector reaches out to new member
Provide resources and encouragement
Barrow Connectors- SCI
Family involvement
Complete a mentor training program
Contract agreement with BC/hospital
Monthly report
Barrow Connectors-Brain Injured
Survivors
• Arizona Disabled Sports• Arizona Bridge to Independent Living• Virginia G. Piper Sports & Fitness Center-
The Spo-Fit• Municipal Programs–Daring Adventures
• Other Rehab Hospitals in Arizona
• Valley-wide Community Agencies
Community Support & Partners
Partnerships
In medical stay
In secondary conditions
In drug/alcohol abuse
In obesity
Benefits to the BC Member
Communication of resources across the continuum of care
Collaboration with valley-wide agencies
Barrow Connectors-provide support & resources
Benefits to the BC Member
DPROJECT INDEPENDENCE
& EMPOWERMENT
PIE
Dignity Health Grants Community of Care Network
The P
IE C
om
munit
y
Target Population
• The target population- adults with disabilities of all ethnic and cultural backgrounds.
• Served on a cross-disability basis; the majority of people served have physical and/or neurological disabilities.
In Arizona 24,000 people have a spinal cord injury, and that number increases by 250 yearly; over 100,000 have some form of paralysis.
(Christopher and Dana
Reeve Foundation)
Each year, over 52,000 people in Arizona sustain a Traumatic Brain Injury.
(AZ Department of Health)
Did You Know….
PIEGoals
1. Decrease or prevent incidence of secondary conditions
2. Reduce inpatient admissions and ER visits
3. Enhance Quality of Life through health, fitness & nutrition; education/activities; socialization opportunities; peer support; & Community Transition resources
4. Identify system changes for our service delivery model to encourage a seamless family care transition with SJHMC
5. Conduct outreach /offer care transition to extended care facilities
Enhance Quality of Life
Barrow ConnectionThe initial focus :
neuro rehabilitation continuumAcute> rehab>outpatient>Center for Transitional Neuro rehabilitation New focus including:
Muhammad Ali Parkinson CenterBarrow Cranial Facial Centerand the Muscular Dystrophy program.
PIEOutcom
esBenchmarks Goal is 100 participants through the grant cycle for 2014 calendar year. Currently 140 participants are enrolled in the PIE program. Participants complete a pre-enrollment survey, with a follow-up assessment
at 3-month intervals.
Fitness Transition Results• Weight loss• Reduction of BMI• Gait improvement• Community Involvement
PIEOutcom
esTransportationBus and/or light rail passes have been provided to PIE participants who need transportation. This ensures continued and regular attendance to Spofit.
Wheelchair Skills Classescovered topics include: traveling with your chair, transferring, managing your environment and mechanics of your chair.
Empowerment Curriculum ClassesA 12 week Empowerment Series. Topics included: prevention of secondary conditions after SCI, psycho-social aspects of SCI, medical conditions after SCI, bladder and bowel management, sexuality and SCI, pain management and aging with SCI.
PIEOutcom
esEducational Programs Healthy Living Group - Healthy Living for Your Body &
Spirit Featured Topics: Nutrition, Music Therapy, Chronic Pain Management
Healthy Living Summer Series Online Educational Sessions Conferences
Services Resource Facilitation Brain Gym, 2x/month at SpoFit
50% of the
enrolled
participants
indicated
interest
in educational
classes.
Accident Avoidance Exercises
Skid Control
Barrow Connection Programs-Driving to Excel
Introduction to timed driving
Drive Safer with Hand
Controls
Barrow Connection Programs-Driving to Excel
• 157 participants
• 38 watercraft
• 150 volunteers
• Waterskiing
• Jet skiing
• Fishing
• Boat rides
• Kayaking
• Research
Barrow Connection ProgramsDayS on the Lake
•
Barrow Connection ProgramsDay on the Lake
Fundraising in a recession Employee givingGrantsFoundation involvement Fundraising events
Benefits includeDeveloping new partners-collaboration is
key! Exploring new programming Creativity is survival
Challenges & benefits with offering innovative programming
Collaboration between Barrow Connection and Western Washington University
Received Approval from the Barrow and Western Washington University Institutional Review Boards (IRBs) to conduct the project.
Research Project: Effects of Participation on Physical, Psychological, and Social Outcomes
Designing the Survey
Step 1
Conducted semi-structured interviews with a sub-set of participants.
• Participants discussed their experiences during and after event.
• We identified common themes as well as unique experiences.
Research Project: Methodology
Step 2
Wrote survey items.
Step 3
Administered the anonymous and confidential survey to Day on the Lake participants.
Research Project: Methodology
• Self-esteem & confidence• Positive emotions• Friends• Stress relief• Self-efficacy • Perceived abilities & attitudes after the event
• Family Relationships• Physical & health consequences
Research Project-focused areas
The REAL impact of access!
“It got me out of my shell and away fromthe TV!” Marc Askinazi
“It is so empowering!” Madilyn Stanton
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